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Latest Celiac Disease News & Research:
Everything posted by SMRI
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ARCHIVED Dumb Biopsy Question
SMRI replied to JHBurns's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd just call every day or two and see if they can get you in sooner--someone cancels--or ask if they have a waiting list. -
ARCHIVED First Out-Of-Town Trip Since Diagnosis. Big Girl Pants.
SMRI replied to C-Girl's topic in Coping with Celiac Disease
I plan as much as I can, but I could get a call today and have to leave tomorrow morning..or get a call this morning and have to leave this afternoon...I don't always have time. I have a small bag packed with some food that is safe now, but that is enough for a meal or two. I'll take a photo some time of the choices I have while traveling.... -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Made chicken breasts marinaded in Walden Farms Bacon Ranch dressing--gluten-free and NO calories . and then breaded with some bread crumbs I made from the ends of my Udi bread. Nummy. Hubs made cupcakes from a King Arthur (I think) box mix. They are a little dry but not bad. I got some Cream Cheese frosting to put on them. -
ARCHIVED I Think I Might Have Celiac Or Gluten Sensitivity...but
SMRI replied to Mileena's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Go back to eating gluten, ask for a Celiac panel to be run--all of the tests and see if you are or are not Celiac. If they won't run the tests, go to a private lab and ask for them to run the tests. That way you will know one way or another. The tests are not accurate if you are not eating gluten at the time. -
ARCHIVED How To Tell If Food Affects Child?
SMRI replied to TammyTE's topic in Parents, Friends and Loved Ones of Celiacs
Does she drink milk/eat dairy? That was a huge eczema trigger for my son--in conjunction with his asthma. I would have her checked for both asthma and lactose intolerance. This is also the kid that refuses to get tested for Celiac so he may or may not have that as well. -
ARCHIVED Please Help Me Understand My Test Results?
SMRI replied to Waitingindreams's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Anything over 20 is a strong positive, you were over 100, which is probably why they did not do the scope. My TT IgA came back at 35 and my TT IgG was at 65 for reference. I guess it depends on what your doctor recommends but I know I have to go back in 3 months for follow-up testing and then if the numbers look good then, follow-up at a year. If you feel... -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Went to the grocery store for milk and they had Nut Thins on sale so I got those, $2.50/box . Now that most of the new labels are on the shelves, It sure was quicker picking out foods today. I didn't get much but everything I picked up said Gluten Free right on the label. -
ARCHIVED Rice And Packaging Labels?
SMRI replied to TammyTE's topic in Gluten-Free Foods, Products, Shopping & Medications
You could also check with a food pantry or soup kitchen in your area to see if they would take the rice? -
ARCHIVED Please Consider Writing Target
SMRI replied to juliela's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for pointing out the date . Searching for updated Target info I found this... Open Original Shared Link handy...no idea what this center is though. Target online show a pretty extensive gluten-free selection of items only sold in stores now, a few of them are Archer Farms. With the new labeling laws, hopefully Archer Farms will catch up. I... -
ARCHIVED Please Help Me Understand My Test Results?
SMRI replied to Waitingindreams's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree, you hit markers, you are Celiac. Your TTIgA is very high. What is the plan for you now? -
ARCHIVED The Beginning - Good Enough Of A Diagnosis
SMRI replied to ezgoindude's topic in Coping with Celiac Disease
I have some weight I would gladly give you!!! -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Made pork chops and roasted potatoes. My son called the clinic back to ask about the testing--they told him they couldn't do the Celiac testing--um, then WHY did you do ANY tests??? -
ARCHIVED Updated Information On Washington Dc Restaurants?
SMRI replied to SMRI's topic in Traveling with Celiac Disease
Thanks for the suggestion!!! I LOVE Nutella and bananas!!!! -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I brought food to eat because I figured that they wouldn't have anything gluten-free--and we purposely arrived "after" lunch time so they wouldn't feel like they needed to make us anything--they sprung the going out to eat on us so I just did the best I could. I'll have to get some salad dressing packets though That is a good idea! I will pass... -
ARCHIVED This Doesn't Seem Like Celiac To Me
SMRI replied to Pagosapig's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did your doctor do the blood tests for celiac before you went gluten free? Having one of the genes is not enough to make a diagnosis! -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I suppose...she "thought" their thousand island was gluten-free...they had an Italian but no oil and vinegar option....small mom and pop place....great food...they have an amazing soup that I LOVE....but can't have any more.....hubs was getting a little perturbed ......we need to start celiac classes for him..... -
ARCHIVED Minneapolis Food Truck - Kabomelette - Everything Gluten Free
SMRI replied to Alex J's topic in Gluten-Free Restaurants
Nice find...do they just do the farmers market or are they around during the week too? -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Yesterday was interesting.....traveling, stopped to visit the in-laws...they decided that we would go out for lunch because she didn't know what I could eat...ok...restaurant not gluten-free or really gluten friendly. Ended up with a plain salad, no dressing because the waitress didn't know what was in the dressings and a steak that probably was ok. Then... -
ARCHIVED Could This Be Celiac?
SMRI replied to CooCooCachoo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's unlikely that just a couple hours of being gluten free is going to have any effect and while it's possible you have celiac, I would lean toward a reaction to the vaccine. Did you call your dr about your symptoms. -
ARCHIVED Endoscopy-What Does The Second Biopsy Really Mean?
SMRI replied to brighteyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My lab results listed several other possible causes for my intestinal damage but given I was positive on every lab test, they were pretty certain it was celiac. My daughter's labs and biopsy came back "normal" but they are attributing her symptoms to her immune issues.- 12 replies
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- continued symptoms
- endoscopy
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ARCHIVED Wildfire - Be Cautious Of gluten-free Menu
SMRI replied to nzsc's topic in Gluten-Free Restaurants
This is where the gluten-free fad diets hurt us. Sure, the ingredients are gluten-free, but CC is an issue for sure. Hopefully your question sparked the chef to look into things better. If this is a place you like to go, maybe call and make an appointment with the chef to talk about CC and gluten-free diets for those with Celiac. He may or may not be... -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Are you in the San Diego area ? -
The What's For Dinner Tonight Chat
SMRI replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Yikes....where are the ships going? -
ARCHIVED Abnormal Screening Mammogram...worried
SMRI replied to icelandgirl's topic in Coping with Celiac Disease
My friend that just had the same gets called back because of scar tissue from a needle biopsy done about 15 years ago. It was just a cyst . Prayers that your results are the same. -
ARCHIVED Labs Done This Morning...
SMRI replied to Mommabearof3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In my experience, all of the labs that are run on the same test come back together so the Free T4 would have come back with the TSH and even if it was flagged and not showing up with TSH in the normal range like that, your T4 isn't going to be abnormally high--it could still be out of range but chances of that being the only cause for your symptoms are slim...