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Donna,
What cruise lines have you had good luck on?
Thanks,
Michelle
I've only cruised with Princess. The first two cruises I didn't know about gluten yet, but I was eating an anti-yeast/candida diet, so it was low in that by default.
The third cruise was last December, and that was my first cruise gluten/casein free, so I was more concerned about hidden ingredients, etc. I eat fairly simply out of necessity (too many intolerances), so basically I stick to meats and veggies, and don't normall eat desserts anyway. While cruising, for my desserts, I usually just get fresh fruit. That all makes it a bit easier to stay well. Even at the buffet, I try to stick to that...usually getting the carved meat, but I always ask about coatings and seasonings for that.
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I've been following your journeys in alternative medicine but have been very reluctant to go this route myself. I already consider myself to be on the edge of wacky just by self-diagnosing celiac disease and doing Enterolab. Well, needs must. Conventional medicine doesn't have all the answers, that's for sure.
A year and a half ago, I wouldn't have considered "altnerative" medicine. But, conventional medicine did absolutely nothing to try to get to the cause of all this. A relatively healthy body just doesn't go haywire overnight. I'm finding what's working for me now is having doctors who are willing to think outside the traditional medicine box. I see two MDs, but both use more target lab testing to find results. The main doctor is an LLMD (lyme literate MD) who has tested me for a bunch of stuff. He knows both of the "alternative" practitioners I see and takes their findings into consideration but also follows up with appropriate lab testing. So far the alternative stuff has been right on and has been confirmed by blood or other lab testing.
How and where did you have your neurotransmitter test done? I think that would be really interesting for me to have done. I have brain fog all the time now. I am unmotivated, etc. Has anyone seen Jin?It was at the health clinic I go to (the chiropractor/physical therapy, internist, nutritionist). They ordered it to find out what's going on in my brain that I can't sleep. I think my BioSET lady also has the tests...she carries the supplements of the company that the lab partners with. The clinic is in Sunnyvale.
I've seen Jin posting in the the "tickle me" thread, but didn't see any for her yesterday (at least not before I shut off my computer).
I give everyone here lots of credit for taking charge of their health and searching for the answers.Yes, a determined lot we are, but I'm not sure I would have even thought about searching had I not come to this site and this thread and seeing that you were getting answers using "outside the box" stuff.
Update on the detox bath: Last night did one with about 1/3 cup of the salts. Still notice that symptoms are activated somewhat, didn't use the spirulena but did use charcoal afterward. Will try again tomorrow along with the spirulena and see what happens.Wow, that seems like a small amount...kind of nice to know it's working though, lol.
For anyone interested in high quality goat whey protein and/or minerals this is the one I plan on taking.Anna sells this brand...saw it yesterday. I can't seem to do the goat whey either.
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Thanks for the info...I'll be in Cabo in a couple of weeks. I''ll be on a cruise so will only be in port a few hours, but this info is great to have just in case my friends wants to eat in port!
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Well, I started my low oxalate diet today...so far so good.
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Thanks Patti! I still have my appendix...maybe that's why I'm not in worse shape than I could be, lol.
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Porno ad???? Huh? Did I miss something?
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Had a BioSET appointment today...we did 3 or 4 full panels of allergies. Not surprisingly my big glass was overflowing and had to have a second glass for the vials. She had a glass vase on her desk and I joked (sort of in the middle of the testing) and asked if that was for people like me who have really full glasses...didn't realize I might really NEED it, lol.
The really bad part is that these are affecting so many things that my list went off the computer screen page. I've NEVER had that happen before. I've had a full list, but never had it scroll to another page, lol. She sounded astonished at the whole thing.
So more allergies next week, and I have to do the bowls of water thing that Rachel did a few months ago. I meant to bring that with me today but completely forgot about it until yesterday, and then couldn't remember how long I was supposed to leave the bowls out. So I got the scoop today and will do it this week and take it in next weekend. They'll be testing to see if my environment is an allergen.
She also retested my neurotransmitters since my report was so off balance.
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Okay, here's the info on the neurotransmitters:
Neurotransmitters are the chemical part of your body
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I'm looking for advice.
Well, since I'm late to the party and you've already received great info, I'll just say hi! HI!
One other thing, does anyone know why I would have really dark brown, almost black stools?I have been really bloated (even while I was on my crazy, strict diet) and I noticed my stools have been REALLY dark brown. What is going on NOW??
I get this from time to time too...haven't figured out why sometimes it's almost black and sometimes it's really light. I DO think food is a major contributor in my case.
Interesting that I have been able to cut back on both Vit C and magnesium. I'm doing about 4000-5000 mg ascorbic acid, and 750 mg magnesium. That's less than half the mag I was taking mid summer, and at least a third less Vit C. So I think this is likely further confirmation of celiac and gradual gut healing.Great that you have been able to cut back!
I had a really interesting appt. yesturday with my doctor. Its the first "real" appt. we had in a long time. We went over everything All the tests i have had done since I first started to see him, all my symptoms, etc.Well I won't go over everthing but we talked about the main things I need to address right now- Parasites, metals and my weakened immune system (which showed up one some tests)
Oh Mia, I agree with Rachel, you're posts are so wonderful to read lately! Sounds like a really good plan!
OMG I took a test this morning that shows I'm pregnant.CONGRATULATIONS!!!
BTW, I put a picture of my house up on my personal page for a few hours. We were talking about my new kitchen on the funnies thread.LOVE the house!!
Pau D'Arco tea, definitely a bowel mover. In that link I posted a couple pages back it said that it does move the bowels without causing D, so if anyone needs help in that area Pau D'Arco tea might be something to try.Hum, I think the Vitamin D I've been taking has pushed me towards the C side...maybe I'll go back to my Pau D'Arco, lol.
I think I'll go back and buy the little pot. I have some Himalayan salt so I can try it with that.My WF had three or four different colors I think....not a pink one in sight!
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Hey Ryan! I've been on three cruises so far and about to leave on my fourth. I didn't know about the gluten issue on my first two cruises, but on the last cruise I checked gluten free on my pre-cruise information, and was advised to talk to the Maitre'D once on board, which I did. I actually didn't have any problems, except one time at the buffet, I took some sliced beef which had some kind of coating on it. My fault, I should have known better and fortunately I didn't eat a lot of it (it was like an appetizer and I just took a couple of small slices).
My friend likes to eat at the buffet, so we did that regularly and I'd advise to be very careful, but I was willing to take the risk. One of the chefs noticed me staring at different things and asking for ingredients. He kindly took it upon himself to watch out for me every time I came through. Once he even went back and made me a special dinner because there wasn't anything I could eat that was safe. All other times he'd point out which dishes were safe and which weren't.
The dining room was the easiest of course. The head waiter was also very "protective", lol. I ordered a baked potato with no butter or sour cream and the assistant waiter forgot and put butter. The head guy made him take it back...I never had to say a word, lol.
I ALWAYS take supplemental foods just in case. I take nut butter, nutrition bars, nuts, and this time I'm going to try packing a small cooler in my checked bag with sliced turkey meat. Keep in mind that in some ports you won't be allowed to take food off the ship that isn't factory sealed...I took some nuts in a small ziplock bag, and was told that that wasn't acceptable...they had to be in the factory bag and sealed. No one searched my bag, and if I hadn't asked I'm sure no one would have noticed, but if for some reason you are searched at the port and they find it you CAN be fined I believe. So this time I'm taking small bags of nuts, and of course the nutrition bars are factory sealed so they are okay.
Have a great time!!! I always do. Where are you going? I leave at the end of this month to the Mexican Riviera. So far on my cruises I've been to the Caribbean, Western Europe, Panama Canal, and now the Mexican Riviera.
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unless i didn't get the full picture from the chiro...i thought they where to be taken togther and thought that's what the chiro meant.
guess she meant that "taking together canceled them out' separte was ok.
I guess the magnesium agrees with you and doesn't give you 'd' right?
Well, everything seems to give me D, lol.
But I didn't notice any big change when I started taking the magnesium except when I took too much.
I did specifically say to her that I'd always heard and been told to take calcium and magnesium together, and she still wants me to take the calcium in the morning and the magnesium in the evening. She DID say though that calcium tends to constipate and magnesium tends to loosen things up.
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I've tried taking a few different brands of EFAs (essential fatty acids) and fish oils and haven't tolerated any of them (also tried Flax seed oil and meal and hemp for some Omega 3s with no luck in the tolerance department)...I'm wondering if the cod liver would do any better for me?
Just thinking in cyberspace.
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Judy, I just had an appointment today with a doctor to go over my neurotransmitter tests, and she was asking me about calcium and magnesium. I told her I've been taking them separately (as in separate supplements), but at the same time. She told me they actually sort of cancel each other out in a way and she wants me to take my calcium in the morning and the magnesium in the evening. Still a recommended 2:1 ratio, but said I should try calcium in the morning. If you can't tolerate them together maybe taking them separately will work for you.
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I'm so very sorry!!! What sad news.
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Okay, got my results and as expected my brain is whacked, lol.
Cortisol was within range
Melatonin was WAY low at 10.6 (range 25-60)
Epinephrine was too high at 5.8 (range 1-3)
Norepinephrine low at 17.4 (range 20-30)
Serotonin was within range
Glycine was WAY high at 768.9 (range 150-350)
GABA was very high at 14.2 (range 1-3)
Glutamate was high at 31.0 (range 8-20)
PEA was within range
Histamine was within range
Creatinine was 43.6, but no reference ranges were given
So, doc recommends cutting back on the 5-HTP since my serotonin was okay and it can elevate some of these other things.
She also wants me to get a sublingual melatonin to see if that will work better.
I get to take a supplement (targeted amino acids) that the lab recommends...have to order that.
They gave me a nice little brochure which explains neurotransmitters and what they do, so if anyone is interested I can type that up and post it. In fact, maybe I'll just do that anyway just for the heck of it, lol.
I also had a chiropractic adjustment, traction, and the PT guy spent about 20 minutes on my back. They want me to come back Monday, and will probably have to go in a few times week until the back is completely clear.
Kassandra - funny how one brain fogged person can nearly always understand another.
Rachel - the keto sounds interesting...I sort of remember that from last year, but don't really remember much. Thanks for posting for Lisa!
Janet - WOW your son has been through a lot...I'm so glad he's doing well. I was diagnosed by Enterolab with gluten intolerance, and I also did their gene test, and do have a celiac gene. I'm pretty certain I have celiac. I've been plagued with a lot of infections the last couple of years, but my core temperature is so low I don't tend to get fevers.
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Strangely, multiple strangers have said I looked like Woody Harrelson, tho that's when I'm less underweight than now.
Now that you mention it...you DO look a little like a very skinny Woody!
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Mine was also just tested and found to be below optimal. They're having me take a vitamin D3 supplement with 50,000 IU of Vitamin D3...I'm taking one of those a day for a month...don't know what happens after that though, I need to ask tomorrow. She said the idea behind the megadose is to "flood the receptors" whatever that means. I don't think I could get that much with just food alone. You might call your doctor and ask about the best way to get it.
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I (hopefully) get my results today from the neurotransmitter test. I have to go in early though...Dr. Rick is referring me to another doctor (she's new) in their practice who, I guess, has more experience with this. Apparently there are some things that are "off" (gee, something off in my brain, who could've guessed...bet any of my friends could have said that, lol). She only works in the mornings though, so I'll have to leave at 11:20...tried calling my boss right after I hung up with them but got her voicemail, so I'm hoping she'll let me go.
My co-worker has been out sick since Tuesday.
I'll see the chiro/PT after I see this other doctor. I'm thinking more traction is in my future today, lol.
I started drinking Pau D'Arco tea again, after a many year hiatusIt really moves the bowels
Was wondering how much is recommended to drink?? I am just doing tea bags so I drink one cup in the am and one cup in the pm.
I found some great info about it:
...
Does anyone still talk to Celia? I was trying to think of some of the regulars that have disappeared, and often wonder how they are feeling and what they are doing with treatments, supplements, etc.
I drink it. I buy the Traditional Medicinal brand and the instructions say you can have 1-4 cups per day for six weeks then it suggests taking a 4 week break. I think it also says to let it steep for at least 10 minutes. I'm currently on my break, but am thinking of starting it up again.
I was just thinking of Celia the other day...sad to hear about the divorce, she must be devastated indeed.
In a normal body response we are exposed to viri (or bacteria, something like that) and the body processes it, symptoms appear, and then it is resolved. In a higher stage of disease this does not happen, we are exposed to the viri and symptoms do not appear, and it does not resolve itself....
Just curious, sort of a poll
who here never/rarely comes down with a cold or flu when exposed?
I've heard this too.
I rarely catch things anymore unless I drink out of someone's cup or get sneezed on directly or something. My friend is always sick but I don't catch it. She says it's a cold, but I often think she is having some of the issues I was having with my sinuses.
I have been staying up really late studying which my body doesn't like at all!!! I went to put my jeans on this morning and thank goodness I was standing next to my bed because I got this shooting pain down my back and then down my leg. I had to fall onto my bed!It was oh so painful at 5.30 this morning!
OMGOSH Kassandra! I feel so bad for you! You will probably be just fine with the titanium and it's only temporary. One thing that I'm sure my doctor would say, is that severe pain can stress your immune system as much as many other things. That was one of the first things he wanted to address to help my fatigued adrenals. The more stress you can take off of your body the better it can work, so taking care of the pain will help in lots of ways, and even if you happen to be sensitive to the Ti, your body may be more able to deal with it if you aren't in constant pain. Did that make sense?! I feel like I'm rambling today.
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I also live just down the street from the Winchester Mystery House....freaky looking place, but didn't feel especially weird walking through it, lol.
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Oh, for anyone whos interested...I got my CT scan results. As predicted everything was normal.
I'm always interested in test results. I think I've had three CT scans of my sinuses...all were normal. Well, except one time...there was some little barely there fuzzy thing up in one corner. The doc is saying that it all looked clear and then said, "well, there's this, but I don't think that's anything to worry about."
Never did find out what that was, but had another CT scan after it and it was indeed clear.
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Okay found this on partials:
How do you wear a removable partial denture?
Removable partial dentures usually consist of replacement teeth attached to pink or gum-colored plastic bases, which are connected by metal framework. Removable partial dentures attach to your natural teeth with metal clasps or devices called precision attachments. Precision attachments are generally more esthetic than metal clasps and they are nearly invisible. Crowns on your natural teeth may improve the fit of a removable partial denture and they are usually required with attachments. Dentures with precision attachments generally cost more than those with metal clasps. Consult with your dentist to find out which type is right for you.
from here Open Original Shared Link
Here are some pictures:
Open Original Shared Link
Open Original Shared Link
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Thanks for the update on the family Andrea...was wondering how the kids were doing.
The titanium earrings were kind like cheapy stuff...the metal was very lightweight and sort of "rainbowish". They were drops with earwires (as opposed to posts).
Now I dont know what to put there to fill that gap. Someone mentioned a "partial" to me before....does anyone know what that is??My dad had partials...I don't know if I ever saw his though, lol. I think it's kind of like false teeth, but they're just a tooth or two at a time. I know here could take his in and out.
If I eat the wrong foods and start to feel worse....it never fails that I start having problems with my gold earrings. Besides the itching/oozing my earlobe ends up turing BLACK around the earring!Mine don't turn black, but they hurt like heck and itch/ooze...I also get cysts in the holes. That will even happen with good gold now too.
I miss my earrings. I can still wear bracelets as long as the weather isn't too hot and the bracelet is loose enough. I can't wear necklaces anymore either...starts feeling like my neck is all scratched up after just a short time.
Funny story-- when we had overnight houseguests, imagine the sound of the springs on the crib, along with the banging noise. We would be mortified, and felt we had to explain all the noise in the morning:lol: !!!!
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Grrrr on the clueless doctors, lol. Glad you've got a good one now.
Move? Not my home, but just moved at my office.
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I watch it, lol. Haven't seen the episode from last night because I go to bed early for work purposes, but I've got it recorded and will watch it later. I generally don't get freaked out about it though...I feel pretty well protected against stuff like that.
gluten-free On Cruises
in Traveling with Celiac Disease
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[sorry, had trigger finger and got a double post]