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Why do i have really awesome days and really bad days. This is driving me nuts. I have done more today then i have done in a week. Im really thinking it is correlating to my menstraul cycle. if it is would this be a a good indicator of adrenal fatigue. Or is it i become so much more anemic when its that time of the month. Maybe i need to take my iron pills again lol But i hate the pills. It makes me have more "c" then i already have.
Or, something my friend and I were "chatting" about today...she and I both do the same thing. We feel really good, so we do things...lots of things...probably too many things and bad days follow. She and I are both trying to figure out that fine line between doing stuff, but not doing too much. It's easy to do more when you feel good, but I think sometimes we try to do too much.
Yeah....lets just all pack up and go. How fun it would be!My friend said they dont have Penta water though. Eeeeek.
How will I survive??
I love to travel, but Germany is one of the places I REALLY want to visit someday...it WOULD be fun if we could all go! Who knows, they may have even better water over there.
Everyone,
At 53 years old I got scolded, lol. My mother has been calling every morning to check on me and she comes over 2-3 days a week to take out my garbage and get my mail. Her next "scheduled" day to come was Tuesday. So this morning I was feeling really good, my foot didn't hurt, I was finished showering, finished with breakfast and just sitting around with my foot over my head and it was only 7:00 am. My mom usually calls around 8:00 so I decided to go try to get my mail myself. I dusted off my crutches, had the key in the lock and the phone rang. It was mom...a whole hour earlier than normal. Mom said she and my aunt decided to go to breakfast at a restaurant down the street from me so they would come today. I told mom about my near adventure and that it must have been meant for me NOT to go get the mail.
This goes back to that doing too much stuff. Yeah, I got scolded.
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I was wondering if anyone feels a difference between B12 injections versus B12 orally?
I didn't have side effects to either the oral or injections. I can't say whether I noticed any difference either. I was taking so many other things, that I can't often pin what is doing what. I know on the days I gave myself the injections I did feel better in general, but not sure that wasn't just a placebo thing, lol. I DO know that it was REALLY hard to give myself the injections. It's not even that it hurt or anything because it really didn't...just some burning when it was injected, but it was just the actual act of injection that bothered me.
I think parasites and other beasties are a huge part of it too. Some people cant gain or they cant lose until they get rid of the parasites or yeast or whatever other bug they might have.Yeah, pretty sure I still have a tonage of parasites. My bowels have been VERY noisy lately.
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Meanwhile, I met someone recently who is divorcing and will need a roomie. If I can find a way to make income, we can share expenses. This person also found an LLMD that is much less expensive for me to check out.
I will let you know if any of this works out. Keep your fingers crossed! The nanny position would not work out due to my cousin and his wife not being able to afford it.
Keeping my fingers crossed that this will work out for you!
My friend is not extremely overweight. I think she can lose weight without doing this...it might not be easy but I dont think its totally out of reach. The only pain she's mentioned is her feet. She said the weight is a factor in that. She has 3 kids (including a two yr. old) so she feels she doesnt have enough free time to really work at this....
Donna, I told her if she decides to do it I'd support her decision 100%. Its her decision....I just want her to research it alot first. She needs to be a google expert before she makes the decision...thats all I ask.
Yeah, really, I think this should be a last resort type of thing.
I can certainly relate to any frustration she may feel. I'm having a definite problem with my weight now, but fortunately I'm holding at 15 pounds overweight. No matter what I try, though, it doesn't want to budge. Part of it is because I can't exercise as much as I need to in order to control my weight...until I correct whatever metabolic issue is causing all this the exercise is the only thing that keeps me in the proper range. Once all the neurotransmitter stuff is back in balance and the ampulla thing is taken care of, I think my weight will come back off. In my case cutting out gluten was when I started gaining the weight, lol.
Am I being totally unrealistic? I know life gets stressful and its hard with 3 kids, etc....but it can done this way...right??I'm not overweight so I may be underestimating how difficult it can be to deal with this.
When mine was slow, I restricted my calorie intake to less than 1,200 daily, walked briskly for 20 minutes, on top of taking in fewer than 30 grams of fat per day, and actually would gain weight! I wanted to cry when my PCP blamed me for it. Doctors are incredibly insensitive. Blaming the patient never helps. Overlooking the need to find the cause as you addressed is another important point. Hormonal problems particularly are often the contributing factor in weight issues.Well, I do know that it's not always as simple as it seems. For me there are a lot of things that contribute. I hear people say that "you just have to burn more calories than you take in". Well for me that wasn't exactly true...the type of calories made more of a difference than how many. Most people would argue with me, but with all other things being equal (i.e., exercise), I can eat 2000 calories a day and lose weight if I eat the right foods. I can gain weight on 1500 calories a day if I eat the wrong stuff. It all depends on what my body can metabolize, how much inflamation the food causes, etc.
I'm really leaning towards going. Money is not an issue (I have a "sponsor"). It does look beautiful and Morgan will be in Spain that semester, so I can also go visit her ... and she can visit me. She will be in Seville, which is very warm ... right now it's about 100 every day.
OMGosh, I SOOOOO think you should go!
Just wanted to pop in...Glad you did! Be a good girl though...sit far away from the computer, lol.
REALLY good news is that I found out tonight that my daughter has gone gluten-free! I knew she had a positive IGA through Enterolab, negative blood tests. I am hoping that she'll lose weight like I did as that has been a struggle for her.Yay!!!
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Have u heard back about the ampulla yet?
Nope, not yet. I may call on Monday or Tuesday and see if the results are in.
Hey peeps....where has Julie been??I got an email from her yesterday. I think she's feeling okay just not posting much.
This is good....and its something I can go over with the new Dr. on Wednesday.Yeah, get him really familiar with the test so that by the time I get around to seeing him he'll know all about it!
Who knows anything about Gastric Bypass Surgery??I know there are some threads about it and I'm gonna look those up....but does anyone here know anyone who's done it?? Anyone familar with this at all? Opinions?
One of my co-workers was going to have this done. I don't know much about it, but she told me a little bit about it. It sounds very complicated and it has a fairly high risk factor I think. SHe was extremely overweight though, and no matter what diet she went on she couldn't lose weight. She had joint pain so badly that she had to use a cane to walk, and the weight was a contributing factor. I don't know what happened though because she got laid off, then found out she had cancer so had to have surgery and treatment for that, so I think the GBS got put off. I do think she is still planning to have it though. I'm sure your friend knows about all the risks, so being supportive and understanding is probably all you can do...it IS a serious surgery though. Another man in our choir was going to have it to, but I think he finally decided against it.
I've seen some health shows on TV about this too...some of the people have had life changing (positive) experiences with it. Some have eventually gained most of the weight back.
I just wanted to say thanks. Your posts are an inspiration to me.I'm not Rachel, but just wanted to welcome you to our little thread!
I hope your being good and staying on your buttYep, and I've got the numb butt to prove it!
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Andrea, I'm not sure that Scott is actually doing this anymore. He's pretty busy with alot of things. If Donna is still seeing him then I guess that he's still testing people. I was under the impression that Donna hasnt seem him in a long time.
It cant hurt to ask....but as far as I know he's not doing this on a regular basis right now. In the beginning I think he was just trying to get some experience/practice. He's not a practitioner...yet.
Yeah, I haven't seen him in over a year for ART. I think June of last year was the last time I saw him for that. I saw him plenty of times in the waiting room though, lol. Emailing him is a pretty good idea.
Everyone,
Well just got back a while ago from my post-op appointment. The doc says everything looks good but he wants me to continue to rest and elevate for at least two more weeks. I can't wear a regular shoe yet, so that means I can't drive either. (I went out to start my car this morning and couldn't feel the pedals, so yeah, no driving with this thing on, and he's worried that if I have to slam on the brakes I'll injure my foot.) Basically, he wants me to continue what I've been doing. I've got a lovely picture of my xray...there are three pins...two in one cut and one in the other cut in the bone. The good news is that on Monday I can actually put my foot in the shower, lol. I've been sitting on a bench with a hand-held showerhead with my right foot propped up on the side of the tub with the shower curtain wrapped around it so it doesn't get wet. It will be heaven to actually get my foot wet!
I'll have to rebandage it after the shower though.
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Thanks Rachel...got the email!
Carla, I've saved a copy of your article and bookmarked the website.
I haven't read anything yet, but I'm interested in both of these, lol.
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A Donna sighting!
How's the foot?
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Who all is on a low grain / low sugar diet. I know it doesn't have to be a candida diet.....but what do you eat? I really need to figure out if we can afford to eat any healthier. The kids love fruit, but not so many veggies....and they are grain lovers.
The foot is doing pretty good. I think my main pain is coming from the fact that the bandage is on there really tight...even so, there really isn't much pain which is great.
I'm low grain, low sugar. I'm not really following an anticandida diet though either. I had a protein type shake this morning for breakfast where I add egg white protein powder, pectasol (modified citrus pectin which adds fiber as well as being a binder), some stevia, some of my liquid supplements and about a tablespoon of agave nectar. I usually put in some pure cocoa powder, but I really should be putting in some low sugar fruit instead. Lunch was some chicken, about 1/2 cup rice and some fresh tomatoe. Right now I'm having some "chili"...ground turkey thigh meat with some diced tomatoes and a handful of black beans. Later on I'll have a snack which might be an apple with cashew butter or a nutrition bar with cashew butter.
One thing I had yesterday was some sliced turkey I get from Whole Foods with no ingredients except turkey, some sliced tomatoes (my mom brought me three nice ripe tomatoes from her neighbor's garden) and some bacon (I know, I know, lol)...just rolled that up.
I've been eating more rice since I had the surgery just because I needed something really bland, and that was all that sounded good, but usually I don't eat many grains...even this last week I only had 1/2 cup a day though. (Plus the 5 bags of brown rice chips, lol...those have corn in them too...started getting ear aches a couple of days ago, which have cleared up since I've stopped the chips!)
I'm not totally sure if thats an accurate assessment because I just glanced at it. I'll post more details later. If anyone wants the document I can email it....just let me know.I'd be interested for sure!
I cant decide if i should do the scd diet or an candida diet. Or if i should break down and start the humaworm, Or if i should experiment and take my enzymes. Im so lost and cofused.The one thing about both of those diets...they can't hurt you and may actually help even if you ended up doing other things.
Does anyone here eat oatmeal? Is there a specific kind that is gluten free...like steel cut oats or something?What are your guys' thoughts? I'm running out of ideas for fattening breakfasts (I know oatmeal isn't, but I can make it fattening).
I SOOOOO miss oatmeal...I totally love it!!!! I stopped eating it about two years ago, mostly because of the gluten thing, but iit has shown up on every single type of testing I've ever had as being bad. It came up on a conventional allergy test, and every BioSET test, etc. I'm tempted to try it because I'm fairly certain I don't have a true allergy...I'm not going to die from it, but I'm not sure how much it will set me back. Before I found out about the gluten issue I was eating McCain's steel cut oats and really love them. I'm also not certain that they are certified gluten free though...
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It was nice to see you post. You better listen to your mom and do what she says lol
I'm trying, lol. I'm so bored I'm willing to put up with a numb butt sitting in a V position to post here, lol.
Hope your son's condition is nothing serious. The bloodwork may not be anything serious, but may just indicate that things aren't ideal.
I will see her again on Thursday and she is going to test all kinds of things such as heavy metals, my environment, toxins, etc. Hopefully that will shed some more light with what is going on. I also hope Dr H calls me back soon so I can come up with a game plan.I have to echo that the muscle testing I've had was very accurate for me and I was somewhat skeptical going into the testing. I saw that Rachel was getting answers and decided it really couldn't hurt to try it, and so far it has been very accurate, but like someone else (was it Rachel, lol) said, things can change from one session to the next.
Did anyone hear about the 5.8 earthquake in Chino!? They felt it all the way in Las Vegas and San Diego! I'm not too far from the epicenter and OMG it was SO SCARY!!! I thought everything was about to start flying, LOL!Luckily there was no damage to my mom or I, but most buildings in downtown LA were evacuated. It was SO scary.
I've been hearing about it. They've stepped up the "what to do in an earthquake" messages here now.
I agree with that but I think that the people with carb problems are more likely to have dysbiosis. They have an imbalance in the gut microbes which leads to fermentation. I think the main purpose of the SCD is to try to restore balance in the gut by restricting the foods which feed the bad bacteria/yeast.I definitely have a carb problem and definitely have dysbiosis, lol. The SCD didn't help me much though...it helped only slightly so I didn't continue it.
For those interested......T did very well on her test today. The testor was amazed at her reading level....although he did say not to put alot of stock in the grade equivalent.Woohoo, congratulations T!!!
Potato chips were always a great food for me, LOL. They were a great help for an upset stomach. I remember a thread on LN where there were several of us who used them that way.Yeah, the only thing I wanted to eat last week was Lundberg Rice Chips in the Sea Salt flavor (and bananas). That seemed to settle my stomach. I went through 5 bags!!! I was able to also eat some white rice though, but only if it had lots of salt on it, lol. My mom was going to bring me more bags yesterday but I told her she'd better cut me off cuz my stomach isn't upset anymore.
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For those of you that were genetically tested, what lab testing did you use?
I just used Enterolab. I think with the gene testing it's probably pretty accurate as far as what genes...I think the main question is how he applies that to what they mean. Does that make sense, lol. According to him, I have one of the main genes associated with Celiac and one gluten sensitivity gene.
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I know you can be mischievious (I'm thinking about the picture of you with the birdcage) so hopefully you're not causing your mom too much trouble.
Not too much.
I mentioned today again about getting my own mail and she nearly had a breakdown.
She's afraid I'm going to fall.
Quick question. Looks like I'm going to try the Humaworm product that you all have spoken so glowingly of.I know that Carla and I think Donna at the least have tried it but don't remember who else has. Anyone had any adverse reactions or lost weight or anything from it?
I only had some mild issues in the very beginning. I hardly remember what they were now, so they weren't bad. I think I had a little reflux issues, but those went away. Other than that I had no adverse reactions and definitely no weight loss, lol.
Talking about my mold. I was so pissed off yesterday.Aw Paula...it just keeps coming...I'm so sorry! Sorry about your step-son too!
Do any of you feel normal at times like your not sick but you are really toxic?Oh yeah. I've felt toxic all this week from all the meds they gave me last week.
Well, it's not stressing me .... or hard to read .... it's just different .... I notice because of my ocd tendencies.I hardly noticed...maybe not being around for a while before the change helped, lol.
Only problem is that he's in the same office as Dr. S.I figure being a Gemini (twins) and all....one of my personalities can see Dr. S.....and the other (more dominant twin) will be seeing Dr. P.Thats how I'm looking at it....but I was just worried about hurt feelings or something. I would hate for it to be taken in a bad way because I really do like the Dr.Let me know how you like Dr. P if you decide to see him. I've actually been thinking about the same thing since my last appointment with Dr. S. He basically turned me loose anyway, so I've been thinking of finding someone who will be more involved as well. I need someone to do that for me...I can hardly remember anything these days, so I'm needing someone to take that interest. I still love Dr S, but think I need something a little more. In my case though I'm not sure I would continue with Dr. S if I could get what I need from someone else.
I'm really frustrated.I realized today that I'm really ready to move on in my life, and NOT be sick anymore!
I want to get a job, I want to go off to college, I want to do all the "normal" teenage stuff, and it's not going to happen the "normal" way...AT ALL!
Perfectly normal and natural to be frustrated! Heck I feel that way NOW and I've had all my teenage years. I still feel like I'm missing out on life sometimes and it frustrates me because there is so much I want to do.
April,
Hope you get some clear answers re your daughter soon!
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I've got cabin fever, lol!
And, my mom won't let me go out and play!!!
Thanks for all the well wishes.
Still don't have the energy or the comfort level to catch up on what I've missed, but did see a question that Julie posted...
Julie, if it's precancer they will have to take it out. My doctor told me that two years ago and he mentioned it again on Monday when we chatted. What I don't know is how extensive the operation is--as far as I know there are only two ways they address this.
There is one that only removes the growth...that doesn't sound too bad. The other one is very extensive and sounds really scarey. They do that second one two ways...laprascopically and by open surgery...in either case as well as with the first surgery, it is only done by specialists who do lots of these operations. My doctor cannot do it and I'd likely have to travel. Two years ago my doctor said that there were no centers "locally". I'm not sure what he considered local though...it looks like Stanford does them, so I'm hoping I could have it there if it comes to that. My mom would have a hard time traveling if I had to do that.
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Hello everyone! I
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Nancy...yeah, kind of like an anniversary party, lol!
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Thanks for the link. How do I get to thread when I just log on?
On the main forum page look for a section called:
"Other Food Intolerance and Leaky Gut Issues"
Click on that and look for the lyme thread.
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You mean you ate more than 2 king size milky ways and a half a can of whip cream that was sprayed directly into my mouth? And I got high from the nitrous oxide?
Um yep...try 6 Hershey's Special Dark with Almonds Nuggets, 2 mocha creamers and a huge chocolate chip gluten/dairy free cookie. I did not get high though...that might have made the queasies easier to take. Note to self: spray nitrous oxide into mouth first!
Donna, sorry you are having to wait for your results, it must be very hard to have this all hanging.Yeah, kind of like lugging around a huge anvil on my back, lol.
So I'll be gone the weekend of Aug 9/10. We'll be staying at the beach so I'll be in heaven for the night we are there. I love the ocean and find the waves soothing......I just like listening to the water, even streams or rivers. About 10-12 years ago I used to get off work, round up the boys (stepsons) and Mitch and make a mad dash to the coast to watch the sunset......1 1/2 hour drive one way. We'd stay for the sunset....bout 1/2 hour and head back home.This sounds heavenly alright!!!!
Well...."technically" it was brownies....I guess I thought it was cake for some reason.Anyways, yeah....totally yummy with caramel spread on top. I'm telling you.....the yeast just LOVE me right now.
Brownies! Even better than chocolate cake...I like mine with cashew butter on them.
Well I hope you at least enjoyed every bite before you got to the point of feeling sick!Almost...the sick part came on the last Hershey's nugget, but yet I continued on to eat the cookie a little while later.
I'm scared. I'm almost maxed out!33% warning. Anyone else?
Nope I think you're alone in this, lol!
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Woo hoo trading has begun!
If I hadn't already sent Andrea some stuff I might have gotten in the action, lol.
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Good luck reading Paula, lol. It was a funny time in Rachelville back then...hope it all still makes sense.
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Has anyone used IGENX and tested Negative???
Does everyone who tests with IGENX come up positive???
I have heard of people testing negative
Are there false negatives??
False positives??
I think it's possible, but if Igenix is used it is less likely...the problems usually come from the doctor's interpretation of the report
What is the best test to order???
My doctor ordered both western blots (IgG and IgM)
How long does it take for results??
I think mine took 2 weeks...maybe 3
If you have been Dx Lyme, what has been your treatment?? Is it working??
I've been on herbals and supplements because my doctor thought my body would be overwhelmed by aggressive treatments, and he was right, lol
Carla is our residence expert, but she's got somewhat limited Internet access so may not see this for a while. You can also ask this on lymenet . org
I'm feeling significantly better since beginning treatment even though it is herbal and supplements, but I've got a lot of other stuff going on with the lyme so it's not going quickly. There is a lyme thread in the leaky gut section you can check for information and lymenet is also good.
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Don't get me started! I haven't had chocolate in like 60 days, OMG talk about torture!!!!!
Ha, I ate enough for BOTH of us and most of this thread too yesterday. Made myself SICK as a dog, which didn't help me get any sleep last night!
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I'd LOVE some chocolate cake right now!
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I'm saying prayers for everything to turn out ok.
Thanks!!
So yeah....I watched the whole thing...never once letting go of my chocolate cake.Hey, if you gotta go, might as well go with chocolate cake...I can't think of a better way to go!
Julie....I dunno why but for some reason the mention of "Cops" in this thread made me think of you.I dont know if any of them were "hot" though. All of my attention was focused on the drama.
Oh my...good happy memories, lol, I need that today!
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Nancy, you can find the lyme thread in the same category as this thread (Leaky Gut), but here is a link to the last page:
Open Original Shared Link
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Thank you for the positive thoughts!!!
Do you know what they'll want to do if it's precancerous?If it's precancerous they will probably have to take the ampulla out. That would involve a specialty place that does this type of surgery often...it's kind of rare. Of course, lol.
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Okay I just heard from my GI's office...
My ampulla biopsy was ruled benign, but the cells showed some signs of precancerous changes. The doctor has sent the slides out for a second opinion and those results aren't back yet.
Sheesh, why can't anything be easy or cut and dry, lol. This is about what happened two years ago only it was the first lab who said it was okay...the second was the one who thought it was precancer.
So...still waiting.
Omg...i Might Be On To Something
in Food Intolerance & Leaky Gut
Posted
I saw it...I didn't think it was too bad...not the best movie I've ever seen, but also not the worst...
I want to see all of those. I have the Notebook but haven't watched it yet. I thought I MIGHT get around to it while I'm home recouperating, lol, but no...I'm too lazy to pop the movie in.
Yeah, arrogance or maybe just ignorance (or lack of thought)...I can see that when I travel. Some of the things I hear my fellow Americans say whilst on vacation really surprises me, lol. I don't blame you for not trusting that particular NP, lol.
Yep, I would have said all together as well.
Everyone,
Today's adventure...shower.
My doctor gave me the okay to shower today, lol. So I did. I unwrapped my foot and then decided I didn't feel particularly sure-footed, so sat on my bench and still used the hand-held nozzle, but it was HEAVEN to not have to prop my foot up on the side of the tub...I actually got it wet and that was wonderful. I wrapped it back up when done, but now my foot is achey. I may have to take a Tylenol in a little while. I'm pretty sure I don't have the bandage too tight and I think I've got it wrapped up the way he showed me, so it may be because I bumped my toe when getting OUT of the tub, lol.
Yeah, I bumped it. It didn't hurt really bad, but I did feel it, and it's ached since then. 
My foot still looks a bit swollen...my toes look like little sausages, lol.
The incision looks pretty bad, but there is steristrips over it so there is blood trapped underneath it. The tape should fall off in a few days and it will probably look a bunch better at that point.
I've been itching to paint again. I haven't painted in about 3 years because the chemicals really bothered me, but I think I may drag out some watercolors or acrylic and just play around. For those that don't know, I used to paint...as in oil paint, like landscapes, etc. I was never very good, but it was fun and it was very therapeutic.