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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Sarah, welcome to the forum! I agree with @trents and @GFinDC, the time to do Celiac panel blood tests is now before his antibodies decline. The symptoms you listed, particularly 4 and 6 through 15 inclusive, are symptoms of vitamin deficiencies, specifically Vitamin B1 Thiamine. Celiac Disease causes malabsorption which results in malnutrition...
  2. knitty kitty
    @ChessFox, To answer your question "Did anyone notice perhaps milder mental distress compared to before after months or years of living gluten-free?" Many Celiacs report having more intense symptoms after a glutening than they had previously. This happens when a doctor orders a patient who has already gone gluten free to do a gluten challenge...
  3. knitty kitty
    "The Role of Thiamine in Cancer: Possible Genetic and Cellular Signaling Mechanisms" https://cgp.iiarjournals.org/content/10/4/169 "A significant association has been demonstrated between cancer and low levels of thiamine in the serum." "A very high dose of thiamine produces a growth-inhibitory effect in cancer."
  4. knitty kitty
    The medications used in numbing shots at the dentist can cause a depletion in thiamine. The nerves in the head and neck use lots of thiamine. Have you tried taking more thiamine? Also Vitamin C can help with gum sensitivity.
  5. knitty kitty
    Thiamine can help lower creatinine and albumin levels. Thiamine is Vitamin B1. Malabsorption of the water soluble B vitamins is common in the newly diagnosed. The water soluble B vitamins and Vitamin C need to be replenished every day. Bloated belly is a symptom of Thiamine and Niacin (Vitamin B3) deficiencies. Picky eating can be a symptom of...
  6. knitty kitty
    The Specific Carbohydrate Diet may help.
  7. knitty kitty
    Thiamine, Vitamin B1, helps keep the Shingles virus in check. So does L- Lysine. The Chicken Pox virus is a Herpetic Virus which remains in your nerves and can flare into shingles later. The Cold Sore Virus is another Hetpetic virus. I've got both and experience flares if glutenized. I stay on Thiamine (in the form Allithiamine) and Amino Acid...
  8. knitty kitty
    @Aaron275, Those foods on your list are high histamine foods. Look into a low histamine Paleo diet. Skip the dairy and facsimile dairy foods for now. Remove nightshades (tomatoes, potatoes, peppers and eggplants). Don't eat processed foods or restaurant foods. Eat stuff made from natural ingredients like meat and veggies. The supplements...
  9. knitty kitty
    Welcome, @Aaron275, Tell us what foods you're having reactions to and what supplements and stuff did your doctor give you. Thanks
  10. knitty kitty
    Thiamine deficiency can make it hard to talk. Thiamine helps the Vagus nerve and other nerves to relay messages including messages to the muscles involved in speech. Thiamine deficiency has been linked to stuttering, voice hoarseness, and some types of mutism. Celiac Disease damages the small intestine where thiamine and other B vitamins and minerals...
  11. knitty kitty
    I like the book The Paleo Approach by Dr. Sarah Ballantyne (a Celiac herself). She includes information on the Autoimmune Paleo Diet and nutritional aspects of Celiac Disease. Thiamine is sold over the counter, no prescription needed, as a vitamin supplement. I get mine on Amazon. Allithiamine and Benfotiamine are the kinds of thiamine I take. Thiamine...
  12. knitty kitty
    @charliethecowboy, Welcome to the forum! You're in good company. I've been through it, too. Turns out I had High Calorie Malnutrition. I was eating too many carbohydrates, but not getting enough vitamins (Thiamine specifically) to process them. Gluten containing products are required to be enriched with vitamins and minerals to replace...
  13. knitty kitty
    Yes.
  14. knitty kitty
    Thiamine insufficiency affects the Vagus nerve. The Vagus nerve controls your throat and digestive tract. Thiamine is needed for muscle contractions and nerve transmission. Insufficient thiamine can affect the sphincter muscles not contracting properly resulting in acid reflux and hiatal hernia. PPI's can affect thiamine absorption in the...
  15. knitty kitty
    Niacin, the kind that flushes, is good for helping DH flares go down. (250 mg twice a day). Avoiding foods high in iodine (shellfish, seaweed, iodized salt and Dairy) reduces flares.
  16. knitty kitty
    Accept the two positive test results. The small intestine is as large as a tennis court if laid out flat. Much of the damage can be microscopic and patchy. You've got extra-intestinal symptoms (symptoms outside of the GI tract), your nerve and muscle pain, which can be indicative of an autoimmune response. Insufficiencies in some B vitamins (Thiamine...
  17. knitty kitty
    @thorn, The white rice and rice cakes, gluten free corn chips and crisp bread are not allowed on the Autoimmune Paleo Diet. These are empty carbohydrates. Gluten free facsimile foods are not required to be enriched with vitamins and minerals. Gluten containing products are required by law to be enriched with vitamins and minerals to replace those...
  18. knitty kitty
    Welcome back, @thorn, Can you tell us what medications you're on? Also tell us what you include in your diet.
  19. knitty kitty
    Thought these might be relevant.... "Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet" https://pubmed.ncbi.nlm.nih.gov/28220520/ And. ... And.... "Combined use of SSRIs and NSAIDs increases the risk of gastrointestinal adverse effects" https://www.ncbi.nlm.nih.gov/pmc...
  20. knitty kitty
    You should be off supplements for six weeks before blood tests, otherwise you're just measuring the supplements you've taken. Probiotics can encourage bacteria to grow in the small intestine resulting in SIBO which can explain your ongoing symptoms. Have you tried the Autoimmune Paleo diet?
  21. knitty kitty
    Forgot to post this... "Nutritional Neuropathies" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/ Please read.
  22. knitty kitty
    @AmericanaMama Please get checked for vitamin deficiencies! Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies which can cause peripheral neuropathy. I became very deficient in vitamins before a Celiac diagnosis. I had the peripheral neuropathy up into my thighs, arms, and face. I...
  23. knitty kitty
    @CeliaCupCake, Have you been checked for vitamin and mineral deficiencies? Having diarrhea for an extended period of time means you are not absorbing nutrients and vitamins well. The eight B vitamins are water soluble and lost quickly in diarrhea, constipation and vomiting. Deficiencies in thiamine, niacin, or B12 can cause continuing digestive...
  24. knitty kitty
    And another.... "The Role of Vitamins and Minerals in Psychiatry" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/#!po=2.30769
  25. knitty kitty
    Thought this article would be of interest.... "Could High-Dose Thiamine Reduce Mortality from COVID-19?" https://www.hormonesmatter.com/thiamine-for-covid19/
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