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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Mboehme, Since you have been diagnosed with Celiac Disease for ten years, having a Ttg reading as normal is great! You've done well to avoid gluten! During that time on the gluten free diet, you may have developed vitamin and mineral insufficiencies, or, possibly, another autoimmune disease associated with Celiac Disease. I have Celiac and Type...
  2. knitty kitty
    I have Celiac and Type Two Diabetes. And I've had vitamin and mineral deficiencies. I was very deficient in Thiamine (Vitamin B1). Having high blood sugar made me feel dizzy and brain-foggy. Diabetics have a higher metabolic need for thiamine. Thiamine is needed to make insulin. I had Gastroparesis, where food doesn't move along the gastrointestinal...
  3. knitty kitty
    @Sahamies, Welcome to the forum! We like to get our terminology correct here, so let's explore this further. Rice DOES NOT contain GLUTEN. The protein in rice, Orzenin, resembles the gluten molecule. In some people, their antibodies identify that section of Orzenin that resembles the gluten molecule, thereby further stimulating...
  4. knitty kitty
    Sweet potatoes also contain thiaminase, a chemical that renders Vitamin B 1 Thiamine ineffective. Correcting a Thiamine insufficiency may be more important than dietary changes in treating high oxalates and kidney stones. Marginally Insufficient Thiamine Intake and Oxalates https://www.hormonesmatter.com/marginally-insufficient-thiamine-intake...
  5. knitty kitty
    Proteinuria can be caused by dehydration and diabetes. Bilirubin is an indication of inflammation. Type Two Diabetes is frequently found in Celiac Disease. There is a connection between Diabetes and Thiamine deficiency. The pancreas produces insulin and needs lots of thiamine to do so. Thiamine is usually reabsorbed in the kidneys,...
  6. knitty kitty
    @Lyns5201 and all, Proteinuria can be caused by dehydration and diabetes. Bilirubin is an indication of inflammation. Type Two Diabetes is frequently found in Celiac Disease. There is a connection between Diabetes and Thiamine deficiency. The pancreas produces insulin and needs lots of thiamine to do so. Thiamine is usually reabsorbed...
  7. knitty kitty
    MR Imaging Findings in 56 Patients with Wernicke Encephalopathy: Nonalcoholics May Differ from Alcoholics http://www.ajnr.org/content/30/1/171 And... Thiamine Deficiency Induced Neurochemical, Neuroanatomical, and Neuropsychological Alterations: A Reappraisal https://www.hindawi.com/journals/tswj/2013/309143/ And... Thiamin deficiency...
  8. knitty kitty
    You need All Eight B vitamins!!! The B vitamins all work together. Thiamine insufficiency will cause weight loss. Try a B Complex vitamin and extra thiamine (benfotiamine) to correct your weight loss. When deficient in thiamine, the body switches from burning carbohydrates consumed in the diet to burning fat. You are burning off...
  9. knitty kitty
    Here's some material to help answer your questions. I grew up in a household where both parents were in denial about Celiac and ensuing mental health problems, so I understand how you feel. The Role of Vitamins and Minerals in Psychiatry https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/ And... DEPRESSION, AGGRESSION, AND VITAMIN...
  10. knitty kitty
    I don't know if you understand what I was trying to say. MCV is Mean Corpuscular Volume. It's a measure of red blood cell size. In anemia, the MCV increases. The cells become large and are called macrocytic because of a deficiency in B12. If one is supplementing with folate while one has a deficiency in B12, the change in red blood...
  11. knitty kitty
    @Natalie youds, "Blister rash hands and feet" Could you describe your rash a little more? Have you compared your rash to pictures of DH? Is the rash on the top of your hands and feet or on your plans and soles of your feet? Does the rash get worse when exposed to the sun?
  12. knitty kitty
    Get some magnesium citrate or magnesium glycinate to go with your extra thiamine and B Complex. Magnesium helps relax muscles, so those nerve twitches should go away. And magnesium works with thiamine. Athletic people need more thiamine. Like @Blue_Sky said, Theanine in green, oolong and black tea can help relax nerves. I like oolong tea when I...
  13. knitty kitty
    @HectorConvector, Have you heard of the Low Histamine Diet? https://theceliacmd.com/the-low-histamine-diet-what-is-it-and-does-it-work/ I went on the Autoimmune Paleo diet and removed high histamine foods. Nuts (and peanuts) and some fish are high in histamine. Some vegetables like nightshades (tomatoes, potatoes, eggplant and peppers...
  14. knitty kitty
    I have had bad neuropathy when my thiamine and niacin were low. Vitamin C deficiency can cause neuropathy, too. Have you thought about supplementing with a B Complex? Do you include Omega threes in your diet? Healthy fats like in salmon, olive oil, flaxseed oil? Vitamin E? Omega threes are used to make the myelin sheath around nerves...
  15. knitty kitty
    @chocoholic, Have you had any investigation into pernicious anemia? Folic acid supplementation prevents one sign of B12 deficiency, extremely large red blood cells (megaloblasts). Pernicious anemia occurs when the intrinsic factor needed to absorb B12 is not being produced by parietal cells in the stomach because they are being attacked by...
  16. knitty kitty
    "Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/ Deficiency of some of the B vitamins (B12, thiamine, niacin, and B6) can cause neuropathy symptoms.
  17. knitty kitty
    "Other than this though, I have felt no improvement with my lethargy and exhaustion, headaches/migraines, major sleep issues, depression, kinked hair texture, super dry skin and general feeling ill." @chocoholic, I'm curious as to why you are taking only folic acid. Folic acid supplementation is known to mask B12 deficiency. B...
  18. knitty kitty
    @HectorConvector, What is included in your diet? Any medications you are currently using? Have you been checked for vitamin and mineral deficiencies?
  19. knitty kitty
    You may be interested in this article about Autoimmune Hives. https://www.healthline.com/health/skin/autoimmune-hives
  20. knitty kitty
    They are not as small as my B12 capsules, nor are they as large as my magnesium supplements. Here's the Lipothiamine that is a very small slippery tablet.... https://www.pureformulas.com/lipothiamine-60-tablets-by-ecological-formulas.html
  21. knitty kitty
    You should have your doctor check you for B12 deficiency again and its intrinsic factor. Your MCV is high, that means your red blood cells are getting bigger like they do with megaloblastic anemia. And your B12 level is on the low end. Some people can experience B12 deficiency symptoms while their B12 level is still within "normal" limits. All those...
  22. knitty kitty
    "tetrahydrofurfuryl disulfide" is the special form of Thiamine that I take. This form of thiamine is called Allithiamine. Thiamine in this form can get into cells more easily. This is what I use.... https://www.pureformulas.com/allithiamine-fat-soluble-b1ttfd-50-mg-capsule-250-capsules-by-ecological-formulas.html?accountid=53000524&CAWELAID...
  23. knitty kitty
    There's a chemical in tomatoes called scopolamine. It affects your brain function, especially if you are deficient in thiamine. "Rats exposed to acute pyrithiamine-induced thiamine deficiency are more sensitive to the amnestic effects of scopolamine and MK-801: examination of working memory, response selection, and reinforcement contingencies" https...
  24. knitty kitty
    I found this study that describes common vitamin deficiencies found in autoimmune thyroiditis. The fat soluble vitamins, Vitamin D, Vitamin E, and Vitamin A, were found to be low, as well as deficiencies in the water soluble B vitamins Thiamine (Vitamin B1), Pyridoxine (Vitamin B6), and B12 (Cobalamine). Remember that the damage to the small...
  25. knitty kitty
    Ginger, Your diagnostic journey sounds like mine. Dismissed with Diabetes and mental health issues for so long, I gave up on doctors. Thiamine deficiency can affect antibody production, so I didn't produce enough antibodies by the time I was tested. But my DNA test shows I have two genes for Celiac Disease. I hope you can get the thiamine...
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