-
Posts
916 -
Joined
-
Last visited
-
Days Won
14
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by CMCM
-
ARCHIVED How Do You Talk To Your Relatives About Celiac Disease?
CMCM replied to Joyous's topic in Coping with Celiac Disease
It's like climbing a huge mountain to convince anyone about this. When I discuss the facts, their eyes glaze over and I can tell it's all going in one ear and out the other. To most people, the idea of giving up wheat and all gluten containing items is like giving up their eyesight or some such. Since celiac disease and its symptoms are not immediately... -
Which model do you have? I noticed they have a small 1-lb size that's upright, and the other one looks fairly wide and large. I know the Zojirushi's are supposed to be good, but gosh, they are a LOT more expensive than all the others. I have a Zoji rice cooker and it's wonderful, though. I know the brand is good. And I don't recall reading complaints...
-
I've had a Vitamix for over a year, and I absolutely LOVE it. There are so many things you can do in it....for example, you can throw in a bunch of veggies & spices and blend it into a soup and it even warms up after a time....yet all the veggies in it are still RAW. This is the best appliance I've ever bought, and I use it more than anything else!...
-
I got my first crock pot when I first got married, in 1969. I hated cleaning it because the crock part didn't come out. I used it sporadically for a few years. About a year ago, I bought a new one--technology isn't much different but now the crocks come out for easy cleaning, and I like it so much I got a 2nd, smaller one as well (some recipes are smaller...
-
I got out my old Oster breadmaker...bought in 1994, and I tried a Bob's Red Mill bread mix in it...it turned out quite good, surprisingly. I just used the white bread setting. Then when I was doing a Pamela's mix today, the machine conked out in the middle, so I guess after 13 years the machine is kaput. So I'm thinking of getting a new one...I notice...
-
ARCHIVED Its Been 8 Weeks And Very Little Improvement!
CMCM replied to i-miss-cookie-dough's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You didn't mention what sorts of things you are eating, but I found that the majority of the sugar laden gluten free foods just did not agree with me. All the various flours, bean flours, rice flour, and the SUGAR....I felt truly horrible eating these things and like you, I felt I was making zero improvement. When I cut all this stuff out and just ate plain... -
ARCHIVED Achey Joints For Days
CMCM replied to FootballFanatic's topic in Coping with Celiac Disease
August 19 I woke up with BOTH hands, wrists, especially the thumb joints hurting unbelievably bad. I could barely hold a glass. All this cropped up overnight. OK....I'd been doing a bit of cheating with some junk things involving gluten and sugar, not a lot, but a little. I guess it added up finally and BOOM, major joint pain. Although I've had various... -
ARCHIVED Self Disgnosis
CMCM replied to woolwhippet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let me ask you this: If you had the gene test and found out you did not have the celiac gene, only gluten sensitivity genes (which most people will have), and IF the gluten free diet eliminated your symptoms, would you eat gluten and suffer the symptoms just because you don't have the obvious gene? Celiac disease is the extreme end of the gluten sensitivity... -
ARCHIVED Gross Topic - Poop
CMCM replied to jewi0008's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I tested for soy with Enterolab and am seemingly not sensitive to it, yet I swear I am! I get sick from wheat free Tamari sauce, and I don't do well with tofu or any other soy products. So I avoid them all. -
ARCHIVED Could This Be Celiac?
CMCM replied to Starshine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me, one of the difficult things about getting and accepting a diagnosis was the inconsistency of the reactions. I could eat a gluten item one day and have no reaction, then a few days later something would make me very sick. I decided it was sort of an "overload" factor.....I might get away with something here, something there spaced out time-wise,... -
ARCHIVED Migraines - Giving Gluten Free A Try
CMCM replied to Zook's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I spent over 12 years suffering mightily from recurrent migraines that could last for days. When Imitrex first came out it helped, but I lived in mortal fear of running out of them. After going gluten free and ALSO cutting back on dairy and all sugar in a major way, my migraines miraculously disappeared. I haven't had one in a year and a half, not... -
ARCHIVED Help! Gas And Bloating!
CMCM replied to holichka's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When I first went gluten free, I eliminated gluten AND dairy (since I also tested casein sensitive). I tried out all the gluten free items I could, and I felt horrible. I didn't feel better until I eliminated ALL that stuff entirely, and concentrated on a rather simple diet for awhile. Occasional red meat, chicken, fish, most veggies except starches, eggs... -
ARCHIVED How Many Have Self Diagnosed Celiacs?
CMCM replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm self diagnosed (at 57). A lifetime of problematic digestive issues. Occasonal dizziness. Headaches. Muscle and joint aches. Despite having a mom who was diagnosed celiac at 40 something back in the 1960's, I never thought I had the gene since I didn't lose weight like she did. In the last 8 years I did a couple of gluten blood tests out of idle... -
ARCHIVED Reactions
CMCM replied to Tim-n-VA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This can all be so tricky. I had lifelong digestive symptoms which I mistakenly thought was entirely due to dairy. I now know it was wheat. Wheat didn't always make me sick, which added to the confusion. Later I read that your body continually tries to adapt to the invader gluten, sometimes with more success than others. Then if you go gluten free... -
ARCHIVED I Have Been Turned Upside-down!
CMCM replied to silly celiac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think I'll start with a huge SIGH!!! :( If your doctor thinks to have celiac you MUST have lost weight....well, that comment just demonstrates the modest limits of his overall understanding of celiac disease....he obviously doesn't know the fact that NOT ALL CELIACS LOSE WEIGHT!!! Some, maybe MANY, gain weight. Your doctor is apparently looking... -
ARCHIVED Does The Spouse Really Understand
CMCM replied to Mally-bug's topic in Parents, Friends and Loved Ones of Celiacs
What I've found is that the need to eat gluten free is not a reality for a lot of family members. It's not something they can SEE. I finally realized I was expecting too much of them and their understanding....ultimately, it was all up to ME to establish the eating rules for myself rather than expect everyone else to be continually solicitous of my situation... -
I've always been prone to terrible looking bruises....sometimes by the time I see them I have no memory of even bumping into something. And if I bang my thigh or something on an object with any force at all, I know I will have a horrible bruise. I never realized until the last year or so that this was connected with gluten. I think being gluten free I...
-
I also struggle with elevated cholesterol (257), but I've read a bunch of things lately that have made me re-think things. First of all, cholesterol is a vital, necessary substance. Second, a lot of recent studies have dispelled the notion that EATING cholesterol raises your own level of it. In fact, everything points to sugars/high carbs which lead to...
-
I've always found it interesting that apparently there are no animals which continue to drink milk past a certain infancy stage. Then they never have it again. Humans are the only ones to drink milk all their lives, although we are of course mostly drinking cow's milk....as someone pointed out, cow's milk which is intended to make a baby calf turn into...
-
ARCHIVED Pain In Muscles - Real Or Imagined
CMCM replied to shp2drp57's topic in Coping with Celiac Disease
Please don't let that dopey doctor make you feel like it's all in your head! This is just a doctor, one of far too many, who knows zilch about celiac disease and its effects. Forty years ago my mom was very ill and doctor after doctor told her it was in her head, there was nothing wrong. They were rude and condescending to her. Finally she met a doctor... -
ARCHIVED Non Celiac Gluten Intolerance
CMCM replied to ElenaDragon's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is partially right. It's true that not all celiac genes have been identified. For that matter, nor have all gluten sensitivity genes. And there are other mysterious, yet unknown factors that are involved in gluten reactions as well. And to make things even more confusing, I read an article by Dr. Stephen Sinatra, the heart doctor, who claimed that... -
ARCHIVED Casein And Enterolab Question
CMCM replied to holiday16's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This has been somewhat my experience. I'm 58....at birth I had a horrible time with dairy, my parents walked the floors with me due to endless colic, and finally I was able to have goat milk. My entire life I've more or less avoided milk because I always had a terrible time with it. Any time I'd eat anything, but especially ice cream, cream, well, you... -
ARCHIVED Positive Tests, Negative Biopsy, Useless Doctors
CMCM replied to gmb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, if your daughter has been diagnosed with celiac disease, that means she has at least one celiac gene. And since that gene is inherited, it came either from you or or husband. Or perhaps both. It would be interesting to know what both your daughter's genes are. I'd say at the very least get yourself gene tested so you know what the possibilities... -
ARCHIVED Can I Touch Hay ?
CMCM replied to georgie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I just attended a lecture by Dr. Ken Fine of Enterolab, and this was exactly the question I asked him. He said most definitely YES, the longer you are free of gluten the more sensitive you may be to any exposure. I asked him this because after I found out about myself, my sister learned she has the celiac gene so she went gluten free for the most... -
ARCHIVED How Long Till Villi Heal
CMCM replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My mom was so sick she nearly died....her biopsy revealed her villi were entirely gone, and some of her stomach lining was gone too. So this is your most extreme situation....her intestines were smooth as a billiard ball, so the doctor said! They did a follow up biopsy 6 or 7 months later after she'd been gluten free for all that time, and found that her...