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CMCM

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Everything posted by CMCM

  1. CMCM
    Ditto for Enterolab. I just attended a lecture by Dr. Fine, who started Enterolab. He was 1000% credible, and I was hugely impressed by his story. He's an incredibly knowledgeable individual who is quite passionate about this topic. Enterolab is a non-profit, by the way. Dr. Fine wanted to make testing available and affordable to people who were not...
  2. CMCM
    Another comment....the biggest disservice ignorant doctors do is tell a patient "You don't have celiac disease, so you can eat gluten." NOT TRUE!!! What they should be telling this patient is "You don't have celiac disease so your villi show no damage. However, you are probably gluten sensitive and you should still go on a gluten free diet."
  3. CMCM
    I put some of this on another thread....I just saw a lecture from Dr. Ken Fine of Enterolab, and he discussed this. Basically, gluten intolerance is a spectrum, with celiac disease being the most extreme end of the spectrum and only occurring when you possess the celiac gene. Only a celiac will get the characteristic flattening of the villi, which is...
  4. CMCM
    I just attended a lecture by Dr. Fine of Enterolab. He discussed all this...so here's the bottom line, which MOST DOCTORS DO NOT UNDERSTAND!!!! Think of gluten sensitivity as a SPECTRUM of reactions: at one end of the spectrum are those with zero observable symptoms. At the other end of the spectrum are very very sick individuals who OFTEN are diagnosed...
  5. CMCM
    The main thing you must do is commit to a 100% gluten free life because even a smidgen of gluten can do damage. Your intestines will heal. My mom was finally diagnosed when she was truly near death from malnutrition....she weighed about 85 lbs at that time and the doctor said her intestines looked smooth as a billiard ball. She had a follow-up endoscopy...
  6. CMCM

    ARCHIVED Newbee

    CMCM replied to Doc1977j's topic in Coping with Celiac Disease

    Your blood work is positive, therefore the result is clear. A positive blood test rules in celiac disease, and a negative one does not rule it out, remember. By the time I figured things out for myself, my system was such a mess I felt like there wasn't a single food I could eat. EVERYTHING bothered me! What I eventually figured out was that I had...
  7. CMCM
    Walter....Your signature doesn't indicate your history. Have you been diagnosed properly? If so, are you truly eating a gluten free diet? What other sorts of things are you eating? My mom had a terrible time with depression until she got 100% gluten free. After a time gluten free, she was like a different person. If you are either celiac or highly...
  8. CMCM

    ARCHIVED Bloating

    CMCM replied to hafadai43's topic in Coping with Celiac Disease

    I bloat from soy even though I did not test as sensitive to soy. Even gluten free soy sauce makes me bloated and ill. I just avoid soy as much as I can. Cheese could bloat you up....it does me if I have very much. Ultimately, if you are bloating up I'd say you've got some other intolerances going on. I found with myself that I'm sugar/carb sensitive...
  9. CMCM
    I absolutely LOVE potatoes, but they kill me and I've reluctantly had to give them up. Ultimately, the joy from eating them isn't worth the suffering later.....the very worst combination is potatoes with a protein such as steak. I simply cannot digest them together. Actually, I've decided that pretty much most of the nightshades don't agree with me...
  10. CMCM
    I have a dreadful time not only going to sleep, but staying asleep. I recently read that you should take about 500 mg magnesium AND 500 mg calcium an hour or so before bed. I swear it's helping me.....I've been going to sleep fairly easily, and best of all, I don't wake up over and over. Perhaps there's a connection, I'd like to think this this is working...
  11. CMCM
    I had sporadic but terrible leg cramps fairly regularly, and all that disappeared when I went gluten free AND I'm also supplementing magnesium regularly, which I didn't do before. I think both things helped.
  12. CMCM
    I most definitely had a non-stop form of asthma for a good 20 years.....but doctors could never seem to diagnose it. But I started using inhalers and later things like Avalide to control symptoms (not very well, I might add). Going gluten free pretty much eliminated the problem, and I haven't used any sort of inhaler for over a year.
  13. CMCM
    For what it's worth, my mom is Rh negative, and she has two celiac genes (and got extremely ill before she got diagnosed).
  14. CMCM

    ARCHIVED Marc Jacobs

    CMCM replied to jkmunchkin's topic in Publications & Publicity

    Incomplete information gets out there, and people know it's good to not eat flour, but they don't exactly know why. And they certainly don't know about celiac or gluten sensitivity. Or they may know some people are sensitive to gluten, but they don't know the specifics and don't know it could also lead to celiac disease.
  15. CMCM
    I was watching Oprah the other day....of course we all know she's the richest woman in America, maybe in the entire world. Here's what she said: "If there was some pill or other easy way to lose weight, I'd sure as heck know about it." Oprah has learned to modify her eating, and to balance exercise with eating. That's really the only way to lose weight...
  16. CMCM
    I had digestive issues my entire life. I always thought the big culprit was dairy, and mostly avoided it. However, as time progressed more and more foods became problematic, and by the time I keyed in on the gluten thing 18 months ago, I felt like I was sensitive to virtually every food out there. I was in a continual state of digestive upset. I learned...
  17. CMCM
    When I tested thru Enterolab, I did both the gluten testing and got a bonus one for casein. I tested positive for casein, and the doc from Enterlab said continuing to eat dairy could do just as much damage as eating gluten. I stopped eating gluten, and also eliminated dairy for many months. After that, I've found that I can tolerate small amounts of dairy...
  18. CMCM
    Here's the trick to appetite supression: VERY LOW CARBS. I was the carb queen, let me tell you. I could eat 10 Krispy Kremes in one sitting. A box of donuts, candy bars, whatever. The more sweets and carbs I'd eat, the more I'd crave. Several years ago before knowing about celiac disease, I did the Atkins diet for about 6 weeks. It was NOT my...
  19. CMCM
    I had to rule that book out because for my blood type, the recommendation was for GRAINS, which is absolute no-no for me! Basically, to lose weight and feel good I have had to chip away at my diet and eliminate most things other than veggies (greens type things) and the good fruits. That means no sugar no starches (which become sugar as soon as you...
  20. CMCM
    Also...you can be gluten sensitive with many of the same reactions, but not have active, full blown celiac disease.....yet. And for many years your body can figure out ways to "tolerate" gluten. Sometimes your body does better than other times with this tolerance. This may explain the oddity of sometimes getting sick from gluten, and sometimes being...
  21. CMCM
    Each person reacts differently to the effects of gluten poisoning the body...yes, poisoning....that's what is happening. If you continue eating gluten a whole boatload of other sensitivities can start popping out because the gluten is causing your immune system to be increasingly reactive. This happened with me....for simply years and years I thought MY...
  22. CMCM
    Jay....Here are some little factoids I've picked up about this.... * You can have a celiac gene and possibly celiac disease will never actually be triggered. This happened with my grandmother, who died at 99. Her worst physical problem was arthritis. * It seems that active celiac disease is usually triggered by something....perhaps an emotional...
  23. CMCM

    ARCHIVED In Denial

    CMCM replied to jodikris's topic in Coping with Celiac Disease

    One thing that really helped me get a handle on this was the idea that just because you COULD eat something doesn't mean you should. Gluten is everywhere, in so many things, so everyone can eat it. But I've really become convinced that NO ONE.....Yes, I said NO ONE should eat gluten. Yet our whole country is stuffed and bloated with gluten, day in and...
  24. CMCM

    ARCHIVED Trampoline/rebounding

    CMCM replied to ginap73's topic in Sports and Fitness

    I have a little rebounder trampoline...I love it!
  25. CMCM

    ARCHIVED Protein Powder

    CMCM replied to holdthegluten's topic in Sports and Fitness

    I just tried Jay Robb's vanilla egg white protein--24g per scoop, 0g fat, 2g carb, sweetened with stevia. It's quite good, but expensive. I ordered a small one to try it out, but it's cheaper to order the big 80oz size. I've heard his whey protein is good, too.
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