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RiceGuy

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Latest Celiac Disease News & Research:

Everything posted by RiceGuy

  1. RiceGuy
    It seems that everyone has their own level of sensitivity. You should also take a very close look at the ingredients of everything you eat. Also, skin/hair care products can cause a reaction, so you need to check those too. It took about six months for me to experience any improvement, while others find relief in a matter of a few days. It may be that...
  2. RiceGuy
    Yes, it is not only possible to have Celiac disease and/or gluten intolerance and get a false negative on the tests, but that seems to be a very common experience. Your child is fortunate not to have suffered for years before you began tracking it down. Basically, Celiac disease is very difficult to accurately diagnose, especially in small children. I...
  3. RiceGuy
    Personally, I can't imagine why anyone would purposly eat moldy cheese. That's what makes blue cheese look the way it does. If it was called "Moldy Cheese", nobody would buy it. Interesting how it's expensive too. If we find anything in the back of our refridgerator having mold on it, we toss it out. As I recall, mozzarella gets pinkish when it gets mold...
  4. RiceGuy
    The last I knew, scotch tape is already sticky, so you don't have to lick the back of it Just kidding Ummm...Scotch is a brand name OK, I know what you mean, but I did get a kick out of that. It seems the name is used for practically any brand of clear plastic general purpose tape. Interestingly, "Scotch" was being used as an ethnic slur...
  5. RiceGuy
    I too must avoid yeast, but also sugar, so that usually means nothing prepackaged. However, I don't prefer sweets, but I'd like some stuff like pizza crust, bagels, muffins, banana/carrot bread, etc. I just can't seem to find time to bake them myself, much less experiment with the ingredients. Might you know of anything like that?
  6. RiceGuy
    The tests are often too inaccurate to know. However, an auto-immune response does not depend on the amount consumed, which is why a total gluten-free diet is essential. It may be that you don't yet have the intestinal damage, or not enough to show up in tests. If so, consider yourself very fortunate, and know that you may have spared yourself some mighty...
  7. RiceGuy
    I just saved the entire page so I can share it even after the link is invalid Mozilla/Netscape is so cool
  8. RiceGuy
    In a word, yes. There are different kinds of tests, but none are yet as accurate as simply changing your diet and seeing what happens. A delayed reaction is very common. Also quite common. I would definitely stay away from gluten forever. I never bothered with any "official" testing, since the diet is the answer anyway. It is quite likely the...
  9. RiceGuy

    ARCHIVED Joints Pains, You Too?

    RiceGuy replied to Lovinglife's topic in Doctors

    I did not seek an "official" diagnosis. All the doctors I went to as a kid were clueless, and only made things worse for me. My own research lead me to finding out that gluten was the main problem I've been dealing with. The improvement after the change in diet is all I need to know. Well, if you are certain that you are totally gluten-free, but still...
  10. RiceGuy
    I'd really like to make some oatmeal raisin muffins again. Like so many, I dare not take the chance, at least not until I heal more. I can't afford to risk it now. I've got a cliff waiting for me to make a backstep...
  11. RiceGuy
    Just a guess: Seems to me that if you have intestinal damage, then you'd have some degree of malabsorption. So you would't necessarily get all the nutrients you are putting into your body, including those from suppliments. That would explain why you need them in the first place, and why the levels aren't showing up so high.
  12. RiceGuy
    I went totally gluten-free about a year ago. It took around six months to start getting results. Pains have been coming and going, moving from place to place before and since that time. However, about two months ago there was such pain in my legs I couldn't walk for nearly a month, and standing was difficult. The only thing I could point to was accidentally...
  13. RiceGuy
    I would not be surprized if your hormone problems are due to the gluten too. If it were me, I'd do gluten-free first by itself, and go from there. You should avoid casein too of course, not only because it was recommended, but because many who are gluten intolerant find they can't take casein. It may be that once your system recovers enough, that casein would...
  14. RiceGuy
    If it turns out I can't eat oats, then if I feel like making cookies calling for oats, I'd probably use puffed millet, or amaranth, quinoa, or something like that.
  15. RiceGuy
    I won't be the only one to suggest that the diet is the best way to know for sure. If it were me, I'd go completely gluten-free, no cheating, and see how it goes. I started seeing results after about six months, but I have a lot of damage from what I can tell, so it's gonna be a long time for me. If you don't have the intestinal damage yet, that's great...
  16. RiceGuy
    That's basically what I mean. I agree it's not a "bad" response. But the thrilling part to me is when a company addresses gluten concerns on the label. At least some put something on the label like "made in a facility that also prcesses..." or "may contain..." as a warning when cross-contamination can occur. Not putting anything specific on the label,...
  17. RiceGuy
    I must say I disagree about the show being a bad place to discuss Celiac disease. It's not all about aliens and monsters. They are quite well respected, and the topics get a full three hours of honest and in-depth discussion. I listen nightly, and while they do look at paranormal stuff too, it's with real science, physics and logical points of view. They...
  18. RiceGuy
    Welcome to this forum. I'm sorry you are having such difficulties. You are not alone though, and we are always here to help. I hope you find the answers you need. From your description, it does sound like it could be gluten giving you those problems. This site has tons of info which can more than answer the questions you have, and the members of the forum...
  19. RiceGuy
    Sounds like something many here could benefit from, if it helps to regenerate the villi. I'm gonna look into this for sure! Thank you!
  20. RiceGuy

    ARCHIVED Joints Pains, You Too?

    RiceGuy replied to Lovinglife's topic in Doctors

    Yes, I currently am experiencing knee pain, and some ankle pain as well. It is slowly subsiding though, as I recover from the glutening I had been doing since early childhood. I have been gluten-free for nearly a year now too, so it can take some time depending on the damage. Oddly, the pain started after I went gluten-free. I was still on a downward slide...
  21. RiceGuy
    There is a nightly radio show, which is very popular, and is heard nation-wide and over the internet. It's called Open Original Shared Link. This is the single most listened to late night radio show, with litterally millions of loyal listeners. It's no small deal by any means. They specialize in subject matter that isn't getting the kind of attention that...
  22. RiceGuy
    I contacted Betty Crocker about gluten-free products, and this is the response I got: I'm less than thrilled by this, but it's a start I guess
  23. RiceGuy
    Ingredients? You must be looking at a flavored one, yes? While that's good to know if you plan to buy them, the real concern with oats is the cross-contamination issues, which isn't going to show up on the ingredients list.
  24. RiceGuy
    The two instances you mention both contain a concentrated sweetener. I'd be looking at that. Many members report a problem with yeast overgrowth, and the sugar will give the yeast a ready food source. The yeast produces toxins, and with the compromized gut, those toxins can more easily pass into the bloodstream. Therefore, sugars can make your symptoms worse...
  25. RiceGuy
    Corn chips and tortilla chips are two different things. I also only buy plain ones - no flavorings or anything, and the ingredients are just basically corn, oil and salt. There isn't anything mysterious to wonder about. When I've reacted to corn at all, it was a sinus reaction, which is completely different from any gluten symptoms I ever get. Plus mostly...
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