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Fundog

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Everything posted by Fundog

  1. Fundog
    I was told I don't have celiac, but I get "The Rash" whenever I eat even a trace amount of wheat. At the very least , I can say without hesitation that wheat is not my friend, and I avoid it like poison. I may not have celiac, but I must live as though I do. Apparently, so should you.
  2. Fundog
    Lol, there seems to be glitch in the program. The boys are heading to Inglis. (See above, in the quote box) Gosh, I hope they aren't on the road when that storm hits!
  3. Fundog
  4. Fundog

    ARCHIVED Biopsy for DH

    Fundog replied to Samir123's topic in Dermatitis Herpetiformis

    The skin biopsy is most likely to be successful if you are still consuming gluten, and if you have NOT been scratching, and if you are NOT taking any steroids, either oral or topical. Scratching and steroids can damage the saturated pattern that the pathologist is looking for. They are also more likely to find something if you still have some fresh spots...
  5. Fundog
    My son is attending university in Daytona Beach. He and his roommates have just evacuated. Stay safe!
  6. Fundog
    I'm sorry you've been having such a rough time. I'm thinking you may have accidentally ingested something containing gluten, and that's what caused your reaction. A lot of people will react quite severely to even a tiny bit of gluten. That's why there is so much on here about avoiding cross contamination. Even though you've been diagnosed with NCGS, you...
  7. Fundog
    Butterbean, do go have a read of the dermatitis herpetiformis section. See if anyone's story sound familiar to what you're experiencing.
  8. Fundog
    What other tests has the hematologist done? How are his other blood values (mcv, cbc, leukocytes, neutrocytes, platelets, etc?)
  9. Fundog
    I have a protein powder called Vega Veggies and Greens. I got it from Costco. It is vegan and gluten free, but it does contain sprouted whole grain brown rice, and xanthan gum. The Rash is contingent upon how long it takes to purge the antibodies out from under your skin. This could take a couple of years, I am told. Meanwhile, it can flare at random...
  10. Fundog
    (((HUGS))) to you. I'm so sorry you're going through this. Stress (and both divorce and having a kid away at college are stressful!) will exacerbate your symptoms by triggering an inflammatory response, a "flare." I have not been officially diagnosed with celiac disease, however, I most definitely have a problem with wheat, as evidenced by a nasty...
  11. Fundog
    Thanks for the update. It's nice to get a follow up from people, and find out what new information they've learned about their conditions.
  12. Fundog
    Fibromyalgia is also worth considering. IBS often goes hand in hand with fibromyalgia, the way celiac and thyroid disease are connected. Ten years ago, fibromyalgia was thought to be strictly psychosomatic, but now doctors are realizing that's not true, that it as real as lupus, ms, celiac, and any other autoimmune disease. Oh, and a lot of fibromyalgia...
  13. Fundog
    I enjoy participating on treat days by making some gluten free goodies to share. It is especially gratifying to see wheat eaters enjoying a slice of gluten free banana bread, for example, and taking second helpings. And like you, I just remember that eating anything with wheat in it is equal to splashing battery acid on my skin. It's just not worth it...
  14. Fundog
    Since I went gluten free, my acid reflux (and it was severe!) went away. I do still get some heartburn, though not nearly as bad as it was. I've realized certain foods will trigger the heartburn for me: peanut butter, vegetable juice, spaghetti sauce, peppers, salsa. I find that sleeping on my left side at night helps. If I take those chewable antacid...
  15. Fundog
    I do not envy you. I hope you get some answers though. I've had two colonoscopies and will have a third before I turn 50. I've got a system that makes the prep much easier: Even though they said I could skip the soft foods day and just wait for liquids (because of the chronic diarrhea), I did anyway. My scope was on a Friday, and started on Tuesday....
  16. Fundog
    See your doctor. Get your vitamin levels checked, and your thyroid levels also. (When was the last time it was tested? It should be done once a year at minimum, some doctors prefer twice a year.)
  17. Fundog
    Okay, just for clarification: is that just until all the antibodies are purged from the system, or is that forever? I'm having a bit of a flare up right now myself, though not nearly as bad as before going gluten free. I've only been gluten free about ten weeks, so I know I've got a long time yet before I really clear up. But please tell me there is a...
  18. Fundog
    When my mother saw me a couple of months ago, she thought I had lost weight since the last time she saw me. I have not, but even I have to get on the scale after looking at myself in the mirror sometimes! I know my clothes fit better. I can make it all the way through dinner without wanting to take my pants off. That's just one of the many symptoms I...
  19. Fundog
    That's it. I need a guinea pig, lol. Too cute.
  20. Fundog
    Okay, well just be mindful of symptoms of anaphylaxis, because that can be very dangerous, even life threatening: hives, swelling anywhere on the face, but especially the mouth/lips, and difficulty breathing. Try taking some diphenhydramine hydrochloride (in the U S, commonly known as Benadryl). If your respiratory symptoms get worse--if your throat feels...
  21. Fundog
    What specifically do you mean by "weird?" I get xanthan gum online, because I have not found it in the supermarket. My favorite sandwich bread recipe uses the brine from a can of garbanzo beans instead of eggs-- that's kind of weird, but it works surprisingly well! One of my very favorite gluten free snacks is garbanzo beans. I don't even turn them...
  22. Fundog
    I may have been a bit slow to notice, but it took me about six weeks gluten free before I realized my clothes were fitting better, and I could sit through dinner without wanting to unzip my pants. Before then, I didn't understand what people meant by feeling bloated, lol. Now I know, I was bloated! But I don't have meteorism, so my experience might not...
  23. Fundog
    I just want to add: once you do start a gluten free diet, and reach that magical moment when you suddenly realize how much better you feel, and start noticing symptoms you weren't aware of until now -because they've gone away- you will develop an aversion to foods with gluten, having a negative association of those foods and feeling unwell. Yes, there are...
  24. Fundog
    Good grief! :o. I'm so sorry, I wish there was something I could do or say to help you. I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay. They are supposed to work together as a team, not just individually out in left field.
  25. Fundog

    ARCHIVED Testing for dh?

    Fundog replied to Anne01's topic in Dermatitis Herpetiformis

    Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course. ) At the very least you can be sure it is related to gluten. These gluten rashes take forever to clear up. I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains...
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