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Fundog

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Latest Celiac Disease News & Research:

Everything posted by Fundog

  1. Fundog
    Stephanie, do you drink a lot of milk? During my time working in a daycare center, several of the children had very pale to white stools, from drinking the large quantities of milk the state required the center to serve.
  2. Fundog
    Don't feel too bad about ditching those foods. I did at first, but then when I finally stopped scratching myself to bits, I realized those foods are not worth the misery. Plus, I got online and started learning how to make all those treats from scratch, using my very own custom blend of whole grain flour! One of my favorite foods is pizza, and I found...
  3. Fundog
    I don't have anything to add to the excellent advice and wisdom you have already been given, but as someone who has been where you are and gave up without complete testing, you have my heartfelt compassion and empathy. Do read that thread about ways to stop the incessant itching and feel better. There is light at the end of the tunnel! I had my horrible...
  4. Fundog
    Yes, new research is showing that NCGS, or NCWS (w=wheat) is indeed a real "thing," and not just made up. In addition, a lot of people with other autoimmune diseases, from Chron's to Fibromyalgia, and even eczema, are finding that avoiding gluten results in a marked reduction in symptoms. So... if you feel better and have fewer symptoms when you avoid gluten...
  5. Fundog
    And stay on gluten until all of your testing is complete! Going off gluten before then could result in a missed diagnosis.
  6. Fundog
    Hi, welcome. You will find this forum to be very supportive. Be sure to read up on the newbie 101 thread, which is pinned, and some of the older threads where there is a lot of very good advice given. Cross contamination is really a "thing" and must be taken seriously, just as you would for a food allergy. Avoid all those store bought processed gluten...
  7. Fundog
    We aren't doctors, and of course you can't really know until after the endoscopy, but it sure sounds likely, based on the description of your symptoms. Keep eating gluten until your test. Only nine more days! Repeat the mantra of "The Little Engine That Could"---'I think I can, I think I can.' Do come back and let us know what you find out, either way...
  8. Fundog
    I'm probably celebrating a bit prematurely, and therefore going to jinx myself in posting, but I'm just too excited to wait. Yesterday marked one full month being officially, committed for life, gluten free. I've mentioned here a couple of times that in reading the stories and symptoms of others, the more convinced I become that I do in fact have celiac...
  9. Fundog
    You really to ask your doctor about the medication, especially about taking it the morning of the procedure. Is this your first colonoscopy? If those pills are slow to dissolve they could still be seen in your colon during the procedure. Or they could just be swept right out with the prep solution (more likely). You cannot have anything to eat or drink...
  10. Fundog
    That's supposed to say on call physician, not in game. Stupid autocorrect.
  11. Fundog
    To answer your question about water retention, fluid retention in the arms, legs and face is called edema. It is a symptom of a variety of medical conditions. Some of those conditions are benign and will resolve themselves with time, and some are quite serious and require medical attention. For example, edema is quite common in the last stages of pregnancy...
  12. Fundog
    I see no one has responded to your query. Unfortunately I have yet to try making a pie crust. It was something I never mastered before going gluten free. Have you looked on Pinterest? You might find something there.
  13. Fundog
    And as for the green stools, you said you eat a lot of kale and spinach? A generous, daily diet of kale and spinach will be reflected in the bathroom. You are what you eat.
  14. Fundog
    You already have an autoimmune condition which does put you at a higher likelihood of developing other conditions in the future, not necessarily celiac. At any rate, I've been reading reports-- both research articles and anecdotal experiences from AI patients-- linking a gluten free diet with relief of symptoms, particularly a lessening of joint and muscle...
  15. Fundog
    I react to both wheat and barley. I've opted to just go completely gluten free, for the sake of simplicity and my sanity. I don't have a diagnosis of celiac disease, but I strongly suspect it. Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing. I just know I need to avoid the gluten grains, so...
  16. Fundog
    My nurse practitioner explained to me that a lot of people with celiac become temporarily lactose intolerant. She explained that in celiac disease, gluten damages the villi in such a way that the ends-- the parts that digest dairy look like they've been run down by a lawn mower-- her words, lol. She said that when that happens you will have issues with...
  17. Fundog
    High eosinophils can also indicate an allergic reaction, whether environmental or food caused. A lot of people with celiac disease develop additional food allergies besides not being able to have gluten. Common food allergens are soy, eggs, corn, dairy, nuts, and seafood. Maybe see an allergist?
  18. Fundog
    WOW. That looks eerily familiar. Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams. Lol, no wonder it didn't help! I'm glad you're feeling better.
  19. Fundog
    Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching. Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion. I don...
  20. Fundog
    No. Even though you are reacting at the moment, the odds of getting an accurate blood test after three months without gluten are slim. All you would get for your troubles is another big medical bill to pay off, and more stress and anxiety.
  21. Fundog
    Diverticulitis is when the little pockets that characterize diverticulosis get inflamed and/or infected. A lot of people with this condition find that eating seeds and beans tend to irritate the colon more, so they avoid those. Others don't have any symptoms. For now, while you are so sick, (if it were me), I would stick with soft, bland foods, like mashed...
  22. Fundog
    This remark: "I got accidentally glutened (because I am an idiot") Ooh, I can relate sooo well! I too was getting better (I have horrible skin issues), and then I got remiss about reading labels-- I'm still very new at this too-- then my skin rash and itching came back and I couldn't understand why. Then one day I remembered I should check a label...
  23. Fundog
    I feel your pain. Literally, I do. It all comes down to us each as individuals. I get "The Rash" and after both blood test and the skin biopsy came out negative, the next step would have been endoscopy. But I have been fantasizing about a wall "mural" made of sandpaper for 16 years, and had already given myself cellulitis. Could I stand to go back to...
  24. Fundog
    I am so sorry to hear of your diagnosis. Find yourself a good herbalist and find out what kind of plant medicines are available to help you. Mallow and Slippery Elm are both effective at coating and soothing the lining of the digestive tract, and may offer some protection as well as healing. Juniper berries have been shown in clinical studies to actively...
  25. Fundog
    Holy Carp, Batman! That is just crazy! I'm so glad you finally found out what was causing your troubles. And congratulations on being able to eat "real" bread again, lol.
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