Jump to content
  • Sign Up


Advanced Members
  • Content Count

  • Joined

  • Last visited

  • Days Won


Everything posted by Fundog

  1. Stephanie, do you drink a lot of milk? During my time working in a daycare center, several of the children had very pale to white stools, from drinking the large quantities of milk the state required the center to serve.
  2. Don't feel too bad about ditching those foods. I did at first, but then when I finally stopped scratching myself to bits, I realized those foods are not worth the misery. Plus, I got online and started learning how to make all those treats from scratch, using my very own custom blend of whole grain flour! One of my favorite foods is pizza, and I found an awesome recipe for gluten free crust, using my custom flour blend. Oh man, it is so yummy! And super simple to make, too. The only thing I really miss is Chinese food. Our family tradition when we go "into town" 50 miles away to do our monthly grocery shopping is to have lunch or dinner at the Chinese buffet. But now I can't eat there because nearly everything is swimming in soy sauce. We will have to find a new favorite restaurant for our traditional grocery trip dinner. (One of the primary ingredients in soy sauce is wheat, so you'll need to watch out for that.)
  3. I don't have anything to add to the excellent advice and wisdom you have already been given, but as someone who has been where you are and gave up without complete testing, you have my heartfelt compassion and empathy. Do read that thread about ways to stop the incessant itching and feel better. There is light at the end of the tunnel! I had my horrible rash for A YEAR before the lightbulb moment hit me that it might be a food allergy. Three weeks gluten free, and I had finally stopped scratching myself to bloody ribbons. Unfortunately, that was AFTER I had given myself cellulitis (hence a desperate need for a solution) and BEFORE getting my dermatologist to give me a biopsy. Of course I got inconclusive results, other than "itchy skin." It didn't matter, I have my answer: I am never going back on gluten. Shortly after that worthless biopsy, I accidentally ate wheat again, several times. Once again the rash was back. I resolved to be more careful, and started over. Three weeks later I woke up with clean (not blood stained) sheets again, and it gets better every day. I will continue to have purple polka dots for a lot longer, but I see daily improvement. I found the two things that helped me the most, if at all, are Caladryl lotion, and baking soda baths. A cup and a half to a full tub of warm water, and soak until you are wrinkled. Good luck! I hope you get some answers, and some relief.
  4. Yes, new research is showing that NCGS, or NCWS (w=wheat) is indeed a real "thing," and not just made up. In addition, a lot of people with other autoimmune diseases, from Chron's to Fibromyalgia, and even eczema, are finding that avoiding gluten results in a marked reduction in symptoms. So... if you feel better and have fewer symptoms when you avoid gluten, then you very well could have a gluten sensitivity! And who are we to say otherwise?
  5. And stay on gluten until all of your testing is complete! Going off gluten before then could result in a missed diagnosis.
  6. Hi, welcome. You will find this forum to be very supportive. Be sure to read up on the newbie 101 thread, which is pinned, and some of the older threads where there is a lot of very good advice given. Cross contamination is really a "thing" and must be taken seriously, just as you would for a food allergy. Avoid all those store bought processed gluten free substitutes for now, and focus on preparing wholesome, naturally gluten free meals from scratch. Good nutrition is vital for good healing. I make my own bread and pizza crust, and my own flour. I found recipes that I love on Pinterest, so I don't really have to give up my favorite foods, if I plan ahead and put forth the extra effort. Good luck!
  7. We aren't doctors, and of course you can't really know until after the endoscopy, but it sure sounds likely, based on the description of your symptoms. Keep eating gluten until your test. Only nine more days! Repeat the mantra of "The Little Engine That Could"---'I think I can, I think I can.' Do come back and let us know what you find out, either way!
  8. I'm probably celebrating a bit prematurely, and therefore going to jinx myself in posting, but I'm just too excited to wait. Yesterday marked one full month being officially, committed for life, gluten free. I've mentioned here a couple of times that in reading the stories and symptoms of others, the more convinced I become that I do in fact have celiac, and have just fallen through the diagnostic cracks. Well yesterday and today I have become more convinced than ever, which will only help me stay committed and not cheat. Let me explain: first there is that horrible rash which, as it heals, is becoming more recognizable as dermatitis herpetiformis. (The picture that Squirming Itch posted really helped too, thank you, Squirmy!) By the way, this morning my hubby commented that my feet are looking a lot better. But the other symptom, that I never really recognized to be a symptom, is the thing I have been most keen to see if going gluten free would improve: I have had chronic diarrhea since 2002. That's right, chronic D for fourteen years! Yes, I mentioned it to several doctors, but they did not seem overly concerned. "Everone is different, and this is just normal for you," they all said. So I shrugged it off. Well yesterday I turned a corner! I have to say, it's a bit odd- and even disconcerting to only need the toilet two times in one day, instead of six! Granted, it's early days yet, and I might see some days where my body's old familiar habits return, but I'm just looking for "fewer and firmer." Every day I avoid gluten is another day of healing. This morning after my husband commented on my improved skin, I told him how I am more convinced that I do have actual celiac disease, but it would be nice to have a lab report to help me stay convinced in those moments of doubt. I asked him if he also is the type to need a lab report, and he replied, "No, I have all the proof I need just looking at you." That made me feel a lot better, knowing he is also convinced, and supports my self-diagnosis. So... Happy Month-A-Versary to me! Cheers!
  9. You really to ask your doctor about the medication, especially about taking it the morning of the procedure. Is this your first colonoscopy? If those pills are slow to dissolve they could still be seen in your colon during the procedure. Or they could just be swept right out with the prep solution (more likely). You cannot have anything to eat or drink the morning of the procedure, except water and the prep solution. As for after, I don't know about the endoscopy, but you can eat "easy" foods immediately following the colonoscopy.
  10. That's supposed to say on call physician, not in game. Stupid autocorrect.
  11. To answer your question about water retention, fluid retention in the arms, legs and face is called edema. It is a symptom of a variety of medical conditions. Some of those conditions are benign and will resolve themselves with time, and some are quite serious and require medical attention. For example, edema is quite common in the last stages of pregnancy. It can indicate pre-eclampsia, which is serious, and so it needs to be monitored. Anyway, I suggest you get a same day appointment to see your doctor, or an in-game physician at a quick care clinic, if he/she is not available. At least get it checked out, to make sure it's nothing serious. They will want a urine sample, so make sure you don't tinkle right before you leave the house.
  12. I see no one has responded to your query. Unfortunately I have yet to try making a pie crust. It was something I never mastered before going gluten free. Have you looked on Pinterest? You might find something there.
  13. And as for the green stools, you said you eat a lot of kale and spinach? A generous, daily diet of kale and spinach will be reflected in the bathroom. You are what you eat.
  14. You already have an autoimmune condition which does put you at a higher likelihood of developing other conditions in the future, not necessarily celiac. At any rate, I've been reading reports-- both research articles and anecdotal experiences from AI patients-- linking a gluten free diet with relief of symptoms, particularly a lessening of joint and muscle pain in those with RA, FMS, Lupus, and Chronic Fatigue. So my point is, even if you don't have celiac disease, if being on a gluten free diet helps you, then stay on it. As for the digestive issues, it may be worth seeing a GI for. Lots of things can cause tummy troubles, not just celiac disease.
  15. I react to both wheat and barley. I've opted to just go completely gluten free, for the sake of simplicity and my sanity. I don't have a diagnosis of celiac disease, but I strongly suspect it. Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing. I just know I need to avoid the gluten grains, so I do.
  16. My nurse practitioner explained to me that a lot of people with celiac become temporarily lactose intolerant. She explained that in celiac disease, gluten damages the villi in such a way that the ends-- the parts that digest dairy look like they've been run down by a lawn mower-- her words, lol. She said that when that happens you will have issues with dairy products, and you should lay off for awhile until the gut heals and the villi grow back.
  17. High eosinophils can also indicate an allergic reaction, whether environmental or food caused. A lot of people with celiac disease develop additional food allergies besides not being able to have gluten. Common food allergens are soy, eggs, corn, dairy, nuts, and seafood. Maybe see an allergist?
  18. WOW. That looks eerily familiar. Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams. Lol, no wonder it didn't help! I'm glad you're feeling better.
  19. Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching. Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion. I don't know about you, but I was brought up to "get in, get done get out." A long soak in the bath was a frivolous luxury, and a waste of time and hot water. So now I'm having this awful breakout from forgetting to read a label and got wheated. And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery. And it's been hard! (But it's been very helpful too) It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary! Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing. Does anyone else struggle with this?
  20. No. Even though you are reacting at the moment, the odds of getting an accurate blood test after three months without gluten are slim. All you would get for your troubles is another big medical bill to pay off, and more stress and anxiety.
  21. Diverticulitis is when the little pockets that characterize diverticulosis get inflamed and/or infected. A lot of people with this condition find that eating seeds and beans tend to irritate the colon more, so they avoid those. Others don't have any symptoms. For now, while you are so sick, (if it were me), I would stick with soft, bland foods, like mashed potatoes, boiled rice, and maybe some jello until you feel better. See if you can tolerate some natural chicken broth-- not bouillon, but real broth. Are you allergic to coconut? Coconut water might be good if you are sick of Gatorade. I hope you feel better soon.
  22. This remark: "I got accidentally glutened (because I am an idiot") Ooh, I can relate sooo well! I too was getting better (I have horrible skin issues), and then I got remiss about reading labels-- I'm still very new at this too-- then my skin rash and itching came back and I couldn't understand why. Then one day I remembered I should check a label.... sure enough, I had been eating wheat everyday for nearly a week! I And here I am, two weeks after realizing that goof up, totally miserable again. I am told it could take three months to a year for my skin to clear up. I don't know how soon your digestive troubles will abate, but I know someone will be able to advise you.
  23. I feel your pain. Literally, I do. It all comes down to us each as individuals. I get "The Rash" and after both blood test and the skin biopsy came out negative, the next step would have been endoscopy. But I have been fantasizing about a wall "mural" made of sandpaper for 16 years, and had already given myself cellulitis. Could I stand to go back to eating gluten for three months? Unthinkable! So all I know is, gluten makes me want to skin myself alive. And I'm not alone. There are several on here who are undiagnosed or self diagnosed. Good luck in whatever you decide.
  24. I am so sorry to hear of your diagnosis. Find yourself a good herbalist and find out what kind of plant medicines are available to help you. Mallow and Slippery Elm are both effective at coating and soothing the lining of the digestive tract, and may offer some protection as well as healing. Juniper berries have been shown in clinical studies to actively shrink tumors. Keep us updated on what you find out, and how you are doing.
  25. Holy Carp, Batman! That is just crazy! I'm so glad you finally found out what was causing your troubles. And congratulations on being able to eat "real" bread again, lol.
  • Create New...