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Fundog

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Everything posted by Fundog

  1. Fundog
    I'm not actually very well versed in any of the tests, being rather new at all this myself, but I think a couple other people on here could tell you a bit more.
  2. Fundog
    A an endoscopy is the "gold standard" of diagnosis, so yes, an endoscopy would still be preferable to get a confirmed, beyond a shadow of a doubt" diagnosis. Be sure to keep him on gluten until all testing is complete.
  3. Fundog
    Yes, you should save up money to get the testing done. However, when you are ready for the tests, you need to eat gluten for three months before the tests, or they will not be accurate. Good luck!
  4. Fundog
    It is important to advocate for yourself and insist on tests you think you need, even for no other reason but peace of mind. Those doctors work for you, not the other way around. However: are you willing to go back on gluten for 12 weeks to get testing? Getting testing done while off gluten will get you nothing but a smaller bank account, sadly. If...
  5. Fundog
    Pick up a good multivitamin that does NOT include extra iron. It might help bring up your folate without overdosing on the other stuff. Sometimes getting answers to medical mysteries like yourself is slow, hard work, but you're now one step closer. Keep pushing! I hope you feel better soon.
  6. Fundog
    I've never had an endoscopy-- I refused to continue eating wheat in order to get one, as I was shredding my skin to ribbons. (Very itchy and twitchy) However, I've had two colonoscopies, and I will have a third before I turn 50! but I don't think that has so much to do with celiac disease as my family and personal history. My dad had colon cancer at...
  7. Fundog
    Just so y'all know: asthma is a lifelong condition. It may become dormant, but you do not "outgrow" it. It can resurface at any time. It is genetic. It is part of what doctors call the Atopic Triad: Asthma, Eczema, and Hay fever. Family members will exhibit any one or combination of the three, demonstrating the genetic link between them. Many doctors...
  8. Fundog
    Hi. There are several people on here who are self diagnosed, for different reasons (I'm one of them). There is also such a thing as non-celiac gluten sensitivity. As for me, I still waffle between saying I have celiac and NCGS. All I know is, bad things happen when I eat stuff with wheat or gluten in it, so I avoid. Mostly I tell people I have a wheat...
  9. Fundog
    Could it be your gallbladder maybe? A lot of celiac have gallbladder issues. You should probably have checked out, just to be on the safe side.
  10. Fundog
    It has been said on here that there will be ups and downs and occasional flare ups until healing is complete, and that could take six months to a couple of years. I'm glad you found a connection, though. Welcome to the forum.
  11. Fundog
    Well my levels haven't been tested. I suffer from what doctors refer to as The Atopic Triad: Asthma, Eczema, and Environmental Allergies, concurrently, and within a family group. The genetic link puts it in the realm of autoimmune disorders. Anyway, because I've suffered with these conditions all my life, my cortisol levels have always been elevated to...
  12. Fundog
    My sister's heart started doing weird stuff, as if she were having a heart attack, and after the ECG showed it was NOT a heart attack, they ran a ran bunch of blood, and that's how she found out she has celiac disease. So you're not alone in the "heart doing weird stuff" department. She also has no tolerance for high fructose corn syrup. It makes her...
  13. Fundog
    Usually, food allergies and intolerance are to the proteins in those foods, so I would say no to "rice protein."
  14. Fundog
    Yes. IBS (sometimes referred to as spastic colon) affects the colon, most notably with spasms and inflammation. Some people, especially those with hemorrhoids, might have some blood in their stools. A lot of other foods, such as onions, garlic, peppers, and anything remotely spicy will trigger an IBS attack. Triggers can be different for different people...
  15. Fundog
    #sigh# When will doctors learn that humans very rarely present like the cases in their textbooks? And why should we have to do all of our own research and practically pull their teeth out to get them to listen to us and order the right tests? Are they actually learning anything in medical school anymore?
  16. Fundog

    ARCHIVED Shingles or DH?

    Fundog replied to Kurasz's topic in Dermatitis Herpetiformis

    EXCELLENT. I'm so happy for you!
  17. Fundog
    Yes, now you know! (Hooray for having answers?) The good news is, you can actually do something about it.
  18. Fundog
    Your iron is on the edge between normal and deficient. If you were pregnant, they might recommend an iron supplement, but otherwise, try increasing your intake of iron rich foods, like spinach. Not coincidentally, spinach is also very high in folic acid! FA and iron need each other. They work as a team. In addition, how much vitamin c are you getting...
  19. Fundog
    Good for you for pressing the issue and advocating for yourself! Just so you know, vitamin deficiencies even without celiac disease can answer a lot of questions, as a vitamin deficiency will cause all kinds of problems. And celiac disease is not the only cause of vitamin deficiencies. Do let us know what you find out, either way.
  20. Fundog
    The only thing I can think of is that they might be trying to spare your daughter a biopsy. If the genetic test is positive, and two positive blood tests, then maybe they could give a positive dx without a biopsy? I'm just guessing though. Can you call the pediatrician and ask for clarification?
  21. Fundog
    There are actually four different proteins in wheat: albumin, globulin, gliadin, and gluten. You could be reacting to any one or any combination of the four. It is possible to be both allergic to wheat specifically, and have celiac disease or non celiac gluten sensitivity at the same time. The symptoms you describe do sound a lot like a wheat allergy...
  22. Fundog
    Most of the time I just use plain baking soda (yes seriously- it's a great and gentle exfoliate!) But what you want is plain soap, as in, the real thing. Ingredients to look for are sodium tallowate (that's beef tallow, chemically changed by lye), sodium cocoate (coconut oil chemically modified by lye) and another ingredient would be Olive oil- I don't...
  23. Fundog
    Yesterday we had to drive my son to the airport for his evening flight back to university. It's a three hour drive each way, and he had a long trip to endure, so that meant looking for dinner in a restaurant. I agreed to give Applebee's a try, with some trepidation. Well, when I placed my order, I told the server that I am allergic to wheat, and asked...
  24. Fundog
    If the doctor thinks it is a gluten intolerance, and some of his symptoms cleared up when you eliminated gluten from his diet, then that is probably what the problem is. As for the growth, it's only been a month. His body is working very hard to heal whatever damage has been caused up to this point. All of his energy is going toward cellular repair and...
  25. Fundog
    Lol, I know exactly how you feel! In the meanwhile, eat your fill of all the sushi and other gluten filled treats you love, until you have a proper negative association with them. My sister (who also has celiac) told me that she has since developed an aversion to what she describes as the "slimyness" of gluten grains. I have yet to experience that,...
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