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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes.
  2. trents
    Yes, an IgG panel is the logical next step. However, you would still need to be consuming normal amounts of gluten to ensure valid IgG testing. Since it has only been a week that you have been off gluten, there is still likely time to restore antibodies to detectable levels before the blood draw. IgG antibody tests are not quite as specific for celiac disease...
  3. trents
    IGA deficiency is a lot more common than we used to think but I can't give you a number. Doctors used to believe it only happened in children but we know better now. Every doctor should order, at the very minimum, total IGA and tTG-IGA. It may be true that you don't have to worry as much about cross contamination if you have NCGS but that is not a given. ...
  4. trents
    So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I needed some clarification from you...
  5. trents
    So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
  6. trents
    @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
  7. trents
    Welcome to the forum, @Soosieque! Immunoglubulin A, Qn, Serum (aka, "total IGA") is a test run to check for IGA deficiency. If you are IGA deficient, the other IGA tests (the ones ordered to specifically check for celiac disease) will give artificially low scores and cannot be trusted. You were not IGA deficient. The two tests specifically run to check...
  8. trents
    Welcome to the forum, @barb simkin! How does it affect you when you eat chocolate and drink alcohol? I'm asking because these are common migraine triggers and migraines are a common in the celiac population.
  9. trents
    It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever...
  10. trents
    Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there...
  11. trents
    Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products...
  12. trents
    Welcome to the forum, @Dana0207! Another diagnostic approach would be to get biopsied for dermatitis herpetiformis which would not require an extensive exposure to gluten. But it would need to be done during an active outbreak of the rash. Celiac disease is the only known cause for dermatitis herpetiformis so it would be a definitive diagnosis. It might be...
  13. trents
    Here is another one that is currently active. I know someone who has recently signed up to participate in it: https://celiac.org/aspirion-us/
  14. trents
    But still, I'm not sure any of this is helpful from a practical standpoint when you are already doing everything you know what to do to avoid gluten since it is merely reporting what has already happened. Perhaps it would give guidance of things to avoid that you mistakenly thought were safe, that is if you could pin down what exactly was the offender from...
  15. trents
    Agreed!
  16. trents
    Okay, but the biopsy needs to be done during an active outbreak of dermatitis herpetiformis. So, if you can accomplish that without long term gluten exposure, that should work. How close together does do the dermatitis herpetiformis outbreaks occur in relation to the gluten exposure? It would be helpful to time that out in relation to your dermatology appointment...
  17. trents
    Welcome to the community @MCAyr! One thing you need to know is that in order for celiac disease diagnostic testing to be valid, you must not have been on a gluten-free diet already. The first stage of celiac disease testing involves looking for the blood antibodies that are produced by the inflammation in the small bowel lining. Once you eliminate gluten...
  18. trents
    Thoughtful article. For me the most valuable element of this article is the discussion of IELs. We have many posts on celiac.com from people who have all the symptoms of celiac disease but whose biopsies show no other irregularity than IELs. Perhaps we should be taking that more seriously.
  19. trents
    Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour...
  20. trents
    A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
  21. trents
    Good catch, @RobinGroenevelt, and an excellent point!
  22. trents
    Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly.
  23. trents
    "When comparing gluten-free oat-only products with general gluten-free foods and ordinary oat products, the study found that gluten-free oat-only products had the highest contamination rate. For instance, gluten-free foods in general had contamination rates of around 18 percent, while oat-only products labeled gluten-free had rates nearing 73 percent. Ordinary...
  24. trents
    @NoriTori, you say, "No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. " We hear this all too often. Sloppy medical practice.
  25. trents
    @NoriTori, "gluten intolerance" is a general term that can refer to either celiac disease or NCGS. NCGS is often referred to as "gluten sensitivity" for short. Though, admittedly, there is still a great deal of inconsistency in the use of terms by the general public.
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