Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,648

  • Joined

  • Last visited

  • Days Won

    532

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Candy can contain wheat, either as an intentional ingredient or through cross contamination (CC) of some of the ingredients that may have been processed on equipment used to process gluten containing grains. Don't take anything for granted.
  2. trents
    @rrmac, No, all these post email notifications are not being diverted from John111 to you. You are getting them because you have that option checked in your forum profile email settings.
  3. trents
    Yeah, you really have to learn how to graciously say "Thanks, but I just can't risk it because I have been made ill too many times by well-meaning friends and family who tried to accommodate my gluten free need but were not aware of the many ways gluten is hidden in food." Either that or insist on seeing the list of ingredients used. Over time, you will develop...
  4. trents
    Get a different doctor!
  5. trents
    Gonna try high dose of Riboflavin myself. There is clinical evidence it is effective for reducing migraine frequency: https://pubmed.ncbi.nlm.nih.gov/15257686/
  6. trents
    You may be going through gluten witdrawl. Gluten has an addicting effect similar to opiates. https://mkfa.info/blog/what-are-gluten-withdrawal-symptoms-and-what-causes-them
  7. trents
    You need to get a second opinion, musicalmumm. The first GI doc's conclusions are not in keeping with the actual biopsy results he reports. Not sure why he felt he could not conclusively say she has celiac disease. How old is your daughter?
  8. trents
    Sara, welcome to the forum! May we assume that you already have been diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity) such that you already know gluten causes you problems?
  9. trents
    It seems obvious to me that indeed, inflammatory processes pick on the weak areas of our bodies as they are often the same areas that were initially damaged by these same inflammatory processes.
  10. trents
    Yes kk, but at some point testing would need to have been done for that connection made if they are truly silent. Otherwise, there would have been no motivation. The testing may have not be specifically for celiac disease but perhaps anemia showing up in a CBS or elevated liver enzymes in a CMP, as was the case personally.
  11. trents
    I think you would be okay there, Bobby. Some or our forum participants report celiac reactions even to the aroma of freshly baked bread but I do not think that is a problem except with the most sensitive celiacs.
  12. trents
    A reasonable approach that works for many but it would not work for "silent" celiacs who do not (yet) experience significant symptoms. By the time the damage to their small bowel villi becomes sever enough to produce significant symptoms, irreversible damage may have been done to body systems. People with first degree relatives having celiac disease should...
  13. trents
    Welcome to the forum, Bobby123! No. Don't overthink this. As a general rule, ingestion of gluten is all you have to worry about. There are some exceptions to that for those who are super sensitive to gluten who may also experience celiac reactions from inhaling the aroma of freshly baked bread in a bakery or from contact with skin from foods, shampoos...
  14. trents
    Welcome to the forum, Matt! Are you back to eating significant amounts of gluten? You say you "it comes up barely on the blood test". Which blood test do you refer to? Can you be more specific? I assume you are referring to a celiac antibody blood test but there is not just one. Do you have access to your medical record from recent testing and can...
  15. trents
    We have people on this forum who testify to getting glutened from simply walking down the bread isle in the supermarket and smelling the aroma of fresh bread. So, for those who are really sensitive to gluten, what's in the air seems to cause a reaction sometimes.
  16. trents
    What's scary is that we can add this to the growing list of frequently misdiagnosed medical problems. And this makes me aware of how important it is to both do your own research and to find a doctor who knows how to think outside the box.
  17. trents
    There is more than one IGA antibody test. Here is a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But if you have already begun a gluten-free diet it would be a waste of time. You would need to go back on gluten in the equivalent of 2 slices of wheat bread daily for 6-8 weeks before a valid antibody test is possible...
  18. trents
    Causes for hyponatremia: https://www.mayoclinic.org/diseases-conditions/hyponatremia/symptoms-causes/syc-20373711
  19. trents
    Multivites are not that important IMO because they aren't very potent. Early on, medical science was very conservative with D3 amounts but it is now recognized that the caution was overdone. D3 is very important to many processes in the body and most on this forum will tell you 5000IU is quite safe. Magnesium is necessary to support the assimilation of thiamine...
  20. trents
    Yes, iodine should be avoided with DH. Costco's Kirkland Signature and Nature Made brands are generally good choices. They will state gluten free on the bottle if they are and most of them will be. I get Doctor's Best High Absorption Magnesium (magnesium glycinate) from Amazon and zinc picolate from Amazon also. Titrate up in the magnesium as it an have a...
  21. trents
    Concerning your angular chelitis, and some other of your health issues, realize that celiac disease generally creates vitamin and mineral deficiencies because of the damage done to the villi of the small bowel. Most of us are on a number of gluten free vitamin and mineral supplements to counteract that, particularly B12, B-complex, D3 and magnesium. Zinc...
  22. trents
    Actually, teff has been around as a wheat/barley/rye substitute grain for more than 20 years. I used it some right after I was diagnosed in about 2000-2001 so it has been available for at least that long. It's not one you hear about commonly, however. It has a mild, sweet taste as I recall. Kind of spendy, though.
  23. trents
    According to the Mayo Clinic guidelines, you would need to reinstate daily gluten consumption in the amount or equivalent amount of 2 pieces of wheat bread daily for at least two weeks prior to the endoscopy/biopsy. It is unfortunate that you discontinued gluten prior to the antibody test and it is unfortunate that the physician ordered only one antibody...
  24. trents
    Actually, there is a small percentage of celiacs whose only disease expression seems to be DH. Their immune response entirely different locus and their villi are not damaged. Your GI issues could be due to non-celiac issues such as IBS or SIBO (Small Intestine Bacterial Overgrowth), MCAS (Mast Cell Activation Syndrome)/histamine intolerance. Not really...
  25. trents
    Welcome to the forum, Austin! In answer to your question, it's hard to know how much your only occasional gluten consumption previous to testing impacted the antibody scores.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.