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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Elevated liver enzymes was what led to my celiac diagnosis. Soon as I went gluten free, those enzymes were back in the normal range. 18% of celiacs experience elevated liver enzymes. Most doctors are ignorant of this. Took me 13 years to get that run down and get a celiac diagnosis. I have developed partial intolerances to peanuts and eggs. I can eat...
  2. trents
    Welcome to the forum, Big Bob! Studies show that most people who claim to be eating gluten-free are actually eating lower gluten. This is particularly true of those who still eat out where you have little or no control over cross contamination back in the kitchen. There is a significant educational process connected with eating truly gluten-free. Perhaps...
  3. trents
    A classic example of medical ignorance. The two links I supplied above refute the idea it is only seen in children.
  4. trents
    As C4Celiac said, bowel cancer from celiac disease is higher in incidence than it is for the general population but still statistically very unlikely.
  5. trents
    More on CMP (cow's milk protein) and villi blunting: https://pubmed.ncbi.nlm.nih.gov/2262836/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/ I would go armed with information to that GI doc about CMP and villi blunting. Those of us who have been emersed in the celiac world for some years have learned that the medical community is surprisingly...
  6. trents
    A classic example, Dan, of the multitude of ways gluten is hidden in the processed food supply and through terminology.
  7. trents
    Welcome to the forum, sadfaceemoji! One piece of advice I would give would be to connect with a local celiac group for support. Do you mind sharing with us where you live? Perhaps another forum member lives in your area and can help you connect. Also, I believe some of the online dating services have matchup categories for celiac/gluten intolerant people...
  8. trents
    You say, "in a nutshell, yes I barely eat gluten if I’m honest. " So that makes me wonder if your celiac testing is always negative because you are not consuming enough gluten on a regular basis. The testing is designed to measure the antibodies produced by the inflammation in the small bowel lining produced by the ingestion of gluten. No gluten, no inflammation. ...
  9. trents
    Welcome to the forum, Carlisima! "After a few months I deduced it was the fresh bread I was eating every morning and cut it out. I have never really gotten better." Would you explain that? If it didn't make you any better to cut out the fresh bread every morning, how is it that you deduced it was the problem? Another question I have is were...
  10. trents
    Welcome to he forum, Harjot! Not sure how that would work since in some sense you now have a new immune system after the transplant. But, to be sure you should get retested for celiac disease. Just for your information, it is not uncommon for people with celiac disease to develop an intolerance to either lactose (the sugar in milk) or casein, the protein...
  11. trents
    Welcome to the forum, Kari! I have not heard of anxiety causing coughing but it seems we learn something new on this forum almost everyday. But let's look at some more common causes. What meds is your mother on? Does she take any blood pressure meds or diuretics? There is one of those that is famous for causing coughing but I can't remember...
  12. trents
    Welcome to the forum, Tammy! Make sure you don't start a gluten free diet before the biopsy is complete. We are very pleased that you have found this forum to be helpful.
  13. trents
    The tTG-IGG is less accurate (less specific for celiac disease) than the tTG-IGA is my understanding. The fact that you have no villous atrophy really is the key here as that is considered the gold standard for diagnosing celiac disease. Sometimes, however, we get people who are tested while in the early stages of celiac disease who have negative biopsies...
  14. trents
    Were you IGA deficient (low total IgA)? Just wondering why the physician ordered the tTG-IgG? Normally, that is run when total IGA is low since total IGA will suppress the individual IGA values.
  15. trents
    You have used some terminology that is unfamiliar to me. "preservation of the villlous architecture" Does this mean there was no villous atrophy? "Immunoglobulin A QN Serum". Not sure what this is but it sounds like it might be referring to total IGA. "tTG-IgG" was positive at 6". What is the reference range? Did the physician run a tTG...
  16. trents
    Two things: 1. About 18% of celiacs have elevated liver enzymes. In fact, that was what led to my diagnosis. 2. Many celiacs are what we call "silent celiacs". That is, they have no gastro-intestinal distress, at least not until there is significant damage to the mucosa of the gut which means they may have had the disease for years.
  17. trents
    The Mayo Clinic guidelines for the pre-biopsy gluten challenge is 2 weeks of eating at least two slices of wheat bread daily (or the equivalent). However, it's much longer for the antibody test, 6-8 weeks. I mention that because apparently the physical damage shows up more quickly than does the inflammatory response that is detected by the antibody tests...
  18. trents
    Well, I just hope the immunosuppressent you are taking doesn't sabotage your biopsy results. I have been gluten free for many years now and have lost all tolerance to it. If I were to eat a pizza now I would be experiencing intractable vomiting for several hours with excruciating gut cramps followed by several hours of diarrhea.
  19. trents
    I am not a physician but that I know of, there is no immunosuppressant drug that is so targeted that it does not have at least some systemic effect. I mean, think about all those TV commercials that advertise immunosupressants for psoriasis, crohns, and you name it and they all have disclaimers that they can increase your risk for cancer and various infections...
  20. trents
    We have had a few posters who claimed to have experienced a period of remission. But this does not seem to last. It seems more common with children whose immune systems are still under development.
  21. trents
    Welcome, Patrick! You may find this helpful: https://nationalceliac.org/celiac-disease-support-groups/
  22. trents
    Welcome to the forum, flyttfag31! We do know that if you have been gluten free for a significant amount of time you lose all tolerance such that when you accidentally get glutened your reaction is typically much more severe than when you were consuming gluten regularly. At least it works that way for those who do have celiac disease. I'm assuming it...
  23. trents
    samden, welcome to the forum! There are some other medical conditions that can cause elevated tTG counts but by far the most likely cause is celiac disease. The centerpiece of the celiac blood panel is the tTG-IgA which has both good specificity and good sensitivity. And yours is high. Do you have access to the reference ranges for negative vs. positive...
  24. trents
    Sarah, welcome to the forum! To achieve a truly gluten free lifestyle generally involves quite an education process as gluten is hidden in places and ways nobody ever expects. Recent research has shown that most people who claim to be eating gluten free are actually practicing a lower gluten diet but still getting "glutened" regularly. This particularly...
  25. trents
    Yes, but if GliadinX breaks down enough of the traces of gluten found in CC scenarios such that there is less than enough left to cause a celiac reaction, then it has accomplished the purpose, has it not? Seems to me you are setting up a straw man argument based on the premise that GliadinX is guilty of misleading people who use the product outside of the...
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