celiac3270

Yes--you really shouldn't take that medicine. Gluten causes or has caused mood swings in many of us here--myself included--and eliminating all gluten should, on its own, help it. It may take a few weeks, but it's worth it if you can solve the problem.

Sorry I didn't go into it more and can't right now--have to get off the computer . Many people, as you would see at their website, couldn't get better, even on special diets--this goes for various problems such as crohns disease, but has also worked for some celiacs. It's a very challenging diet to implement--it cuts out processed foods nearly altogether, is gluten-free, and is free of so much else--

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

There's a book written about it--the easiest way to start it--called Breaking the Vicious Cycle. You might want to give it a try because if you can really stick to it, you might get some great results.

Have you looked into other things that could be causing your continued symptoms? Allergies, other intolerances, diseases or conditions commonly accompanying celiac, such as lupus? Are there any structural problems that your doctor has looked into? Finally, there is no way gluten is getting into your diet, is there? All it takes is one wrong product to mess up the whole thing--make sure lipsticks and other makeup, shampoos, lotions, are gluten-free--don't lick envelopes (which may or may not have gluten)--the little things. Just make sure you're not getting contaminated.

Keep us posted .

I like the Chebe bread mix as a pizza crust. Don't know about using it for actual bread.....

Try the Specific Carbohydrate Diet (SCD)....strack2004 is a great source of information. Try pming her for information on this if she doesn't read this post--

KL Terry,

First off, when you change your signature, it will update in every post...just so you know . I think your problem is about not closing open tags. First, type whatever you want to say, then highlight whatever you want and make it a different color, change the font, etc. When you're done, it should say Open Tags: 0 at the top, where you can press B, I, U, FONT, SIZE, etc. Also, you could just click on the font, color, etc., type everything, then hit "close all tags" If you don't close the tag, then you see the writing the way it is right now, like this:

Aww...sorry, I forgot to mention--all the information seems to be for the US--since it mentions the states the restaurants are in, all the "regions" that they get a sampling of restaurants from are in the US, etc. I apologize to all my friends to the north for getting your hopes up

Yes-- Prilosec OTC is gluten-free. I took it for weeks when my doctor suspected that I might be having trouble with acids or something.

I posted this under the duplicate at first, so I just copy and pasted it and deleted the other one.

1. Male

2. 14

3. Caucasian

4. 13

5. Initially, I didn't even know what celiac was, and since it was a "disease", I was scared, confused, etc. Once I educated myself, a little overwhelmed, but determined to feel better.

6. Yes--when I was an infant I had projectile vomiting. At age 13, about a year ago, I was diagnosed with celiac disease. Within the past month, I've found out that I have malrotation of the intestines, a painful physical problem with the structure of the intestines, causing them to twist--happens at infancy and it took 14 years of vomiting, pain, and no answers to find. That's about it.

7. I absolutely never eat gluten

8. I don't have difficulties maintaining the diet, though I guess better labeling to make finding out whether foods are gluten-free easier would be terrific. With restaurants--some understand, or at least, treat it like an allergy and therefore, do a good job with my meal, some I wouldn't trust, but it's just about picking the right place and doing your research. Travel is....a pain in the neck--challenging to plan--but it can be done. Taste can vary, but that doesn't make it difficult for me to maintain the diet. So basically, no problems, but better labeling would help me the most.

9. I'm not sure if my symptoms came only from the malrotation (explained in 6) or both. For all I know, I may have been an asymptomatic celiac. I think, though, that my symptoms might have lessened in severity with the gluten-free diet, so I would say: stomach pains, vomiting/nausea, bloating/gas, loose stools, and low weight.

10. Very uncomfortable--let's put it this way, I would never eat out for fun. I'm one of those ultra-paranoid gluten nuts since gluten, in part, had me sick since I was a pre-schooler--as far back as I can remember. I don't really like talking to people about celiac, but of course, I do when I eat out......I just don't find it enjoyable because I'm also scared about possible contamination. That applies to restaurants without a gluten-free menu, when they're just trying to do their best. With a place that has a gluten-free menu and seems pretty reliable/diligent, I think it can be an enjoyable experience and I feel less....awkward, asking for a special meal, since I can just order off a menu like everyone else.

11. Oh, didn't see this question when I was answering the one before--I think I explained it above.

12. Ask for a gluten-free dish.

13. Yes--they seem very earnest to do it correctly, too, since I don't downplay celiac or the dangers of even a few crumbs to my body. Sometimes the word allergy helps--since people often aren't aware with celiac. I'd rather explain it how it is than call it an allergy, since it's not, but it's just easier when you're eating out.

14. Maybe--probably not, if it was too expensive.

15. Affordability, accuracy

16. Very high cost, low accuracy -- basically the opposite of what I would find appealing in the machine.

17. Oooh...dunno. It would probably depend, of course, on the quality of the machine. I'm not sure that I would buy it, since I don't eat out too much and I would rather call a company and find out for sure if something's gluten-free than to test it where the results might not be totally accurate...and I'm 14, so I wouldn't know what would be reasonable.

18. Interviewing--definitely. Testing--yes, provided that I wouldn't be putting myself at risk with gluten consumption.

Just a few questions, though it's not that important or related. Are you celiac? If not, what interested you in doing this? Thanks

-celiac3270

P.S. You must have Adobe Reader version 6.0 or higher to view this. The latest version can be downloaded for free at Open Original Shared Link

Hi,

This was too good not to share--besides posting a lot here and lurking at the Delphi forum, I get the "daily digest" of messages from a couple Yahoo Groups.

From one of them, known as Open Original Shared Link (not to be confused with USA Silly-Yaks, Jessica's group), I got a 108 page Adobe file from the owner--a massive, wonderful food guide with links to the gluten-free menus on websites, phone numbers, locations (by state, when applicable), and a column with all the foods we can eat and those we can't. Since it's a Yahoo group, you would need to join first, but it would probably be under the files section so you could download it (it's not on the internet). I could also forward the e-mail to anyone who would want to download it--just send me an e-mail or pm w/ your address if you would want it. The first 97 pages is about places you could find throughout most, or at least, a large part of the US. Then they do regional suggestions -- one about NYC, which would be helpful for all the recent posters, and also about California (by region), Connecticut, New Jersey, Massachusetts, Oregon, Rhode Island, Washington, and Washington DC.

-celiac3270

Biopsies are not 100% accurate. If you get a positive result, that's usually pretty accurate, but if it comes out negative, you should not rule out celiac disease. Like you said, the damage can be in another area. So even if the samples they take show no damage, there could be a different section where the villi are completely gone. Also, if you have been eating little or no gluten, you might see little or no intestinal damage, even though you have celiac. That's why if someone who's been on the diet long enough (5-12 months for most) and they perform another biopsy, it will test negative for celiac disease, even if the person actually has the disease. Simply, you're right--it's not always accurate. If you have positive bloodwork or Enterolab results, I would find that conclusive enough in my mind and would not worry about negative biopsy results.

On an NPR radio thing a few months ago, Dr. Green said that he expected a treatment for celiac within the next ten years--not actually a cure, but, for example, a pill so that if you accidentally ingest gluten, it won't do as much damage--that sort of thing.

But if we got that sooner....or by 2015 had something even better than treatment for accidents....wow. I tend to be skeptical about this sort of thing because I don't want to get my hopes up, but wouldn't that be cool?

Here's an article that's interesting, since this topic has to do with diabetes, gender, and celiac:

Open Original Shared Link

Yes--rice is fine on a gluten-free diet. She might have a separate allergy--many people here have some other condition or allergy that accompanies celiac. Allergies are unrelated to celiac, but that would be why she has trouble with rice--not celiac disease.

Ibsteenwyk,

I think this might be the guide she was referring to--just looked it up on their website. Most recent version is from 2002, though:

Open Original Shared Link

Everything by Yoplait is gluten-free--all flavors of Yoplait whips, Yoplait custard style, etc. It's just, if there's any Yoplait yogurt with cookie crumbles in the top cap to sprinkle on, don't do it, because that would contain gluten. If they change something so that it isn't gluten-free, the gluten will be clearly shown on the label, so you know it's not hiding behind a modified food starch or flavors. So just read labels--

Dannon had three gluten-free yogurts-- the regular plain, lowfat plain, and no-fat plain....the other ones may have gluten in the flavors, so the company will not verify them as gluten-free.

I haven't used them, but others have and loved them. Also, you might get a positive result using them, even if bloodwork gave you negative results. Again, people who have received positive results and tried the diet have felt so much better--others will likely say the same, but--yes, Enterolab is good--no insurance coverage, though.

I put 9 links under this post:

Open Original Shared Link

That's what I meant, Kaiti...thanks

You can do the tax thing in the US, as well. She can deduct just about everything, provided that it amounts to a certain percentage of her income. Basically, you start a table and list the price of everything gluten-free that you buy. Then in the other column you list what it would have cost if you could have bought the other kind. Then you subtract the difference, which is tax deductable. If she has to drive a few miles further to get to the healthfood store or to get to doctors, even that can be deductable, as long as it's properly documented. Unfortunately, there's not a really good web site that I know of with the tax information for the US. Someone on here might be able to provide you with better specifics, though.

Mrsfish,

For your daughter who is allergic to dairy, she could eat the gluten-free nuggets--if she can have egg, then you just dip the meat in the egg, then roll it in Lays Classic Potato Chips crushed by a blender--the potato chips you would use for the recipe are dairy-free, lactose-free, casein-free (see the following lists):

Open Original Shared Link

Open Original Shared Link

For your son--they have a list of FritoLays products that CONTAIN egg--just subtract these, which mostly include cookies, from all of the other products and you have your egg-free list, which again includes Lays Classic potato chips. If an egg substitute would work all right with it (and I'm not sure if it would), he too could have the chip nuggets, which look strange, but if you and your children can get by that, taste really good for homemade. Now, the egg-CONTAINING list:

Open Original Shared Link

For processed gluten-free chicken nuggets--a company, Ians, makes them and they're really terrific. About 12 in a package, but make sure it says gluten-free on the box because they make them gluten-free and non-gluten-free and the boxes look almost identical.

My mom made the chicken nuggets wiht potato chips for my family once--everyone liked them--I think I'd rather eat the Ians....they're good--just, if you make them, don't expect them to look normal--because they don't--taste isn't bad, though

Post or General Mills--don't remember who makes them--makes potato buds that are gluten-free....

Well, about McDonalds, they can't guarantee anything, because the employees might cross-contaminate something--I'd ask if their fries, for example, are cooked in a dedicated fryer before ordering them. Their gluten-free list (for the USA) is here:

Open Original Shared Link

That's so cool! Thanks for posting it--I sent the link to my mom and I think I can go . It might be very interesting and I'll make sure I take scrupulous notes or save brochures so I can share all the information here.