Gabel 0 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 Hello, I am a sophomore in Industrial Design at the University of Illinois at Urbana-Champaign developing a product that aims to enhance the lives of individuals on gluten-free diets under the instruction of Assistant Professor Deana McDonagh and Ben Grosser, director of the Beckman Institute of Advanced Science and Technology. Below is a survey I am conducting for those with Celiac disease or gluten intolerance to help me research and figure out how the gluten-free lifestyle can be improved in terms of dining out. Any questions you would be willing to answer would be of significant help to my research and product development. Also, anyone who may feel uncomfortable posting their answers may instead e-mail me at gabel@uiuc.edu. Thank you all for taking the time to assist me in my research and I will continue to keep you posted on the status of the project as it progresses. Questions: 1. sex: 2. age: 3. ethnic group: 4. age at which you were diagnosed: 5. How did you feel when you were diagnosed? 6. Did you have health problems in childhood? 7. How well do you maintain a gluten-free diet? __ I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food __ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting __ diarrhoea __ mouth ulcers __ stomach pains __ fatigue/tiredness __ other(s) : 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) 16. What aspects might make you refrain from using it? 17. About how much would you be willing to spend on a device like this? 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Thank you once again! Any further questions or comments may be posted or e-mailed to gabel@uiuc.edu. Link to post Share on other sites
MySuicidalTurtle 3 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 Answers: 1. sex: Female. 2. age: 19. 3. ethnic group: Caucasian. 4. age at which you were diagnosed: 17. 5. How did you feel when you were diagnosed? I felt glad to know the problem. 6. Did you have health problems in childhood? Yes. 7. How well do you maintain a gluten-free diet? X I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? X Price of gluten-free food X Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food X Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods X Dining out X Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting X diarrhorea __ mouth ulcers __ stomach pains __ fatigue/tiredness X other(s) : Rashes. 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food X Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? It happens at any place that does not have a glutenfree menu because they usually cross-contaminate. 12. How do you deal with situations in which you must dine out? X Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish X Other : I bring my own food and if not then I don't eat. 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? No, unless they cater to Celiacs. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? There is one but it's not too reliable in my opinion. It would have to be extreemly sensitive for me to use. 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) The one now has a high and low/no gluten score. I would want a high, low, and no gluten score if I used it. 16. What aspects might make you refrain from using it? Speed, and accuracy. 17. About how much would you be willing to spend on a device like this? Not a whole lot. 18. Would you be willing to participate in later product testing and further interviewing as this project develops? No. Link to post Share on other sites
celiac3270 5 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 I posted this under the duplicate at first, so I just copy and pasted it and deleted the other one. 1. Male 2. 14 3. Caucasian 4. 13 5. Initially, I didn't even know what celiac was, and since it was a "disease", I was scared, confused, etc. Once I educated myself, a little overwhelmed, but determined to feel better. 6. Yes--when I was an infant I had projectile vomiting. At age 13, about a year ago, I was diagnosed with celiac disease. Within the past month, I've found out that I have malrotation of the intestines, a painful physical problem with the structure of the intestines, causing them to twist--happens at infancy and it took 14 years of vomiting, pain, and no answers to find. That's about it. 7. I absolutely never eat gluten 8. I don't have difficulties maintaining the diet, though I guess better labeling to make finding out whether foods are gluten-free easier would be terrific. With restaurants--some understand, or at least, treat it like an allergy and therefore, do a good job with my meal, some I wouldn't trust, but it's just about picking the right place and doing your research. Travel is....a pain in the neck--challenging to plan--but it can be done. Taste can vary, but that doesn't make it difficult for me to maintain the diet. So basically, no problems, but better labeling would help me the most. 9. I'm not sure if my symptoms came only from the malrotation (explained in 6) or both. For all I know, I may have been an asymptomatic celiac. I think, though, that my symptoms might have lessened in severity with the gluten-free diet, so I would say: stomach pains, vomiting/nausea, bloating/gas, loose stools, and low weight. 10. Very uncomfortable--let's put it this way, I would never eat out for fun. I'm one of those ultra-paranoid gluten nuts since gluten, in part, had me sick since I was a pre-schooler--as far back as I can remember. I don't really like talking to people about celiac, but of course, I do when I eat out......I just don't find it enjoyable because I'm also scared about possible contamination. That applies to restaurants without a gluten-free menu, when they're just trying to do their best. With a place that has a gluten-free menu and seems pretty reliable/diligent, I think it can be an enjoyable experience and I feel less....awkward, asking for a special meal, since I can just order off a menu like everyone else. 11. Oh, didn't see this question when I was answering the one before--I think I explained it above. 12. Ask for a gluten-free dish. 13. Yes--they seem very earnest to do it correctly, too, since I don't downplay celiac or the dangers of even a few crumbs to my body. Sometimes the word allergy helps--since people often aren't aware with celiac. I'd rather explain it how it is than call it an allergy, since it's not, but it's just easier when you're eating out. 14. Maybe--probably not, if it was too expensive. 15. Affordability, accuracy 16. Very high cost, low accuracy -- basically the opposite of what I would find appealing in the machine. 17. Oooh...dunno. It would probably depend, of course, on the quality of the machine. I'm not sure that I would buy it, since I don't eat out too much and I would rather call a company and find out for sure if something's gluten-free than to test it where the results might not be totally accurate...and I'm 14, so I wouldn't know what would be reasonable. 18. Interviewing--definitely. Testing--yes, provided that I wouldn't be putting myself at risk with gluten consumption. Just a few questions, though it's not that important or related. Are you celiac? If not, what interested you in doing this? Thanks -celiac3270 Link to post Share on other sites
KaitiUSA 9 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 1. Female 2. 17 3.Caucasian 4. 16 5. I was overwhelmed a bit but relieved that I would finally be feeling better 6. No always healthy until age 14 when I got mono...that started everything. 7. I absolutely never eat gluten 8. Price and availability of food 9. tired, nausea on and off, weight loss 10.Very uncomfortable 11. Not everyone knows all they ways foods can get cross contaminated. I don't trust the people to prepare my food in a glutened place. I can't order like everybody else and people wonder why I can't eat it and then I have to explain it all. It's not embarassing it is frustrating. I do not choose to go out to a restaurant to eat though. 12.Ask for a gluten free dish 13. no because most do not understand. Some I have found to be good and knowledgeable though and those places I will go to eat if I have to go out to eat. 14.Yes that would be awesome 15. Accuracy and size 16. if it is innaccurate or overpriced 17. Depends on how accurate it is and if it is easy to carry around like fit into a purse 18. Yes as long as I would not be consuming gluten Kaiti Positive bloodwork Gluten-free since January 2004 Arkansas Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future" "One Nation, Under God" Feel free to email me anytime....jkbrodbent@yahoo.com Link to post Share on other sites
flagbabyds 4 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 1. sex:Female 2. age:14 3. ethnic group: Cacuasion 4. age at which you were diagnosed:20 months old 5. How did you feel when you were diagnosed? Don't know, pretty sick, don't remember 6. Did you have health problems in childhood?Yes 7. How well do you maintain a gluten-free diet? _X_ I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food _X_ Availability of gluten-free food (although it has gotten much better over the years) _X_ Taste of gluten-free food __ Preparation of gluten-free food _X_ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? _X_ nausea/vomiting _X_ diarrhoea __ mouth ulcers _X_ stomach pains _X_ fatigue/tiredness __ other(s) : gliaden shock 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all _X_ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? It sometimes happens when I am with my friends and they are all ordering and I am asking questions about the menu for 20 minutes and they get all annoyed 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten _X_ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Some are/some aren't, it really depends how crowded it is because if there are a lot of people, they tend not to listed as much, but if there aren't as many, they pay more attention to you 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? Yes 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) accurcy, I would want it to be as correct as possible 16. What aspects might make you refrain from using it? If there is a chance that it gives false negatives and then it would make me sick 17. About how much would you be willing to spend on a device like this? up tp $200 18. Would you be willing to participate in later product testing and further interviewing as this project develops? yes This will be really cool if you can get it to work! Molly Link to post Share on other sites
Guest barbara3675 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 Here we go....a reply from someone much older than those who have taken the time to reply already. 1. Female 2. 59 3. Caucasin 4. 59 5. Happy to know what was causing my swings from constipation to diarreah and how all of this connected to joint pain, migraine headaches, and other health concerns. 6. No 7. I very rarely eat gluten that I know of 8. Traveling and eating out 9. Stomach pains and diarreah 10. Slightly Uncomfortable 11. If the server doesn't want to take the time to understand what the issue is, then it can be an uncomfortable situation. 12. Eat only what you know or can assume if gluten-free 13. Sometimes 14. Yes 15. Size (fit in purse) accuracy would be essential 16. Known unreliability, too big to carry around, doesn't react in a reasonable amount of time. 17. $50 18. Yes Link to post Share on other sites
jenebanana 0 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 Questions: 1. sex: female 2. age: 23 3. ethnic group: white 4. age at which you were diagnosed: 22 5. How did you feel when you were diagnosed? depressed 6. Did you have health problems in childhood? stomach problems, frequent ear infections 7. How well do you maintain a gluten-free diet? __ I absolutely never eat gluten __ I very rarely eat gluten that I know of _X_ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? _x_ Price of gluten-free food _x_ Availability of gluten-free food _x_ Taste of gluten-free food _x_ Preparation of gluten-free food _x_ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __x Dining out __x Traveling __ Other: social issues related to gluten free diet 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting _x_ diarrhoea _x mouth ulcers _x_ stomach pains _x_ fatigue/tiredness __ other(s) : 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food _x_ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? Embarrassed to ask for gluten free food because someone will always ask, "What will happen if you eat gluten?" Not exactly good dinner conversation. 12. How do you deal with situations in which you must dine out? __ Don't eat _x_ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? No. They look at me like I am crazy. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? Yes 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) Size and accuracy. Also price. 16. What aspects might make you refrain from using it? If it was too expensive or not durable. 17. About how much would you be willing to spend on a device like this? $300 18. Would you be willing to participate in later product testing and further interviewing as this project develops? yes Link to post Share on other sites
Gabel 0 Posted February 23, 2005 Author Report This Post (To report rule violations to admin) Share Posted February 23, 2005 Thank you so much to everyone who has responded so far! And to answer celiac3270's question, No, I am not celiac. However, most of my boyfriend's family is and I have seen how they have suffered from it for the past 4 years. I did a lot of contemplating before deciding what to focus my project on and chose this because most people don't know much, if anything, about it yet so there really isn't much out there for individuals who are celiac. My ultimate goal is to increase celiac awareness as well as improve the everyday lives of those who suffer from it, if only to make them more comfortable dining out. Link to post Share on other sites
stef_the_kicking_cuty 11 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 1. sex: female 2. age: 28 3. ethnic group: Caucasian 4. age at which you were diagnosed: 27 5. How did you feel when you were diagnosed? I had so much pain and looked for the "right" thing for about 7 years, that I was glad, when we found it out finally. 6. Did you have health problems in childhood? Yes 7. How well do you maintain a gluten-free diet? X I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet?X Price of gluten-free food X Availability of gluten-free food X Taste of gluten-free food __ Preparation of gluten-free food X Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods X Dining out X Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? X nausea/vomiting X diarrhoea __ mouth ulcers X stomach pains X fatigue/tiredness X other(s) : joint pain, bone pain, muscle fatigue (don't know, if that's said right), dizzy, really bad mood swings, mostly sad and frustrated, sometimes real b%$@#y, weakness, tired all the time 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food X Very uncomfortable: I avoid dining in public situations if at all possible, I try to only eat out, when I know, they have a glutenfree menu 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? When i'm at a place, where the waiter/waitress has absolutely no clue about celiac and it's too busy at that place to explain 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten X Ask for a gluten free dish X Other : Or only try to go to restaurants that have a glutenfree menu 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Aware, absolutely not. Accomodating, at least they try. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? Yes 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) Accuracy and speed 16. What aspects might make you refrain from using it? If it's too expensive and/or too inaccurate and/or slow. If you can only use it one time. 17. About how much would you be willing to spend on a device like this? Not more than $ 50, less would be even better 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Yes, but only if I wouldn't have to eat gluten. Stef Next goals: Results for 2011: 1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry) gluten-free since 07/21/2004 Shermans Dale, PA Link to post Share on other sites
Guest ~wAvE WeT sAnD~ Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 Questions: 1. sex: Female 2. age: 21 3. ethnic group: Causasian 4. age at which you were diagnosed: 21 (July '04) 5. How did you feel when you were diagnosed? Crappy--this was shortly after I vomited most of my meals for the previous five months up to my diagnosis. It sucked. 6. Did you have health problems in childhood? Not really. 7. How well do you maintain a gluten-free diet? *I absolutely never eat gluten--except for two slip-ups in the initial phase. __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know ___ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food *Public awareness of gluten intolerance/celiac disease __Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods * Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? * nausea/vomiting *diarrhoea __ mouth ulcers __ stomach pains *fatigue/tiredness *other(s) : Constipation 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me *Slightly uncomfortable: I never know how the personnel will react. __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? Wow...a lot of places, specifically Applebee's. 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten *Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Generally, yes. Sometimes they get confused, but I try my best to help them. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? If it were proven to be accurate, yes. 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) I'd like it to be digital, and give a quick reading. 16. What aspects might make you refrain from using it? If it isn't approved, and the fact that it sounds too good to be true. 17. About how much would you be willing to spend on a device like this? Not a lot---and since I have my own insurance plan, medical plans should cover it. 18. Would you be willing to participate in later product testing and further interviewing as this project develops? No. Thank you once again! Any further questions or comments may be posted or e-mailed to gabel@uiuc.edu. Link to post Share on other sites
darlindeb25 5 Posted February 23, 2005 Report This Post (To report rule violations to admin) Share Posted February 23, 2005 Questions: 1. sex: female 2. age: 49 3. ethnic group: white 4. age at which you were diagnosed: 45 5. How did you feel when you were diagnosed? overwhelmed and yet happy to know that there was finally an answer 6. Did you have health problems in childhood? yes--always nervous tummy 7. How well do you maintain a gluten-free diet? _x_ I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? _x_ Price of gluten-free food _x_ Availability of gluten-free food _x_ Taste of gluten-free food __ Preparation of gluten-free food __ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods _x_ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? _x_ nausea/vomiting _x_ diarrhoea _x_ mouth ulcers _x_ stomach pains _x_ fatigue/tiredness __ other(s) : 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food _x_ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? i dont trust strangers with my food 12. How do you deal with situations in which you must dine out? __ Don't eat _x_ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? sometimes 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? yes 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) small, very accurate, and low in cost 16. What aspects might make you refrain from using it? too high a price tag 17. About how much would you be willing to spend on a device like this? its time someone invent something for us that isnt costly 18. Would you be willing to participate in later product testing and further interviewing as this project develops? yes always willing to help out good luck with this--you will recieve many responses--we all want more awareness out there--thank you for helping us----deb Deb Long Island, NY Double DQ1, subtype 6 We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! "The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on! Link to post Share on other sites
plantime 12 Posted February 24, 2005 Report This Post (To report rule violations to admin) Share Posted February 24, 2005 1. sex:f 2. age:40 3. ethnic group:caucasian 4. age at which you were diagnosed:40 5. How did you feel when you were diagnosed?miserable. I hurt constantly. 6. Did you have health problems in childhood?no more than any other child 7. How well do you maintain a gluten-free diet? XX I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? XX Price of gluten-free food XX Availability of gluten-free food XX Taste of gluten-free food __ Preparation of gluten-free food __ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting XX diarrhoea __ mouth ulcers XX stomach pains XX fatigue/tiredness XX other(s) : about 10 days after consumption, I get severely depressed and suicidal 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all XX Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten XX Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? not necessarily aware, but very accomodating after I explain it 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? If it is a 100% reliable test, yes. 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) it would have to fit into my purse, be 100% accurate, and take only a few minutes. 16. What aspects might make you refrain from using it? If it makes a lot of noise or takes more than 5 min to test. 17. About how much would you be willing to spend on a device like this?$100-$200 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Yes. Dessa The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25 Link to post Share on other sites
luvs2eat 60 Posted February 24, 2005 Report This Post (To report rule violations to admin) Share Posted February 24, 2005 1. sex: F 2. age: 52 3. ethnic group: white (of Irish decent... my doc said that was common in celiacs. 4. age at which you were diagnosed: 48 5. How did you feel when you were diagnosed? really sad... homemade bread is my favorite food. 6. Did you have health problems in childhood? Nope. I remember an episode when I was 5 when there was a question of my being allergic to wheat but I wasn't sickly or skinny and nothing ever came of it. 7. How well do you maintain a gluten-free diet? __ I absolutely never eat gluten _x_ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food _x_ Availability of gluten-free food _x_ Taste of gluten-free food __ Preparation of gluten-free food __ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting _x_ diarrhoea __ mouth ulcers __ stomach pains _x_ fatigue/tiredness __ other(s) : 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all _x_ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? 12. How do you deal with situations in which you must dine out? __ Don't eat _x_ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Most are clueless. I've been told things contain no wheat to have it come out breaded! I explain that I can't have anything with any kind of flour. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? I might, but probably not. I pretty much know what's gluten-free and what's suspicious. 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) the cost, I guess 16. What aspects might make you refrain from using it? Don't see much of a need. 17. About how much would you be willing to spend on a device like this? not much 18. Would you be willing to participate in later product testing and further interviewing as this project develops? if it's free? Sure. luvs2eat Living in the beautiful Ozark mountains in Arkansas positive blood tests and later, positive biopsy diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day Dairy free since July 2010 and NOT happy about it!! Link to post Share on other sites
capawa 0 Posted February 28, 2005 Report This Post (To report rule violations to admin) Share Posted February 28, 2005 1. sex: F 2. age: 50 3. ethnic group: white 4. age at which you were diagnosed: 48. Just diagnosed as allergic to wheat, oats and barley. Suffer migraines when I eat anything with the above. 5. How did you feel when you were diagnosed? confused when shopping. 6. Did you have health problems in childhood? Nope. 7. How well do you maintain a gluten-free diet? __ I absolutely never eat gluten _x_ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food _x_ Availability of gluten-free food _x_ Taste of gluten-free food __ Preparation of gluten-free food _x_ Public awareness of gluten intolerance/celiac disease _x_ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting __ diarrhoea __ mouth ulcers __ stomach pains __ fatigue/tiredness _x_ other(s) : 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me _x_ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? Some restaurants do not understand what items have gluten. 12. How do you deal with situations in which you must dine out? __ Don't eat _x_ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Most are clueless. I've been told things contain no wheat to have it come out breaded! I explain that I can't have anything with any kind of flour and they look at me like I'm nuts when I tell them the breading has flour. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? Yes. 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) speed and cost. 16. What aspects might make you refrain from using it? If it is bulky and costly. 17. About how much would you be willing to spend on a device like this? not much 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Sure. Link to post Share on other sites
cdford 2 Posted February 28, 2005 Report This Post (To report rule violations to admin) Share Posted February 28, 2005 Questions: 1. sex: Female 2. age: 46 3. ethnic group: Caucasian 4. age at which you were diagnosed:44 5. How did you feel when you were diagnosed? I was already disabled with the consequences, so finding the real culprit was a relief especially since it was something that I could control and it was not a death sentence. 6. Did you have health problems in childhood? Yes, but we did not have any idea what was causing them. 7. How well do you maintain a gluten-free diet? X__ I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? X__ Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food _X_ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat X__ Reading and memorizing labeling on foods _X_ Dining out _X_ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? X__ nausea/vomiting X__ diarrhoea X__ mouth ulcers X__ stomach pains X__ fatigue/tiredness X__ other(s) : skin outbreaks of DH, neuropathy, tetany, mental difficulties 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all X__ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? There are some people in restaurants who act as if I have made some horrible request or insulted them by showing my card. Ignorance of the employees can also be an issue Donna South Georgia 9 yrs gluten-free ...also DH, fibromyalgia, neuropathy, osteopenia, hypothyroid... After almost 10 years, I am doing soooo much better! Link to post Share on other sites
kabowman 0 Posted February 28, 2005 Report This Post (To report rule violations to admin) Share Posted February 28, 2005 1. sex: Female 2. age: 38 3. ethnic group: Caucasian 4. age at which you were diagnosed: Self-diagnosed between 32-38 YO 5. How did you feel when you were diagnosed? Depressed because of lack of food choices, Great because no longer so sick 6. Did you have health problems in childhood? Some food isses that were never identified. 7. How well do you maintain a gluten-free diet? _X_ I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food _X_ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food __ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __ Dining out _X_ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting _X_ diarrhoea __ mouth ulcers _X_ stomach pains _X_ fatigue/tiredness _X_ other(s) : arthritis 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all _X_ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? If I have to send food back because it came with bread/cheese/etc. 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish _X_ Other : If we dine out by choice, I take a dining card with all intolerances and share with server to share with cook and let them know right away that I am "the problem child" since we eat out with three kids... If a family event and gluten-free (and all other food is not available or the resturaunt will not cook for me, then I don't eat and just visit with family. Sometimes I can have a salad. Most people (friends & co-workers) we eat with think the card is a great idea. 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? If not aware then willing (of course I only go by choice to a place I have called and asked if they will cook for my problem diet - some say no, some say yes, those that say yes, get our business) 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? Probably not due to many other food intolerances. 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) 16. What aspects might make you refrain from using it? 17. About how much would you be willing to spend on a device like this? 18. Would you be willing to participate in later product testing and further interviewing as this project develops? -Kate gluten-free since July 2004 Other Intolerances: Strawberries and Banannas (2007) Nitrates (April 2006) Yeast (which includes all vinegar so no condiments) (Oct. 2004) Peanuts (Nov. 2004) Soy (Oct. 2004) Almonds (Sept. 2004) Corn (Sept. 2004) Lactose/Casein (1999) Link to post Share on other sites
Carriefaith 5 Posted March 1, 2005 Report This Post (To report rule violations to admin) Share Posted March 1, 2005 1. sex: female 2. age: 23 3. ethnic group: Caucasian 4. age at which you were diagnosed: 22 5. How did you feel when you were diagnosed? At first I was shocked and upset but I went out and got a lot of information and strating felling better about the whole thing. 6. Did you have health problems in childhood? minor but yes 7. How well do you maintain a gluten-free diet? I absolutely never eat gluten 8. What are some of the main difficulties you face in maintaining a gluten-free diet? Price of gluten-free food Public awareness of gluten intolerance/celiac disease Dining out Traveling 9. What type of symptoms do you face when gluten is ingested? nausea/vomiting diarrhea stomach pains fatigue/tiredness 10. How comfortable are you eating in restaurants or public situations? Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? I'm afraid that I will get gluten contamination. Once at the outback steakhouse I ordered a gluten free menu and got VERY sick. It's not that I am embaressed, it's just that I find it very hard to trust that my meal is gluten free. 12. How do you deal with situations in which you must dine out? I have to be 10000% postive it is gluten free 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? I don't eat out very often (I haven't eaten in a restaurant for months). 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? yes 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) anything! as long as it worked 16. What aspects might make you refrain from using it? if it didn't work 17. About how much would you be willing to spend on a device like this? $25-$50 18. Would you be willing to participate in later product testing and further interviewing as this project develops? yes Carrie Faith Diagnosed with Celiac Disease in March 2004 Postitive tTg Blood Test, December 2003 Positive Biopsy, March 3, 2004 Link to post Share on other sites
Guest laughs8 Posted March 1, 2005 Report This Post (To report rule violations to admin) Share Posted March 1, 2005 Questions: 1. sex: F 2. age: 19 3. ethnic group: Caucasian 4. age at which you were diagnosed: 17 5. How did you feel when you were diagnosed? Fine, aside from joint pain and mild fatigue 6. Did you have health problems in childhood? No 7. How well do you maintain a gluten-free diet? X I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food X Public awareness of gluten intolerance/celiac disease X Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods X Dining out X Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting __ diarrhoea __ mouth ulcers X stomach pains X fatigue/tiredness X other(s) : I have a feeling that if I accidentally ingest a little gluten, I am asymptomatic 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me X Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food X Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible **It is often/always a hassle, but it's a hassle I've become comfortable with. 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? There are times when people do not under 12. How do you deal with situations in which you must dine out? __ Don't eat X Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish X Other : ask a lot of questions! 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Aware-no, accomodating-yes 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? YES 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) all of the above 16. What aspects might make you refrain from using it? I suppose if it was too big/too costly per use 17. About how much would you be willing to spend on a device like this? Depends on the accuracy and the portability, and also how long it would work for...but probably quite a bit. 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Yes Link to post Share on other sites
kschmitz 0 Posted March 3, 2005 Report This Post (To report rule violations to admin) Share Posted March 3, 2005 Questions: 1. sex: Female 2. age: 56 3. ethnic group: Caucasian 4. age at which you were diagnosed: 56 5. How did you feel when you were diagnosed? Complete surprise, since no one else in my extended family had ever had this dx. 6. Did you have health problems in childhood? No 7. How well do you maintain a gluten-free diet? _X_ I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food __ Availability of gluten-free food _X_ Taste of gluten-free food _X_ Preparation of gluten-free food __ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods _X_ Dining out _X_ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting __ diarrhoea __ mouth ulcers _X_ stomach pains _X_ fatigue/tiredness __X other(s) : Weight Loss 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me _X_ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? I am uncomfortable because even if people think they are providing gluten-free food, they do not understand at all the dangers of cross-contamination. It is easier for me to bring my own food then try to explain all the issues. 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten _X_ Ask for a gluten free dish __X Other : Bring my own food. 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Absolutely not. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? Yes 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) Size and weight - to easily fit in a purse or pocket; accuracy - 100% accuracy, because the smallest % of gluten affects me; speed - 60 seconds or less. 16. What aspects might make you refrain from using it? If it was not 100% accurate. 17. About how much would you be willing to spend on a device like this? If it was a one time only cost, up to $100. 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Yes, I would. Link to post Share on other sites
Kels18 0 Posted March 4, 2005 Report This Post (To report rule violations to admin) Share Posted March 4, 2005 1. sex: F 2. age: 15 3. ethnic group: Caucasian 4. age at which you were diagnosed: 15 months 5. How did you feel when you were diagnosed? Can't remember I was a baby 6. Did you have health problems in childhood? No, not after I was diagnosed. 7. How well do you maintain a gluten-free diet? I never go off the diet. X I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? X Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food X Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods __ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? Xnausea/vomiting __diarrhoea __ mouth ulcers stomach pains fatigue/tiredness other(s) : 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all X Comfortable: It's not too much of a problem or embarassment for me __Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible __It is often/always a hassle, but it's a hassle I've become comfortable with. 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? 12. How do you deal with situations in which you must dine out? __ Don't eat X Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __Other 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Aware-no, accomodating-yes 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? YES 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) all of the above 16. What aspects might make you refrain from using it? I suppose if it was too big/too costly per use 17. About how much would you be willing to spend on a device like this? Depends on the accuracy and how portable it was, but if it worked I would deff. consider any price. 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Yes Link to post Share on other sites
patrojan 0 Posted March 8, 2005 Report This Post (To report rule violations to admin) Share Posted March 8, 2005 1. sex: F 2. age: 33 3. ethnic group: Caucasian (Irish [western], German and Puerto Rican background) 4. age at which you were diagnosed:32 5. How did you feel when you were diagnosed? fine 6. Did you have health problems in childhood? nope 7. How well do you maintain a gluten-free diet? __ I absolutely never eat gluten _X_ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food X__ Availability of gluten-free food X__ Taste of gluten-free food __ Preparation of gluten-free food X__ Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat X__ Reading and memorizing labeling on foods __ Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting __ diarrhoea __ mouth ulcers X__ stomach pains __ fatigue/tiredness __ other(s) : 10. How comfortable are you eating in restaurants or public situations? X__ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? 12. How do you deal with situations in which you must dine out? __ Don't eat X__ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? No 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? Sure 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) Pocket-sized, would need 100% accuracy or else my guess is as good as the machines. 16. What aspects might make you refrain from using it? If it were to make me look rather ridiculous while using it. 17. About how much would you be willing to spend on a device like this? Depends upon its accuracy. Maybe $25.00? 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Sure Link to post Share on other sites
celiac3270 5 Posted March 9, 2005 Report This Post (To report rule violations to admin) Share Posted March 9, 2005 BUMP (Gabel wanted to reach more people in their 20s...) EDIT: oops, sorry...didn't realize it would already be at the front from a recent post. Link to post Share on other sites
eeyore 0 Posted October 23, 2008 Report This Post (To report rule violations to admin) Share Posted October 23, 2008 1. sex: Female 2. age: 13 3. ethnic group: Caucasian 4. age at which you were diagnosed: 12 5. How did you feel when you were diagnosed? I was rather surprised (since no one else in my family has a diagnosis of the sort), but glad since I was only gluten-sensitive (not as advanced as celiac) and that I already knew people who could help me. 6. Did you have health problems in childhood? once had bloody diarrhea (helped by slippery elm and flax oil) as a eighteen-month-old, and have had joint pain and fatigue for about six years 7. How well do you maintain a gluten-free diet? X I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? X Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food X Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods X Dining out __ Traveling X Other: Taking my own food to a party, etc. 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting __ diarrhea __ mouth ulcers __ stomach pains X fatigue/tiredness X other(s) : joint pain 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarrassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarrassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarrassing to ask about or identify gluten-free food X Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? I usually feel uncomfortable when visiting someone who doesn't know I can't have gluten 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish X Other : only go to a place that has a gluten free menu 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accommodating to gluten free requests? I haven't been out to eat since the diagnosis 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? yes 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) Pocket-sized, very accurate, quick, affordable 16. What aspects might make you refrain from using it? Inaccuracy, expense 17. About how much would you be willing to spend on a device like this? $100 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Perhaps I'M A JESUS FREAK! Link to post Share on other sites
kim:) 0 Posted October 24, 2008 Report This Post (To report rule violations to admin) Share Posted October 24, 2008 Hello, I am a sophomore in Industrial Design at the University of Illinois at Urbana-Champaign developing a product that aims to enhance the lives of individuals on gluten-free diets under the instruction of Assistant Professor Deana McDonagh and Ben Grosser, director of the Beckman Institute of Advanced Science and Technology. Below is a survey I am conducting for those with Celiac disease or gluten intolerance to help me research and figure out how the gluten-free lifestyle can be improved in terms of dining out. Any questions you would be willing to answer would be of significant help to my research and product development. Also, anyone who may feel uncomfortable posting their answers may instead e-mail me at gabel@uiuc.edu. Thank you all for taking the time to assist me in my research and I will continue to keep you posted on the status of the project as it progresses. Questions: 1. sex: F 2. age: 15 3. ethnic group: 4. age at which you were diagnosed: 10 5. How did you feel when you were diagnosed? No one else in my family had it so it was a change. I gained 7 pounds the first week! I felt almost 100 percent better in a week! 6. Did you have health problems in childhood? When I was a baby when I ate something, my "stools" didnt look normal. And I had problemos whith gas (this is embarissing) when i was growing up still. 7. How well do you maintain a gluten-free diet? I havent cheated once!! I have my own toaster, butter, peanut butter, jelly..ect. I dont want to get sick! X I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? X Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food X Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods X Dining out X Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? X nausea, no vomiting X Diarrhoea __ mouth ulcers X stomach pains X fatigue/tiredness X other(s) : Weird coughing spells, and a small rash on my hip 10. How comfortable are you eating in restaurants or public situations? X Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food __ Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? 12. How do you deal with situations in which you must dine out? __ Don't eat __ Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten X Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? Some are, some have no idea. As more and more people w/ celiac going to restaurants help! 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? YES! I know what I can have, but it would be nice for like cross contamination. 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) Small size, as accurate as possible, fast speed, cool colors, reasonable pricing, or else many wont be able to afford it with food and everything 16. What aspects might make you refrain from using it? If i know exactly I can have it, if i dont have it, if it doesnt read accuratly 17. About how much would you be willing to spend on a device like this? 35-45 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Yeah! Thank you once again! Any further questions or comments may be posted or e-mailed to gabel@uiuc.edu. Kim:) Link to post Share on other sites
julirama723 1 Posted October 24, 2008 Report This Post (To report rule violations to admin) Share Posted October 24, 2008 Questions: 1. sex: female 2. age: 27 3. ethnic group: Caucasian (of Northern European and Eastern European descent, Irish/Scottish/Polish/Romanian) 4. age at which you were diagnosed: 27--Mom diagnosed as celiac, self-diagnosed gluten-intolerance (through dietary experiment) currently looking into genetic/stool testing. 5. How did you feel when you were diagnosed? Relieved to know what the heck was going on with me. 6. Did you have health problems in childhood? Projectile vomiting/lactose intolerance as a kid, I was also a VERY "picky" eater, I came down with the "flu" a LOT; Graves Disease as a teenager, problems with overeating/emotional eating as I got older bordering on food addiction. 7. How well do you maintain a gluten-free diet? It's only been a couple of weeks, but... X I absolutely never eat gluten __ I very rarely eat gluten that I know of __ I try not to eat gluten but I sometimes cheat or don't know __ I don't maintain a gluten-free diet as well as I should __ I don't maintain a gluten-free diet at all 8. What are some of the main difficulties you face in maintaining a gluten-free diet? __ Price of gluten-free food __ Availability of gluten-free food __ Taste of gluten-free food __ Preparation of gluten-free food X Public awareness of gluten intolerance/celiac disease __ Knowing and understanding what foods you can and cannot eat __ Reading and memorizing labeling on foods X Dining out __ Traveling __ Other: 9. What type of symptoms do you face when gluten is ingested? __ nausea/vomiting __ diarrhoea __ mouth ulcers X stomach pains X fatigue/tiredness X other(s) : Constipation, bloating, cramping, abdominal distention, gas, brain fog 10. How comfortable are you eating in restaurants or public situations? __ Very comfortable: I have no problem at all __ Comfortable: It's not too much of a problem or embarassment for me __ Slightly uncomfortable: I sometimes feel it a hassle or embarassing to ask about or identify gluten-free food X Uncomfortable: I often feel it a hassle or embarassing to ask about or identify gluten-free food __ Very uncomfortable: I avoid dining in public situations if at all possible 11. If you ever do feel uncomfortable, where and why exactly does this usually happen? The menu is gluten-centric, or the restaurant is sub-standard. 12. How do you deal with situations in which you must dine out? __ Don't eat X Only eat what you know or can assume is gluten free __ Eat what they have out of politeness, even if it may contain gluten __ Ask for a gluten free dish __ Other : 13. In most restaurants, do you find that waiters/waitresses/managers/cooks are aware and accomodating to gluten free requests? It seems most don't know around here. 14. If a device were available that allowed you to test you food for gluten in public situations, would you use it? YES! 15. What are some features it would need or you would like it to have? (for example: size, accuracy, speed, etc.) It would have to be discrete, affordable, accurate, and fast. 16. What aspects might make you refrain from using it? Price, unreliability, if it's obvious or cumbersome. 17. About how much would you be willing to spend on a device like this? $100 18. Would you be willing to participate in later product testing and further interviewing as this project develops? Yes Graves Disease 5/95-5/97 Noticeable GI distress started 8/07 Mom Dx Celiac 9/08 Dietary Response POS 10/08 Bloodwork and Biopsy NEG 12/08 IgA Deficient Link to post Share on other sites
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