celiac3270

Right--there's a very good chance the person would've gotten it regardless. I wasn't breastfed and I probably developed celiac around 6-8 years old. Being breastfed might have put it off awhile, but I think I would've eventually triggered it somehow.

I guess it doesn't really matter why I--or anyone--developed celiac. However it came about, we all have it and we can't change anything that happened in the past, but just deal with the disease and the diet--I haven't read the whole thread, so I'm not total up to date on the conversation.......I don't really know what i'm saying anymore...rambling

Thanks--no, haven't tried that because the tests said that I didn't have any intolerances/allergies with milk products/dairy/casein/lactose, etc.

It does feel like a lot longer when 1 year comes around. You've done it this long and now you know you'll make it the rest of your life!

Yes--the first year does seem to take forever. It's hard to believe that only a year ago I was eating wheat-filled bagels every morning, pizzas, pastas, etc.

Congrats again, Stargirl

Yes, congrats! I'm exactly one month away from my 1 year anniversary--not feeling great in terms of health, but I feel like an expert on the diet, etc.

On Open Original Shared Link, I remember seeing a sample table for doing th tax returns, but I looked for this a couple months ago and couldn't find it. You might try e-mailing them, cause they had one, but then it seemed to vanish...maybe they could link you.

I think that it is more worth it for low-income families, anyway. I don't know the procedure exactly, but I think the difference has to be sufficient so that it amounts to a certain percentage of your income or something. Good luck...sorry I don't have too much info.

Don't think it's refractory--first, refractory is very rare, and second, you said that she had been getting much better. With refractory, the symptoms come, stay, and don't get any better even if you're 100% gluten-free.

Play Dough is very likely the culprit. It definitely contains gluten, and she probably touched it and then touched food or put her hands in her mouth or something. Besides, four-year-olds don't really wash their hands as often, so it may have stayed on her hands for awhile or through numerous meals.

-celiac3270

Don't have any details, but my father said he heard about a celiac "forum" w/ doctors on the radio in Chicago. It should be aired around 6:00...I don't know what station it's on or anything, but for those who live in Chicago, if there are any on the board, it might be worth doing a bit of research for.

celiac3270, I just had a gluten-free frozen pizza from Amy's---plain cheese, but still pretty good.

I've tried gluten-free replacements...I think I like Chebe the most so far, but right now acidic foods really bother my stomach, so I haven't even had a gluten-free pizza in months....which in itself doesn't entirely replace the old pizza. Thanks, though

Oh, sorry...I thought you said you had been gluten-free two months ...yes, I'm not a dr., but I think that would suffice.

If you're going to get a positive endo., you need to eat a lot more wheat than one graham cracker a day...and you should start as soon as possible eating it so that you can mess up your intestines enough for the test.....I know that sounds terrible. Of course, your other option is to not have the endo. at all, which is fine as long as you believe that the bloodwork is correct, are willing to stay on this diet your whole life, and won't doubt that you have celiac years in the future...it's a tough choice, though, if you have terrible symptoms. It was easy for me, because I was just diagnosed with bloodwork when a biopsy was recommended...so I just had to stay on wheat a couple more days, but the damage was already done.

Hi, welcome! I'm also fourteen...on the gluten-free diet for 11 months...

Yes, modified food starch CAN contain gluten, but doesn't always. You should call the company if you find that on a label except for with some celiac-friendly companies, such as Kraft (as tarnalberry said). Kraft will label any source of gluten or other common allergens (soy, etc.) on the lables in parentheses if they are hidden in another ingredient (such as natural flavors, artifical flavors, modified food starch, etc.)

I also don't mind answering any questions you have about the diet, etc.

-celiac3270

Biopsies are not always accurate. If the doctor selects samples from areas of the intestine that aren't damaged, it can result in a negative biopsy. If you have positive blood results, you almost definitely have celiac.

Though people think of the typical celiac as being the extremely thin person with diarrhea, bloating, gas, etc., that's not actually the most common celiac. Actually, more people are overweight before being diagnosed with celiac and the diet often helps those people lose the weight. Additionally, a majority of celiacs are asymptomatic, which is why so many celiacs never realize they have the disease.

Check out the diet and weight issues section on the board. You'll find that more posts deal with overweight celiac trying to lose weight than underweight celiacs trying to gain

Welcome to the board!

Yes, I heard that on the radio a couple weeks ago

Some of their sauces are...some aren't...I don't remember which ones are cause I don't use ragu frequently.

It's risky, but there are others who do it and are okay. Some are really sensitive and can start to feel bad if they even inhale this stuff.....I guess the most important thing is that you'll constantly have to be alert so that you don't eat anything accidentally.

I like it, also....perhaps the wheat could be made more realistic? But that's getting nit-picky.

Yes, I've tried the Soy Delicious vanilla/strawberry/chocolate ice cream....a little more...bland than regular ice cream, but pretty good

Cool, thanks for sharing!

Gluten will not get into cow's (or goat's, etc.) milk or an animal's meat. Gluten can be transferred through breast milk, so you should be on a gluten-free diet, as well, if you're breast feeding her. If you haven't been on the gluten-free diet for a little while before giving her breast milk, she can get gluten that way.

Your other option is Open Original Shared Link (depending on how long you've been gluten-free). You can order a test kit for celiac and you'll get accurate results as long as you haven't been solidly gluten-free for a few years....and I assume you haven't been gluten-free for 4 years or something

P.S. It's unlikely that your doctors would accept Enterolab, but many here have used it and been very satisfied.

My reactions happen about a couple days-2 weeks after I eat gluten so make sure to check everything that she has eaten for the last weeks

Can it really take that long to get a gluten reaction? I thought the reactions could come somewhere between 15 minutes and a few days, but I didn't realize that it could take weeks

Nope -- you cannot be glutened through cow's milk, even if they eat gluten-containing grains, just as you can't be glutened by eating cow or pig meat....even if these animals eat gluten-containing foods. I can't give you a technical explanation, but someone else will

No, haven't tried it.

As long as those bags don't have holes in them or something to let the heat through, they should work

Sounds like a good idea for someone in a situation like that at college, though for personal use at home, you'd be better off buying a toaster for $10 instead of four bags for $10.

I know someone will mention soon, so I might as well tell you now...never made any breads, but many love "Bob's Red Mill" flour or something...all purpose, kinda.

i love your name kaiti--it's no one's business but yours and i agree with you, i like bush too, so much better then the alternative, we bush fans stick together  --may not have anything to do with celiacs, but neither does darlindeb or lovegrov--this is a free country--you can have any name you want and any opinion too--keep your name and keep posting--dont let anyone upset you--we are all here for each other and to give support whenever we can--deb

I concur...btw, I'm also a Bush fan...Republican New Yorker here

Back to the topic: celiac3270, I assume you've been tested for pancreatic insufficiency and other food intolerances?

Yep...everything is normal--villi grown back and all--it's just the red stomach. I did an experiment yesterday--ate an orange (acid) and I started getting stomach pains. They went away without vomiting or anything, but it told me that the acid still isn't okay. I have been able to add it in small amounts (a little bit of ketchup once a day, etc.). But yes, been tested for pancreatic issues, other allergies/intolerances, etc.

My Mother bought me a "Wheat Sucks" shirt which I sometimes wear. My Aunt and Grandmother alos bought (different) Celaic shirts which they wear often.

LOL