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Jennas-auntie

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Latest Celiac Disease News & Research:

Everything posted by Jennas-auntie

  1. Jennas-auntie
    Yeah, finally did it! Last night I made gluten free phyllo dough and bakclava-and it tasted...like baklava! I have only been able to find one recipe, the one by Rebecca Reilly in Gluten Free Baking. I used a superfine grind rice flour for the dough, and left out the orange flower water because I couldn't find it right away except online, and didn't want...
  2. Jennas-auntie
    I've heard multiple things called pigs-in-blankets now, basically small meat pies of some kind-I grew up thinking they were Dutch in origin because I grew up with a bunch of Dutch-Americans who called them saucijzenbroodjes, and it was a big deal at the Tulip festivals they hold in the U.S. But they have a similar type food many places in the world(even...
  3. Jennas-auntie
    There is a recipe for Phyllo dough in Rebecca Reilly
  4. Jennas-auntie
    Re: the question about getting the actual medical records: HIPAA law states patients have a right to access their medical records. If your doctor won't give them to you, he's not within the law. Also, they are not allowed to charge you a fee for providing copies, excepting a "reasonable" fee for the paper used and possibly for the postage. Even if you...
  5. Jennas-auntie
    I use xan. gum, but you can substitute guar gum too if you can find that. It's also a bit cheaper usually, but you need to use another half as much guar gum as xan. gum in your recipe (so, if it calls for 2 teaspoons xan. gum, you use 3 teaspoons guar gum.) Most anywhere that has guar gum though should have xan. gum.
  6. Jennas-auntie
    We are from MN-I recommend checking out the Northland Celiac page Open Original Shared Link They have a listing of gluten free shopping places and also a section on the restaurants you can go to where they will know about it/have menus for you. They have added more in even the past few months. They also had a booth this year at the State Fair that a...
  7. Jennas-auntie
    I hope this is true. I think there are three categories of doctors-the ones who listen to their patients, the ones who are cynical but will listen to other doctors/publications, and the ones who can't be convinced of anything if it didn't occur to them first. There really are doctors out there who will listen to their patients, and hopefully with the NIH...
  8. Jennas-auntie
    Clan Thompson's website has a recipe for gluten free twinkies too-I haven't made them myself though- Open Original Shared Link You may be interested as there is a filling recipe (this is by Connie Sarros). If you use a whip cream filling, you must refrigerate the Twinkies-these use Crisco in the filling so that refrigeration is not necessary. So...
  9. Jennas-auntie
    Yum that sounds good, I'll have to try that one. When I was new to all this someone on the board recommended Bob's Red Mill chocolate cake mix, which I tried since I was able to find it locally and make for a birthday party so my niece could eat some. I made it first, clean kitchen, in a new cake tin, and it came out great, then put gluten-free frosting...
  10. Jennas-auntie
    This info comes from the Bryer's website FAQ section: QUOTE Question Do you have a list of gluten-free products? Answer * Unilever Ice Cream is a member of the Food Allergy & Anaphylaxis Network and the Food Allergy Resource and Research Program. * We recommend consumers read the label each time before buying our product. * If gluten...
  11. Jennas-auntie
    I was told that Breyer's used to be ok but is no longer on the most recent list put out by CSA-but I don't actually own this list myself. Does anyone know? I heard it just changed, like this summer.
  12. Jennas-auntie
    I can't speak for the gingerbread, but I think there's a recipe for Phyllo dough in Rebecca Reilly’s Gluten-Free Cookbook-also check out this thread-Open Original Shared Link there's also a suggestion there to try rice paper in place of making the dough-has anyone tried this yet? I don't know of any premade substitutes out there, I've been looking around s...
  13. Jennas-auntie
    St. Cloud doesn't have a whole lot of gluten-free out to eat options that I'm aware of, but maybe someone who actually lives there will know more. St. Cloud loves pizza, but I don't know of any places there that will serve you a gluten-free one. For grocery, I'd recommend the Good Earth Food Co-op- Good Earth Food Co-Op (320) 253-9290 2010 Veterans...
  14. Jennas-auntie
    Thanks for this list! I was just looking up a substitute recipe for "cream ofs" soups. I know that in the past year or so, Hy-Vee brand chicken bouillon granules are gluten free, if you happen to have one nearby- Open Original Shared Link (This is their online list). Thanks again for posting this!
  15. Jennas-auntie
    Yes, I was just wondering that. Does anyone have the October issue of Archives of Neurology around? This is fascinating though. As the wider spectrum of people with celiac are discovered, I bet there will be more links, or stronger ones, found between celiac and previously thought unrelated things.
  16. Jennas-auntie
    There are two Outback's there-one in Kihei and one near Kapalua, I believe. There is a Cheeseburger in Paradise there BUT it isn't the same one as on the mainland (they got sued for the name, I believe)-so I don't think they have a gluten-free menu, just to warn you. There is a place called "Down to Earth" that is a deli, health food store, and I believe...
  17. Jennas-auntie
    No need to sign up just to be nasty. Munchausen by Proxy is not recognized by the American Medical Association or the American Psychiatric Association. If someone is being abused, then call it poisoning or abuse by its name, rather than sticking a label on someone you do not know, and base it on actual evidence. While a reader may not agree with some things...
  18. Jennas-auntie
    Hi! If it's any reassurance, like you say most people with latent don't develop the full blown thing, and my husband tested positive for latent TB in a screening test for a job about 9 years ago. (Thinks he got it from working with people who had once been institutionalized and had been relocated to group homes, as that population has a higher rate, but...
  19. Jennas-auntie
    I've never been to the Chianti Grill myself, but I've heard they have great ambiance, their steaks are supposed to be good, and they make a lot of their stuff from scratch so you can talk to the chefs to get what you want. It's pricier than Good Earth, maybe you could do lunch instead of supper there if you wanted to keep it less pricey. Open Original...
  20. Jennas-auntie
    Timberlodge, Outback, Good Earth (also has lots of organic and vegan choices), P.F. Chang's, Pei Wei, Bittersweet Bakery is totally gluten-free in Eagan (suburb). I recommend checking out the Northland Celiac's webpage before you go-they list a lot of these here and also it might be handy to know if there's a nearby grocery store you can use-they list those...
  21. Jennas-auntie
    Ok, so I've done a bit more research now. So 10-14% of the population has this happen to them. I've read over the studies and it seems that of these people, many of them "just have it", and it probably isn't related to any pathological condition. However, "Beeturia is most common in individuals with enhanced iron absorption: in 66-80% of patients with...
  22. Jennas-auntie
    Nice list! Corn Roast place great! Ah, alligators are gluten free I see... not sure I want to try alligator though
  23. Jennas-auntie
    The health food store I shop at has all their gluten free flours in a totally separate area of the store with their own attached scoops so it would be almost impossible for contamination except perhaps, I suppose, someone could stick the bean flour scoop into the rice flour or tapioca flour and so on. Having the scoops attached is helpful though. Would...
  24. Jennas-auntie
    Ok, this was totally unexpected. There's this person I've told maybe they should get tested for celiac, they have some symptoms. Today they told me about 24 hours ago they had beets and their urine has been pink ever since. So I think, hey, that's odd, I wonder what that is about, just look it up to see why your urine would be pink if you eat beets. Come...
  25. Jennas-auntie
    Have fun! I may be going myself on Friday and if I do I'll do recon for you all, if you don't beat me to it!
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