
dionnek
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Everything posted by dionnek
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ARCHIVED Have I Been Misdiagnosed?
dionnek replied to Ginny's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
gfp, that actually makes some sense to me I too had worse symptoms after going gluten-free, and wondered how I could eat gluten for so long prior to being gluten-free but then feel WORSE after stopping gluten. Of course, realizing that, for me anyway, the worst part of gluten is the internal damage (and the possibility that if I eat gluten it might be... -
ARCHIVED Help.. Baking Question!
dionnek replied to a topic in Parents, Friends and Loved Ones of Celiacs
banana bread was my specialty before dx, and I have worked on finding the best gluten-free replacement and finally found it. I use the Pamela's Baking and Pancake Mix and got the banana bread recipe either from her website or from the package - can't remember which. Anyway, I add chocolate chips instead of nuts (but sometimes do nuts if I don't want it... -
ARCHIVED Artificial & Natural Flavoring
dionnek replied to aatwoson's topic in Gluten-Free Foods, Products, Shopping & Medications
From what I've read, in the US (not sure about other countries), the caramel color is made from corn (sodas, etc. are gluten free). And anything made from wheat has to say wheat somewhere in the label, but as wolfie said, barely and rye, malt, etc. do NOT have to be listed (although I think pretty much most modified food starch is either wheat or corn).... -
ARCHIVED How Long Does It Take To Recover From A Cc?
dionnek replied to janelyb's topic in Parents, Friends and Loved Ones of Celiacs
It takes me about 2 weeks for all the symptoms to die down, but the intestinal issues are usually gone after about 5-6 days (then just lagging depression and fatigue). -
ARCHIVED Kinnickinnick Products
dionnek replied to I3Daniel's topic in Gluten-Free Foods, Products, Shopping & Medications
They probable didn't ship your order until a few days after you placed it, so I doubt it was in transit that long - I think 2 days is the norm. As far as the bagels and english muffins go - they are good, but definitely NOT like regular ones. I've been gluten-free for less than a year now and used to be a carbaholic, so I still remember the "real" things... -
ARCHIVED Panic Attacks?
dionnek replied to dirtdiver's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have a question - what would be considered a "panic attack"? Before my dx, from the time of puberty, I would have dizzy spells/black outs and I'd get shaky and sweaty, then, about 2 years ago, I had 2 spells where I got all sweaty and dizzy and shaky and then started vomitting and D for about 12 hours (both times started while I was in a restaurant so... -
lexapro is gluten-free, so is zoloft. Hypothyyroid often causes depression - I have Hashimotos (where my thyroid goes back and forth from hypo to hyper), but even with my thyroid regulated my depression didn't get better, so I just started taking 25 mg of zoloft per day, and it has really helped. I've heard that it can take a few weeks for the antidepressants...
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ARCHIVED Starbuck's Dulce De Leche
dionnek replied to dionnek's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the replies - I asked the server yesterday when I was at Starbucks if the cinnamon dolce had that syrup in it and she said no, so I was relieved and didn't bother looking at the syrup bottle, since I will just stay away from that anyway. I don't need another bad addiction! -
ARCHIVED Problems With Herbal Tea?!?!?!?!
dionnek replied to nama shivaya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Isn't hops made from barely? That's not gluten-free. -
ARCHIVED Just Diagnosed Friday...feeling Overwhelmed!
dionnek replied to Amanda Thomas's topic in Parents, Friends and Loved Ones of Celiacs
I love the Pamela's baking mix - I make banana bread, muffins, cookies, and pancakes with it. There are lots of recipes using it on the Pamela's website. Also, fruity pebbles and cocoa pebbles and the new boxes of Trix are gluten free (read labels - old boxes may still be on the shelf), and the new Disney Dora cereal and Mickey mouse clubhouse and Little... -
ARCHIVED Starbuck's Dulce De Leche
dionnek posted a topic in Gluten-Free Foods, Products, Shopping & Medications
does anyone know if the dulce de leche syrup at starbucks is gluten-free? I've tried calling and looking up online but can't get through. I heard a rumor that it had wheat starch in it. Also, does anyone know if that is in the Cinnamon Dolce Latte? I've been having one of those once a week since they came out, so now I"m freaking out that I might have... -
ARCHIVED Can Someone Help Me?
dionnek replied to sweetmag72's topic in Parents, Friends and Loved Ones of Celiacs
Be careful of some dried fruit (and nuts) - I've seen wheat added to nuts and heard that sometimes dried fruit is coated with it so it doesn't stick. Just read the label - it will be listed in the ingredients. All fresh fruit and veggies are gluten-free, and I haven't found any canned or frozen (other than those with sauces, etc.) that aren't gluten-free... -
ARCHIVED Can Someone Help Me?
dionnek replied to sweetmag72's topic in Parents, Friends and Loved Ones of Celiacs
If you can afford it, maybe look into getting her tested through Enterolab or one of the other labs (Kimball is the only other one I know of, but others here might know of more). Insurance will most likely not pay for it though If you decide to just try the gluten-free diet and see how she does, you can get gluten free frozen waffles (Van's - make sure... -
ARCHIVED Mild Depression Symptoms Increased After Going Gluten-free?
dionnek replied to georgiagirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I experienced depression after my dx last May - at first I thought it was just the loss of gluten (and an important part of my life!), then I got Hashimotos and my thyroid was all over the place so I figured that was causing the depression, but after about 6 months when I wasn't mourning gluten anymore and my thyroid had been regulated for a few months, I... -
I just used Enterolab (here in the US) for my daughter's genetic testing - insurance did not pay for it. However, for my unborn baby, I asked the ped. if he could do the genetic test when he is born (in the hospital) and he said they could either do it then or at his first appt., but he wasn't sure how so he is going to look into it. I have found (at least...
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ARCHIVED What Is Going On? Help!
dionnek replied to Mountain Mama's topic in Coping with Celiac Disease
Yes, I bought the Pirate's Booty on Amazon (before I realized corn was a problem for me), and I still snack on it every now and then, just not the whole bag! The caramel is yummy too! Non-corn based salty snack foods - I like the Blue Diamond Nut Thins crackers (can find in the regular grocery store) - the have almond and pecan and hazlenut in lots of... -
ARCHIVED What Is Going On? Help!
dionnek replied to Mountain Mama's topic in Coping with Celiac Disease
Dairy gave me a problem until about 7 or 8 months after I went gluten-free, but the WORST problem with D I have now (other than accidental glutening), is corn. Not corn startch, etc., that doesn't seem to bother me - just pure corn (canned/frozen/fresh). I would give up corn and dairy for a while (and soy too since that seems to be a big problem for a lot... -
ARCHIVED gluten-free Tomato Soup...
dionnek replied to EmilyElizabeth's topic in Gluten-Free Foods, Products, Shopping & Medications
I buy the Amy's lowfat tomato bisque - it is so yummy! And I don't even usually like tomato soup b/c like you said, it can taste like spaghetti sauce - yuck! -
ARCHIVED 18 Month Old W/celiac's
dionnek replied to ana-myceliacbaby's topic in Parents, Friends and Loved Ones of Celiacs
Amazon carries a ton of gluten free food (just search "gluten free" under both grocery and gourmet foods to find) - the only problem is you have to order most things in bulk. There are some mainstream cereals that are gluten-free (fruity/cocoa pebble, Trix I think - check the ingredients, Dora the Explorer stars, Mickey Mouse club house and Little Einsteins... -
ARCHIVED My 4-year Old's Symptoms - Need Advice
dionnek replied to GraceE's topic in Parents, Friends and Loved Ones of Celiacs
I have heard that a lot of dr's don't recognize Enterolab, but I did a lot of asking around and the only 2 labs I found that would do the genetic testing was Enterolab and Kimball, and Enterolab was a little cheaper (for just the genetic - I didn't get any other tests done). I didn't really care if a dr. accepted it or not b/c I just wanted to know for my... -
ARCHIVED My 4-year Old's Symptoms - Need Advice
dionnek replied to GraceE's topic in Parents, Friends and Loved Ones of Celiacs
That sounds a lot like my daughter (who is just 2 1/2 now). She had vomitting/acid reflux from the time she was born until about 1 year old, when we finally went to a new dr. who put her on acid reflux meds and that helped, but since the age of 18 months she's had constipation (now on Mirilax too which helps). Anyway, when I was dx recently I had her genetically... -
I was recently dx so I had the gene test done on my 2 yr old daughter (through Enterolab). She does not appear to have celiac, although she has some constipation problems ( not severe) and had acid reflux as an infant (meds helped it though), but now her pediatrician wants to do the blood tests b/c the enamal on her teeth is wearing off. We are taking her...
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ARCHIVED Recovery Time For Gluten Free Diet
dionnek replied to debmom's topic in Parents, Friends and Loved Ones of Celiacs
Your daughter sounds like me - I was dx with Raynauds, Hashimotos (which I do have still), Insulin Resistance, PCOS, possible diabetes insipidus, just to name a few things before I finally found a dr. who knew what he was talking about Anyway, I'm not sure how much of that I really have or if all my problems (other than the thyroid) are just due to celiac... -
ARCHIVED Newly Diagnosed With Celiac And Throwing A B-day Party
dionnek replied to swinkler's topic in Parents, Friends and Loved Ones of Celiacs
I am the only (diagnosed) celiac in my family, but since I do the baking, for my 2 year old's bday party I made a gluten-free cake and cupcakes. All the snacks were gluten-free too so that I didn't have to worry about CC. It just made life easier for me, and no one even knew the cake was gluten-free unless I said something. I am doing this from now on... -
ARCHIVED Gluten Free Prenatal Vitamins
dionnek replied to Q1821's topic in Related Issues & Disorders
I was using BJs (the wharehouse store) brand (get them behind the pharmacy but not a prescription), but they just closed our BJs pharmacy so now I"m using Target prenatal - I confirmed they were gluten-free. They say "just like Stuarts" on the bottle but are in the aisle with the other vitamins.