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dionnek

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dionnek

  1. dionnek
    I had a lot of your same symptoms. Took me 10 dr's until one finally tested for celiac (I had never heard of it) and of course, that's what I have. If I were you, I'd either try to find a new dr. (definitely find a new dr. regardless!) and have him/her do the proper tests for celiac, and then try the gluten free diet to see if it helps. You have to be...
  2. dionnek
    I have that happen a lot (well, luckily it hasn't happened since my celiac dx in the past year). I've had every test and been to 10 doctors - they never could figure it out but it has gone away since I"ve been gluten-free so I wonder if it was something to do with malabsorption? I was anemic when I was younger, so they just chalked it up to that, but my...
  3. dionnek
    My first suggestion is move it to Atlanta Ok, second, if you are looking for books, I bought Danna Korn's Wheat Free Worry Free when I was diagnosed a year ago and thought it was great. Also, a lot of people recommend Peter Green's "Celiac Disease - A Hidden Epidemic" (I think that's what it's called) - Dr. Green is a well respected celiac dr. As...
  4. dionnek
    yes, at least in the US
  5. dionnek
    Where do you get this? Not sure if this is what I"ve had for about 15 years (only about 50 dermatalogists couldn't figure it out!), but I have it on the insides of both shins and it is very itchy. Of course I scratch it and it bleeds and scabs, etc. Retin A didn't help (tried that in high school) and I think I've had every kind of cream imaginable and...
  6. dionnek
    Broncobux - how do you make the Food for Life tortillas soft? I use them all the time but no matter what I do (microwave, heat on stove, just defrost on counter) they are always too chewy to be considered a burrito
  7. dionnek
    yes, I have major mood swings when I'm glutened, and then depression - all in all the symptoms last for about 2 weeks for me.
  8. dionnek
    You can order them on amazon - just search gluten free crackers in both the grocery section and the gourmet foods section - I can't remember which one they are in. You do have to order in bulk though (6 boxes I think), but they are very good and don't have too much of a flavor so go great with cheese, etc. My 2 1/2 year old (not gluten-free herself) loves...
  9. dionnek

    ARCHIVED In Denial

    dionnek replied to jodikris's topic in Coping with Celiac Disease

    Welcome back. I've been here about a year now (wow, time flies!) and would not have been able to stick with this if it wasn't for this forum. Hearing how bad some people got and how much pain they were in has convinced me that the diet is worth it! I am so thankful that I was never too bad off, even though my biopsy showed completely flat villi. I am...
  10. dionnek
    Since the blood tests are so unreliable in kids that age, I would look into getting her genetically tested - we used Enterolab. I have a 2 1/2 yr old who had no symptoms so we just did the gene test (I"m the celiac) and she does have one of hte genes so we will probably have her tested at 3 or 4, unless she starts showing symptoms before. I would think...
  11. dionnek
    I am the only one gluten-free in our house, so I did exactly what you said - in the beginning didn't worry about replacing my tupperware/pots and pans (did replace collander and cutting boards and all wooden items), but wasn't getting better so I went out and bought a huge box (at BJs or Sams or Costco) of the Galdware (like the ziploc) tupperware and now...
  12. dionnek
    My situation is the same as j_mommy's - looking back I had symptoms all my life but my pregnancy 2 1/2 yrs ago really kicked off the worst. I was dx by blood and endoscopy, so we then had my 2 1/2 yr. old daughter genetically tested so that we would know if we had to worry about it in the future or not (she has no symptoms and is in the top percentiles for...
  13. dionnek
    I was wondering - if someone has a lactose intollerance (instead of casein), would taking lactaid help if your symptoms are sinus congestion? I know that dairy makes my sinuses worse, and if I drink a glass of milk I get D, but I can have cheese, yogurt, even ice cream without any problem. I was thinking of getting some Lactaid to see if that helps my sinuses...
  14. dionnek
    Stick with it. If you weren't eating gluten when you had the blood tests then they would be negative, so that doesn't tell you anything. It took me 6 months gluten free before I noticed a difference (some things like the muscle cramps and dizzy spells went away in a few weeks though). Make sure all your medicines and lipgloss/lipstick/lotions, etc. are...
  15. dionnek
    I would call them now and have them put it on your reservations. That way they can make sure they have the stuff to make whatever she wants. Disney is great!
  16. dionnek
    I never have a period. About 4 years ago, when I was trying to get pregnant, I went of the birth control pill (which had always given me a regular period that lasted 1-2 days) and didn't have a period for 14 months. Had to go through various meds to get one and after one period I got pregnant. Then, after my baby was born, I think that's what really kicked...
  17. dionnek

    ARCHIVED Looking For Help

    dionnek replied to spac4c333's topic in Doctors

    I went through 10 doctors before I foiund one who could figure out what was wrong with me (I had never heard of celiac disease - just got lucky that that was the first thing he tested!). Do a search on the internet for the right tests you need - I can't remember what the website is but the university of chicago has a great celiac website that has a listing...
  18. dionnek
    I have the Triumph dining cards and don't use them a lot, but when we went on vacation recently I decided to pull them out and every restaurant I used them at was so greatful - they said the kitchen staff loves to have something to look at, so I think they are worth it (plus they come in different languages so very useful if you are at a thai restaurant or...
  19. dionnek
    I just bought a box of Cocoa Pebbles and they are still safe (at least the box I got).
  20. dionnek
    I will be in the hospital having a baby and called to talk to the dietician. She basically said that I should probably bring my own food, b/c they probably would get CC. If I want to risk it she said to make sure you tell EVERYONE you see that works there, every time you see them, that you have celiac and need gluten free meals. She didn't sound to confident...
  21. dionnek
    All of us know, but newbies might not: soy sauce chicken/beef, etc. broth chowder/soups some nuts/seeds spice mixes rice mixes Rice Krispies Kellogs Corn Flakes imitation crab
  22. dionnek
    I too had the "spells" you are talking about for many years (at least 20) prior to finally being dx with celiac last year. I would, out of the blue, start getting dizzy and nauseas and sweating and then either pass out or start vomitting and have D and vomitting for about 12 hours. When I was a kid they thought it was b/c I was anemic that I was passing...
  23. dionnek
    I noticed this too at one of my local grocery stores and wouldn't buy anything b/c the glutinous flour package right next to the gluten-free stuff had flour dust all over it - I didn't want to risk bringing any of that into my house!
  24. dionnek
    We went in October and stayed at the Pop Century - I would highly recommend it for kids - it is great and our little girl loved all the big figures, etc. I would recommend trying to get a room in the 50s or 60s section (closer to the food court), but each section has a pool so no matter where you are you can swim (the 60s pool is best for kids though). ...
  25. dionnek
    I used to have sharp stabbing pains in my left side (not constant) before I was dx with celiac and went gluten free. I think the pains stopped a few months after I was gluten-free and stopped dairy. I can eat dairy again now (it's been almost a year since I went gluten-free) and I don't get those pains at all. My biopsy showed "significant damage" to my...
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