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Keep Making Stupid Mistakes!


jhol

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jhol Enthusiast

 hi , 

i was doing alright following the gluten/dairy free diet , then i needed to give up nightshades and now i feel like everythings gone wrong. i just keep making stupid mistakes. i wanted somethin different for tea so bought a stirfry with sweet an sour sauce - only realised it had peppers in it  an the sauce had peppers and tomato,s , when i was cooking it!!. then bought my rice milk but there was another on special offer so i bought them- its only rice dream ive bought!!!!

rice dream by the way in the u.k. is on the same stand with the gluten free products!!

 

last night i had 2 corn cobs with dairy free butter - felt really weird and tired afterwards - i hope im not going to  have trouble with corn . feel like im losing the plot..

 

just having a rant ,thats all , feelin a bit down- maybe im eating summat i shouldnt..


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DutchGirl Apprentice

I am pretty new to this and keep making stupid mistakes as well. Mistakes that are making me sick and it makes me really mad when I do it. Just hang in there and do your best! I just wanted to let you know that you aren't alone!

1desperateladysaved Proficient

Yeah, soon you'll have gluten phobia to the max.  But it should work for you!

Lady Eowyn Apprentice

Hi

Been there!

It's like getting bogged down in a swamp and like 'what the hell can I actually eat???'

All I can say is that it gets better and it gets much easier - I guess, with practice.

I am sure some people are brilliant from day 1 but I suspect for most, it's a big learning curve. Getting it wrong is part of learning and providing you keep at it - it will improve along with how you feel.

Hope you feel better soon :) .

Greebo115 Rookie

Awwwww, this happened to me too.........I know exacty how you feel, I think I'm about 1 step in front of you.

I'm the sort of person who cooks everything from scratch, or so I thought.....so was amazed at how much gluteny processed stuff I had to throw out. And just when I thought I had it cracked, I poisoned us (me: celiac, hubby: has DH) with Worcester sauce that had gluten.........then just feeling like I got gluten sorted, all these other intolerances became obvious......I can't remember the order, it just all came tumbling in, one after the other, and another, including nightshades. I can't tell you how many times I spent hours researching recipes that only included things I could eat, and hours I'd spent cooking and baking, only to find out after one bite that I couldn't eat it!!! I either added a small amount of something I knew I was intolerant to, thinking it would be fine, since it was such a small amount (doh!), or I missed it, like using gluten-free baking powder.....containing corn.....(first stomach pain, then extreme bloating, then when I finally deflate, the smell could make paint peel, lol).....

Oh, and there was this paleo chocolate cheesecake I spent nearly a whole day making........all I did was lick the bowl on that one!

Anyway, depending on how you feel when you read this, you could find it depressing, but I hope not, it's kinda funny, why am I so obsessed with finding more foods to eat, when there is tonnes left to eat that I know won't upset me?

So, this week, I'm making peace with food and sticking to things that I KNOW don't upset me. 2 things I am finding helpful:

1. Making conscious substitutions, like roast parsnip chunks instead of roast potatoes, or pureed veggies instead of mashed potato and "spiralised veggies" instead of pasta.

2. Building a weekly menu of meals that I will come back to each week to take all the thought and effort out of the choices and prep. (I usually like to just buy lots of food, then just 'see what I fancy' or stand in front of the fridge for inspiration, so this planning is not natural to me). Last night we had "shephers pie", which was diced turkey thigh cooked with mushrooms onions and pureed beans to thicken the gravy, then topped with carrots and cauliflower that were pureed with salt pepper and vegetable oil and sprinkled with chopped almonds.

This morning was scrambled eggs, yum.

Hope something I said helps, you are not alone, and it does get better, it's just a process that must be endured....

nvsmom Community Regular

Hang in there.  I'm 9 months in and have recently made a doozy of a mistake. It happens.... I think as long as we learn from our mistakes we'll be okay. :)

jhol Enthusiast

hi there;

 

thanks for all your reply;s

just havin a major stress out this morning, suppose i was kinda hoping it would all go away lol.

 

i had to buy vanicream soap from america to see if the rash on my face went away. well i ran out of soap and because the rash was still there,( but i think it has gone down a bit )- i decided i wasnt gonna spend that much on soap again. big mistake- i spent monday night looking like a beetroot lol, then desperately searchin the internet for new soap!!! and ive spent the rest of the week throwing food away!!!

 

i think ive eaten some chinese crackers that didnt agree with me - although i cant see what it is in them thats disagreeing with me, an its been downhill from there lol

tried lactose free cheese tonight- well i now know it must be the caesin that i have problems with,an i,ll try the corncobs again tomorrow.

 

gonna make a big pot of veg and lentil soup that i know is ok - that,ll sort me out


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Takala Enthusiast

Pour the lentils onto a plate and make sure there are not non-lentils lurking in there, pick them out.  Then put the lentils in a colander and rinse those suckers before you cook them.  

 

Hear you on the soaps.  Every time I get fond of one, the manufacturers would change the formula.  :angry:   Do you have the Dr Bronner's castile soap there ?   I have had some pretty spectacular skin blow ups from toiletries.  Apple cider vinegar and water mixed 1 part vinegar to 7 parts water is a great hair rinse, and then a tiny dab of pure coconut oil or shea butter can be used for the hair conditioner by putting it into your palm and then rubbing it into your damp hair.  If you can't find shampoo that agrees with you, rinse your hair, rinse it again with some baking soda in water, and then rinse with water, thoroughly, before doing the vinegar/water rinse. (I put the vinegar water in a spray bottle and spritz it on after towel drying).   Pure coconut oil or pure sweet almond oil can be used for skin moisturizer.  Pure baking soda can also work well as a deodorant.  

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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