Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Keep Making Stupid Mistakes!

jhol

By jhol
in Coping with Celiac Disease

Recommended Posts

jhol Enthusiast
jhol
Posted

 hi , 

i was doing alright following the gluten/dairy free diet , then i needed to give up nightshades and now i feel like everythings gone wrong. i just keep making stupid mistakes. i wanted somethin different for tea so bought a stirfry with sweet an sour sauce - only realised it had peppers in it  an the sauce had peppers and tomato,s , when i was cooking it!!. then bought my rice milk but there was another on special offer so i bought them- its only rice dream ive bought!!!!

rice dream by the way in the u.k. is on the same stand with the gluten free products!!

 

last night i had 2 corn cobs with dairy free butter - felt really weird and tired afterwards - i hope im not going to  have trouble with corn . feel like im losing the plot..

 

just having a rant ,thats all , feelin a bit down- maybe im eating summat i shouldnt..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DutchGirl Apprentice
DutchGirl
Posted

I am pretty new to this and keep making stupid mistakes as well. Mistakes that are making me sick and it makes me really mad when I do it. Just hang in there and do your best! I just wanted to let you know that you aren't alone!

1desperateladysaved Proficient
1desperateladysaved
Posted

Yeah, soon you'll have gluten phobia to the max.  But it should work for you!

Lady Eowyn Apprentice
Lady Eowyn
Posted

Hi

Been there!

It's like getting bogged down in a swamp and like 'what the hell can I actually eat???'

All I can say is that it gets better and it gets much easier - I guess, with practice.

I am sure some people are brilliant from day 1 but I suspect for most, it's a big learning curve. Getting it wrong is part of learning and providing you keep at it - it will improve along with how you feel.

Hope you feel better soon :) .

Greebo115 Rookie
Greebo115
Posted

Awwwww, this happened to me too.........I know exacty how you feel, I think I'm about 1 step in front of you.

I'm the sort of person who cooks everything from scratch, or so I thought.....so was amazed at how much gluteny processed stuff I had to throw out. And just when I thought I had it cracked, I poisoned us (me: celiac, hubby: has DH) with Worcester sauce that had gluten.........then just feeling like I got gluten sorted, all these other intolerances became obvious......I can't remember the order, it just all came tumbling in, one after the other, and another, including nightshades. I can't tell you how many times I spent hours researching recipes that only included things I could eat, and hours I'd spent cooking and baking, only to find out after one bite that I couldn't eat it!!! I either added a small amount of something I knew I was intolerant to, thinking it would be fine, since it was such a small amount (doh!), or I missed it, like using gluten-free baking powder.....containing corn.....(first stomach pain, then extreme bloating, then when I finally deflate, the smell could make paint peel, lol).....

Oh, and there was this paleo chocolate cheesecake I spent nearly a whole day making........all I did was lick the bowl on that one!

Anyway, depending on how you feel when you read this, you could find it depressing, but I hope not, it's kinda funny, why am I so obsessed with finding more foods to eat, when there is tonnes left to eat that I know won't upset me?

So, this week, I'm making peace with food and sticking to things that I KNOW don't upset me. 2 things I am finding helpful:

1. Making conscious substitutions, like roast parsnip chunks instead of roast potatoes, or pureed veggies instead of mashed potato and "spiralised veggies" instead of pasta.

2. Building a weekly menu of meals that I will come back to each week to take all the thought and effort out of the choices and prep. (I usually like to just buy lots of food, then just 'see what I fancy' or stand in front of the fridge for inspiration, so this planning is not natural to me). Last night we had "shephers pie", which was diced turkey thigh cooked with mushrooms onions and pureed beans to thicken the gravy, then topped with carrots and cauliflower that were pureed with salt pepper and vegetable oil and sprinkled with chopped almonds.

This morning was scrambled eggs, yum.

Hope something I said helps, you are not alone, and it does get better, it's just a process that must be endured....

nvsmom Community Regular
nvsmom
Posted

Hang in there.  I'm 9 months in and have recently made a doozy of a mistake. It happens.... I think as long as we learn from our mistakes we'll be okay. :)

jhol Enthusiast
jhol
Posted
  • Author

hi there;

 

thanks for all your reply;s

just havin a major stress out this morning, suppose i was kinda hoping it would all go away lol.

 

i had to buy vanicream soap from america to see if the rash on my face went away. well i ran out of soap and because the rash was still there,( but i think it has gone down a bit )- i decided i wasnt gonna spend that much on soap again. big mistake- i spent monday night looking like a beetroot lol, then desperately searchin the internet for new soap!!! and ive spent the rest of the week throwing food away!!!

 

i think ive eaten some chinese crackers that didnt agree with me - although i cant see what it is in them thats disagreeing with me, an its been downhill from there lol

tried lactose free cheese tonight- well i now know it must be the caesin that i have problems with,an i,ll try the corncobs again tomorrow.

 

gonna make a big pot of veg and lentil soup that i know is ok - that,ll sort me out

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Pour the lentils onto a plate and make sure there are not non-lentils lurking in there, pick them out.  Then put the lentils in a colander and rinse those suckers before you cook them.  

 

Hear you on the soaps.  Every time I get fond of one, the manufacturers would change the formula.  :angry:   Do you have the Dr Bronner's castile soap there ?   I have had some pretty spectacular skin blow ups from toiletries.  Apple cider vinegar and water mixed 1 part vinegar to 7 parts water is a great hair rinse, and then a tiny dab of pure coconut oil or shea butter can be used for the hair conditioner by putting it into your palm and then rubbing it into your damp hair.  If you can't find shampoo that agrees with you, rinse your hair, rinse it again with some baking soda in water, and then rinse with water, thoroughly, before doing the vinegar/water rinse. (I put the vinegar water in a spray bottle and spritz it on after towel drying).   Pure coconut oil or pure sweet almond oil can be used for skin moisturizer.  Pure baking soda can also work well as a deodorant.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,393
    • Most Online (within 30 mins)
      7,748
    HeckelCrazy
    Newest Member
    HeckelCrazy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.