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Celiac Vs. Gluten Intolerance

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Posted 07 April 2013 - 01:48 PM

I got really lucky in finding my diagnoses also. I was getting a full work-up from a back specialist for my extreme muscle spasms. Muscle relaxers and naproxen weren't even touching it. The doc found a softball size bubble in my stomach and just so happen to suggest I might be gluten Intolerant. So I was like "what is that?" and "so what are you gonna do for my back?". I started reading about celiac symptoms and thought I'm not crazy after all about all of my random issues. GI doc confirmed Celiac with endoscopy biopsy, but I couldn't keep consuming gluten before my blood test which was negative because of that. I got all children tested and my oldest child has extreme Gluten Intolerance. Extreme meaning he tested very high for intolerance. We are still fighting his vitamin Deficiencies and Accelerated OCD from the lack iron and vitamin D. He struggles with fatigue and irritability daily. We are both on the right track to wellness now and hope for the best.
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Posted 08 April 2013 - 10:06 AM

My daughter has two blood tests that will only claim a "sensitivity."  Her doctor let her decide if she wanted the more invasive procedure to determine damage/inflammation.  She declined the biopsy.  He said either way she MUST eliminate all gluten.  We have. :)


It's family members that scoff.  Even with the two separate blood tests showing positive results. 


Since going gluten-free (I joined her in support -- I am a confirmed IBS sufferer--I did have that awful scope), we are MUCH healthier.  Took a couple of hard long years to get here but --  YAY.  IT WORKS!!


Best of health and good vibes your way.  Gluten is a mess.  Don't deal with it :)

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"Have patience with all things, but chiefly have patience with yourself. Do not lose courage in considering your own imperfections but instantly set about remedying them -- every day begin the task anew."

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Posted 08 April 2013 - 12:53 PM

They (them researcher-heads) only confirmed that non-celiac wheat sensitivity is real last year (2012).  They think it is related more to the innate immune system.  Celiac is a response by the adaptive immune system.  They think Crohn's is also a response by the innate immune system.  So it is still an immune response, just not the same immune response.  The long term or short term ramifications of non-celiac wheat sensitivity are unknown right now.  Other than the immediate symptoms that is.  Heck, they didn't even admit it existed until last year.  So, it's not like they have any real idea what it does to people over time.  It might turn them into little green men with antennas for all we know.  Well, probably not.  But we just don't know that it is less serious than celiac disease right now.

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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul



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Posted 10 April 2013 - 08:08 AM

Getting diagnosed on paper isn't at all important other than one reason (you need to, to get help from a doctor). Problem is by the time you get a test you wouldn't have eaten gluten in years anyway.. why? because people tend not to eat things that make them sick in the guts.. maybe a couple times,, maybe ten years like me lol but eventually you will say enough is enough. In that case you can still have the gene test like I had and I had all the right genes, no anti bodies though as I'd been off gluten for 3 years.


My doctor refers to gluten as "poison" when talking to me and isn't that the truth. He would never ask me to eat it in order to show up on the anti body test because it's already dam near killing me from previous damage as it is.

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