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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Looking For An Integrative/alternative Medicine Doc In The South Jersey/philly Region
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Hi There-

 

So, It's been 3-years since I was diagnosed and unfortunately, It's been all downhill since. Symptoms seem to be multiplying, not abating. Most recently, I was diagnosed with the early stages of hashimotos and prescribed a low dose of tirosint, which has made me feel very spacey, non-functional. I'm wondering if the extreme fog is any indication of pre-diabetes (have had slightly raised blood glucose level, in the 100 - 110 range for sometime) or adrenal (raised ACTH) function?  Anyhow, instead of trying to dig a little deeper, my endocrinologist recommended that I see my primary care physician. WTF? Is it so difficult for practitioners to pull-up their sleeves? While I have heard very good things about my endocrinologist, I'm disturbed that he is so willing to punt. This is is all new to me frankly, as up to 3-years ago, I rarely saw a doctor...which is maybe why I'm in this bind in the first place.

 

Anyhow, I have been to numerous specialist, none of whom have been able to provide a top down understanding of what the heck is going on here. They all (maybe understandably) operate within their own little tranche. So, I'm thinking of seeing an integrative/alternative/naturopathic doctor(s)...hoping that they can diagnose and treat what the other practitioners have not.

 

Thoughts?

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Hi gifree,

 

I just found an ND in Sewell. Her name is Jennifer Phillips and she is gluten free herself. The visit wasn't cheap and I had some blood tests that were covered under insurance and micronutrient testing I chose to pay for on my own. I have iron and vitamin D deficiencies and am working to get a few more answers for things I have struggled with for several years after my dx. (6 years ago this month). If you need any more information I can get it for you!

 

Joni

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Hi Joni-

 

Thanks for the reply; sorry for the extremely tardy response. I found an integrative medicine doctor in collingswood that I'm scheduled to see in approximately a month; currently on Armour, but likely need to increase the dosage; also have read that while meds may help manage hashimotos, it's best to deal with the underlying immune response...which can be quite complicated -- diet, adrenals, blood sugar, etc.

 

Did anything come of your blood work and appointment with Dr. Phillips?  

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I recommend looking into functional medicine.  They try to find the root of the problem.  They use supplements to help the body recover.  I don't know if any are in your specific area, but one can google it.  I see you found someone to help and wish you well in it.

 

D

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Thanks, 1desperatelady (Love your user name. It's the way I'm feeling right now).  I"m going to have to look into functional medicine.  How did you find your doctor?

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      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
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