Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

How Much Sooner Could You Have Been Diagnosed If The Dentist Knew About Enamel Damage ?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

Yesterday, I handed my dentist the paper about a connection between celiac and damage to tooth enamel.  In doing so I am hoping that many of his patients will discover they have celiac disease.  I would encourage others to do the same by printing off a copy and giving it to their dentist.

 

While I sat in the dentist chair yesterday, I analyzed just how long ago I could have been diagnosed if   the dentist knew the tooth enamel connection with celiac back then.  I lost the enamel off my teeth when I was 17 years old.  I got diagnosed when I was 48!  That makes my ignorance 31 years longer.

 

Open Original Shared LinkOpen Original Shared Link

 

 

 Could you recall how much sooner you could have been diagnosed if the tooth enamel/celiac connection had been known earlier?

 

D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Enthusiast

 

 

Reminder, Could you recall how much sooner you could have been diagnosed if the tooth enamel/celiac connection had been known earlier?

 

D

 

I could of been diagnosed in 1958 when the top surface enamel was missing on my first permanent molars.   Instead, I was diagnosed in June of 2009!

Link to comment
Share on other sites
1desperateladysaved Proficient

 

 

Wow!  I hope you give the information to your dentist in order to spare others.

Link to comment
Share on other sites
dilettantesteph Collaborator

about 40 years earlier.

Link to comment
Share on other sites
1desperateladysaved Proficient

about 40 years earlier.

uffda, anyone for less years?    I would like to see how many people were impacted and for how long.  I would like to share with my dentist when I go back in a few weeks.

 

I would also be interested if anyone has enamel problems for other reasons, but I believe asking here would probably be the wrong people to ask.  Asking anywhere else, I wouldn't get educated answers.  Hmmmm

 

 

 

D

Link to comment
Share on other sites
captaincrab55 Enthusiast

Wow!  I hope you give the information to your dentist in order to spare others.

That Dentist passed away quite awhile back.    My current Dentist is well aware.

Link to comment
Share on other sites
burdee Enthusiast

Yesterday, I handed my dentist the paper about a connection between celiac and damage to tooth enamel.  In doing so I am hoping that many of his patients will discover they have celiac disease.  I would encourage others to do the same by printing off a copy and giving it to their dentist.

 

While I sat in the dentist chair yesterday, I analyzed just how long ago I could have been diagnosed if   the dentist knew the tooth enamel connection with celiac back then.  I lost the enamel off my teeth when I was 17 years old.  I got diagnosed when I was 48!  That makes my ignorance 31 years longer.

 

Open Original Shared LinkOpen Original Shared Link

 

 

 Could you recall how much sooner you could have been diagnosed if the tooth enamel/celiac connection had been known earlier?

 

D

 

I wasn't diagnosed till i was 56.  My dentist saw the enamel damage, asked me if i threw up. He decided I was buiimic, because i was thin and threw up.   He didn't ask if I threw up to get/stay thin.  (I had terrible reflux and nausea after eating certain foods, to which I was later diagnosed with allergies and celiac disease.)  When I told my doctor that i threw up after eating certain kinds of foods (usually baked goods), she also decided I had an eating disorder and suggested I see a therapist.(My allergies were later diagnosed as gluten dairy, egg, soy, cane sugar, vanilla and nutmeg, contained in many baked goods.) When I told my therapist that I didn't force myself to throw up, but i had gut pain and nausea frequently, she told me to talk to my doc about those symptoms.  My doc had already put me in the bulimia box.  Several years later, she told me my symptoms were caused by IBS, that everybody over 40 gets that and I should learn to live with it.  I also had hypothyroid symptoms all my life (cold, low blood pressure, low pulse, constipated), but was not tested for hypothyroid,, because I wasn't overweight.  Likewise I had celiac symptoms (short, thin, bloated belly), but wasn't tested for celiac disease because I didn't have diarrhea.  Instead I had constipation, caused by Hashimoto's thyroidiitis, an autoimmune condition correlated with celiac disease. 

 

I just wish more docs could think outside the diagnositic boxes they learned in school or were given by their HMOs.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I wasn't diagnosed till i was 56.  My dentist saw the enamel damage, asked me if i threw up. He decided I was buiimic, because i was thin and threw up.   He didn't ask if I threw up to get/stay thin.  (I had terrible reflux and nausea after eating certain foods, to which I was later diagnosed with allergies and celiac disease.)  When I told my doctor that i threw up after eating certain kinds of foods (usually baked goods), she also decided I had an eating disorder and suggested I see a therapist.(My allergies were later diagnosed as gluten dairy, egg, soy, cane sugar, vanilla and nutmeg, contained in many baked goods.) When I told my therapist that I didn't force myself to throw up, but i had gut pain and nausea frequently, she told me to talk to my doc about those symptoms.  My doc had already put me in the bulimia box.  Several years later, she told me my symptoms were caused by IBS, that everybody over 40 gets that and I should learn to live with it.  I also had hypothyroid symptoms all my life (cold, low blood pressure, low pulse, constipated), but was not tested for hypothyroid,, because I wasn't overweight.  Likewise I had celiac symptoms (short, thin, bloated belly), but wasn't tested for celiac disease because I didn't have diarrhea.  Instead I had constipation, caused by Hashimoto's thyroidiitis, an autoimmune condition correlated with celiac disease. 

 

I just wish more docs could think outside the diagnositic boxes they learned in school or were given by their HMOs.

Are you saying, Burdee, that you were diagnosed about the time that your enamel came off your teeth?

That would be great!

Link to comment
Share on other sites
  • 1 month later...
burdee Enthusiast

Are you saying, Burdee, that you were diagnosed about the time that your enamel came off your teeth?

That would be great!

 

Nope. I was diagnosed with celiac disease many years after I suffered enamel loss. My dentist and doctors all decided that I caused the enamel problem, because they decided I was bulimic and made myself throw up.  Actually I had thrown up often in early childhood. My mother decided I had 'stomach flu'.  My childhood dentist just repaired the teeth with enamel loss without considering a cause.

Link to comment
Share on other sites
1desperateladysaved Proficient

Nope. I was diagnosed with celiac disease many years after I suffered enamel loss. My dentist and doctors all decided that I caused the enamel problem, because they decided I was bulimic and made myself throw up.  Actually I had thrown up often in early childhood. My mother decided I had 'stomach flu'.  My childhood dentist just repaired the teeth with enamel loss without considering a cause.

Yeah, they didn't know.  :(

Link to comment
Share on other sites
maggiesimpson Apprentice

Hi, D!

 

After a fairly decent dental run, 30+ years with a couple cavities and an appliance as a kid and then a couple cavities during a six year dental hiatus, I suddenly appeared with 4 cavities which surprised my dentist and the assistants. They have come to know me for having excellent check-ups. These cavities were found around the same time I was officially diagnosed with crohn's. I told them of the diagnosis and they said that explained it and gave me a high fluoride toothpaste and encouraged me to be diligent with my oral care. They did not think the gluten intolerance was as big a factor as the crohn's.

 

The problem of absorbing nutrients in the gut is a big factor in dental issues, be it crohn's or celiac related. Now that I am on a whole foods diet (gluten-free and acd) I am using my energy to digest the nutrients rather than a few nutrients with a bunch of processed junk, as I did when eating before this diet. I hope to not have to have any more dental work, but who knows.

 

Maggie

Link to comment
Share on other sites
mommida Enthusiast

I remember the dentist commenting on "gum boils" when I was about 4.  The dentist was quite upset and warned my parents that something was a miss. Cavaties from missing enamel.   I really was not that symptomatic as a child.  I didn't look that thin because of belly bloating. 

Link to comment
Share on other sites
  • 3 months later...
stef-the-kicking-cuty Enthusiast

I was diagnosed with celiac 5 days before my 28th birthday. Flashback to 21, my first painful symptoms started after a toothsurgery. Flashback again to when I was 14/15. That was the time I received braces and with them a multitude of cavities. Because most of my cavities are from that time we assumed it was, because of the difficulty brushing your teeth, when having braces. Never in a million years would I have made the connection. Thanks!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,156
    • Most Online (within 30 mins)
      7,748

    Lisa Pieterse
    Newest Member
    Lisa Pieterse
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CatherineWang
      I'm pretty sure that in stores, you can find plenty of gluten-free options. But they are usually a bit more expensive.
    • cristiana
      Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated.  That pain was what troubled me most after the operation, far more than the operation site.  It took a few days to really settle down, I was quite badly bruised. It was taking so long I was a bit concerned so asked the question on another forum. A few patients came back to me and said they had suffered the same.  I imagine in my own case possibly the throat got bashed about a bit,  maybe they had difficult inserting the tube?  I've suffered with a painful throat post-endoscopy too, but never as long as the intubation pain.   I hope you will be feeling better very soon.   PS BTW - love the name!  I saw this today in an Easter display in a shop and your name reminded me of it.🙂  
    • cristiana
      This wonderful, Anne. I think you have a point about why people disappear off forums.  I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal).  However, once my antibodies were back within normal range it really has made a big difference to my health.  I've chosen to stick around because I'm a Mod, otherwise I might have been one of those that disappeared, too!      
    • Exchange Students
      Yes absolutely, we work with all public schools and some private schools in all 50 states.
    • Scott Adams
      Just a quick question, can the host live in any state in the USA?
×
×
  • Create New...