Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Did You Go Soy Free?

JodyM75

By JodyM75
in Food Intolerance & Leaky Gut

Recommended Posts

JodyM75 Apprentice
JodyM75
Posted

For those of you who don't eat soy....why?  What were your symptoms?  What are your symptoms if you've been "soy'ed?"  I'm trying to figure out if I need to drop soy as well....many thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MJ-S Contributor
MJ-S
Posted

Same as gluten, but with more immediate strong GI symptoms.

Waitingindreams Enthusiast
Waitingindreams
Posted

I started realizing I had a problem with soy about 6 months or so after I was diagnosed. I still had GI problems (especially bloating) and after seeing a naturopath, I realized I needed to start doing elimination diets to try to pinpoint the foods that were causing issues. I had always tried to avoid soy in general, but I had actually never noticed how much it was in the gluten free foods I ate regularly - salad dressing, minute rice, hummus, chips, etc. Once I gave up soy, I felt a lot better. The bloating subsided, as well as the GI issues. I also have a slight soy allergy, according to allergy tests I got done about a month before I was diagnosed with celiac disease. Unfortunately, I still have some GI issues due to candida, but I know I definitely need to keep soy out of my diet.

 

You could just try an elimination diet and see if giving up soy makes you feel better. Good luck! 

  • 1 month later...
John Burlingame Explorer
John Burlingame
Posted

Soy messes me up bad, brain fog, mem loss, panic attacts almost on the hour. 50% lower IQ. Im an absolute mess on soy. Every Soy type bothers me, Im unable to eat any heresies chocolate, all have soy in them. Im at the point I might just make my own candy.

John Burlingame Explorer
John Burlingame
Posted

Just about Every thing processed has soy, Advil, All pain pills. all my meds have to be compounded. its expensive but keeps soy out of my diet.

kareng Grand Master
kareng
Posted

Just about Every thing processed has soy, Advil, All pain pills. all my meds have to be compounded. its expensive but keeps soy out of my diet.

 

Have you seen this list?  Not everything is gluten-free but a lot of them are

 

Open Original Shared Link

 

 

chocolate:

Open Original Shared Link

icelandgirl Proficient
icelandgirl
Posted

My first 3 months gluten free I felt so much better and then I felt worse...specifically GI symptoms.  At 6 months gluten free I gave up dairy, soy and legumes.  I've definitely seen improvements...but I have no idea which helped me since I stopped all of them at the same time.   :)

 

Soy free is hard though...soy is in everything!  At Halloween there wasn't a single one of the chocolates my kids got that I could eat...it was sad.  I do get some Enjoy Life chocolate now and then since it's soy free.  I do wonder though...why is soy in everything?  What does it do?  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


John Burlingame Explorer
John Burlingame
Posted

My first 3 months gluten free I felt so much better and then I felt worse...specifically GI symptoms.  At 6 months gluten free I gave up dairy, soy and legumes.  I've definitely seen improvements...but I have no idea which helped me since I stopped all of them at the same time.   :)

 

Soy free is hard though...soy is in everything!  At Halloween there wasn't a single one of the chocolates my kids got that I could eat...it was sad.  I do get some Enjoy Life chocolate now and then since it's soy free.  I do wonder though...why is soy in everything?  What does it do?  

Soy has been blinded to the public, A bunch of Soy paid Senators pushed it through US that it was ok to eat processed soy. The funny thing is other countries know Processed soy is bad for you. US has just been blinded by greed. I relate Soy to asbestos. At first they new of some issues but it was extremely cheap to produce, not realizing in the long run it destroys you body until someone found a way to show the world it was poison and had it banned. Soy is in everything, IF some one was able to get the gov to listen, all the products in US would have to be thrown out. They could not afford to remove soy at this point. Soy is a food and drug binder, it keeps the product from falling apart. they could easily use another vegetable to use as a binder like corn or sunflower seed. but Soybean is cheaper. they use it on making fruit and vegetables at the grocery store, gives it the shinny look. Its all about the money, not your health.

John Burlingame Explorer
John Burlingame
Posted

My dad drinks soy milk, he keeps telling me to drink some and see if I have a reaction, I have to keep telling him that it would put me in the hospital, The masses have been told Soy is great for you. Most people just dont understand it kills you off slowly. I grew up on home cook meals, my dad still does, but when I left, I went strait to fast food, and processed foods. It took about 10 years, but my body finally grew tired of soy, I personally thought I had a stroke 6 years back, slowly it got worse, I was about to kill myself and then I saw a show on john Stewart, He had a guest on. talking about my symptoms, and the same reactions when your doctors and family members look at you like your crazy. I cried. And became gluten free. I started to feel good after 24 hours. I went on the diet, went to a restaurant and asked for gluten free food, and got sick after wards. took me a month to weed out that soy was my main issue. I cant drink milk from a glass, but I can eat cheese and products with milk in it.

julissa Explorer
julissa
Posted

a few weeks after going gluten free 2 years ago, I knew I felt better, but there was just a nagging feeling of unrest in my stomach. I actually went to an allergist for food testing, and she found allergies to dairy and soy. once i got rid of those i was golden. fast forward to a few months ago, some nagging feelings came back, now I've had to cut out chocolate. I think chocolate is the worst thing to lose yet. 

icelandgirl Proficient
icelandgirl
Posted

a few weeks after going gluten free 2 years ago, I knew I felt better, but there was just a nagging feeling of unrest in my stomach. I actually went to an allergist for food testing, and she found allergies to dairy and soy. once i got rid of those i was golden. fast forward to a few months ago, some nagging feelings came back, now I've had to cut out chocolate. I think chocolate is the worst thing to lose yet.

Thinking about giving up chocolate makes me want to cry...
julissa Explorer
julissa
Posted

icelandgirl, I can honestly say that giving up chocolate was way worse than giving up gluten, soy or dairy. I remember getting into bed and pulling the covers up over my head after that news 

John Burlingame Explorer
John Burlingame
Posted

Allot of Chocolate has soy in it. I had to give up my favorite brand, that made me cry. I love chocolate. Now I have to find  Brands that dont have soy, or make my own.

Serielda Enthusiast
Serielda
Posted

Post surgery, when my dr gave me a freaking nearly encyclopedia length list of no no foods. A new hint I found also is watch xantthsn gum, gullar gum and locus bean as well, they have properties that can mimic soy, and corn. Met a new good friend who studies gi disorders and nutrition. After shaking those out as well I noticed I started to see improvements as well.

GFinDC Veteran
GFinDC
Posted

I went soy free because I was passing out randomly.  And my joints were sore.  I didn't know soy was the problem, but it was one of the things I hadn't eliminated from my diet yet so I got rid of it.  And over 4 weeks or so my symptoms cleared up.  So it wasn't an instant recovery.  More of a slow improvement.

 

Now if I eat a little soy in small amounts once in a great while I am mostly ok.  But if I get much of it I have GI symptoms.  Soy lecithin doesn't seem to be a problem for me.  But I still avoid it usually.  Soy flour I never eat.  And soy oil I mostly avoid also.

 

Soy is used as an emulsifier in some foods.  It's a cheap oil to use in foods.  They use soy in animal feed also.  Soy is a cheap protein source.  Soy can be your friend and make you lots of money.  Har de har...

John Burlingame Explorer
John Burlingame
Posted

I went soy free because I was passing out randomly.  And my joints were sore.  I didn't know soy was the problem, but it was one of the things I hadn't eliminated from my diet yet so I got rid of it.  And over 4 weeks or so my symptoms cleared up.  So it wasn't an instant recovery.  More of a slow improvement.

 

Now if I eat a little soy in small amounts once in a great while I am mostly ok.  But if I get much of it I have GI symptoms.  Soy lecithin doesn't seem to be a problem for me.  But I still avoid it usually.  Soy flour I never eat.  And soy oil I mostly avoid also.

 

Soy is used as an emulsifier in some foods.  It's a cheap oil to use in foods.  They use soy in animal feed also.  Soy is a cheap protein source.  Soy can be your friend and make you lots of money.  Har de har...

Soy is so cheap, all the major brands are using it in there products, Food, Medical, Manufacturing. all about making the most profit. Healthy people or sick people, they still make the profit.

GFinDC Veteran
GFinDC
Posted

Yep, right you are John.  100 years ago the people ate real foods.  Now most people seem to eat factory foods.  Its not a great change in some ways.

icelandgirl Proficient
icelandgirl
Posted

icelandgirl, I can honestly say that giving up chocolate was way worse than giving up gluten, soy or dairy. I remember getting into bed and pulling the covers up over my head after that news

I just want to give you a hug for losing chocolate (((hugs)))...for me that would be hardest. I've found a chocolate that is soy and dairy free...Enjoy Life and am thankful to have it. I hope you still have something to eat that you love.
w8in4dave Community Regular
w8in4dave
Posted

I went Soy free when I ate some Tuna that was gluten-free, and got sicker than a dog! I read the can and it said Tuna and Soy. Pffttt! So I stay away from soy! Altho once in a while I will eat some so I am not 100% like the other day my daughter bought something and the last thing on the list was soy. So I ate it and was fine. I think my Villi are healing. :) 

w8in4dave Community Regular
w8in4dave
Posted

My first 3 months gluten free I felt so much better and then I felt worse...specifically GI symptoms.  At 6 months gluten free I gave up dairy, soy and legumes.  I've definitely seen improvements...but I have no idea which helped me since I stopped all of them at the same time.   :)

 

Soy free is hard though...soy is in everything!  At Halloween there wasn't a single one of the chocolates my kids got that I could eat...it was sad.  I do get some Enjoy Life chocolate now and then since it's soy free.  I do wonder though...why is soy in everything?  What does it do?  

I know! I am Corn Free Also, try excluding corn! It is in just about everything! 

julissa Explorer
julissa
Posted

icelandgirl, thanks for the much needed hug. I had the small dark choc enjoy life bars, and would really love those treats once in a while. just knowing they were there was enough. when I got the evil word on choc I did get quite upset, it was way worse to give up then the rest. now, there really isn't much for that little treat when needed.  :(

 

it's only food right??

julissa Explorer
julissa
Posted

soy is in everything processed for the most part. I found the only way to control it all is to eat whole real foods like my grandmother would recognize. the processed prepared stuff had to go. 

icelandgirl Proficient
icelandgirl
Posted

icelandgirl, thanks for the much needed hug. I had the small dark choc enjoy life bars, and would really love those treats once in a while. just knowing they were there was enough. when I got the evil word on choc I did get quite upset, it was way worse to give up then the rest. now, there really isn't much for that little treat when needed.  :(

 

it's only food right??

It is only food...but it is still hard.  It really is.  I get it.

w8in4dave Community Regular
w8in4dave
Posted

soy is in everything processed for the most part. I found the only way to control it all is to eat whole real foods like my grandmother would recognize. the processed prepared stuff had to go. 

Thats what I do. It's really healthier anyway if you ask me. Not all the processed stuff. 

  • 2 weeks later...
John Burlingame Explorer
John Burlingame
Posted

I went Soy free when I ate some Tuna that was gluten-free, and got sicker than a dog! I read the can and it said Tuna and Soy. Pffttt! So I stay away from soy! Altho once in a while I will eat some so I am not 100% like the other day my daughter bought something and the last thing on the list was soy. So I ate it and was fine. I think my Villi are healing. :)

Drugs, just about all drugs have soy, advil,Bayer Neosporin, uggg when will it stop.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,988
    • Most Online (within 30 mins)
      7,748
    John drage
    Newest Member
    John drage
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      Thank you for your response. I have had several different antibiotics over the years and none affected my sensitivity to wheat products which I assumed was due to the gluten in them. However I do believe this time it was an antibiotic I’ve never had before so if your explanation is correct it would seem this antibiotic (cefuroxime 500 MG tablet Commonly known as: CEFTIN, 1 tablet by mouth 2 (Two) Times a Day for 10 days.)  could be a cure for my sort of sensitivity. I assume the hospital IV was the same antibiotic. The IV was ordered because my blood culture showed bacteria in my blood. I remember hearing years ago the gmo wheat was found in some products but I guess that was a misnomer. Believe me after over 20 years of putting up with this sensitivity, despite the fact that growing up eating subs, pizza and spaghetti regularly never affected me, I am so relieved to no longer have to avoid wheat.. I hope!
    • trents
      Gluten Sensitivity

      By trents · Posted

      Welcome to the forum, @The Logician! Many antibiotics have anti-inflammatory properties. By the way, GMO wheat is not used in food products: https://www.chefsresource.com/faq/is-wheat-genetically-modified-in-the-united-states/ There is a common misconception that it is.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I do not have celiac disease however for 20 years-plus I have been sensitive to gluten. A slice of bread will give me diarrhea in less than an hour. This started with me around the time I believe GMO wheat was beginning to appear in products on the market. Last week i went into the hospital to get antibiotic IV for three days. While there I was constipated so I figured eating gluten would fix that. I had gluten at every meal and it had no affect on me. I was still constipated until I got home and hen started having normal bowel movements even though I continued eating gluten products and I have never felt better! Not even a hint of diarrhea. I’ve eaten some gluten in bread, cream of wheat, pizza every day now for 7 days and still no reaction. I have read that antibiotics may cause gluten sensitivity but not the opposite.  I’m wondering if my gluten sensitivity was not to gluten but a sensitivity to how gluten reacted to a bacteria (good or bad) in my gut. A bacteria which has been removed by the antibiotics I am taking. I stopped antibiotics today. My doctor had no clue why this occurred and wasn’t interested in finding out so I’d like to know if this information could be helpful to anyone studying gluten sensitivity.
    • Scott Adams
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Scott Adams · Posted

      It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign that she’s advocating for you to be seen sooner, which shows she’s taking your case seriously. The fact that some labs might not have been drawn yet due to overlap with your functional health doctor’s upcoming testing adds a layer of confusion, but that’s unfortunately common when multiple providers are involved. Hopefully, the GI’s remaining labs will still get processed, or she can reorder them if needed. As for the colonoscopy prep, it’s totally understandable that you're dreading it—many people rank it among the least pleasant medical experiences. You’re definitely not alone in preferring the pill prep option over the liquid kind, especially if you don’t drink Gatorade and had a rough experience with Miralax in the past. Hopefully, your doctor will approve the pill form, especially since you’ve tolerated other options poorly before. Fortunately, the upper endoscopy doesn’t require any bowel prep—just fasting, usually starting the night before—so that part should be easier to handle. It’s great that you’re already trying to boost your gluten intake, but yes, tracking gluten content can be surprisingly tricky. You’re right that the general rule for wheat-based products is to multiply the protein content by about 0.75 to estimate the gluten content. That means foods like oyster crackers, while convenient, may not pack enough gluten to help reach the recommended daily goal of around 10 grams before biopsy. It’s helpful that you caught that early, and switching to more gluten-dense foods like regular wheat bread, pasta, or wheat cereals might make it easier to hit your target. It’s not easy eating more gluten when you’re trying to manage symptoms or just not used to it, but doing so can make a big difference in ensuring your biopsies are accurate. You’re on the right track—hopefully with a little luck, you’ll get a cancellation and be seen sooner.
    • cristiana
      Worried about being isolated

      By cristiana · Posted

      Thanks for sharing that film, @trents.  I am not sure how I missed that film as I see it is a few years old, but it is very good.  I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc.  Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there may be other people  there who don't eat gluten?
×
×
  • Create New...