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Thyroid Medictaions? Levoxyl?

Tigercat17

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Tigercat17 Enthusiast
Tigercat17
Posted

Hi everyone!

 

It's been a while since I've been on here. Just a little background info on me..I've been strictly gluten-free for 6 years now and feeling really great on the diet, but now all the sudden my celiac symptoms have returned in the last six weeks. I have a gluten free kitchen.. but the only gluten I have is the cat and fish food, but I wash my hands right after all the time.. I have acid reflux, feeling tired, brain fog, sore throat, having a pain on my left side under my rib cage and I lost 10 pounds in the last month. I am really slender and now I'm down to 103, so the weight loss is a little scary for me. I now started Boost to try to gain some weight back and I'm only maintaining.. The only thing I changed in my diet is I added Almonds by the company Wonderful. I started them about 6 weeks ago. I eat mostly whole foods, too. I am really sensitive so I know my limits on gluten free processed foods. I don't eat many at all. I did call the Almond company, Wonderful, and they said there is no chance of CC. I'm not sure if I believe them though.. I did stop eating them about 2 weeks ago. I feel a little better but still not 100%. I feel like I just got glutened again two days ago on steak that I make all the time.. ugh..  I stopped all my vitamins about two weeks ago too just in case. I take Kirkman Labs and I've been taking them for the last four years without issues. So I have a lot of trust in that company.

 

So now the only thing I'm questioning is my thyroid medication. I am currently taking Levothyroxine by Lannett and I've been taking them for two years without issues. They say they are gluten free, but of course don't test for gluten. I know it seems highly unlikely since I've been taking them for two years without a reaction, but this is the only thing I can think of that I may be getting CC. I eat mostly whole foods and I stopped everything else.

 

So my question is what thyroid medications are everyone taking? I called my endo doctor and told them the situation and they're going to call in Levoxyl made by Pfizer for me just to try and see if my gluten reactions go away. I was on Levoxyl before and didn't have problems with it, but it's always a little nerve racking to change these meds, especially when you have to take them everyday. Is anyone currently taking Levoxyl without any problems?

 

Thanks so much for your help everyone!

 

P.S. Sorry about my typo in Medication.. This is my brain fog kicking in... LOL..

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mamaw Community Regular
mamaw
Posted

It is  listed a s gluten-free  in 2014  gluten-free  drug  list

icelandgirl Proficient
icelandgirl
Posted

Hi Lisa,

I've been on Levoxyl since March. My Dr wanted to put me on a name brand since the pharmacies switch up generics and there are sometimes variations in the amount of medication between name brand and generic. Interestingly I was on 100 mcg of the generic and then switched to Levoxyl 100. Ended up hypo. It was awful. Switched me to Levoxyl 112 and ended up hyper. Urgh. So now I'm on 112 Monday thru Saturday and half a pill on Sunday which I guess is about 104 mcg. I do feel better. Have only been on this dose for about 2 weeks though. I have not had any gluten type reactions.

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

It is  listed a s gluten-free  in 2014  gluten-free  drug  list

Thanks Mamaw! :) I know that list isn't always up to date, so that's why I'm asking here.. I actually got glutened from a couple meds on that list. :(

mamaw Community Regular
mamaw
Posted

I understand the list  was from 2014 at times even the mfg  doesn't know for  sure.I react  to many drugs....

across Contributor
across
Posted

My sister (who at least as far as we know does not have Celiac) was on a thyroid med and was doing fine on it, and then out of the blue she started having all kinds of horrible reactions to dairy. Two docs have told her that they think the manufacturer changed something in the formulation that damaged her gut and caused her problems. She got off of it, and has been gradually recovering.

etbtbfs Rookie
etbtbfs
Posted

I am on Levoxyl and Cytomel cuz King Pharm sent me letters in 2010 declaring that neither of them uses gluten fillers. (King is now owned by Pfizer.). Have never been glutened by these meds so far as I can tell.

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GF Lover Rising Star
GF Lover
Posted

Hi everyone!

 

It's been a while since I've been on here. Just a little background info on me..I've been strictly gluten-free for 6 years now and feeling really great on the diet, but now all the sudden my celiac symptoms have returned in the last six weeks. I have a gluten free kitchen.. but the only gluten I have is the cat and fish food, but I wash my hands right after all the time.. I have acid reflux, feeling tired, brain fog, sore throat, having a pain on my left side under my rib cage and I lost 10 pounds in the last month. I am really slender and now I'm down to 103, so the weight loss is a little scary for me. I now started Boost to try to gain some weight back and I'm only maintaining.. The only thing I changed in my diet is I added Almonds by the company Wonderful. I started them about 6 weeks ago. I eat mostly whole foods, too. I am really sensitive so I know my limits on gluten free processed foods. I don't eat many at all. I did call the Almond company, Wonderful, and they said there is no chance of CC. I'm not sure if I believe them though.. I did stop eating them about 2 weeks ago. I feel a little better but still not 100%. I feel like I just got glutened again two days ago on steak that I make all the time.. ugh..  I stopped all my vitamins about two weeks ago too just in case. I take Kirkman Labs and I've been taking them for the last four years without issues. So I have a lot of trust in that company.

 

So now the only thing I'm questioning is my thyroid medication. I am currently taking Levothyroxine by Lannett and I've been taking them for two years without issues. They say they are gluten free, but of course don't test for gluten. I know it seems highly unlikely since I've been taking them for two years without a reaction, but this is the only thing I can think of that I may be getting CC. I eat mostly whole foods and I stopped everything else.

 

So my question is what thyroid medications are everyone taking? I called my endo doctor and told them the situation and they're going to call in Levoxyl made by Pfizer for me just to try and see if my gluten reactions go away. I was on Levoxyl before and didn't have problems with it, but it's always a little nerve racking to change these meds, especially when you have to take them everyday. Is anyone currently taking Levoxyl without any problems?

 

Thanks so much for your help everyone!

 

P.S. Sorry about my typo in Medication.. This is my brain fog kicking in... LOL..

 

Hi Tigercat.  Have you considered it is not a food or medication issue at all?  Have you had your thyroid blood test done recently to see if it's the thyroid and not the medication?  Have you told your Doctor about your symptoms without putting a Celiac slant on it?  Look at the symptoms as a whole and take Celiac out of the question.  You may be ill with something else entirely.

 

Colleen

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

Hi Tigercat.  Have you considered it is not a food or medication issue at all?  Have you had your thyroid blood test done recently to see if it's the thyroid and not the medication?  Have you told your Doctor about your symptoms without putting a Celiac slant on it?  Look at the symptoms as a whole and take Celiac out of the question.  You may be ill with something else entirely.

 

Colleen

Hi Colleen,

 

Thanks for responding. Yes, I did role out hypo and hyperthyroidism. I just got my blood work done last week and my thyroid levels are right where the doctors want them to be. I did just call my GI doctor and they are going to order me blood work to get my antibodies checked. My antibodies have been at 11 for the last five years so if they are back up then I know for sure I'm getting gluten in my system, but really... I don't even need the blood work. I've been gluten free for almost seven years and feeling great on a very strict gluten-free diet. I know these are my gluten reactions. :(

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

Thanks for responding everyone! Well it looks like I'll be changing to Levoxly today. So we'll see if my reactions go away ... I'll keep you all posted. .. :unsure:

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