Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Rages


VioletBlue

Recommended Posts

VioletBlue Contributor

I ate something about three days ago, I do not know what, but the depression and rage came back with a vengance. I've been gluten free for almost three months now and thankfully the terrible depression and rage went away . . . until now. I've narrowed it down to either the over the counter pain reliever that TopCare swears is gluten free or some kind of accidental contamination at work.

How long does it usually take for the depression and rage to subside for those who have those symptoms?

Do other allergies cause this same phenomena? Does soy or corn or lactose allergies or intolerances affect the nervous system the same way? I can't keep doing this, it's just too devestating. How do other people manage to work and carry on with their lives through something like this? It wasn't so bad when it was a way of life, but now it's just so much worse. I want to be happy again! :(

violet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

I think a number of foods can cause adverse reactions like you describe. Years ago, I remember watching show about food allergies and children/behavior. Once I saw the segement, I realized how little I knew about these things.

They had a boy (about 7 or 8yrs old), playing quietly in a room , sharing toys with an adult, smiling...then they fed him peas (the mom had recorded it because the doctors did not believe peas could do this).

Within 5 minutes, this kid went berserk - shouting, angry, threw a chair, threw himself on the floor and sobbed then banged his head against the wall on purpose.

Yup ..........foods can cause a rage type reaction.

Sandy

celiacgirls Apprentice

Casein causes a rage reaction in my daughter even worse than gluten does.

UR Groovy Explorer

Hi VioletBlue,

Anything with dairy causes me to get really depressed for a couple days, but no anxiety with diary. Anxiety for me comes with Gluten & chocolate, which leads to angry feelings. My family & I decided a long time ago that I was only allowed to eat chocolate before bed & that way, "nobody gets hurt". Man, I used to be so full of rage. I hated being that way.

Again, everyone has different manifestations to different things.

Hope you feel better soon.

Kat

  • 3 weeks later...
LittleZoe Apprentice

Wow, I can't believe gluten can do this. I've been sooooooo depressed and exhausted the past 1.5 wks. I just found out today something I ate the weekend the depression came back had wheat in it! Could it possibly be making me feel this depressed and for this long? How long does it take you to feel better when it happens? I was feeling so good 2-3 weeks ago.

Yenni Enthusiast

I get just as weird on Casein as on Gluten myself. :angry:;)

loraleena Contributor

My co-workers son get anger from fructose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jitters Apprentice

For me its certain brands of coffee... some make me angry while others make me extremely sad.

  • 4 weeks later...
elye Community Regular

For our own selfish celiac purposes ;) , those on this thread should PLEASE go to the thread about getting in touch with Oprah, which started a couple of weeks ago. We've been trying for eons to come up with a way to get Oprah to finally listen and do an entire show on this devastating, common illness. Really attention-getting symptoms is likely the way. Some of your stories are eye-opening and if you sent them to her, it may finally happen!

mftnchn Explorer

Allergists who work with food intolerances have been aware of this for years; but not all allergists are.

My allergist has done a type of provocative food testing which is "titrated" for the dose that "turns off" symptoms. Children can then get this in a daily drop under the tongue.

At one point in my life, I was in his office daily for 7 weeks over a summer. Usually up to 6 people were being tested at a time, including my own very young children and other children as well.

You would see a whole variety of emotional and behavioral changes clearly related to these dosages which were changed every 10 minutes, and then would eventually go away with the correct dose.

My son did have one rage; he got very angry at his sister for no reason, I had to take him out and walk around with him outside for 10 minutes. He would get silly and giggly, very sleepy, grumpy, or hyperactive. My very young daughter would curl up in a little ball on a blanket and be unresponsive, depressed, sleepy.

There is a book out, sorry can't remember the author but it starts with a Th. First wrote about food intolerances and chemical intolerances. Some amazing stories in that book about psychiatric patients and food intolerances. Where a perfectly normal person after eating a food became crazy, suicidal. This was done in a controlled hospital environment.

angelbender Newbie

For me it was caffeine. I used to have what I called panic attacks (rages included for free) and I realized that when I gave up caffeine, they were 75% gone. Then when I went sugarfree, they were

gone gone gone all gone. Well I'm bk on sugar now but I only get a caffeine pop at the maximum of once a week......and I don't usually do that. My "panic attacks" don't seem to have reappeared even tho I'm going thru one of the most difficult episodes in my life......getting Celiac, getting laid off, feel terrible with Fibromyalgia and no job yet.......but hangin' in there with a positive outlook and surprisingly not getting too freaked out. Go figure. :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    2. - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      1

      Mallorca Guide

    3. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    5. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,938
    • Most Online (within 30 mins)
      7,748

    K2coffee
    Newest Member
    K2coffee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
    • cristiana
      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety.  I had awful anxiety at diagnosis, and that feeling of doom that you describe.   My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me.  I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking).  That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines.   In fact I felt so unwell that I didn't even recognise it as 'anxiety'.  I remember googling my various symptoms and it was only that that  made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech.  This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less.  It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you.   And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can.   There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example,  a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan.  When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'.    I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse.  I remember reading on this forum one should take magnesium tablets, and it did really help.  As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin.  But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety,  I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful.  The Depression Cure: The Six Step Programme to Beat Depression Without Drugs.    Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life:  physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness, and meaningful, engaging activity.    The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer.  I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul.  I am so grateful that these books crossed my path.   Anyway, sorry for the length of this post.  I hope something might be of help. Cristiana  
    • hjayne19
      Hi @trents thanks so much for the insights this helps alot.    These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep with insomnia is if I eat a banana or a snack. I have a follow up appointment soon so will look into those other B vitamin levels. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.