Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Rages


VioletBlue

Recommended Posts

VioletBlue Contributor

I ate something about three days ago, I do not know what, but the depression and rage came back with a vengance. I've been gluten free for almost three months now and thankfully the terrible depression and rage went away . . . until now. I've narrowed it down to either the over the counter pain reliever that TopCare swears is gluten free or some kind of accidental contamination at work.

How long does it usually take for the depression and rage to subside for those who have those symptoms?

Do other allergies cause this same phenomena? Does soy or corn or lactose allergies or intolerances affect the nervous system the same way? I can't keep doing this, it's just too devestating. How do other people manage to work and carry on with their lives through something like this? It wasn't so bad when it was a way of life, but now it's just so much worse. I want to be happy again! :(

violet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

I think a number of foods can cause adverse reactions like you describe. Years ago, I remember watching show about food allergies and children/behavior. Once I saw the segement, I realized how little I knew about these things.

They had a boy (about 7 or 8yrs old), playing quietly in a room , sharing toys with an adult, smiling...then they fed him peas (the mom had recorded it because the doctors did not believe peas could do this).

Within 5 minutes, this kid went berserk - shouting, angry, threw a chair, threw himself on the floor and sobbed then banged his head against the wall on purpose.

Yup ..........foods can cause a rage type reaction.

Sandy

celiacgirls Apprentice

Casein causes a rage reaction in my daughter even worse than gluten does.

UR Groovy Explorer

Hi VioletBlue,

Anything with dairy causes me to get really depressed for a couple days, but no anxiety with diary. Anxiety for me comes with Gluten & chocolate, which leads to angry feelings. My family & I decided a long time ago that I was only allowed to eat chocolate before bed & that way, "nobody gets hurt". Man, I used to be so full of rage. I hated being that way.

Again, everyone has different manifestations to different things.

Hope you feel better soon.

Kat

  • 3 weeks later...
LittleZoe Apprentice

Wow, I can't believe gluten can do this. I've been sooooooo depressed and exhausted the past 1.5 wks. I just found out today something I ate the weekend the depression came back had wheat in it! Could it possibly be making me feel this depressed and for this long? How long does it take you to feel better when it happens? I was feeling so good 2-3 weeks ago.

Yenni Enthusiast

I get just as weird on Casein as on Gluten myself. :angry:;)

loraleena Contributor

My co-workers son get anger from fructose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jitters Apprentice

For me its certain brands of coffee... some make me angry while others make me extremely sad.

  • 4 weeks later...
elye Community Regular

For our own selfish celiac purposes ;) , those on this thread should PLEASE go to the thread about getting in touch with Oprah, which started a couple of weeks ago. We've been trying for eons to come up with a way to get Oprah to finally listen and do an entire show on this devastating, common illness. Really attention-getting symptoms is likely the way. Some of your stories are eye-opening and if you sent them to her, it may finally happen!

mftnchn Explorer

Allergists who work with food intolerances have been aware of this for years; but not all allergists are.

My allergist has done a type of provocative food testing which is "titrated" for the dose that "turns off" symptoms. Children can then get this in a daily drop under the tongue.

At one point in my life, I was in his office daily for 7 weeks over a summer. Usually up to 6 people were being tested at a time, including my own very young children and other children as well.

You would see a whole variety of emotional and behavioral changes clearly related to these dosages which were changed every 10 minutes, and then would eventually go away with the correct dose.

My son did have one rage; he got very angry at his sister for no reason, I had to take him out and walk around with him outside for 10 minutes. He would get silly and giggly, very sleepy, grumpy, or hyperactive. My very young daughter would curl up in a little ball on a blanket and be unresponsive, depressed, sleepy.

There is a book out, sorry can't remember the author but it starts with a Th. First wrote about food intolerances and chemical intolerances. Some amazing stories in that book about psychiatric patients and food intolerances. Where a perfectly normal person after eating a food became crazy, suicidal. This was done in a controlled hospital environment.

angelbender Newbie

For me it was caffeine. I used to have what I called panic attacks (rages included for free) and I realized that when I gave up caffeine, they were 75% gone. Then when I went sugarfree, they were

gone gone gone all gone. Well I'm bk on sugar now but I only get a caffeine pop at the maximum of once a week......and I don't usually do that. My "panic attacks" don't seem to have reappeared even tho I'm going thru one of the most difficult episodes in my life......getting Celiac, getting laid off, feel terrible with Fibromyalgia and no job yet.......but hangin' in there with a positive outlook and surprisingly not getting too freaked out. Go figure. :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.