Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Rages


VioletBlue

Recommended Posts

VioletBlue Contributor

I ate something about three days ago, I do not know what, but the depression and rage came back with a vengance. I've been gluten free for almost three months now and thankfully the terrible depression and rage went away . . . until now. I've narrowed it down to either the over the counter pain reliever that TopCare swears is gluten free or some kind of accidental contamination at work.

How long does it usually take for the depression and rage to subside for those who have those symptoms?

Do other allergies cause this same phenomena? Does soy or corn or lactose allergies or intolerances affect the nervous system the same way? I can't keep doing this, it's just too devestating. How do other people manage to work and carry on with their lives through something like this? It wasn't so bad when it was a way of life, but now it's just so much worse. I want to be happy again! :(

violet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

I think a number of foods can cause adverse reactions like you describe. Years ago, I remember watching show about food allergies and children/behavior. Once I saw the segement, I realized how little I knew about these things.

They had a boy (about 7 or 8yrs old), playing quietly in a room , sharing toys with an adult, smiling...then they fed him peas (the mom had recorded it because the doctors did not believe peas could do this).

Within 5 minutes, this kid went berserk - shouting, angry, threw a chair, threw himself on the floor and sobbed then banged his head against the wall on purpose.

Yup ..........foods can cause a rage type reaction.

Sandy

celiacgirls Apprentice

Casein causes a rage reaction in my daughter even worse than gluten does.

UR Groovy Explorer

Hi VioletBlue,

Anything with dairy causes me to get really depressed for a couple days, but no anxiety with diary. Anxiety for me comes with Gluten & chocolate, which leads to angry feelings. My family & I decided a long time ago that I was only allowed to eat chocolate before bed & that way, "nobody gets hurt". Man, I used to be so full of rage. I hated being that way.

Again, everyone has different manifestations to different things.

Hope you feel better soon.

Kat

  • 3 weeks later...
LittleZoe Apprentice

Wow, I can't believe gluten can do this. I've been sooooooo depressed and exhausted the past 1.5 wks. I just found out today something I ate the weekend the depression came back had wheat in it! Could it possibly be making me feel this depressed and for this long? How long does it take you to feel better when it happens? I was feeling so good 2-3 weeks ago.

Yenni Enthusiast

I get just as weird on Casein as on Gluten myself. :angry:;)

loraleena Contributor

My co-workers son get anger from fructose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jitters Apprentice

For me its certain brands of coffee... some make me angry while others make me extremely sad.

  • 4 weeks later...
elye Community Regular

For our own selfish celiac purposes ;) , those on this thread should PLEASE go to the thread about getting in touch with Oprah, which started a couple of weeks ago. We've been trying for eons to come up with a way to get Oprah to finally listen and do an entire show on this devastating, common illness. Really attention-getting symptoms is likely the way. Some of your stories are eye-opening and if you sent them to her, it may finally happen!

mftnchn Explorer

Allergists who work with food intolerances have been aware of this for years; but not all allergists are.

My allergist has done a type of provocative food testing which is "titrated" for the dose that "turns off" symptoms. Children can then get this in a daily drop under the tongue.

At one point in my life, I was in his office daily for 7 weeks over a summer. Usually up to 6 people were being tested at a time, including my own very young children and other children as well.

You would see a whole variety of emotional and behavioral changes clearly related to these dosages which were changed every 10 minutes, and then would eventually go away with the correct dose.

My son did have one rage; he got very angry at his sister for no reason, I had to take him out and walk around with him outside for 10 minutes. He would get silly and giggly, very sleepy, grumpy, or hyperactive. My very young daughter would curl up in a little ball on a blanket and be unresponsive, depressed, sleepy.

There is a book out, sorry can't remember the author but it starts with a Th. First wrote about food intolerances and chemical intolerances. Some amazing stories in that book about psychiatric patients and food intolerances. Where a perfectly normal person after eating a food became crazy, suicidal. This was done in a controlled hospital environment.

angelbender Newbie

For me it was caffeine. I used to have what I called panic attacks (rages included for free) and I realized that when I gave up caffeine, they were 75% gone. Then when I went sugarfree, they were

gone gone gone all gone. Well I'm bk on sugar now but I only get a caffeine pop at the maximum of once a week......and I don't usually do that. My "panic attacks" don't seem to have reappeared even tho I'm going thru one of the most difficult episodes in my life......getting Celiac, getting laid off, feel terrible with Fibromyalgia and no job yet.......but hangin' in there with a positive outlook and surprisingly not getting too freaked out. Go figure. :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MoniqueCham replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    2. - Scott Adams replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

    3. - Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      55

      Supplements for those Diagnosed with Celiac Disease

    4. - Scott Adams replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,550
    • Most Online (within 30 mins)
      7,748

    TNV
    Newest Member
    TNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MoniqueCham
      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to calm down and because I was stable I made the mistake of not following up with my gastroenterologist. Then other autoimmune problems flared and I tried the methotrexate. It worked like a charm for my skin condition… then my sigmoid colon ruptured. Strange but my autoimmune skin condition remains in remission after 6 months off the medication. We have a very long waiting list to get back into see my GI doctor… I was an emergency referral but am still waiting 6 months after the perforation. I need more surgery to fix a fistula that has formed and to reconnect my colon… I have a colostomy at present. I became a dietitian who specializes in bowel diseases but have never met anyone who’s had so many complications with celiac disease. I have a brother and son who also have been diagnosed. My mother had 4 autoimmune diseases including a vasculitis that eventually resulted in her death and it was my father who had the HLA DQ2 gene. Think I inherited some tendencies from each of them. Thanks again for your response… it feels a little lonely dealing with GI issues when I work so hard to remain gluten free.   
    • HelenH
    • Scott Adams
      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.