Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Don't Want To Make Y'all Mad


conniebky

Recommended Posts

conniebky Collaborator

Hi everyone! Well, it's been one month since I've been to my doctor and went on hormones. I CAN eat gluten, I've been a little apprehensive to post this.....

It turns out my hormones were so screwy that it was giving me panic - not attacks, but panic syndrome.

I've lost 23 pounds. It was ME who searched the net and found that my symptoms equaled gluten intolerance.

Well, the hormones have helped except I'm still goofy.... well, my glasses broke so I was trying to super glue the frame back together but it was hard because I had to put my left hand on the frame and the right side on my knee to put the super glue in there .... so the glasses got stuck to my knee and you know how when you can't use your hands it makes your nose itch? So my nose started itching so I scratched my nose, but there was super glue on my finger, now there's my finger stuck on my nose and the glasses got stuck to my knee and Lord or Lord, I was a big ol' mess with all that but it all worked out.

I know you all said my doctor doesn't know what he's talking about, but I am better, only I can't take caffeine or sugar anymore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Well at least we got you off the sugar and the caffeine Connie. Now if we can just get you off the cheap booze, the roughnecks, the cream puffs, the chawin' terbacky and the glue sniffin' we will have something to celebrate! Lol, just kidding. Congrats on your perseverance with the health search paying off. :D

T.H. Community Regular

If you've found the reason for your symptoms, that is all that matters in the end. :)

I think so many of us here have been through so much where we had to hunt and fight to figure out what's wrong, most of us are just happy to hear that someone else has found the answer for their own health, no matter what that answer is. COngrats - I hope your doc had some good hormone therapy that works really well for you.

Skylark Collaborator

Connie, that's wonderful news. The only sad thing about it is that we'll miss your hillbilly humor around here.

Glad you're feeling better and rid of those awful symptoms, and kudos to your doc who figured it out.

chasbari Apprentice

She doesn't really HAVE to leave... does she?

psawyer Proficient

She doesn't really HAVE to leave... does she?

She does not, and is most welcome to stay. :)

WheatChef Apprentice

Eat a big soft pretzel for all of us.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Glad you figured out what was wrong and happy to hear you are feeling better.

Hopefully you were smarter than I was when I superglued my glasses to my nose after I ran into a cupboard door. When the end of the day came I just ripped them off my face. Yowch!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.