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Almost 6 Weeks Gluten Free But Still Nauseous On And Off


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29 replies to this topic

#1 Mama Melissa

 
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Posted 01 November 2010 - 06:15 AM

Hey everyone my names melissa i just recently have been diagnosed with Celiac.This friday will be 6 weeks i am totally gluten free i am pretty meticulous hair supplys,shampoo conditioner even hand soap and dish washing detergant gluten free just to be extra careful, also all of my vitamins are gluten free.I find sometimes after i eat dinner i get nautious within an hour afterwards not always but more than i would care to remember.My stomach bloating and pain has subsided earlier on in the diet which is a plus. My depressionid better but still active and my anxiety almost completely gone, sometimes get migraines as well but those have calmed down as well.Just wanting to know if within the begginning of the healing process if anyone has gone threw this as well i feel like ive covered all grounds this can be soo frusterating:(
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Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

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#2 smile

 
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Posted 01 November 2010 - 08:16 AM

Hi, I wish I could help you, but Im looking for some answers myself. Im almost 3 weeks gluten free and I had been feeling great, now only having one bowel movement a day, no gas/wind, no tiredness, no headaches, no feeling sick and no low moods. However in the last few days, say 4 Ive started to feel nauseus again and its getting me down. Ive also not been able to gain weight. My dietician asked me to drink chocolate soya milkshake everyday and I have done for about 8 weeks. Ive not gained a lb. I eat good amounts, never go hungry, eat plenty of meat, veg,fruit, potatoes, rice,nuts etc and also have gluten free pasta/bread.

I feel like Im actually losing weight bodily, my stomach/waist seems to be shrinking, even if the weight on the scales is only less 1lb or stays the same. I cant seem to get above 7 stone. Im still losing my hair.

My dietician has said to my gp that he hopes they diagnose me with coeliac based on the blood tesr results and previous history of symptoms and change in diet, but if they dont I should still stay clear of gluten for the sake of my future health.

I just dont understand what is going on. Ive made sure Im consuming no gluten at all and that nothing is cross contaminated.

I hope you find out what is going on.
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#3 sahm-i-am

 
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Posted 01 November 2010 - 08:49 AM

Hi to the both of you! Starting our gluten free is a huge learning curve and the body goes through crazy things while healing. To the first poster - I had the same nausea and they think it is a small bowel infection, I just completed a two weeks course of antibiotics, which caused more nausea, but hopefully this week we will see improvements. Or it could be some other sort of allergy/response to something. Who knows - the guts are mysterious and everyone's responds differently.

To the second poster - I had trouble gaining weight in the beginning and finally, after almost 6 months gluten free I have gained back the 20 lbs!! This is huge for me and a good thing. I was too thin to begin with. I can't say there was any one thing I ate or did to help gain the weight. It just took time and more time. I had lots of advice to eat highly caloric foods, but that didn't seem healthy to me. So I ate good healthy foods, added some new nuts and vegetables and ate all day. While healing, my body was constantly hungry, although I wasn't gaining weight. Then, BAM! It just started to happen and now I'm a healthy weight.

It takes a long time to do damage to our bodies with Celiacs - it takes a long time to heal.
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Diagnosed with Lymphoma March 2010. After surgery doctors said "Oops!"
Diagnosed with Celiac Disease April 2010. After endoscopy doc said "Aren't you glad?"
Uhhh.....yeah!
DD #1 ('99) tested negative on bloodwork but positive on 2 genetic markers. Went gluten free in July 2010 and has been symptom-free ever since!
DD #2 ('98) tested negative and has no symptoms. Didn't fork out money for genetic testing. Will watch and test regularly.
Husband tested positive in July 2010 and has refused to go gluten free. Uh huh, that's gonna bite him in the a** one day! (Pun intended!)

#4 Marz

 
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Posted 01 November 2010 - 10:04 AM

Hi there,

For the nausea - I found after going gluten free, I used to get nauseous at the same time every day. Cut out a few foods to experiment, and eventually found out nightshades were making me nauseous. It was quite severe, and worse the bigger alkaloid hit I got - raw green/red pepper was the worst, followed by tomatoes and potato. It only started up an hour or so after eating though, not immediate. The good news is now I can eat fresh potatoes (green/sprouting potatoes have higher amounts of alkaloids), small amounts of tomatoes etc. Peppers still not good :)


So stuff to try
- Cut out potatoes/tomatoes/tomato sauce/peppers for a meal, and see if you do or don't get nauseous.
- Keep a food journal listing what you eat and how you feel at what time. Do you always get nauseous, or only sometimes?
- Maybe you have an ulcer? Nausea is a common symptom of an ulcer, or even just mild inflammation of the stomach can cause it. Have you had an endoscopy recently? The doctor can test for H. Pylori which is a bacteria that commonly causes ulcers. Having stomach pain? If you get nauseous immediately after eating, maybe you have some stomach inflammation? Do you also get full very quickly?
- Maybe you are sensitive to milk (casein) or soy? Are you eating a lot more soy products than you used to?
  • 0
Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#5 Mama Melissa

 
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Posted 01 November 2010 - 10:52 AM

smile i have the same problem cant gain weight and def have lost a good 25 lbs in the yr in the begginning i was working out quite hard i have stopped since diagnosis tho.
Sam i just had an endo done and they thought i had h pylori which i didnt, then just went threw a gastric emptying study and the had previous bloodwork for yearly physical doctor basically said theres not much more tests we can do your fine:(Marz i am keeping a food diary and you know i did have some nausea with nightshades and possibly corn i do want to get testing done to see if they can diagnose me with other intolerances. I am lactose intolerant since i just was diagnosed the doctor said very mild damamge done.I just dont understand this naseau esepcially with minimal damage,also feel so limited as to what i can eat now i am hesitant to cut out any other foods but i know i need to do it to improve my health.What i really want to know is if i cut these foods out for lets say 6 months and my gut heals more will i be able to introduce them back into my diet again or are they permanent? Thank you for all your wonderful replies i am soo greatful to talk to people who know what they are talking about:)
  • 0
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#6 ravenwoodglass

 
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Posted 01 November 2010 - 11:48 AM

smile i have the same problem cant gain weight and def have lost a good 25 lbs in the yr in the begginning i was working out quite hard i have stopped since diagnosis tho.
Sam i just had an endo done and they thought i had h pylori which i didnt, then just went threw a gastric emptying study and the had previous bloodwork for yearly physical doctor basically said theres not much more tests we can do your fine:(Marz i am keeping a food diary and you know i did have some nausea with nightshades and possibly corn i do want to get testing done to see if they can diagnose me with other intolerances. I am lactose intolerant since i just was diagnosed the doctor said very mild damamge done.I just dont understand this naseau esepcially with minimal damage,also feel so limited as to what i can eat now i am hesitant to cut out any other foods but i know i need to do it to improve my health.What i really want to know is if i cut these foods out for lets say 6 months and my gut heals more will i be able to introduce them back into my diet again or are they permanent? Thank you for all your wonderful replies i am soo greatful to talk to people who know what they are talking about:)


You may want to try switching do a different supplement drink or maybe drop it for a bit and substitute a smoothie made with rice, almond or hemp milk to make up the calories. Soy can be a common co-intolerance for us and if it is a problem for you the nausea should get better pretty quickly. It sounds like your eating a pretty balanced diet and taking supplements so you should be okay there but it is not a bad idea to have a vitamin and mineral panel done if you haven't already.
It can take us a while to heal and ups and downs are common at first. Hope your feeling better soon.
If you think you may need a strict elimination diet an allergist who deals with intolerances and elimination diets is, IMHO the way to go. They will start you out with 5 foods that you are least likely to react to and then you will add them back in one at a time. It is a long process sometimes but well worth it if it helps.
There are folks who are able to add stuff back in that they had to eliminate after they have healed. Some are intolerant to stuff long term. I don't think there is any way for you to tell which group you fall into.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 Mama Melissa

 
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Posted 01 November 2010 - 11:54 AM

supplement drink sounds great,i swear sometimes i get down about this diet but if you really think about it for everything we cant have there is a substitute and its only going to get better ive heard they have come a longgg way in the past 4 or 5 yrs:)Yes i know patience is the key im just seriously hoping i can have my dairy back for good one day and also my COFFEE was a huge coffee drinker but i know coffee stimulates your bowels so i gave it up and drink tea but there still something missing:/ anyone successfully drinking coffee????
  • 0
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#8 tarnalberry

 
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Posted 01 November 2010 - 12:36 PM

nausea is a classic symptom of hypoglycemia. are your meals well balanced for protein/carbs/fat?
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
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Bellevue, WA

#9 Mama Melissa

 
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Posted 01 November 2010 - 12:40 PM

tar yes i try to make them as well balanced with meat (protein)vegtables being the biggest portion and carbs sometimes i do add a lil xtra carbs:) i was tested for diabetes and thyroid which they said i dont have however it does run in my family...
  • 1
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#10 ravenwoodglass

 
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Posted 01 November 2010 - 01:47 PM

supplement drink sounds great,i swear sometimes i get down about this diet but if you really think about it for everything we cant have there is a substitute and its only going to get better ive heard they have come a longgg way in the past 4 or 5 yrs:)Yes i know patience is the key im just seriously hoping i can have my dairy back for good one day and also my COFFEE was a huge coffee drinker but i know coffee stimulates your bowels so i gave it up and drink tea but there still something missing:/ anyone successfully drinking coffee????


I drink coffee all the time. If you really miss it try having just one cup in the morning. If it bothers you then drop it. Oddly enough I have trouble with some teas, they just don't like me not a gluten issue.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#11 Mama Melissa

 
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Posted 01 November 2010 - 02:13 PM

yea raven ive been without it for almost 2 months i think thats why im soo tired to be honest since i know im not anemic lol i think im due a cup wish me luck:) also raven have you had any problems with dunkin donuts coffee or even mcdonalds mccafe drinks since i did research they are gluten free...
  • 0
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#12 ravenwoodglass

 
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Posted 02 November 2010 - 02:54 AM

yea raven ive been without it for almost 2 months i think thats why im soo tired to be honest since i know im not anemic lol i think im due a cup wish me luck:) also raven have you had any problems with dunkin donuts coffee or even mcdonalds mccafe drinks since i did research they are gluten free...


The only coffee I drink is coffee I brew myself. I got a nice thermos type cup for the car if I want to bring one with me when I am out. I would start off with homebrewed coffee to be on the safe side. Personally I wouldn't touch something made at McDonalds or Dunkin Doughnuts. Just not worth the risk IMHO.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#13 Mama Melissa

 
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Posted 02 November 2010 - 04:07 AM

really??? are we all that sensitive??? also what does imho mean?? do you ever go out to eat???
  • 0
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#14 ravenwoodglass

 
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Posted 02 November 2010 - 10:05 AM

really??? are we all that sensitive??? also what does imho mean?? do you ever go out to eat???


IMHO is 'in my humble opinion'. I do go out to eat on occasion but only at places that have a gluten free menu. With cross contamination being a risk I choose not to eat at 'fast' food places or establishments where I am not sure that folks know what they need to do to keep me safe. I have very severe reactions including a 3 day GI bleed with CC so to me it is not worth the risk.
You may want to post the question about whether others drink coffee from those places you named in the products section to get the some opinions from others.
If you do chose to grab a cup of coffee from someplace like them it would be a good idea to be fully healed first. If you are not sure your body will tolerate coffee do drink homebrewed first so you don't end up wondering if you don't tolerate the coffee or if it was CC that got you.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#15 Mama Melissa

 
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Posted 02 November 2010 - 11:06 AM

IMHO is 'in my humble opinion'. I do go out to eat on occasion but only at places that have a gluten free menu. With cross contamination being a risk I choose not to eat at 'fast' food places or establishments where I am not sure that folks know what they need to do to keep me safe. I have very severe reactions including a 3 day GI bleed with CC so to me it is not worth the risk.
You may want to post the question about whether others drink coffee from those places you named in the products section to get the some opinions from others.
If you do chose to grab a cup of coffee from someplace like them it would be a good idea to be fully healed first. If you are not sure your body will tolerate coffee do drink homebrewed first so you don't end up wondering if you don't tolerate the coffee or if it was CC that got you.


  • 0
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free




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