Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sore Throat As A First Sign Of Glutening
0

14 posts in this topic

So a few times in the last couple of weeks I've been getting adventurous with my food - trying new brands etc. When something didn't agree with me, the first sign I've noticed is a sore throat, like a mild burning sensation. This happened with :

* Gino Ginelli ice cream both times I had it ( Unilever brand, no wheat listed, no gluten warnings, only "modified starches" which should be non-wheat, and "glucose syrup")

* Nestle ice cream (Again no gluten mentioned, no warnings)

* Orgran gluten-free biscuits

After the sore throat is a sore stomach, and then d a few hours later, anxiety etc etc. Note I don't get this for other types of ice-cream, like store-bought no-name-brand chocolate ice-cream, or my own home-made biscuits so it's not lactose upsetting my stomach.

What I really hate is that these are supposedly "gluten free" items, no warnings listed. I can only guess there's some cross contamination with the product or in the original ingredients.

I thought the sore throat is interesting though, makes an early warning system for me.

1

Share this post


Link to post
Share on other sites


Ads by Google:

So a few times in the last couple of weeks I've been getting adventurous with my food - trying new brands etc. When something didn't agree with me, the first sign I've noticed is a sore throat, like a mild burning sensation. This happened with :

* Gino Ginelli ice cream both times I had it ( Unilever brand, no wheat listed, no gluten warnings, only "modified starches" which should be non-wheat, and "glucose syrup")

* Nestle ice cream (Again no gluten mentioned, no warnings)

* Orgran gluten-free biscuits

After the sore throat is a sore stomach, and then d a few hours later, anxiety etc etc. Note I don't get this for other types of ice-cream, like store-bought no-name-brand chocolate ice-cream, or my own home-made biscuits so it's not lactose upsetting my stomach.

What I really hate is that these are supposedly "gluten free" items, no warnings listed. I can only guess there's some cross contamination with the product or in the original ingredients.

I thought the sore throat is interesting though, makes an early warning system for me.

Hi Marz!!

I have had a sore, scratchy throat and "burny" mouth/tongue for almost 2 years. Like all my other symptoms, no one could explain it to me :angry:

I definitely tie it to the gluten.Even drinking club soda hurt going down. :blink: At times, I felt like it would close right up.

It had started to subside, along with the D and anxiety, etc... (I am gluten-free 5 weeks) and then, last week, I was glutened somehow and until I read your post this morning I could not, for the life of me, figure it out as I am very careful.

I ate ORGRAN animal crackers!!

I have wondered if anyone else had this burny throat symptom. Sorry you get it, because it is uncomfortable, but glad to know I am not alone and that someday, it will subside for good as I remain gluten-free.

Thanks a million for posting this! It was a mystery that had me sick for several days and completely discouraged and baffled.

And, the Orgran crackers are in the trash.... ;) they weren't that tasty anyway. :P

0

Share this post


Link to post
Share on other sites

Yes, I get this too. I also get it with dairy items though. Have you considered a secondary intolerance or food allergy?

1

Share this post


Link to post
Share on other sites

We're eating gluten free for our teen, and last night my husband ordered veal piccata. He hasn't eaten any wheat for two months and his throat became very sore and his nose completely congested. Anyway he won't be doing that again.

0

Share this post


Link to post
Share on other sites

i never had the burning- but wheat & gluten & SUGAR always make me feel like im about to be getting a sore throat. wheat always gave me post nasal drip... (always congested me more than dairy)... and sugar always gave me that "im getting sick" feeling... many times i would be like: am i REALLY getting sick? or is it just too much sugar?

0

Share this post


Link to post
Share on other sites




Yes i also get a dry feeling in my nose and throat,lower back pain and tirednesss.I myself am strict gluten free but venturing out trying other brands as long as it dosen't have any gluten ingridients its safe to eat.At first i was worried about eating this n that and if it didnt say gluten free right on the package i wouldnt eat it. But i now am just following the diet guidlines if gluten isnt in the ingriedients you can have it, i also follow sanitary guidlines to try to prevent cc.But i def dont worry about cc as much as i used to im trying to enjoy life as much as possible and almost all of my stomach troubles have went totally away which is a GREAT THING!

0

Share this post


Link to post
Share on other sites

ohmygosh!

i had a sore throat for months and a burning tongue and just realized right now that my tongue feels normal and my throat doesn't hurt!

i am just over 5 months gluten-free...

2

Share this post


Link to post
Share on other sites

Yes, I get this too. I also get it with dairy items though. Have you considered a secondary intolerance or food allergy?

I know I'm sensitive to dairy - in that if I eat a lot I'm going to feel a bit ill :P But if I eat small amounts of no-name brand ice cream I feel fine. It might also be the combination of lots of sugar + dairy, the Gino Ginelli was *very* rich.

0

Share this post


Link to post
Share on other sites

I definitely tie it to the gluten.Even drinking club soda hurt going down. :blink: At times, I felt like it would close right up.

Yup, have had that feeling before :P

I ate ORGRAN animal crackers!!

I'm glad I helped solve the mystery for you! :D The biscuits for me was definitely not pleasant. Times like these I wish I had gluten test strips, so I could check it, and send to them with a big angry letter of complaint. As it is, I'm just guessing, but my gut tells me I'm right ;)

And, the Orgran crackers are in the trash.... ;) they weren't that tasty anyway. :P

Hehe, they aren't that great and they cost a fortune! :P Strangely enough, the Orgran gluten-free flour (white flour) seems to be ok - I've made biscuits from them before and I was fine. What ingredients do those crackers have - does it include Sorghum or pea flour? I think their plain rice/corn/potato starch flour mix is OK, but the other flours might have small amounts of CC from when it's originally harvested/milled.

0

Share this post


Link to post
Share on other sites

wheat always gave me post nasal drip... (always congested me more than dairy)...

Both my dad and I suffer from post nasal drip. It's become a *lot* better gluten-free. I also used to get that "I'm getting sick" feeling from eating lots of chocolate, but it might have been gluten-containing chocolate, so maybe the dairy + gluten combination was killing me. I used to think the post nasal drip was worse after eating dairy, but now it seems to be fine after 6 months gluten-free :)

ohmygosh!

i had a sore throat for months and a burning tongue and just realized right now that my tongue feels normal and my throat doesn't hurt!

Nice!! I used to get frequent "throat infections", sinus infections, mild sore throats with no explanation. I also didn't realise they were gone until now when I noticed the sudden sore throat.

Thanks for all the responses! :)

1

Share this post


Link to post
Share on other sites

Times like these I wish I had gluten test strips, so I could check it, and send to them with a big angry letter of complaint. As it is, I'm just guessing, but my gut tells me I'm right ;)

I keep meaning to buy them now, too.

http://www.elisa-tek.com/ez%20gluten.htm

Wish they were cheaper!

0

Share this post


Link to post
Share on other sites

Yes, I get this too. I also get it with dairy items though. Have you considered a secondary intolerance or food allergy?

Yes! I had the IgG food panel done last year. Showed SOY as "severe". That was the only food that registered as a problem. I do not eat any dairy either as my doctor suggested I remove it when I went gluten-free.

If something else is bothering me, I'll be darned if I can figure it out. Some have suggested I wait a while as I am only gluten-free 5 weeks and see what resolves in time. I don't know. I am tired of feeling sick and in a "histamine"- type response all the time. I had ELISA testing and environmental allergy testing...NEGATIVE for everything! so, I am very confused by this continued ill feeling.

Any thoughts appreciated! Thanks!

0

Share this post


Link to post
Share on other sites

ohmygosh!

i had a sore throat for months and a burning tongue and just realized right now that my tongue feels normal and my throat doesn't hurt!

i am just over 5 months gluten-free...

WOW!! that's great!!THIS GIVES ME enormous HOPE!! Thank you for sharing this. mY mouth, tongue and throat have been burning since July '09 and it makes me cry.

Every time I read a post by someone on here who had my symptoms and they WENT AWAY, I am encouraged more and more...!! :)

0

Share this post


Link to post
Share on other sites

What ingredients do those ORGRAN crackers have - does it include Sorghum or pea flour?

I don't know. I got so mad, I threw out the package :lol:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,421
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
    • Daughter with celiac- need test result help
      You are doing well.  We didn't have a "normal" tTG for 6 years and were also very strict.  Kiddo was dx with hypothyroid as well and tTG fell a lot after getting on meds for that but still didn't normalize.  Finally cam down within the last 6 months (this after a trip to THE Celiac Dr. several years ago).  I wish we had done a DGP much earlier and I had pushed for that sooner.  I would start there and see what happens.     Sounds like you're doing everything right though. Sometimes it just takes time. 
    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,484
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined