Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Happy New Me 2012!

CarpeDiem

By CarpeDiem
in Coping with Celiac Disease

Recommended Posts

CarpeDiem Newbie
CarpeDiem
Posted

New Year is always a time for reflection. Like some of you, I was diagnosed with Celiac just days ago. I haven't really stopped to think about it much until tonight, New Year's Eve, a quiet night of light snow falling. I handed in a thesis last week so I spent last night celebrating with family and friends and mentioned my diagnosis but only briefly (between the massage spa day and dinner and dancing). It is only in this quiet time that I am really starting to process what it means. I read someone else's post about being newly diagnosed and all your wonderful responses of hope and encouragement. Someone I know was recently married and with a new baby and was just diagnosed with MS so I am well aware that my situation could always be worse. That said, right now I'm feeling just a little bit sorry for myself so thank you to everyone who said that's ok. One person reminded me that my attitude can make a world of difference. I almost died in a van accident in college (my speech team was traveling back from a competition when we rolled our van six times) and since that day I have always lived by the motto "Carpe' Diem" so this is just another challenge in truly living that mission - taking advantage of each day and focusing on the good I have in my life and not the negative (which I'll admit will be hard at times). I lost 75 pounds with Weight Watchers years ago and have maintained most of that so I know I can focus in and be diligent about educating myself but I'm worried about cheating. However, I'm sure no more horrible pain will be a strong motivator to not cheat, right? So, I'm posting this mostly as a boost to myself to not feel like I'm starting the new year deprived but thankful finally to know what's been going on and hopeful to make changes that will help me feel good in all aspects of my life - physical, spiritual, mental, and emotional. I turn 40 in February and who knows... it may be my healthiest birthday ever! I would love to e-mail with anyone else going through this newly diagnosed coping stage so drop me a message anytime! There's a lot to learn!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Congratulations on your diagnosis, and your attitude toward it. Believe me, the urge to cheat soon leaves when you realize how much better you feel, and how bad when you do. We soon learn to think of gluten as rat poison, not something to desire :D

Here's to a healthier and happier New Year in 2012 - what better way to start a new year? :)

Roda Rising Star
Roda
Posted

Welcome and happy new year. Read all you can on here. There is a lot of good advice and support.

tammyrichy Newbie
tammyrichy
Posted

My husband was too very recently diagnosed. It was only discovered through blood work for another condition. He does not have the painful symptoms that some people go through when they eat gluten. This is going to make it extremely hard to not want to cheat. He understands the severity of what cheating will do to his body (without feeling the symptoms). I think if he did hurt when he eats it, that would help, but at the same time, glad he does not hurt. After 24 years of marriage, this will definitely be a new lifestyle change for us. Keeping positive and learning all I can! Thanks to everyone who posts on here with any bit of useful information for us newbies!!

sa1937 Community Regular
sa1937
Posted

Welcome, CarpeDiem and Tammy!

At first it is rather overwhelming to be faced with these dietary challenges but pretty soon you'll get a good handle on the foods we can eat, that it'll become so much easier (almost automatic). I remember well that first trip to the grocery store that took forever. But I found if I stuck to shopping the outer rim of the store and skipped trying to find replacements for gluteny foods, it was so much easier...and much healthier, too, I might add.

Good luck!

BeFree Contributor
BeFree
Posted

Welcome to the board CarpeDiem and while you may struggle at times, you will be enjoying many healthy and pain-free days ahead!

I don't have a diagnosis, but after being on the gluten-free diet for four months now I feel 100% better, and I woke up this morning feeling healthy and balanced. So what a great start to 2012! Glad to be feeling better and glad to know you guys! Happy New Year 2012 to everyone at celiac.com!

MinnesotaCeliac Rookie
MinnesotaCeliac
Posted

The excitement and trepidation of the newly diagnosed, oh we all know it well (I'm six months yesterday). You'll have good days and perhaps some bad ones, but knowing you can be healthy (and without taking meds) is such positive reinforcement that any thought of cheating will be put to the side. On my good days, I personally think living gluten free is mostly a convenience issue. I just need to plan ahead or do my homework and know what I can eat on the fly. Sometimes social situations are challenging, but you learn to overcome those challenges too. The key is to acknowledge your emotions and work through them. Allow the down moments, but find a way to the positive side (even when it appears there is not one). Believe me it has not been all roses, but how you handle it will make all the difference in the world. Please note that this coming from a person that was sometimes called the glass half empty type. The wonderful folks on this forum are not only great for getting information regarding celiac/gluten intolerance, but sometimes commiserating with like people gets you through the tough times(the I'm not alone feeling makes all the difference). Im still learning myself, but feel free to contact me if you have questions. Good luck and congrats on the diagnosis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hello and welcome to our new posters!

Attitude makes a big difference in how you adapt to your new lifestyle. Always try to look for a positive.

Be aware that some of us feel relief/happiness when first DXed..but later have some days where we feel very challenged. It's perfectly normal, and we are here to lend support.

Happy 2012..may it be the start of a wonderful, new, healthy life!

PS..As my Engineer hubby says..some people say the glass is 1/2 full, some say the glass is 1/2 empty. Engineers say..the glass is the wrong size! :D

Debbie48 Rookie
Debbie48
Posted

[PS..As my Engineer hubby says..some people say the glass is 1/2 full, some say the glass is 1/2 empty. Engineers say..the glass is the wrong size! :D

CarpeDiem Newbie
CarpeDiem
Posted
  • Author

Thanks, everyone! I'm hoping for a healthy 2012 and am so happy I stumbled onto this community last night!

Dena

clohmean Newbie
clohmean
Posted

Hi CarpeDiem,

I've been recently diagnosed with Celiac's and I found your post inspiring as I'm struggling with the diagnosis and have been

prolonging the inevitable (My GI said I could start gluten-free after the holidays if it helped). I've been reading the posts and

in between my pity party :unsure: , I find glimpses of excitement in the thought of feeling better, so I'm try to hang onto it !

My husband has been so supportive and said he would go gluten free too (until he has a guys night out ;) ) and has

been encouraging me to get started on this diet! I just turned 41 and have been getting iron infusions for iron deficiency anemia, which

at first they thought was attributed to heavy cycles, but after two years of infusions, they ran the celiac blood panel and even though it came

back negative (with the exception of an elevated TTG-IGG antibody test), an endoscopy confirmed blunted villi and Celiac's. But, I wanted to thank everyone who posted such

positive comments ! I need to continue to learn more about Celiac's, not get too overwhelmed and be thankful for

a disease that can be controlled via your diet.

Happy New Year ! Best of luck to you !

clohmean

IrishHeart Veteran
IrishHeart
Posted

PS..As my Engineer hubby says..some people say the glass is 1/2 full, some say the glass is 1/2 empty. Engineers say..the glass is the wrong size! :D

I say...1/2 empty, 1/2 full?? either way, it's time to go back up to the bar... :lol:

Welcome to the Forum and to your New Life!

Do not fear the gluten free lifestyle. It's not as complicated as it seems at first.

It saved my life. :)

I lost years of my life to this disease, but I am coming back. :)

Anything we can do to help, just ask!!

I have a "Newbie cheat sheet" --a file of articles, menu ideas for breakfast, lunch, dinner, a shopping list, a list of dedicated facilities, safe snacks, safe foods, foods to avoid, cross contamination info, etc. that I compiled for my friends and family, if you want it.

Happy, healthy New Year!

Cheers,

IH

red island Newbie
red island
Posted

I don't usually enjoy New Years Eve - I've always found it depressing to see another year gone by but this year I found myself full of hope and anticipation for what 2012 will bring. I am 4 months into my diagnosis and things are finally clicking for me. So don't get discouraged, I found I had alot of ups and downs early on but now I see glimmers of my old self, the self thats been gone for years and that gives me great joy.

hspichke Apprentice
hspichke
Posted

I also just found out last week that my celiac panel was all positive and now am waiting on a biopsy. I have been sick for years so I totally understand how you feel about ridding yourself of the horrible pain even though you may want to cheat. I have been researching quite a bit, but so far have not started a gluten free diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,564
    • Most Online (within 30 mins)
      7,748
    larrybrinkley
    Newest Member
    larrybrinkley
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.