Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

For The Older Ladies W/o Gold Seal Dx


  • Please log in to reply

21 replies to this topic

#1 AVR1962

 
AVR1962

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,107 posts
 

Posted 22 February 2012 - 12:24 AM

Like many of the ladies here, I do not have the "gold seal" diagnosis. I was given a "careful" dx based on tests results, improvement on gluten-free diet and symptoms. However, one of my docs disagrees with the dx. I am not going off the gluten-free diet regardless and because of past history I see alot of links throughout my life to indicate celiac.

My research this weekend lead me to something else, menopause
http://www.34-menopause-symptoms.com/

Of the 34 symptoms, I have all but 8.....things that I was connecting to the celiac, and now I am question things.

This debate actually started a year ago as this is what my GP thought it was, went to GYN and she said my symptoms were stress, not menopause. She had me go off the Pill and my hormones were tested and given a clean bill of health. I have 2 GP and both keep telling me they feel I am experiencing menopausal symptoms. I have not given it much thought as I do not have the first 6 on the list which are the classic symptoms. Could it me the hormones from the Pill are a bit more stabilzed and that's why I do not have the classic symtoms but have the rest?

Just wondering if this rings a bell with anyone else? I do have an appt with GP doc tomorrow and GYN doc next week, hoping to get some answers.
  • 0
Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

Celiac.com Sponsor:

#2 curlyfries

 
curlyfries

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,502 posts
 

Posted 22 February 2012 - 03:13 AM

Wow.....looks like most of the women (and men) here must be going through menopause! :unsure:

Let's just take everything a woman could possibly complain about and call it menopause. :rolleyes:

And you've had no changes in your cycle?

What kind of test did you have? If you had a positive blood test then you're celiac. Add to that the fact that you have improved on a gluten free diet. Doctor's are so good at making us feel like we don't know what we're talking about. Go with your gut ;) .....and the proof and don't let doctors tell you differently. Trying to label it menopause, to me, is almost as bad as "It's all in your head."
  • 1
~~Lisa~~

"The greater the obstacle, the more glory in overcoming it."--Moliere

"I may not have gone where I intended to go, but I think I have ended up where I needed to be."--Douglas Adams


Friends may come and go but Sillies are Forever!!!!!!!--Amanda
_________________

gluten-free since 1/08
Posted Image

#3 UKGail

 
UKGail

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 185 posts
 

Posted 22 February 2012 - 03:22 AM

My periods stopped at age 44, after I had been feeling unwell for some months, with, including other things, hot flushes and low sex drive. A gyn doc diagnosed ovarian cysts and gave me a short course of hormone for them. The cysts resolved, my periods restarted, and the hot flushes died away. At the time I was had started eating a low gluten diet, and a GI biopsy came back negative.

Fast forward another 1-2 years of eating a lot of gluten (a GI having told me I didn't have celiac!), and worsening health problems. The hot flushes gradually came back, and my periods stopped again. Blood tests "confirmed" that I was "post-menopausal" at age 46. I went fully gluten free as a trial under the care of a rheumatologist. Within a few days the hot flushes stopped completely, my periods restarted, and have been perfectly regular in the 5 months since then.

I am convinced that my female problems are linked to my gluten sensitivity.
  • 1

#4 navigator

 
navigator

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 395 posts
 

Posted 22 February 2012 - 07:34 AM

I was diagnosed by endescopy and biopsy but I'm 54 and also in the menopause. I do have symptons which are common to both diagnosis - mainly crashing fatigue and jointpains/aches. These are so similar that the only way I can differentiate between it being menopause or coeliacs causing it is by accompanying symptons. If I also have heightened hot flushes and night sweats then I put it down to menopause being the main culprit. If I don't have an increase in these but I have problems with bowels, stomach etc then I consider possible accidental glutening. The brain fog accompanies both!On my worst days I have all the symptons and it seems that they're both in overdrive. The G.P. I was originally seeing about my symptons put it all down to menopause. When I went to the G.P. I currently see, he felt that just because I was menopausal did not mean that my symptons could not also be a result of coeliac disease and had me tested. It could very well be that you are both menopausal and coeliac. Don't let the doctors dismiss the coeliac if you're menopausal.
  • 1

#5 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 22 February 2012 - 07:51 AM

It is possible to be experiencing menopausal (or even peri-menopausal symptoms) and still be a celiac.

Many GYN issues are associated with celiac (I had plenty, including multiple miscarriages, endometriosis, ovarian cysts, fibroids, etc. )

I had all the hot flashes, (more like hot drenches :rolleyes: ) insomnia, migraines, heavy bleeding and prolonged periods that come with peri-menopause and that BS started when I was in my late 30's!.(same thing happened to my Mom)

It was awful, quite honestly. My doctor tried everything to make me comfortable, (various BC pills, etc) but the only thing that solved the many problems I had was a complete hysterectomy at 47.

If your symptoms are consistent with menopause and you are gluten free, it could well be peri-menopause. I hope your transition will be a lot smoother than mine because you are gluten-free and working so hard at being healthy!

But don't ever let a doctor tell you anything is "just" menopause :rolleyes: because in my case, it was a whole lot more going on. It was ALSO long- undiagnosed celiac compounding the endless list of GYN/reproductive problems.
  • 2

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#6 AVR1962

 
AVR1962

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,107 posts
 

Posted 22 February 2012 - 10:27 AM

Wow.....looks like most of the women (and men) here must be going through menopause! :unsure:

Let's just take everything a woman could possibly complain about and call it menopause. :rolleyes:

And you've had no changes in your cycle?

What kind of test did you have? If you had a positive blood test then you're celiac. Add to that the fact that you have improved on a gluten free diet. Doctor's are so good at making us feel like we don't know what we're talking about. Go with your gut ;) .....and the proof and don't let doctors tell you differently. Trying to label it menopause, to me, is almost as bad as "It's all in your head."

Thanks Lisa, I really do appreciate your reply. I stopped going to docs years ago and stayed away for probably too long because docs wanted to blame female issues on everything I went to them for. I recently stopped taking the Pill to see if there are any changes going on. The list really amazed me though. So then I was wondering if my GP could be right. And that's why I thought I would bring it up here.
  • 0
Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#7 curlyfries

 
curlyfries

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,502 posts
 

Posted 22 February 2012 - 12:56 PM

Well, like the other posters have mentioned, you could have both. I just don't understand why doctors would ignore test results and positive dietary response. If they had said, "Ok, you have celiac, but I also think you are menopausal", that would be different.

Looks like you've got it together and realize that gluten free is the way to go for you no matter what some doctors say. :)
  • 0
~~Lisa~~

"The greater the obstacle, the more glory in overcoming it."--Moliere

"I may not have gone where I intended to go, but I think I have ended up where I needed to be."--Douglas Adams


Friends may come and go but Sillies are Forever!!!!!!!--Amanda
_________________

gluten-free since 1/08
Posted Image

#8 cougie23

 
cougie23

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 238 posts
 

Posted 22 February 2012 - 01:41 PM

I totaly agree with the others! But would like to out out something interesting that happened to me!
Before I was diagnosed...We thought I had MS (untill the MRI) and I was SURE I was going through menapause( I had allmost ALL of the symptoms for BOTH which is one of the reasons this is ALSO refered to as a MIMICING deseise)..But for the sake of conversation we'll just mention the irregular periods,severe hemoraging/but short periods, 2 month long migrane and severe hot flashes and flushes! Then I found out about CELIACS/ Casien intolerance ...adjusted my diet...and started to see results! But a funny thing happened ...There was a time during the HOLIDAYS I cheated...I had dairy..and I noticed every time I had dairy...my gums would start bleeding and become swollen again...My period would be affected... My jaw and neck got severely tense and painful...I got a week long migraine (twice)...and the hot flashes that compleatly disappeared came back...not to mention the leg cramps ( but the leg cramps were directly related to the pumkin pie I snuck!!!) Leson to me... DON'T CHEAT!!!
my point was though...Dairy was the culprit!
I've also sense then developed an insensitivity to potatoes and soy is 50/50!
So you never know?! Our bodys are complicated!
Hope this helps! :D
  • 1
Cougie23
Diagnosed 8/3/11
Celiacs/casein sensitive/lactose intolerent

Favorite quotes-
"I know you think you understand what you thought I said,
But I'm not sure you realize that what you heard is not what I meant!!!"-anonyamous

"you can lead a donkey to the river...but if you want him to drink...
you have to throw him in" -(21 yr.old son)

#9 AVR1962

 
AVR1962

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,107 posts
 

Posted 22 February 2012 - 10:06 PM

I totaly agree with the others! But would like to out out something interesting that happened to me!
Before I was diagnosed...We thought I had MS (untill the MRI) and I was SURE I was going through menapause( I had allmost ALL of the symptoms for BOTH which is one of the reasons this is ALSO refered to as a MIMICING deseise)..But for the sake of conversation we'll just mention the irregular periods,severe hemoraging/but short periods, 2 month long migrane and severe hot flashes and flushes! Then I found out about CELIACS/ Casien intolerance ...adjusted my diet...and started to see results! But a funny thing happened ...There was a time during the HOLIDAYS I cheated...I had dairy..and I noticed every time I had dairy...my gums would start bleeding and become swollen again...My period would be affected... My jaw and neck got severely tense and painful...I got a week long migraine (twice)...and the hot flashes that compleatly disappeared came back...not to mention the leg cramps ( but the leg cramps were directly related to the pumkin pie I snuck!!!) Leson to me... DON'T CHEAT!!!
my point was though...Dairy was the culprit!
I've also sense then developed an insensitivity to potatoes and soy is 50/50!
So you never know?! Our bodys are complicated!
Hope this helps! :D

It does help Cougie, thank you! Repeatedly I hear of the hot flashes and night sweats, something I am not having. I do have the skletical pain but I am wondering about my vit D levels as doc cut me back and it may have been too much. I have recently cut back again on my dairy wondering if this could be giving me issues. And I have to look at the possibility of more salicylate sensativity than I have been aware of, as something is getting to me. I do appreciate the replies! What I am reading leads me to beleive that my issues are not due to menopause but symptoms are mimicking something else.
  • 0
Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#10 Jestgar

 
Jestgar

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,755 posts
 

Posted 23 February 2012 - 05:27 AM

While looking up some info about milk for a friend, I discovered several articles about how cows are made pregnant pretty much immediately after giving birth, and are milked all through their pregnancies. The amount of estrogen in the milk is nearly at the same levels as the amount in the cows blood. I wouldn't be surprised if the estrogen in the milk is affecting your own hormones.
  • 0
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#11 Bubba's Mom

 
Bubba's Mom

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,457 posts
 

Posted 23 February 2012 - 07:56 AM

I've had a lot of those menopause symptoms for the past 3 years. My Celiac disease went un-Dxed because my Dr. wouldn't consider that I had anything BUT menopause. :o

I had a hysterectomy 22 years ago, at the age of 33. My ovaries were left intact though. Without menses I have no way of knowing what my hormones are doing. I was told that I should go through it earlier than others though, because of the surgery. I don't know if they can test hormones by blood test? It would be nice to know one way or the other?
  • 0

#12 cougie23

 
cougie23

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 238 posts
 

Posted 29 February 2012 - 09:26 AM

I've had a lot of those menopause symptoms for the past 3 years. My Celiac disease went un-Dxed because my Dr. wouldn't consider that I had anything BUT menopause. :o

I had a hysterectomy 22 years ago, at the age of 33. My ovaries were left intact though. Without menses I have no way of knowing what my hormones are doing. I was told that I should go through it earlier than others though, because of the surgery. I don't know if they can test hormones by blood test? It would be nice to know one way or the other?

I have no idea...but I'm thinking that if they can test hormones in your blood for pregnancy...they should be able to test your hormone level ...but I would find another Gyn Dr.(someone more familar with C.) :rolleyes: :D Good luck on that!(I'm not being sarcastic..I mean that sencirly!) :P
  • 0
Cougie23
Diagnosed 8/3/11
Celiacs/casein sensitive/lactose intolerent

Favorite quotes-
"I know you think you understand what you thought I said,
But I'm not sure you realize that what you heard is not what I meant!!!"-anonyamous

"you can lead a donkey to the river...but if you want him to drink...
you have to throw him in" -(21 yr.old son)

#13 cougie23

 
cougie23

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 238 posts
 

Posted 29 February 2012 - 09:33 AM

While looking up some info about milk for a friend, I discovered several articles about how cows are made pregnant pretty much immediately after giving birth, and are milked all through their pregnancies. The amount of estrogen in the milk is nearly at the same levels as the amount in the cows blood. I wouldn't be surprised if the estrogen in the milk is affecting your own hormones.

Good point...something I've never considered! Dairy gives me horrible hotflashes and migraines!(and throws off my period( I didn't have a period for 2 1/2 months before I was told I was casien/lactose intolerent).Not that I have any intention on going back...but it is good to know! I am perfictly happy with my Blue Diamond french vavilla Almond milk..Thankyou! LOL! But am thinking maybe my whole family should switch...Boys don't need THAT much estrogen....what could it be doing to THEY'RE HORMONES I wonder....(SHUDER)...!!!! :ph34r:
  • 0
Cougie23
Diagnosed 8/3/11
Celiacs/casein sensitive/lactose intolerent

Favorite quotes-
"I know you think you understand what you thought I said,
But I'm not sure you realize that what you heard is not what I meant!!!"-anonyamous

"you can lead a donkey to the river...but if you want him to drink...
you have to throw him in" -(21 yr.old son)

#14 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,370 posts
 

Posted 29 February 2012 - 09:52 AM

Yes, they can do a blood test to see at what point in the menopause process you are or at least roughly. And they can tell you when you are done with menopause by that. I know because they did the test on me early on in the menopause process. They said I was in the peri-menopause stage which is sort of pre or more accurately "on the cusp" of going fully into it. BTW, I too had a hysterectomy when I was 37 but kept my ovaries & I did go into menopause earlier than the average woman. That's the reason they gave me the blood test when I was complaining of night sweats --- my 1st sign of menopause. Furthermore, & this may be TMI but important none the less: The OB/GYN can tell by sight when they examine you. Let's put it this way ~~~ you are no longer pink & shiny but become grey & dry at the end of menopause ~~~ get the picture?Posted Image
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#15 Bubba's Mom

 
Bubba's Mom

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,457 posts
 

Posted 29 February 2012 - 10:09 AM

Yes, they can do a blood test to see at what point in the menopause process you are or at least roughly. And they can tell you when you are done with menopause by that. I know because they did the test on me early on in the menopause process. They said I was in the peri-menopause stage which is sort of pre or more accurately "on the cusp" of going fully into it. BTW, I too had a hysterectomy when I was 37 but kept my ovaries & I did go into menopause earlier than the average woman. That's the reason they gave me the blood test when I was complaining of night sweats --- my 1st sign of menopause. Furthermore, & this may be TMI but important none the less: The OB/GYN can tell by sight when they examine you. Let's put it this way ~~~ you are no longer pink & shiny but become grey & dry at the end of menopause ~~~ get the picture?Posted Image

Thanks for this info! I've just found a new PCP and will meet with her soon. I'd like to be tested so I know.
I used to get migraines when I had my period. I got them regularly every month until 2-3 years ago, so I'm assuming I've gone through memopause?
Err...I don't wanna know what color my lady parts are..if they're gonna be "grey and dry"? LOL :lol:

Cougie..you bring up a good point about how the hormones in milk would affect guys. My son likes to shop for shoes.. so, hmm... :rolleyes:
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: