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Hello all! I was diagnosed with Celiac and have started my new way of living. I am pretty much asymptomatic, and was diagnosed through biopsy because I went to have a colonoscopy and upper endoscopy due to severe anemia. I really believed that my anemia was due to heavy periods, but they wanted to rule out colon problems since my grandfather died from colon cancer. Thank goodness my GI doctor wanted to do the upper endoscopy also. He told me yesterday that he really was not expecting me to have Celiac, but that was indeed the case.
I am also planning on having my 11 year old tested as he has had digestive issues for the past few years, and I am wondering if this could be the answer to a lot of questions.
Anyway, I just wanted to introduce myself. I have already learned a lot by reading some posts, and can see that this is a very supportive community!
-Holly
8 replies to this topic
#2
mamaw
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Advanced Community Member
Posted 31 May 2012 - 12:22 PM
Hello & Welcome to Our group...
I can say without a single doubt this gluten free lifestyle change is way better than colon cancer...Glad you found the correct path to follow. Being gluten-free is not always easy or convienent but it is all worth the learning curve to be healthy. If you have questions please ask...
I can say without a single doubt this gluten free lifestyle change is way better than colon cancer...Glad you found the correct path to follow. Being gluten-free is not always easy or convienent but it is all worth the learning curve to be healthy. If you have questions please ask...
#3
squirmingitch
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Posted 31 May 2012 - 12:36 PM
Welcome Holly! There are great people on this board. Everyone is sooooo helpful. And BOY!, are you ever fortunate to have a doctor "in the know" or at least not obtuse to the fact that celiac disease exists. Get your son tested & don't let him go gluten free until all the testing is done with otherwise it will skew the test results.
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.
#4
pianoland
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Posted 01 June 2012 - 06:02 PM
You're so fortunate to have found out despite not having any symptoms. Although, I wouldn't be surprised if you start to see improvements in your health/energy in the next few months. I didn't realize how tired I was before I went gluten free.
I know it's overwhelming at first but it becomes second nature.
I know it's overwhelming at first but it becomes second nature.
Celebrating being gluten free since July 22, 2011.
#5
Raven815
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Posted 01 June 2012 - 06:54 PM
Welcome Holly,
I am also new here and I am so thankful I found this board. They are some of the most warm and caring people I have ever come across. I believe I have DH and I was so prepared when I went to an uneducated derm just from reading about it here. I thought I knew a lot about celiac (Mom has had it for about 30 years), but I now realize that I am just scratching the surface.
Laura
I am also new here and I am so thankful I found this board. They are some of the most warm and caring people I have ever come across. I believe I have DH and I was so prepared when I went to an uneducated derm just from reading about it here. I thought I knew a lot about celiac (Mom has had it for about 30 years), but I now realize that I am just scratching the surface.
Laura
#6
Mateto
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Posted 02 June 2012 - 05:31 AM
Hello! You'll learn a lot, even some things you didn't want to know....but then later on you realise how happy you are you've learnt it!
Gluten-free since St George's Day this year 
#7
GFinDC
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A little farting never hurt anybody... :-).
Posted 02 June 2012 - 05:45 AM
Welcome to the site Holly (MrsMuffin),
There are some other people on the forum who don't have symptoms also. Most likley your doctor found it before symptoms developed. But there is a chance you will notice things improving as you go that you didn't realize were symptoms also. It might be a good idea to write down what you eat each day and how you feel, including mood and energy. Celiac has around 300 symptoms and they are not all digestion centric.
Here's some light reading for starters. Feel free to ask questions too. We all learned from scratch also.
FAQ Celiac com
http://www.celiac.co...celiac-disease/
What's For Breakfast Today?
http://www.celiac.co...180#entry726053
What Did You Have For Lunch Today?
http://www.celiac.co...or-lunch-today/
What Are You Cooking Tonight?
http://www.celiac.co...ooking-tonight/
There are some other people on the forum who don't have symptoms also. Most likley your doctor found it before symptoms developed. But there is a chance you will notice things improving as you go that you didn't realize were symptoms also. It might be a good idea to write down what you eat each day and how you feel, including mood and energy. Celiac has around 300 symptoms and they are not all digestion centric.
Here's some light reading for starters. Feel free to ask questions too. We all learned from scratch also.
FAQ Celiac com
http://www.celiac.co...celiac-disease/
What's For Breakfast Today?
http://www.celiac.co...180#entry726053
What Did You Have For Lunch Today?
http://www.celiac.co...or-lunch-today/
What Are You Cooking Tonight?
http://www.celiac.co...ooking-tonight/
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
#8
IrishHeart
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Warrior Princess
Posted 02 June 2012 - 06:58 AM
Hello and welcome!
May I also point you to this thread--more "light reading for you"
(and so I do not bore everyone to death by writing it all it again )
Maybe something on here will help.
http://www.celiac.co...ewbie-info-101/
Best wishes to you!
IH
May I also point you to this thread--more "light reading for you"
(and so I do not bore everyone to death by writing it all it again )Maybe something on here will help.
http://www.celiac.co...ewbie-info-101/
Best wishes to you!
IH
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
"If you want to lift yourself up, lift up someone else" Booker T. Washington
“If idiots could fly, the sky would be like an airport.”― Laura Davenport
"Do or do not. There is no try. "- Yoda.
"LTES" Gem 2014
Misdiagnosed for 25+ years; Finally Diagnosed with Celiac 11/01/10. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
#9
mrsmuffin
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Posted 05 June 2012 - 06:35 AM
Thank you all for the warm welcome! I am so happy to get any information that I can. I know that I will see improvement in ways that I didn't even realized needed improvement!
I just heard back from my son's pediatrician this morning and he was indeed biopsied last year when he had an upper endoscopy. I am glad that he does not have Celiac at this time, but I was also looking forward to a possible explanation for the issues that he has had. We will keep goign on his current plan and I will have him tested again in a few years.
Thanks again for all of the support!
I just heard back from my son's pediatrician this morning and he was indeed biopsied last year when he had an upper endoscopy. I am glad that he does not have Celiac at this time, but I was also looking forward to a possible explanation for the issues that he has had. We will keep goign on his current plan and I will have him tested again in a few years.
Thanks again for all of the support!
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