Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Is The Severity Of Your Reaction To Gluten?
0

28 posts in this topic

Hello, I'm new to this site :)

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello, I'm new to this site :)

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

I am two months past eatting gluten. My reactions seem to be getting "more defined." When I was eating gluten I would just feel so tired all of the time. I couldn't tell I was reacting at all. However, about 4 days after going gluten free I started realizing my body's opionion of gluten. I react to gluten in the air or cross contamination. My first reactions were mostly dizziness and fatigue. Some reactions I experienced diarhea and nausea. Lately I have felt like glands are swelling in my neck, coughing, or horseness. I also notice swelling in my abdomen and legs, but I can never pin point when the contamination occured. Most of my symptoms are fleeting, I notice them and they are gone. They do seem to be getting more severe.

I hope you do not learn to cheat as your cousin does. Eat well and be careful. Your body will appreciate it! It is not much fun to disappoint your body. :angry:

I am glad you found out young and wish you the best.

Diana

0

Share this post


Link to post
Share on other sites

My niece is a diabetic coeliac: she cheats: she spends a lot of time in hospital.

My eldest is a symptomatic coeliac - reacts almost to a whiff of the stuff: her sister is an asymptomatic coeliac - no external reaction at all. As their gastroenterologist pointed out, looking at their biopsies, the external reaction [or lack thereof] is one thing: the most important thing is the internal damage - and that is the same for both, regardless of symptoms/no symptoms ..

0

Share this post


Link to post
Share on other sites

Welcome! I've been gluten free for almost a year. With cross contamination I get stomach gurgles and a lot of gas... it puts me in such extreme discomfort. My mom tries telling me it's normal to get gas and I'm like, 2-3 hours worth of constant burps and painful bloating? Eh not so normal.

A few times when I think I was legitimately glutened I got REALLY tired. I never take naps and if I do they're 20-30 mins. After gluten exposure I'm out for about 2.5 hours. Luckily I usually feel better when I wake up.

0

Share this post


Link to post
Share on other sites

Vomiting within three hours. Panicky and light headed.

richard

0

Share this post


Link to post
Share on other sites




I've been off gluten for four years now and my reaction to gluten now is the same as it was then. Mine is like a week long cycle that seems like forever to get through. My stomach hurts almost immediately after eating it and depending on how much I eat I might throw-up. Then my insides will proceed to hurt for about two to three days. Because of this stomach pain I have a very difficult time sleeping and I'm tired all the time no matter how much I sleep. I get cramps in my muscles and all of my limbs ache. I get rashes on my legs and sometimes my arms and I'm extremely moody and irritable to the point where I have to lock myself away just to get through my day without screaming at anyone.

My younger brother also has celiac and his reaction doesn't make him nearly as sick as I get. He cheats often to and isn't all that careful when it comes to cross contamination. But I don't care. I feel better when I am not sick with gluten. His insides rip themselves apart just like mine do, and I'm actually thankful I have a reaction because it makes it easier not to cheat. Maybe if he got as sick as I do he wouldn't cheat. But he's a grown man. He can do what he likes.

0

Share this post


Link to post
Share on other sites

I'll have been gluten free for a year in Septemeber. When I have gluten my reaction occurs within 10 minutes of eating the stuff and I'm in severe pain for at least 3 days. I'm crabby and irritable because of how uncomfortable I am. I wish I could just take a nap and escape the discomfort for a few hours but the pain is so intense that it makes it nearly impossible to fall asleep no matter how tired I am...

I only eat certified gluten free food that's made in a dedicated gluten-free facility so I have no idea how I am with cross contamination, but with every other aspect of ingesting gluten I am super sensitive. I am hoping that with time my reaction wont be so bad, but I have heard mixed experiences where the pain subsides for some or stays just the same for others......

0

Share this post


Link to post
Share on other sites

I'll have been gluten free for a year in Septemeber. When I have gluten my reaction occurs within 10 minutes of eating the stuff and I'm in severe pain for at least 3 days. I'm crabby and irritable because of how uncomfortable I am. I wish I could just take a nap and escape the discomfort for a few hours but the pain is so intense that it makes it nearly impossible to fall asleep no matter how tired I am...

I only eat certified gluten free food that's made in a dedicated gluten-free facility so I have no idea how I am with cross contamination, but with every other aspect of ingesting gluten I am super sensitive. I am hoping that with time my reaction wont be so bad, but I have heard mixed experiences where the pain subsides for some or stays just the same for others......

My symptoms increased in severity for 5 year until my boyfriend forced me into a gluten-free diet, which was the catalyst for my diagnosis. After only one day into a gluten free diet I had completely stopped vomiting, which was mind blowing. Now 2 years into being gluten free I rarely get "glutenized" but when I do the result is devastating. The last time I checked my reaction (a year ago) I ate half a frosted mini-wheat and within 9 mins I was down n out. First I start to get uncomfortable, my stomach becomes distended and I become unable to go to the bathroom. Its as if my entire digestive tract shuts down. I become very awkward about bending my abdomen or anyone coming into contact with it. Then vomiting which persists long after my stomach is empty. Accompanied by on and off again cramping and pain in my trunk region. After a night of drinking tainted margaritas in Hawaii last year I spent 8 hrs in the hotel shower vomiting, crying and passing out. I was sick for around 18 hrs and lost 2 days of vacation. I have not gotten sick from hidden gluten for 6 months!

0

Share this post


Link to post
Share on other sites

Hello, I'm new to this site :)

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

I'm 14 and have been gluten free since I was 22 months old. I have diarrhea and depending on the amount I eat pretty severe vomitting. And overall, I just feel terrible after eating it.

0

Share this post


Link to post
Share on other sites

Not diagnosed (yet, bloodwork tomorrow) but I know when I eat gluten filled foods I panic, lightheaded, light sensitivity, dizzy, upset stomach, then usually after all thats over I get gasious, stomach rumbling, the normal IBS symptoms.

0

Share this post


Link to post
Share on other sites

Not diagnosed (yet, bloodwork tomorrow) but I know when I eat gluten filled foods I panic, lightheaded, light sensitivity, dizzy, upset stomach, then usually after all thats over I get gasious, stomach rumbling, the normal IBS symptoms.

Good luck with the bloodwork!

0

Share this post


Link to post
Share on other sites

Good luck with the bloodwork!

Thanks a million man.

0

Share this post


Link to post
Share on other sites

Hi:) I'm new to this site as well as to being gluten intolerant. I am 18 years old (nearing 19 now) and had been complaining for many years about aches, an always upset stomach, and incredible headaches. We thought at first that I was lactose intolerant because I noticed my stomach beginning to hurt immediately after breakfast (I would eat cereal or grits almost every morning) and we thought the dairy was causing the problem. It was in fact my favorite cereal (Frosted MiniWheats). Now that I have been gluten free for around 4 months now, I have noticed that my symptoms are more severe when I do slip up. I become extremely dizzy and my head starts hurting almost immediately. Stomach issues usually take 2-3 days to get rid of. Does anyone know why my symptoms would be getting worse? Is it just because my body isn't used to the gluten anymore..?

0

Share this post


Link to post
Share on other sites

Eh. I'm sick for weeks and then I get sick a lot more often, I can't eat sugar, my digestive track is a mess, and I'm not better again for years. I've never actually eaten gluten afert i was diagnosed, but I know what it was like BEFORE was diagnosed.

B)

0

Share this post


Link to post
Share on other sites

Hi:) I'm new to this site as well as to being gluten intolerant. I am 18 years old (nearing 19 now) and had been complaining for many years about aches, an always upset stomach, and incredible headaches. We thought at first that I was lactose intolerant because I noticed my stomach beginning to hurt immediately after breakfast (I would eat cereal or grits almost every morning) and we thought the dairy was causing the problem. It was in fact my favorite cereal (Frosted MiniWheats). Now that I have been gluten free for around 4 months now, I have noticed that my symptoms are more severe when I do slip up. I become extremely dizzy and my head starts hurting almost immediately. Stomach issues usually take 2-3 days to get rid of. Does anyone know why my symptoms would be getting worse? Is it just because my body isn't used to the gluten anymore..?

Your immune system fights against gluten. When it has been gone from your diet, those little immune system "soldiers" get all rested. Then, when gluten enters your system those well rested "soldiers" can attack with full force. That's why your reactions are stronger now.

0

Share this post


Link to post
Share on other sites

When I get glutened, I typically don't notice anything for at least 5-6 hours, but then it hits. Hard. I get diarrhea, gas, constipation, I'm typically very tired, and achy. I get miserable enough that even though I'm not a diagnosed celiac, I never cheat intentionally. Yes, I occasionally get accidentally glutened, but when I do, I can tell. Yuck. <_<

0

Share this post


Link to post
Share on other sites

I can point to exactly four serious glutenings in my 10-year gluten-free journey. One was very early and I had no reaction. The next was a few years later and I just made it to the bathroom 4 hours after the offending food. Next was a few years ago and I spent several hours trying not to barf and spent the next day on the couch feeling weak and foggy. The last was just a few weeks ago when I ate a Rudi's hot dog bun that was not gluten-free (MY bad in not being more careful reading the bag!). About 2 hours after I ate it I spent the next 3 hours sitting on the john w/ a waste can in my hands as my digestive system completely purged itself from both ends. I've never been that sick!! Since then, I've "gone off" some foods and had to take it really easy for the next day or 2.

0

Share this post


Link to post
Share on other sites

Hi:) I'm new to this site as well as to being gluten intolerant. I am 18 years old (nearing 19 now) and had been complaining for many years about aches, an always upset stomach, and incredible headaches. We thought at first that I was lactose intolerant because I noticed my stomach beginning to hurt immediately after breakfast (I would eat cereal or grits almost every morning) and we thought the dairy was causing the problem. It was in fact my favorite cereal (Frosted MiniWheats). Now that I have been gluten free for around 4 months now, I have noticed that my symptoms are more severe when I do slip up. I become extremely dizzy and my head starts hurting almost immediately. Stomach issues usually take 2-3 days to get rid of. Does anyone know why my symptoms would be getting worse? Is it just because my body isn't used to the gluten anymore..?

This is a late response but in answer to your question, when you are exposed to something so long it can actually weaken your immune system by exhausting it essentially. Once the immune system has a chance to "relax" and build itself up again, it can attack with more force. This is why it may seem as though it is worse than it once was.

0

Share this post


Link to post
Share on other sites

i feel pretty sick and really tired im 16 by the way :)

0

Share this post


Link to post
Share on other sites

16 oh wait Im 17 now my stomach hurts for 5 days and I can't sleep well. I start having horrific arthritis symptoms and I get very tired. Oh and I bloat.

0

Share this post


Link to post
Share on other sites

Had my first obvious (accidental, of course) gluten-related reaction in my life this week. I was diagnosed as a silent celiac and had never felt ill (when I say ill I mean GI issues) until now. Wow - what a change! I began eating a pudding cup and 15 minutes later had an instant migraine, my sinuses became very plugged, I vomited and had D. I re-checked the dumb label and somehow had missed "wheat starch". No clue how I missed that but sadly I did. Symptoms lasted about 48 hours then I developed several canker sores on my lips. That too is unusual for me. Anitihistamines took care of that, thankfully. So, now I know I react badly to gluen after being gluten free for nearly two years. Interesting! In fact, as I mentioned on another thread, I am actually relieved I had a reaction so I know now that I do react so know what to look out for. It can be tough not knowing whether you have been glutened or not, even if you are as strict as you can be!

0

Share this post


Link to post
Share on other sites

Instantly ulcers appear in my mouth, bloating, diarrhea, vomiting, skin rash (sometimes fine rash, sometimes hives), irritability, anxious, brain fog.

0

Share this post


Link to post
Share on other sites

Hello, I'm new to this site smile.gif

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

Hi Kaitlyn!

I am 22 and have been eating gluten free since August of 2012. My reactions to gluten have gotten slightly more severe since I stopped eatting it. I have had severe cramping and other gastrointestional upsets from gluten my whole life (Though I didn't know what was causing it untill I was 21...). Now in addition to that my throat swells when I eat it :P The pain lasts an hour or so and I have to take an antihistamine for the throat swelling. I am sorry the reaction lasts so long for you! I know how bad that pain can be! :(

- Shayna

0

Share this post


Link to post
Share on other sites

i barely get anything from slight contamination, but if i accidently ingest a noticable amount. I get cankersores, then about 6-24 hrs later i might get some diarrhea, and ill be tired for a few days.

If you do ingest gluten i recommend taking some glutamine, i used it as a training supplement, but it turns out that it helps re-line your intestines and get everything going to the proper speed again.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,918
    • Total Posts
      919,628
  • Topics

  • Posts

    • Depression / anxiety issues
      Hi Chris, haven't had a chance to read the whole conversation but regarding dairy, if you are suspicious of something, drop it for some time and see. You are still healing so maybe dairy is bothering you now. Also look at the nightshades, corn, dairy, soy, and eggs. I had a horrible time last year. I had muscle twitches, brain fog, pain, was tired,etc. I searched online and decided to drop all of those things I mentioned above. I am not sure what bothered me since I dropped them all at once but i slowly began feeling better. Now, i reintroduced eggs again and sometimes have lactose free milk with my coffee. I recommend eating salmon, tuna, bone broth soups, using olive oil and coconut oil and not eating much or not at all processed food even if it is marked gluten free.
    • Weird things people have said
      I've had people say strange things about celiac to me lately... Like someone said, "Oh I'm just a mild celiac so I don't have to worry about cross-contamination." And then someone else said that they're celiac but things have calmed down now so they can have a bit of gluten here and there. And I told my doctor that back in 2014 I thought I had been gluten free but I actually wasn't because I had been repeatedly glutening myself with an old colander. And he just looked at me like I was insane, like a colander?? Sure... I'm not crazy, right? Even if you have no symptoms you have to avoid cross-contamination because you can be doing damage internally right? You can never have 'just a bit'. And a colander is a big source of cross-contamination right?? I know all this but why do these other people not? Why does my doctor not know? So confusing and spreading misinformation... And then they look at me like *I'M* crazy.
    • fructose malabsorption and gluten intolerant
      Look up FODMAPS.   That might clarify things for you.  There really are a lot of diet recommendations so make sure you bring a list of questions regarding foods to your doctor's  and dietician's appointments.  
    • Recovery?
      Thank you for sharing those web sites. I will look at them. We have been gluten free since December so it's been a while. Once, he had a gluten free beer, the kind that they take the gluten out, and his legs felt very heavy and had a more difficult time walking. I really don't want to experiment.  Although I am very careful about what we eat, I am concerned that some of our medication could contain gluten. Is there any easier way to tell if medication has gluten. I did find a website which listed drugs and known gluten but every drug was on it or was determined to be gluten free
    • fructose malabsorption and gluten intolerant
      I don't have celiac but doctors or amazed I don't so they told me to fallow the gluten-free diet like I have it... any way I was wondering if one can have corn, corn starch if they have fructose malabsorption. I am so confused on what I can and can't have.. i have an appt next week hopefully with a dietitian... also can you have sugar free stuff since it's not sugar.. I'm reading online and I'm getting a bunch of mixed info on both. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,963
    • Most Online
      1,763

    Newest Member
    Tams67
    Joined