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What Is The Severity Of Your Reaction To Gluten?
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Hello, I'm new to this site :)

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

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Hello, I'm new to this site :)

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

I am two months past eatting gluten. My reactions seem to be getting "more defined." When I was eating gluten I would just feel so tired all of the time. I couldn't tell I was reacting at all. However, about 4 days after going gluten free I started realizing my body's opionion of gluten. I react to gluten in the air or cross contamination. My first reactions were mostly dizziness and fatigue. Some reactions I experienced diarhea and nausea. Lately I have felt like glands are swelling in my neck, coughing, or horseness. I also notice swelling in my abdomen and legs, but I can never pin point when the contamination occured. Most of my symptoms are fleeting, I notice them and they are gone. They do seem to be getting more severe.

I hope you do not learn to cheat as your cousin does. Eat well and be careful. Your body will appreciate it! It is not much fun to disappoint your body. :angry:

I am glad you found out young and wish you the best.

Diana

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My niece is a diabetic coeliac: she cheats: she spends a lot of time in hospital.

My eldest is a symptomatic coeliac - reacts almost to a whiff of the stuff: her sister is an asymptomatic coeliac - no external reaction at all. As their gastroenterologist pointed out, looking at their biopsies, the external reaction [or lack thereof] is one thing: the most important thing is the internal damage - and that is the same for both, regardless of symptoms/no symptoms ..

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Welcome! I've been gluten free for almost a year. With cross contamination I get stomach gurgles and a lot of gas... it puts me in such extreme discomfort. My mom tries telling me it's normal to get gas and I'm like, 2-3 hours worth of constant burps and painful bloating? Eh not so normal.

A few times when I think I was legitimately glutened I got REALLY tired. I never take naps and if I do they're 20-30 mins. After gluten exposure I'm out for about 2.5 hours. Luckily I usually feel better when I wake up.

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Vomiting within three hours. Panicky and light headed.

richard

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I've been off gluten for four years now and my reaction to gluten now is the same as it was then. Mine is like a week long cycle that seems like forever to get through. My stomach hurts almost immediately after eating it and depending on how much I eat I might throw-up. Then my insides will proceed to hurt for about two to three days. Because of this stomach pain I have a very difficult time sleeping and I'm tired all the time no matter how much I sleep. I get cramps in my muscles and all of my limbs ache. I get rashes on my legs and sometimes my arms and I'm extremely moody and irritable to the point where I have to lock myself away just to get through my day without screaming at anyone.

My younger brother also has celiac and his reaction doesn't make him nearly as sick as I get. He cheats often to and isn't all that careful when it comes to cross contamination. But I don't care. I feel better when I am not sick with gluten. His insides rip themselves apart just like mine do, and I'm actually thankful I have a reaction because it makes it easier not to cheat. Maybe if he got as sick as I do he wouldn't cheat. But he's a grown man. He can do what he likes.

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I'll have been gluten free for a year in Septemeber. When I have gluten my reaction occurs within 10 minutes of eating the stuff and I'm in severe pain for at least 3 days. I'm crabby and irritable because of how uncomfortable I am. I wish I could just take a nap and escape the discomfort for a few hours but the pain is so intense that it makes it nearly impossible to fall asleep no matter how tired I am...

I only eat certified gluten free food that's made in a dedicated gluten-free facility so I have no idea how I am with cross contamination, but with every other aspect of ingesting gluten I am super sensitive. I am hoping that with time my reaction wont be so bad, but I have heard mixed experiences where the pain subsides for some or stays just the same for others......

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I'll have been gluten free for a year in Septemeber. When I have gluten my reaction occurs within 10 minutes of eating the stuff and I'm in severe pain for at least 3 days. I'm crabby and irritable because of how uncomfortable I am. I wish I could just take a nap and escape the discomfort for a few hours but the pain is so intense that it makes it nearly impossible to fall asleep no matter how tired I am...

I only eat certified gluten free food that's made in a dedicated gluten-free facility so I have no idea how I am with cross contamination, but with every other aspect of ingesting gluten I am super sensitive. I am hoping that with time my reaction wont be so bad, but I have heard mixed experiences where the pain subsides for some or stays just the same for others......

My symptoms increased in severity for 5 year until my boyfriend forced me into a gluten-free diet, which was the catalyst for my diagnosis. After only one day into a gluten free diet I had completely stopped vomiting, which was mind blowing. Now 2 years into being gluten free I rarely get "glutenized" but when I do the result is devastating. The last time I checked my reaction (a year ago) I ate half a frosted mini-wheat and within 9 mins I was down n out. First I start to get uncomfortable, my stomach becomes distended and I become unable to go to the bathroom. Its as if my entire digestive tract shuts down. I become very awkward about bending my abdomen or anyone coming into contact with it. Then vomiting which persists long after my stomach is empty. Accompanied by on and off again cramping and pain in my trunk region. After a night of drinking tainted margaritas in Hawaii last year I spent 8 hrs in the hotel shower vomiting, crying and passing out. I was sick for around 18 hrs and lost 2 days of vacation. I have not gotten sick from hidden gluten for 6 months!

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Hello, I'm new to this site :)

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

I'm 14 and have been gluten free since I was 22 months old. I have diarrhea and depending on the amount I eat pretty severe vomitting. And overall, I just feel terrible after eating it.

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Not diagnosed (yet, bloodwork tomorrow) but I know when I eat gluten filled foods I panic, lightheaded, light sensitivity, dizzy, upset stomach, then usually after all thats over I get gasious, stomach rumbling, the normal IBS symptoms.

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Not diagnosed (yet, bloodwork tomorrow) but I know when I eat gluten filled foods I panic, lightheaded, light sensitivity, dizzy, upset stomach, then usually after all thats over I get gasious, stomach rumbling, the normal IBS symptoms.

Good luck with the bloodwork!

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Good luck with the bloodwork!

Thanks a million man.

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Hi:) I'm new to this site as well as to being gluten intolerant. I am 18 years old (nearing 19 now) and had been complaining for many years about aches, an always upset stomach, and incredible headaches. We thought at first that I was lactose intolerant because I noticed my stomach beginning to hurt immediately after breakfast (I would eat cereal or grits almost every morning) and we thought the dairy was causing the problem. It was in fact my favorite cereal (Frosted MiniWheats). Now that I have been gluten free for around 4 months now, I have noticed that my symptoms are more severe when I do slip up. I become extremely dizzy and my head starts hurting almost immediately. Stomach issues usually take 2-3 days to get rid of. Does anyone know why my symptoms would be getting worse? Is it just because my body isn't used to the gluten anymore..?

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Eh. I'm sick for weeks and then I get sick a lot more often, I can't eat sugar, my digestive track is a mess, and I'm not better again for years. I've never actually eaten gluten afert i was diagnosed, but I know what it was like BEFORE was diagnosed.

B)

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Hi:) I'm new to this site as well as to being gluten intolerant. I am 18 years old (nearing 19 now) and had been complaining for many years about aches, an always upset stomach, and incredible headaches. We thought at first that I was lactose intolerant because I noticed my stomach beginning to hurt immediately after breakfast (I would eat cereal or grits almost every morning) and we thought the dairy was causing the problem. It was in fact my favorite cereal (Frosted MiniWheats). Now that I have been gluten free for around 4 months now, I have noticed that my symptoms are more severe when I do slip up. I become extremely dizzy and my head starts hurting almost immediately. Stomach issues usually take 2-3 days to get rid of. Does anyone know why my symptoms would be getting worse? Is it just because my body isn't used to the gluten anymore..?

Your immune system fights against gluten. When it has been gone from your diet, those little immune system "soldiers" get all rested. Then, when gluten enters your system those well rested "soldiers" can attack with full force. That's why your reactions are stronger now.

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When I get glutened, I typically don't notice anything for at least 5-6 hours, but then it hits. Hard. I get diarrhea, gas, constipation, I'm typically very tired, and achy. I get miserable enough that even though I'm not a diagnosed celiac, I never cheat intentionally. Yes, I occasionally get accidentally glutened, but when I do, I can tell. Yuck. <_<

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I can point to exactly four serious glutenings in my 10-year gluten-free journey. One was very early and I had no reaction. The next was a few years later and I just made it to the bathroom 4 hours after the offending food. Next was a few years ago and I spent several hours trying not to barf and spent the next day on the couch feeling weak and foggy. The last was just a few weeks ago when I ate a Rudi's hot dog bun that was not gluten-free (MY bad in not being more careful reading the bag!). About 2 hours after I ate it I spent the next 3 hours sitting on the john w/ a waste can in my hands as my digestive system completely purged itself from both ends. I've never been that sick!! Since then, I've "gone off" some foods and had to take it really easy for the next day or 2.

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Hi:) I'm new to this site as well as to being gluten intolerant. I am 18 years old (nearing 19 now) and had been complaining for many years about aches, an always upset stomach, and incredible headaches. We thought at first that I was lactose intolerant because I noticed my stomach beginning to hurt immediately after breakfast (I would eat cereal or grits almost every morning) and we thought the dairy was causing the problem. It was in fact my favorite cereal (Frosted MiniWheats). Now that I have been gluten free for around 4 months now, I have noticed that my symptoms are more severe when I do slip up. I become extremely dizzy and my head starts hurting almost immediately. Stomach issues usually take 2-3 days to get rid of. Does anyone know why my symptoms would be getting worse? Is it just because my body isn't used to the gluten anymore..?

This is a late response but in answer to your question, when you are exposed to something so long it can actually weaken your immune system by exhausting it essentially. Once the immune system has a chance to "relax" and build itself up again, it can attack with more force. This is why it may seem as though it is worse than it once was.

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i feel pretty sick and really tired im 16 by the way :)

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16 oh wait Im 17 now my stomach hurts for 5 days and I can't sleep well. I start having horrific arthritis symptoms and I get very tired. Oh and I bloat.

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Had my first obvious (accidental, of course) gluten-related reaction in my life this week. I was diagnosed as a silent celiac and had never felt ill (when I say ill I mean GI issues) until now. Wow - what a change! I began eating a pudding cup and 15 minutes later had an instant migraine, my sinuses became very plugged, I vomited and had D. I re-checked the dumb label and somehow had missed "wheat starch". No clue how I missed that but sadly I did. Symptoms lasted about 48 hours then I developed several canker sores on my lips. That too is unusual for me. Anitihistamines took care of that, thankfully. So, now I know I react badly to gluen after being gluten free for nearly two years. Interesting! In fact, as I mentioned on another thread, I am actually relieved I had a reaction so I know now that I do react so know what to look out for. It can be tough not knowing whether you have been glutened or not, even if you are as strict as you can be!

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Instantly ulcers appear in my mouth, bloating, diarrhea, vomiting, skin rash (sometimes fine rash, sometimes hives), irritability, anxious, brain fog.

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Hello, I'm new to this site smile.gif

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

Hi Kaitlyn!

I am 22 and have been eating gluten free since August of 2012. My reactions to gluten have gotten slightly more severe since I stopped eatting it. I have had severe cramping and other gastrointestional upsets from gluten my whole life (Though I didn't know what was causing it untill I was 21...). Now in addition to that my throat swells when I eat it :P The pain lasts an hour or so and I have to take an antihistamine for the throat swelling. I am sorry the reaction lasts so long for you! I know how bad that pain can be! :(

- Shayna

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i barely get anything from slight contamination, but if i accidently ingest a noticable amount. I get cankersores, then about 6-24 hrs later i might get some diarrhea, and ill be tired for a few days.

If you do ingest gluten i recommend taking some glutamine, i used it as a training supplement, but it turns out that it helps re-line your intestines and get everything going to the proper speed again.

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Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. 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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of grains, but I have reintroduced rice using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My Paleo+Fasano diet has been assessed by a registered dietician to include every nutrient and micronutrient that I need so I guess having a really good diet is helping too. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. A lot of the steps I have taken to avoid gluten would be seen by some as over the top but I can say that for me, when I introduced these steps, that's when I stopped getting reactions and it's all worth it. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • Hello all  I have been living gluten free now for 6 months, as directed by my family doctor after a 6 week elimination diet revealed that I may be celiac or gluten sensitive. I was tested by blood work,  which showed nothing, and am awaiting a specialist to get a biopsy done. I am no where close to getting into see her as it is cased as a non emergency. I have been constantly having bowel problems, rashes all over my body, low iron, weight fluctuations, no energy, depression  and anxiety now for 6 years. Have been a huge nuisance(imo) to my doctor requiring constant antibiotics for this,  creams for this "mystery rash" and either laxatives for constipation that would sometimes go on for over a week to diarrhea that would keep my home- no in between . It hasn't been easy, especially whenever doctors are so quick to blame all symptoms as mental illness. Even though I have continuously told them I feel my issues are something simple...  not a mental illness. Anyways long story short, after going gluten free I have had somewhat Nnormal bowel functions, less rashes around my stomach, been able to cut back drastically on my depression medications and anxiety meds, and energy has taken a huge improvement  which all is great! But .... I am constantly HUngry have gained 20 lbs and can no longer fit into most of my clothes. This is really bothering me because I am afraid I am approaching a weight problem.  At only 5'5" weighing 165lbs is large to begin with. Especially whenever I have two children and have only EVER weighed this much while being pregnant with them. I am 26 years old and just tired of not being myself. I am physically healthy and just would like my body to act it. Any help would be greatly appreciated, as I said I am only 6 months into my journey and have definitely re exposed myself to gluten (accidently) many times in between. Much love. 
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