so after having fat malabsorption come back positive, I was able to get fecal elastase testing done to test for exocrine pancreatic insufficiency. more on that in this thread: http://www.celiac.co...-and-questions/
I had another appointment yesterday, and anything below 100 indicates severe pancreatic insufficiency, and my LabCorp result was a 72. After I finish testing, I will begin taking the prescription based Creon enzymes.
Since I have Vitamin K deficiency, fat malabsorption and now confirmed pancreatic insufficiency, I asked the GI about cystic fibrosis testing since those are three symptoms. I don't believe I have it but said I would feel better if it could be ruled out since it can be diagnosed in adults. After he makes some calls to the insurance company to make sure I don't get a huge bill, I will most likely be gene tested.
I have a blood script to get tested for ANA, rheumatoid factor, IGG 4 to test for autoimmune pancreatitis and HGB A1C, which I know is a test related to diabetes I'm also getting an MRI of my abdomen this week, capsule endoscopy and possible small bowel follow through the following week.
I am thankful the GI is being thorough, and my hope is that during the capsule endoscopy, some villi damage is seen in my jejunum and this can all be called celiac related, I can start taking the Creon, and I can be finished with testing. I've been strictly gluten free for over a year, and I'm not sure if any damage will still be there, but since I'm still having malabsorption problems, I'm hoping it will be visible.
I'm one of those that if you look at me, I look perfectly fine and just slightly overweight. I'm pretty much always in a great mood now because my mental health has improved soooooo much. Thankfully my family has really come around, and my parents informed me the other week that they will slowly be getting rid of of gluten products and replacing them with gluten free. This was a HUGE turnaround for them because I've written in several other threads how my Dad commented, "Can't you eat a few breadcrumbs?" Now when I go to visit it won't be such a battle. I've held strong, which has not always been easy for me, but really helped me build my strength and confidence over this past year.
Even though my insides are still jumbled, with this mental clarity, bring on the testing and results, and I just have to keep remembering everything happens for a reason.