Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like Cheating


Jackiebear

Recommended Posts

Jackiebear Newbie

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Chances are you'll have a much stronger reaction after being off of it for a year. :( Then you'll be wondering why you just did that temporary sensation for a week of brain fog, nausea, heartburn, & extra bathroom trips.

Long term cheating means that you are at much higher risk of neurological and brain damage... imagine gluten antibodies running around in your brain, and the ensuing chaos.... guarantee you wouldn't want to spend years and years trying to recover slowly from that. :ph34r::(:wacko: Or, then there is the bone loss, and tendon inflammation and damage which messes up your joints, so you can spend decades doing physical therapy every day so you can pass for "normal" and walk without too much discomfort - if you always wear heavy, supportive footwear. High heels ? Fugggetaboutit - balance is permanently off. Don't forget a fresh breakout of acne can hit every time you eat gluten. Or that thyroid disease is always lurking, ready to make your metabolism so slow you are always gaining weight at the sight of a rice cracker.

Don't forget the return of kidney problems from the kidneys filtering extra calcium out of your blood. Stones- what fun! <_<

Really, why don't you just plan to eat something really, really high quality and good that is not gluten.

nvsmom Community Regular

After a year, it won't taste the same anyways. Soooo not worth it.

Think icecream or m&m's or caramel popcorn or nachos with salsa, cheese and guacamole. Who needs the wheat!!

Adalaide Mentor

My one year gluten-free anniversary also happens to coincide with my birthday. (Give or take 2 days.) For my birthday before going gluten-free I indulged in red velvet cake. For my birthday this year I found a gluten-free bakery and bought a half dozen red velvet cupcakes. In my defense, I let my husband have one. I have also taken up one of my favorite passions again, baking. I now have a stash of cookies in the freezer leftover from Christmas that I can indulge in any time, one at a time. These things keep me from cheating.

In the year since gluten-free I have not purposely eaten gluten a single time. I have accidentally. Over time my reaction has gone from bad, to worse, to life altering for weeks at time. It isn't the hours in the bathroom that bother me, or the day following that is filled with dread knowing what is coming. It is the following 3 or 4 days or week that I sleep it off for 16 or more hours a day. The weeks following of nearly unbearable all over pain, sometimes so bad I can't tolerate the touch to put lotion on after a shower or even the water from the shower. Stumbling around like a drunk for a month with ataxia. Covered in bruises all over my body, from fresh and purple/black to old and green, sometimes overlapping each other, from bumping into so many things. I stop talking in the middle of sentences because my fog and memory are so bad that I forget that I was having a conversation. This is at its absolute worst for 2-3 weeks, then slowly subsides and after about 6 or so weeks is gone enough that I can function more or less like a human being.

This isn't some sob story about how much life sucks if I get glutened. This is to point out that there is no food on earth, nothing, not even red velvet cake, not even my grammy's cookies, that is worth that. And I'm just talking the immediate effects. That is without the risk of AI diseases or the thought that one day years from now if I happen to get cancer would I look back on the day I willingly ate gluten and forever wonder if that was the straw that broke the camel's back? Was that the one too many? Was that the gluten that gave me a death sentence? I don't want to live with that. Do you?

IrishHeart Veteran

Nope. Not going to trot out my list of AI diseases or ramifications of gluten exposure or bring out the doom and gloom flow charts with graphs and such :D I'll save those for another time.

I am sure you know by now why cheating is not a good idea. I presume you are a grown-up and if so, this is totally your decision, hon.

Instead, I'll say this: I take every precaution to avoid CC because of what celiac did to me, so I find cheating to be just plain stupid.

There is nothing worth five or six bites of some delicious goodie I can recreate myself that is gluten free and safe--only to endure weeks of feeling like total sh*t and having burning pain in my joints, bones, muscles nerves, hair loss, insomnia, heart palps, migraines, brain fog and ataxia etc, not to mention the time spent in the loo.

Chances are, you'll feel like crap.

But, if you escape unscathed, promise me you will not brag about it or mistake it for a green light to do it again, okay?.

And I promise that if you feel like crap, just this one time I won't say "I told you so". Most members know how much I am (unapologetically) anti -cheating.

oh..... I am really curious.....what gluteny food is so tempting that it is calling you to the dark side? :ph34r:

Opa3 Apprentice

Don't do it. I did in 2007, and ended up with IBS/GERD. Wheat is not worth anything.

Make progress, be well and STAY well. :)

gancan Apprentice

Stay strong and celebrate your year anniversary with a big pile of gluten free nachoes!! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

For me, I never get far enough to even worry about serious complications because the immediate effects are enough to keep me from ever cheating. I never even have any desire to cheat...not on the radar. But, then again, being up all night, hurling until I think my stomach will come up, does the trick for me! :o

Think of what you are craving and find it's gluten-free counterpart and indulge yourself. :)

tarnalberry Community Regular

I don't get it.

We don't think that an alcoholic celebrating a year sober is ok to go out and drink. We don't think a serious diabetic is ok to go out and eat sugar their whole birthday long. We don't think it's ok for someone allergic to peanuts to go eat a peanut butter cookie on their birthday because it's their favorite.

I mean "Yay! I want to celebrate doing a super great job by totally screwing it up! Yay!" ???? It doesn't make any sense to me.

Oh, I get the the desire to stop watching every little ingredient. The desire to go back to old comfort foods you once knew and loved. The desire to be "normal" compared to your gluten-eating peers.

But you can't go back in time.

Pegleg84 Collaborator

The best way to celebrate would be to indulge in some really good gluten-free goodies. Bake yourself a cake, make something wonderfully delicious that you wouldn't usually have, or find a good bakery that will do it for you, but keep the gluten out of it. You don't need a hangover for a week.

(Now I have the urge to bake chocolate cake... great...)

Congrats on making it through a year!

GFinDC Veteran

How bad is cheating?

twe0708 Community Regular

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

I can't believe it's an option for you. I had one small bite of what was supposed to be flour less fudge and I was sick in an hour. I can't imagine what would have happened if I ate a regular piece. I remember when I was first diagnosed my doctor telling me I could cheat for special occasions. NOT an option. If you decide to do it, I wouldn't do it on your special night because it may just ruin it. Good luck!

Order the flourless cake at P.F. Chang's with raspberry sauce and strawberries if you are looking for a special dessert to celebrate your special occasion. It is so goo you can't tell is gluten-free.

bartfull Rising Star

If I were diagnosed with a fatal disease and told I had a week to live, I would fly to New Orleans and pig out on anything I wanted. But until that happens, I will stay home and pig out on as many gluten-free options as I can find and enjoy every bite.

JNBunnie1 Community Regular

Did that work? Want more horror stories? We got plenty!

Jackiebear Newbie

I did decide not to cheat. Its not a certain food i want, its just all the constant checking. It really gets old. The holidays were really hard, but i got through them. I have never purposely cheated and i don't think i will anytime soon. I have been doing so much better and i would like to keep getting healthier.

IrishHeart Veteran

big-party-smiley-emoticon.gif

Good for you!! You put your health first. We're so proud of you!

Hon, I think we all get the "sometimes it gets old" part. We really do.

Personally, I hate the lack of spontaneity of just dining out wherever/whenever I want to, especially

because we like to travel.

But there is nothing like feeling good and not being desperately ill 24/7 for years..

Keep up the good work. And congratulations on your first "rebirth-day"!!

hugs, IH

Celiac Mindwarp Community Regular

Good choice :)

I don't like the thinking and. checking part of either. I have been eating wholefoods the last 3 weeks, and that has cut down the checking a lot. Our spontaneity is a bit different, and we are masters of the picnic now, even in winter, we just have to be creative about venues. We also entertain at our home more, which we enjoy especially

Keep it up :)

Adalaide Mentor

Woohoo! Best decision. It does get old. I had a pity party early in the winter. I whined about everything to my husband, about none of this is fair, about how stupid it is that I can't even eat a freakin mint because it could have who knows what in it. I just want to be able to wake up one day, say hey lets do this, leave the house and go. But no, I have to plan everything or starve to death while I'm gone. <_<

You're right, it is so stupid and unfair! It is okay every once in a while to stamp your food like a petulant toddler and say so too. Then I always go indulge in a cupcake to get over it and I forget what my problem was. :lol: And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

IrishHeart Veteran

And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

IrishHeart Veteran

Jackie bear, make this flourless chocolate cake and celebrate YOU!! :D

Open Original Shared Link

Adalaide Mentor

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

psh, it was a joke. :P Let the Jackiebear have the happy birthday. If it turns out as an excuse to have 2 a year, that much better!

GFinDC Veteran

Great decision! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,367
    • Most Online (within 30 mins)
      7,748

    Pauline14
    Newest Member
    Pauline14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.