Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like Cheating


Jackiebear

Recommended Posts

Jackiebear Newbie

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Chances are you'll have a much stronger reaction after being off of it for a year. :( Then you'll be wondering why you just did that temporary sensation for a week of brain fog, nausea, heartburn, & extra bathroom trips.

Long term cheating means that you are at much higher risk of neurological and brain damage... imagine gluten antibodies running around in your brain, and the ensuing chaos.... guarantee you wouldn't want to spend years and years trying to recover slowly from that. :ph34r::(:wacko: Or, then there is the bone loss, and tendon inflammation and damage which messes up your joints, so you can spend decades doing physical therapy every day so you can pass for "normal" and walk without too much discomfort - if you always wear heavy, supportive footwear. High heels ? Fugggetaboutit - balance is permanently off. Don't forget a fresh breakout of acne can hit every time you eat gluten. Or that thyroid disease is always lurking, ready to make your metabolism so slow you are always gaining weight at the sight of a rice cracker.

Don't forget the return of kidney problems from the kidneys filtering extra calcium out of your blood. Stones- what fun! <_<

Really, why don't you just plan to eat something really, really high quality and good that is not gluten.

nvsmom Community Regular

After a year, it won't taste the same anyways. Soooo not worth it.

Think icecream or m&m's or caramel popcorn or nachos with salsa, cheese and guacamole. Who needs the wheat!!

Adalaide Mentor

My one year gluten-free anniversary also happens to coincide with my birthday. (Give or take 2 days.) For my birthday before going gluten-free I indulged in red velvet cake. For my birthday this year I found a gluten-free bakery and bought a half dozen red velvet cupcakes. In my defense, I let my husband have one. I have also taken up one of my favorite passions again, baking. I now have a stash of cookies in the freezer leftover from Christmas that I can indulge in any time, one at a time. These things keep me from cheating.

In the year since gluten-free I have not purposely eaten gluten a single time. I have accidentally. Over time my reaction has gone from bad, to worse, to life altering for weeks at time. It isn't the hours in the bathroom that bother me, or the day following that is filled with dread knowing what is coming. It is the following 3 or 4 days or week that I sleep it off for 16 or more hours a day. The weeks following of nearly unbearable all over pain, sometimes so bad I can't tolerate the touch to put lotion on after a shower or even the water from the shower. Stumbling around like a drunk for a month with ataxia. Covered in bruises all over my body, from fresh and purple/black to old and green, sometimes overlapping each other, from bumping into so many things. I stop talking in the middle of sentences because my fog and memory are so bad that I forget that I was having a conversation. This is at its absolute worst for 2-3 weeks, then slowly subsides and after about 6 or so weeks is gone enough that I can function more or less like a human being.

This isn't some sob story about how much life sucks if I get glutened. This is to point out that there is no food on earth, nothing, not even red velvet cake, not even my grammy's cookies, that is worth that. And I'm just talking the immediate effects. That is without the risk of AI diseases or the thought that one day years from now if I happen to get cancer would I look back on the day I willingly ate gluten and forever wonder if that was the straw that broke the camel's back? Was that the one too many? Was that the gluten that gave me a death sentence? I don't want to live with that. Do you?

IrishHeart Veteran

Nope. Not going to trot out my list of AI diseases or ramifications of gluten exposure or bring out the doom and gloom flow charts with graphs and such :D I'll save those for another time.

I am sure you know by now why cheating is not a good idea. I presume you are a grown-up and if so, this is totally your decision, hon.

Instead, I'll say this: I take every precaution to avoid CC because of what celiac did to me, so I find cheating to be just plain stupid.

There is nothing worth five or six bites of some delicious goodie I can recreate myself that is gluten free and safe--only to endure weeks of feeling like total sh*t and having burning pain in my joints, bones, muscles nerves, hair loss, insomnia, heart palps, migraines, brain fog and ataxia etc, not to mention the time spent in the loo.

Chances are, you'll feel like crap.

But, if you escape unscathed, promise me you will not brag about it or mistake it for a green light to do it again, okay?.

And I promise that if you feel like crap, just this one time I won't say "I told you so". Most members know how much I am (unapologetically) anti -cheating.

oh..... I am really curious.....what gluteny food is so tempting that it is calling you to the dark side? :ph34r:

Opa3 Apprentice

Don't do it. I did in 2007, and ended up with IBS/GERD. Wheat is not worth anything.

Make progress, be well and STAY well. :)

gancan Apprentice

Stay strong and celebrate your year anniversary with a big pile of gluten free nachoes!! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

For me, I never get far enough to even worry about serious complications because the immediate effects are enough to keep me from ever cheating. I never even have any desire to cheat...not on the radar. But, then again, being up all night, hurling until I think my stomach will come up, does the trick for me! :o

Think of what you are craving and find it's gluten-free counterpart and indulge yourself. :)

tarnalberry Community Regular

I don't get it.

We don't think that an alcoholic celebrating a year sober is ok to go out and drink. We don't think a serious diabetic is ok to go out and eat sugar their whole birthday long. We don't think it's ok for someone allergic to peanuts to go eat a peanut butter cookie on their birthday because it's their favorite.

I mean "Yay! I want to celebrate doing a super great job by totally screwing it up! Yay!" ???? It doesn't make any sense to me.

Oh, I get the the desire to stop watching every little ingredient. The desire to go back to old comfort foods you once knew and loved. The desire to be "normal" compared to your gluten-eating peers.

But you can't go back in time.

Pegleg84 Collaborator

The best way to celebrate would be to indulge in some really good gluten-free goodies. Bake yourself a cake, make something wonderfully delicious that you wouldn't usually have, or find a good bakery that will do it for you, but keep the gluten out of it. You don't need a hangover for a week.

(Now I have the urge to bake chocolate cake... great...)

Congrats on making it through a year!

GFinDC Veteran

How bad is cheating?

twe0708 Community Regular

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

I can't believe it's an option for you. I had one small bite of what was supposed to be flour less fudge and I was sick in an hour. I can't imagine what would have happened if I ate a regular piece. I remember when I was first diagnosed my doctor telling me I could cheat for special occasions. NOT an option. If you decide to do it, I wouldn't do it on your special night because it may just ruin it. Good luck!

Order the flourless cake at P.F. Chang's with raspberry sauce and strawberries if you are looking for a special dessert to celebrate your special occasion. It is so goo you can't tell is gluten-free.

bartfull Rising Star

If I were diagnosed with a fatal disease and told I had a week to live, I would fly to New Orleans and pig out on anything I wanted. But until that happens, I will stay home and pig out on as many gluten-free options as I can find and enjoy every bite.

JNBunnie1 Community Regular

Did that work? Want more horror stories? We got plenty!

Jackiebear Newbie

I did decide not to cheat. Its not a certain food i want, its just all the constant checking. It really gets old. The holidays were really hard, but i got through them. I have never purposely cheated and i don't think i will anytime soon. I have been doing so much better and i would like to keep getting healthier.

IrishHeart Veteran

big-party-smiley-emoticon.gif

Good for you!! You put your health first. We're so proud of you!

Hon, I think we all get the "sometimes it gets old" part. We really do.

Personally, I hate the lack of spontaneity of just dining out wherever/whenever I want to, especially

because we like to travel.

But there is nothing like feeling good and not being desperately ill 24/7 for years..

Keep up the good work. And congratulations on your first "rebirth-day"!!

hugs, IH

Celiac Mindwarp Community Regular

Good choice :)

I don't like the thinking and. checking part of either. I have been eating wholefoods the last 3 weeks, and that has cut down the checking a lot. Our spontaneity is a bit different, and we are masters of the picnic now, even in winter, we just have to be creative about venues. We also entertain at our home more, which we enjoy especially

Keep it up :)

Adalaide Mentor

Woohoo! Best decision. It does get old. I had a pity party early in the winter. I whined about everything to my husband, about none of this is fair, about how stupid it is that I can't even eat a freakin mint because it could have who knows what in it. I just want to be able to wake up one day, say hey lets do this, leave the house and go. But no, I have to plan everything or starve to death while I'm gone. <_<

You're right, it is so stupid and unfair! It is okay every once in a while to stamp your food like a petulant toddler and say so too. Then I always go indulge in a cupcake to get over it and I forget what my problem was. :lol: And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

IrishHeart Veteran

And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

IrishHeart Veteran

Jackie bear, make this flourless chocolate cake and celebrate YOU!! :D

Open Original Shared Link

Adalaide Mentor

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

psh, it was a joke. :P Let the Jackiebear have the happy birthday. If it turns out as an excuse to have 2 a year, that much better!

GFinDC Veteran

Great decision! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.