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Let's Be Trendy!


smpalesh

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smpalesh Explorer

This is going to be a rant so sorry in advance if I offend anyone.

I am tired of gluten free being talked about as if it is just a choice. So many tv shows, talk shows, books, diet plans, etc all talk about avoiding gluten as a choice for weight loss or just to treat some bazillion symptoms you may be suffering from. Yes, it has led to more products being available which is great but it really causes negative repercussions for someone like me who actually HAS to avoid even the smallest crumb of gluten and will get seriously ill if I don't. Because when I say I have to eat gluten free I inevitably always get someone saying, "Oh yeah I (or my husband, my friend, my dog) have to eat gluten free but sometimes I just have a regular pizza because the gluten free one tastes bad." Or if I go to a restaurant and spend 10 minutes ordering my meal to make sure they understand exactly how careful they need to be when preparing my food they look at me as if I am overreacting and that I'm just one of those "trendy" dieters. I understand people can do whatever they want and go gluten-free and maybe it helps their health and that's great but when the idea is out there that you can just take a day off or just eat some gluten once in awhile it is seriously dangerous to those of us who have celiac and who react to microscopic amounts of gluten. People just aren't going to take us as seriously, or take as much care in preparing our food as they should, when they know multiple people that say they are also gluten-free but they ate a piece of birthday cake at a party and they were totally fine.

Okay rant over.


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shadowicewolf Proficient

In this case, its just better to let it in one ear and out the other. People who say things like this are not informed on how damaging gluten is those with an issue with it.

Lisa Mentor

Ya know...I'm not a trend. Nor do I expect a restaurant to cater to me, but so glad when they do, or can or informed! I am responsible for my life and what I put into my mouth....trend or not.

When I eat at a restaurant, it's my choice. I don't put the weight of my health on the server, kitchen or management. They don't know the level of my awareness, nor would I expect them to be. If I get ill, I accept the responsibility.

Eight years ago, when I began my gluten free journey...there was a vast nothingness of gluten free product, or awareness. To say "we've come a long way baby" is an understatement!!!!!

I'm rather pleased. ;)

GFinDC Veteran

A lot of people are trying the gluten-free diet these days. They don't all have celiac and they don't all understand it the way celiacs do or have the same medical reactions and concerns celiacs do. Maybe they have diabetes or maybe they have Crohn's disease and think it will help them. Maybe they have NCGI. Maybe they don't know why they are feeling bad but just want to try something to hopefully feel better. They have every right to try and feel better. If the gluten-free diet is what they choose to try and improve their health that's great. If they don't understand it the way celiacs do that is not surprising to me. If we can help them I think that's what we should do. They are like a bunch of lost puppies in a gluten filled landmine world. And they think eating cookies and pizza is ok! Such silly-heads! :blink::wacko::o:(:ph34r:

Em314 Explorer

I generally think food trends/fad diets are ridiculous and kind of irritating, but I'll admit, with this, I'm kind of glad that going gluten-free is "trendy" now... it means there's more products out there that I can eat!

nvsmom Community Regular

Yah, I'm glad I was diagnosed when gluten-free and low carbs is the trendy way to eat. I can't imagnie trying to eat gluten-free during the 80's and 90's when high carb, whole grains and low fat was the way to go... At least now I can find alternative flours or the occassional premade treat.

The trendiness will fade in a few years but hopefully the awareness and new products will stict around. :D

GwenO Apprentice

I went gluten free in support of my daughter, who was diagnosed with celiac disease last summer. I tested negative, however, I feel a lot better - it's changed my life. I, of course, do understand the implications of ingesting small amounts of gluten for some people. I'm grateful for the trendiness, feeding an almost twelve year old is much easier because of it.


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JAS2 Rookie

I went gluten free about 3 and a half weeks ago. I did it because I have not felt well for a very long time and have undergone almost every test there is, but no findings. I did not do the test, because I did not know you could not do it after going gluten free. I may get brave one day and start eating gluten again to have the test done. I am however thinking about converting my entire family to an either gluten light or gluten free diet as after reading the book "Wheat Belly" I have learned a lot about the dangers of wheat in particular and what it can do to those who do not have celiac. Not trying to be trendy, just trying to be healthy. I am so sorry that you have to deal with all the of hassles and hope that as time goes on and awareness spreads, things may get easier.

mushroom Proficient

I went gluten free about 3 and a half weeks ago. I did it because I have not felt well for a very long time and have undergone almost every test there is, but no findings. I did not do the test, because I did not know you could not do it after going gluten free. I may get brave one day and start eating gluten again to have the test done. I am however thinking about converting my entire family to an either gluten light or gluten free diet as after reading the book "Wheat Belly" I have learned a lot about the dangers of wheat in particular and what it can do to those who do not have celiac. Not trying to be trendy, just trying to be healthy. I am so sorry that you have to deal with all the of hassles and hope that as time goes on and awareness spreads, things may get easier.

You can still do the test, and there is even a chance of it still being positive; there is just less of a chance of it being accurate than there would be if you were still eating gluten.

islandmomma Newbie

You can still do the test, and there is even a chance of it still being positive; there is just less of a chance of it being accurate than there would be if you were still eating gluten.

You know, I am finally regretting that I gave up tv altogether nearly two years ago and avoided talk shows for many years before. Perhaps if I had watched I would have become better informed about this issue... Who knew I could still become part of a 'trend'? LOL

cap6 Enthusiast

When I order out I always say that I am celiac, that gluten free is not a fad for me and that I will get sick if I eat any gluten. Said with a smile and a few questions on how they deal with cross contamination and there usually isn't a problem. The fad is good and bad for us celiacs......

Pegleg84 Collaborator

It's definitely a double-sided issue. I also have problems with those who eat gluten free, but don't take it seriously. If they are doing it to help their health, then it should be all or nothing.

At the same time, the level of awareness is so much better than it was even couple years ago. I can usually say "gluten-free" and they have some idea what I'm talking about, though even then at restaurants I have to be very diligent to make sure they follow through with requests (I said no bread, not bread on the side, or stuck in my curry, thank you. And no, couscous is NOT gluten-free...)

However, Wheat Belly's popularity might be getting out of control. As much as not eating wheat or gluten might help all kinds of non-celiacs, throwing yourself into a limited diet, or changing so much without a good reason can also be dangerous. Your gut might go, hey, that bread was treating me just fine. What are you doing throwing all this new stuff at me all of a sudden.

Trying out the gluten-free diet is always worth a shot, but if people don't feel any difference in a couple weeks, then likely the best thing is to just keep eating healthy, whole foods and grains.

For us, this is not a fad. It's a life-long prescription.

Em314 Explorer

Trying out the gluten-free diet is always worth a shot, but if people don't feel any difference in a couple weeks, then likely the best thing is to just keep eating healthy, whole foods and grains.

Erhm... kind of a short timeframe, no?

The ideal thing is for them to communicate with their doctors... if they have health insurance, access to doctors, and can afford to do so. if not... I do agree the fad diet aspect is obnoxious, but it's hard to blame people for wanting to feel better.

~**caselynn**~ Enthusiast

Ya know...I'm not a trend. Nor do I expect a restaurant to cater to me, but so glad when they do, or can or informed! I am responsible for my life and what I put into my mouth....trend or not.

When I eat at a restaurant, it's my choice. I don't put the weight of my health on the server, kitchen or management. They don't know the level of my awareness, nor would I expect them to be. If I get ill, I accept the responsibility.

Eight years ago, when I began my gluten free journey...there was a vast nothingness of gluten free product, or awareness. To say "we've come a long way baby" is an understatement!!!!!

I'm rather pleased. ;)

Agreed! I always speak up to the server and make sure we're on the same page but in the end it's on me. I made the conscious decision to eat out, so I live and learn. I have a favorite, dependable spot in my hometown, the chef is a friend and he knows his stuff! I wish everyone had a favorite like that, and although its trendy, more and more gluten-free spots are coming out! That is great for us! (Please do your homework before eating just anywhere )

The trend issue is a double edge sword to me, it's annoying but it has opened more resources for us Celiacs!! And that makes me wicked happy! We have come a long way!

killernj13 Enthusiast

Yes, we can enjoy it being trendy but trends end. Our dietary restrictions do not.

I stopped watching The Today Show when they fired Ann Curry and replaced her with Savannah Guthrie. During a story on the gluten free trend she called celiac disease a trendy disease and roll her eyes. I've tweeted her for to make a public apology and wrote a complaint to NBC at the time of the interview.

Pegleg84 Collaborator

There is no such thing as a "trendy" disease. I know some people who are trying out the gluten-free diet to see if it makes a difference in their health, but they usually drop it after a few weeks if nothing significant happens. But if you're going to do the gluten-free diet, you'd better go all the way. I was sitting in a coffee shop one day and a girl ordered a latte with almond milk, got a gluten-free muffin, and I thought, oh, she's just like me... until she also took a sample of a gluteny treat out on the counter (which either means a cheater, someone doing it "cause it's healthy", or maybe cause that gluten-free muffin looked really good...). I was this close to ragging her out...

yeah, a few weeks is a short time frame for recovery from Celiac/Gluten Intolerance, but I was thinking more of people who do it just to see if it makes a difference for other things.

If someone suspects they could have Celiac, they should get tested. Really, anyone with a family history should be screened.

I think we need to educate restarants. chefs, servers, etc on what Celiac and gluten-free really means, how to accomodate it, and that it's a serious illness, not a personal preference.

JNBunnie1 Community Regular

I totally understand the frustration that comes from dealing with the 'fad diet' attitude, both

from those who are participating in it as a fad diet, and the effect it has on those who serve

in restaurants and the like. I have lost count of the people who've said something along the

lines of 'Well, so-and-so doesn't have to be that careful.'

I have definitely gone into a number of places and been told that while a food that's advertised

as gluten free has 'no gluten ingredients', they have done nothing further to ensure it's safety.

For example, a bakery that uses gluten free recipes, but uses the same mixers, bakes in the

same room as gluten, and so on. I think of those as the 'Dominos' places. While it is my job to

make sure I stay safe, it's still frustrating to be met with this attitude so frequently. I religiously

patronize those places that do get it, and I tell them why, and I bring friends, and I leave as

many positive reviews as possible wherever possible.

If anything, as frustrating as being dismissed as having a 'trendy disease' is, it is nice that

there are so many products on the market now, so I just try to be thankful for that.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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