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Celiac Disease & Gluten-Free Diet Blogs
Getting hookwormed - Step by Step
So you've made the decision to try Helminthic Therapy. What do you do now? 1) First you join the Facebook Helminthic Therapy Group @ https://www.facebook.com/groups/htsupport and make an introductory post. Tell the members about what you hope to achieve and a bit about your medical history. The regulars there are veterans at HT, use helminths (usually hookworms) themselves, and can answer any questions you might have. John Scott is the leader of the group and has been a hookworm host for yeStonewall Kitchen Issues Allergy Alert on Undeclared Soy, Wheat, and Peanuts in Peanut Butter Maltballs (6oz.)
Celiac.com 08/16/2023 - Stonewall Kitchen of York, Maine is recalling a limited amount of their Peanut Butter Maltballs (6oz.) because the product contains undeclared allergens: Soy, Wheat, Peanuts. People who have an allergy or severe sensitivity to peanuts, wheat, and/or soy run the risk of serious or life-threatening allergic reaction if they consume these products. This product was distributed through Stonewall Kitchen Company retail stores located in Maine, New Hampshire, MassachusettsWithdrawal
How bad can gluten withdrawal get? My head hurts so bad and I'm so dizzy I can't stand up. Coming up on 2 weeks gluten free. I'm getting worriedShould celiacs try hookworms?
I believe the answer to that question is an unequivocal yes. Celiac disease is a debilitating condition that uncontrolled exacts a huge toll on people impacting both their health and their quality of life. Controlled, by which I mean sufferers make serious effort to avoid gluten, celiac disease still lurks in the background waiting to act on diet missteps and likely contributes to the development of a variety of other health conditions. Hookworms help with the primary expressionFrito-Lay Issues Allergy Alert on Undeclared Soy and Wheat in Doritos Nacho Cheese Flavored Tortilla Chips Distributed in Pennsylvania
Frito-Lay has issued a voluntary recall of a limited number – less than 7,000 bags – of 14.5 oz and 1 oz Doritos Nacho Cheese Flavored Tortilla Chips that may contain undeclared soy and wheat ingredients from spicy sweet chili tortilla chips. Those with an allergy or severe sensitivity to soy or wheat run the risk of illness should they consume these products. The products covered by this recall were distributed at retail stores only in Pennsylvania and other outlets, such as foodservice loSide effects of Helminthic Therapy
I suppose it's to be expected that a treatment that has the goal of manipulating the immune system could have side effects, and for some people that appears to be true. Back when I started in 2018 with Helminthic Therapy (HT) I simply asked for 25 larvae from my provider because, well, the price was the same whether I ordered one or 25, so I tried to maximize my bang for my buck. I'm on the large side so I probably contributed to me not having problems with this strategy. Outside of the iniRichin Trading Inc. Issues Allergy Alert on Undeclared Soy and Wheat in Black Melon Seed
Richin Trading Inc. of Alhambra, CA is recalling its 6 ounce and 12 ounce packages of Tim Heung Yuen brand black melon seed because they may contain undeclared soy and wheat. People who have allergies to soy and wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled products were distributed nationwide in retail stores. The recalled products were packed in plastic bags and can be identified by UPC 715685190013 and UPC 715685190020.What is it like to be on hookworms?
I have several feelings on the matter. First and foremost I feel gratitude. Beginning in my early 40s I was very sick. Because of my out of control immune system I was in great pain and suffered tremendous disability, social isolation, deprivation and vulnerability. With hookworms on board, all that is gone. Sure, with the best knowledge of exactly what foods were making me sick I could have become 80-90% better, but I was still damaged and always a crumb away from being devastatingly ill. WithOther Helminthic Therapy blogs
Hookworms and the three other helminths are used for a variety of immune conditions, not just celiac disease. John Scott just pointed me towards a collection of blogs like mine where people discuss their experiences at length like I do: https://helminthictherapywiki.org/wiki/Helminthic_therapy_blogs?fbclid=IwAR0U6tvguzLaQ0Tl-0gwC-zMPkJrMKIn2tZk018iHiDGuN8L0so01_lbcXA#Blogs Which begs the question, what is the future for this blog? What I've done so far is talk about my past, how I gotHelminthic Therapy videos
The Helminthic Therapy Support Group on Facebook maintains a repository of all its gained knowledge in the form of the freely available Helminthic Therapy Wiki (Google it). In it there's a listing of videos that the group has found most useful: https://helminthictherapywiki.org/wiki/Helminthic_therapy_in_the_media#Featured_videos I did a YouTube search for Helminthic Therapy and found a bunch more, many of them from people from the general public who did their own research. I noted factualStill a happy gluten camper
In case there was any doubt I'm pleased to report everything is fine. I've resumed a gluten containing diet and haven't experienced any issues. I mentioned my success to the people over at the Facebook Helminthic Therapy Support Group and they were all happy for me. One person said in the five years she's been hosting hookworms she's never considered consuming gluten. She's derived other benefits (remission from colitis) but she never took the step of trying gluten. Makes me think I'm braver thaFood Recall of Van’s Gluten Free Original Waffles Due to Potential Presence of Undeclared Wheat Allergen
Van’s International Foods (“Van’s”) is voluntarily recalling certain packages of Van’s Gluten Free Original Waffles, because they may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The affected products are labeled with Lot Code #UW40193L and have an expiration date of 1/19/2024 with UPC 0 89947 30206 4. To identify the Lot Code, expiration date, and UPC, pleaseI'm back in remission
I've had plenty of gluten goodness sitting in my freezer for a month now and the siren call from them was too much for me to bear. A donut and a Crustini sacrificed themselves for science last night. Aside from a little gas I've had no reaction - just feeling fine. So that it's it, 30 days and I'm back in remission. I apologize for the dramatics but as all celiacs know, risking a gluten exposure is not for the faint of heart. Back in the day I've had some hella violent reactions where I becSo far so good
The oatmeal yesterday didn't cause any reaction whatsoever. I decided to take the plunge this morning and ate a whole Wheat Thins cracker. If anything would unambiguously cause a reaction that much gluten would. In the past pre-hookworms an exposure 1/10th that much would have had me sitting on the toilet for a couple of hours. If I don't react by the end of today I'm going to assume I'm good to go. That would imply that for me the ramp up to a non-celiac state after inoculation with the laRe-thinking my reintroduction to gluten
As I've written about before, the last time I ran out of hookworms (or perhaps effective hookworms) was with my first cycle spanning early August 2018 to the first week of March 2019. That end point was when I had to go back on a gluten-free diet. Putting those dates together that's 5 months for 2018 and 2 months of 2019. I was slow in testing gluten that time (because celiac!) but it's reasonable to think I could have gone on a regular diet after 40 days post inoculation. That would have mDay 27 post inoculation
Being sick was a one-day thing. I did buy a gluten-free version of Quaker Oats oatmeal. I'll give it a go today and see if I do better. Celiacs can react to oats, so it's possible that was the source. For the record while fully hookwormed I've eaten hundreds of bowls of regular oatmeal without consequence. The clock is ticking, I hope, until my celiac days are over. From now on I'll aim for a 5-month cycle between inoculations.Blast from the past
Yesterday I got sick. Twice. Just like I remember being sick in my celiac pre-hookworm days when I was still eating gluten. A colonoscopy cleanse level sick. I had been eating gluten-free this month letting my critters grow and mature into their adult forms so I wasn't sure what happened. Then I remembered I had eaten a new oatmeal. I didn't say gluten-free on the front but I figured a little gluten probably wouldn't phase me. Well I figured wrong. I checked the ingredients list and yep, inSnaktastic Gluten-Free Sea Salt Lentil Bites misdeclared as gluten free
The below batch of Snaktastic gluten-free sea salt lentil bites has been misdeclared as gluten free. This product is labelled as gluten-free but contains gluten, this may make the batches unsafe for consumers who are allergic to or intolerant of cereals containing gluten. Allergen(s): Cereals containing gluten Product Identification: Snaktastic Lentil Bites – Sea Salt; Pack Size 113g Batch Code3139; best before date 13/02/2024 Country Of Origin: United KingdomDay 10 post inoculation
Not much to report. My GI issues have all cleared up, but that's probably because I've gone gluten-free for the month of June. My entry wound has almost entirely healed. Aside from a touch of redness it should be 100% in a couple of days. That steroid cream made a huge difference, not in pain or discomfort really but certainly in aesthetics. Previously the entry wound was ugly enough to scare children. The way the life cycle of the hookworms works after about a week the larvae drill throughThe results 3 days later - warning, graphic pic
This time around I've been using a steroid cream to keep down the inflammation. The results still aren't pretty but I don't have the ugly blisters I usually get. Definitely worth using. The cream I used was a topical corticosteroid called Taro-Mometasone, aka Mometasone Furoate USP 0.1%, applied every 6–8 hours. After a week the mark should be almost gone. After multiple inoculations I've never been left with a scar. It has never hurt, just tingled initially and itched some later. NothA new batch
A couple of weeks ago or so I started noticing GI issues. Occasional bouts of loose stool, stirrings of colitis, incontinence - all completely at odds with my usual experience. It had been more than 6 months since my last hookworm inoculation so I knew it was time to re-up. Things have changed since I started with Helminthic Therapy. I got hooked up with the Helminthic Therapy Support Group on Facebook and a contact there suggested I try another provider, one that used courier tracking andSorry for the delay in writing
So I ordered my first hookworms around July 7th, 2018. The sales and transport of hookworm operates in somewhat of a gray area. Authorities recognize that seriously ill people are trying helminths like hookworms tin order to get better, but the laws in all jurisdictions haven't caught up with what some people see as a medical necessity. Accordingly, providers of hookworm larvae prefer to operate on the down low. Restricting communication by email and payment by Bitcoin work towards that en-
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Blog Comments
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1 hour ago, Scott Adams said:FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.
This one page has all the information your friend needs.
https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)
And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
https://www.instagram.com/p/DEdMswtzMNo/- Scott Adams and dixonpete
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FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.
- John Scott and dixonpete
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