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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- chrish42 commented on Scott Adams's article in Summer 2025 Issue3To Kiss or Not to Kiss: The Truth About Gluten Transfer Through a Smooch (+Video)
I have wondered if different people have different reactions to different gluten exposures even if they have been diagnosed with Celiac. In other words....the body's reaction to gluten. From what I've read even a crumb of wheat can cause a big reaction and I wondered if that is always the case in everyone? I avoid gluten as much as possible and less or...- celiac disease
- cross-contamination
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- chrish42 commented on Scott Adams's article in Latest Research1
Breakthrough in Wheat Science: Reducing Celiac Disease Triggers While Improving Gluten Quality
This research and development sounds promising but I'm 77 and didn't even know I had a problem until the age of 75. I have done the best I can to avoid gluten for the past two years. Testing previously showed Celiac disease. I seemed to surmise that if the testing is accurate I can say I had minimal symptoms and other that possible malabsorption and weight...- alpha-gliadin
- crispr
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- Elizabeth Lund commented on Scott Adams's article in Latest Research1How Food Impacts the Lives of People with Celiac Disease: A Summary of New Research on Food-Related Quality of Life
There should be much more awareness and provision in cafes/ restaurants. The reason there isn't is because if offered, the food is inedible. Therefore Coeliacs don't bother going and the restaurants end up binning it! It is socially isolating and depressing. I feel so sorry for younger people trying to maintain a social life. I dread being asked out to eat...- celiac disease
- dietary
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- slkrav posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Glutened from hair conditioner- check your body products and makeup !
I was feeling really sick last week, for several days I kept thinking I was getting cross contamination. Typical symptoms like not sleeping well at night and waking up with widespread inflammation in all of my joints, foggy head and of course bowel issues. I had read the article recently that was talking about body products. I was starting to get depressed...
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I was feeling really sick last week, for several days I kept thinking I was getting cross contamination. Typical symptoms like not sleeping well at night and waking up with widespread inflammation in all of my joints, foggy head and of course bowel issues. I had read the article recently that was talking about body products. I was starting to get depressed. I was showering and decided to read the ingredients in the products I've been using. It turns out that two of the ingredients in my conditioning hair mask contain GLUTEN. I felt really stupid for not checking before and I threw that away and also checked the ingredients of everything else I've been using. I've heard of skin issues from gluten containing body products, but this opens up a whole new way if being proactive.
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By xxnonamexx · Posted
I haven't taken blood test for deficiencies yet since self diagnosed but I started a Multi vitamin from reading consumerlabs Nature Made Multivitamin For Her 50+ with No Iron, Womens Multivitamin for Daily Nutritional Support, Multivitamin is actually good for men compared to the mens version since im 47 I figured this should be ok. I also just started taking Kirkland Signature Super B-Complex with Electrolytes which consumerlabs which is an independent lab that tests what is actually in it states this is a good balanced B complex vitamin where its not too much of any vitamin for you to take. I was thinking of taking the Gluten test after the summer ut I think if I reintroduce gluten for this test I will be so sick and make things worse. I heard there is a blood test coming in a year that they add gluten to the blood to test which would be nice but prob in a year or 2. -
By xxnonamexx · Posted
I have been on this gluten-free journey a few months now and I work in a deli so I'm around gluten all day. I noticed sometimes once a day my eyes tear as if I am peeling onions. I think it is an allergy to gluten. Anything to take for this issue? I heard it might be low vitamin so I started to take a multi vitamin that I found from consumerlabs and started a vitamin B complex for energy issue. As I continue my journey 2x this month I have been careful with gluten and ate out 2x that wee gluten friendly and had no issues so now I feel better when I go out the few places I can eat gluten-free and not get sick. However I have been trying to track what triggered me the 2x this month where one time I introduced a gluten-free pretzel PB filled and no other ingredient in it bothered me. The other time I think it might have been due to high fiber intake due to introducing mission gluten-free tortilla wraps. Next week I will be on vacation to LBI and I already scoped out 2 places gluten-free so I am hoping I have a good time with the family. In August we plan on going to Aruba and I found a few gluten-free places as well but I am nervous for any cross contamination especially during flights to and from which makes me nervous. ANy help suggestions. Thanks -
By Scott Adams · Posted
The pharmaceutical industry (including BIG PHARMA! 😉) is very good about cleaning procedures before different drugs might be made using the same machinery. I don't believe cross contamination would be something to worry about, otherwise people with serious allergies, for example to antibiotics, would have serious issues with prescriptions drugs. -
Thanks for sharing that site! Do you know if that site has any information about manufacturing/possible cross contact on it? I can't find it. When I have called manufacturers, most of them say they can't guarantee no cross contact in manufacturing (except Lannett, Mylan and possible Amneal, which aren't available near me).
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