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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discuss recovery after a celiac disease diagnosis, including healing, follow-up testing, ongoing symptoms, nutritional deficiencies, treatment concerns, and adjusting to a strict gluten-free diet.


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    • BelleDeJour
      I hope you all had a nice weekend. Cloudy here in Hampshire. Just a little update that might help someone else one day. Over the weekend, I realised that the brand of almond milk I had been buying contains added iodine. So, I visited the supermarket and chose a different brand (Plenish) that does not contain added iodine and have been drinking that since Saturday. No itching at all yesterday! Another breakthrough (thank you @knitty kitty). I think the added iodine milk may have been what was causing that last 10% itch.  I also met a friend for coffee in town yesterday. The cafe only had soya milk (which I have not been sure I am OK with) but I had 2 delicious latte's made with soya milk. I also had a gluten-free millionaire's shortbread. I am beginning to enjoy the taste of almond and soya milk a lot more than cows milk now.  I seem to be fine with a little sprinkle of cheddar cheese on my jacket potato. I bake them in my air fryer and have them with a big mixed salad and baked beans. I also made a gluten-free tuna pasta bake on Saturday; it's my son's favourite dish. I was  fine with that, too but have noticed that a whole can of tuna sets me off itching.  It is a learning curve. My dermatology appointment is tomorow and I will come back to update. Have a good week everyone. 
    • Aretaeus Cappadocia
      Thanks for posting this. I hadn't come across the Alchemist before. Great site!
    • transplantwest
      Psyllium can't sit for more than a minute in the water or it is like drinking sludge. Swallowed fairly soon means it's more like an flavorless undermixed protein smoothie. Chlorophyll ( or two tbsp) really helps the taste, makes it minty. Taking Psyllium and Chlorophyll separately rather than together at first helps determine if there's intolerance to either. Also starting the Psyllium in small doses, starting with 1/2 to 1 teaspoon to tolerate the fiber change. 
    • DanMc
      BuddhaBar, I came across this thread while searching online for celiac insomnia (having also scared myself stupid by finding out about fatal insomnia) and it did bring me some piece of mind as it so closely matches my own experience. I know this thread is old now, I hope you're doing well, and thanks for posting your experience.
    • cristiana
      That's great news, @HelloFlowersGoodbyeFlour.  And you might find that if you do have asthma, keeping your reflux under control may help, if my experience is anything to go by.  
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