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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discuss recovery after a celiac disease diagnosis, including healing, follow-up testing, ongoing symptoms, nutritional deficiencies, treatment concerns, and adjusting to a strict gluten-free diet.
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Recent Activity
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- RachelSurrey posted a topic in Coping with Celiac Disease0Research Opportunity for Parents of Children with Coeliac Disease
Are you a parent of a 7–11 year old with coeliac disease? Researchers at the University of Surrey in the UK are testing a self-help psychological intervention designed to help parents support their child’s wellbeing alongside gluten-free management. The intervention includes: A practical booklet & home worksheets An online peer sup...- 1
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- AnnetteD commented on Scott Adams's article in Summer 2026 Issue13Court Ruling Raises Big Questions About "Gluten-Free" Food Safety in Retirement Communities (+Video)
This does need to be done. But one unfortunate backlash that I am seeing, more and more restaurants are not saying anything is gluten free, they are now saying “gluten sensitive “ and it comes with disclaimer - may be cross-contaminated in kitchen with other gluten containing foods. With that disclaimer they now seem less concerned, less careful and give les...- celiac disease
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- BelleDeJour replied to BelleDeJour's topic in Dermatitis Herpetiformis21Dermatitis Herpetiformis - follow up dermatology appointment coming up
I hope you all had a nice weekend. Cloudy here in Hampshire. Just a little update that might help someone else one day. Over the weekend, I realised that the brand of almond milk I had been buying contains added iodine. So, I visited the supermarket and chose a different brand (Plenish) that does not contain added iodine and have been drinking that... -
- Aretaeus Cappadocia replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6New diagnosis
Thanks for posting this. I hadn't come across the Alchemist before. Great site!- 1
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By RachelSurrey · Posted
Are you a parent of a 7–11 year old with coeliac disease? Researchers at the University of Surrey in the UK are testing a self-help psychological intervention designed to help parents support their child’s wellbeing alongside gluten-free management. The intervention includes: A practical booklet & home worksheets An online peer support and information workshop Your involvement could help shape future psychological support for families. Find out more here (Parents of Children with Coeliac Disease) or email coeliackids@gmail.com -
By BelleDeJour · Posted
I hope you all had a nice weekend. Cloudy here in Hampshire. Just a little update that might help someone else one day. Over the weekend, I realised that the brand of almond milk I had been buying contains added iodine. So, I visited the supermarket and chose a different brand (Plenish) that does not contain added iodine and have been drinking that since Saturday. No itching at all yesterday! Another breakthrough (thank you @knitty kitty). I think the added iodine milk may have been what was causing that last 10% itch. I also met a friend for coffee in town yesterday. The cafe only had soya milk (which I have not been sure I am OK with) but I had 2 delicious latte's made with soya milk. I also had a gluten-free millionaire's shortbread. I am beginning to enjoy the taste of almond and soya milk a lot more than cows milk now. I seem to be fine with a little sprinkle of cheddar cheese on my jacket potato. I bake them in my air fryer and have them with a big mixed salad and baked beans. I also made a gluten-free tuna pasta bake on Saturday; it's my son's favourite dish. I was fine with that, too but have noticed that a whole can of tuna sets me off itching. It is a learning curve. My dermatology appointment is tomorow and I will come back to update. Have a good week everyone. -
By Aretaeus Cappadocia · Posted
Thanks for posting this. I hadn't come across the Alchemist before. Great site! -
By transplantwest · Posted
Psyllium can't sit for more than a minute in the water or it is like drinking sludge. Swallowed fairly soon means it's more like an flavorless undermixed protein smoothie. Chlorophyll ( or two tbsp) really helps the taste, makes it minty. Taking Psyllium and Chlorophyll separately rather than together at first helps determine if there's intolerance to either. Also starting the Psyllium in small doses, starting with 1/2 to 1 teaspoon to tolerate the fiber change. -
BuddhaBar, I came across this thread while searching online for celiac insomnia (having also scared myself stupid by finding out about fatal insomnia) and it did bring me some piece of mind as it so closely matches my own experience. I know this thread is old now, I hope you're doing well, and thanks for posting your experience.
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