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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.

8,818 topics in this forum

  1. connole1056
    celiac3270

    Too Good To Be True? 1 2

    By connole1056, Last action:
    • 27 replies
    • 6.1k views
    • celiac3270
    • celiac3270
  2. rhondaslusher1
    Carriefaith

    Scope Test

    By rhondaslusher1, Last action:
    • 2 replies
    • 3k views
    • Carriefaith
    • Carriefaith
  3. Eliza13
    tarnalberry

    Spinning In Too Much Information

    By Eliza13, Last action:
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    • 1.7k views
    • tarnalberry
    • tarnalberry
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  4. Eliza13
    ianm

    Thirsty After Going Gluten Free

    By Eliza13, Last action:
    • 6 replies
    • 10k views
    • ianm
    • ianm
  5. jenuk
    frenchiemama

    Cd And Mirena Coil

    By jenuk, Last action:
    • 1 reply
    • 7k views
    • frenchiemama
    • frenchiemama
  6. skbird
    jenvan

    What Are Your Corn Intolerant Symptoms?

    By skbird, Last action:
    • 5 replies
    • 2.2k views
    • jenvan
    • jenvan
  7. Eliza13
    mytummyhurts

    Poop

    By Eliza13, Last action:
    • 15 replies
    • 6.4k views
    • mytummyhurts
    • mytummyhurts
  8. lotusgem
    celiac3270

    Emergency Room

    By lotusgem, Last action:
    • 15 replies
    • 20k views
    • celiac3270
    • celiac3270
  9. jams
    pmrowley

    Cd For Life?

    By jams, Last action:
    • 4 replies
    • 1.9k views
    • pmrowley
    • pmrowley
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  11. Emme999
    Sheely

    Newly Diagnosed Stress 1 2 3

    By Emme999, Last action:
    • 68 replies
    • 9.5k views
    • Sheely
    • Sheely
  12. jenvan

    Brainstorm My Pain-please !

    By jenvan, Last action:
    • 10 replies
    • 2.4k views
    • jenvan
    • jenvan
  13. Eliza13
    Carriefaith

    Which Is Starchier?

    By Eliza13, Last action:
    • 8 replies
    • 4.4k views
    • Carriefaith
    • Carriefaith
  14. Guest Sibewill

    Did Allergy Test Gluten Me?

    By Guest Sibewill, Last action:
    • 0 replies
    • 1.3k views
    • Guest
    • Guest
  15. Bette
    KaitiUSA

    Increased Symptoms After Gf Diet

    By Bette, Last action:
    • 12 replies
    • 4.4k views
    • KaitiUSA
    • KaitiUSA
  16. Wandering Hermit
    cdford

    Calcium

    By Wandering Hermit, Last action:
    • 3 replies
    • 2.4k views
    • cdford
    • cdford
  17. Eliza13
    Ally2005

    Malabsorption And Excessive Bowel Movements

    By Eliza13, Last action:
    • 12 replies
    • 30.1k views
    • Ally2005
    • Ally2005
  18. Lesliean
    Guest

    Symptoms That Go Away 1 2

    By Lesliean, Last action:
    • 40 replies
    • 7.9k views
    • Guest
    • Guest
  19. cdford
    celiac3270

    Congratulations To Me!

    By cdford, Last action:
    • 19 replies
    • 4.5k views
    • celiac3270
    • celiac3270
  20. jenvan

    Great Plains Labs

    By jenvan, Last action:
    • 2 replies
    • 2k views
    • jenvan
    • jenvan
  21. GFManiac
    granny

    Mucous - When Does It End?

    By GFManiac, Last action:
    • 6 replies
    • 6.3k views
    • granny
    • granny
  22. Emme999
    judy05

    Food Allergies Impeding Intestinal Healing?

    By Emme999, Last action:
    • 11 replies
    • 3.2k views
    • judy05
    • judy05
  23. kaylee
    Eliza13

    "no Symptoms" And Gf Diet

    By kaylee, Last action:
    • 4 replies
    • 2.9k views
    • Eliza13
    • Eliza13
  24. lyoung2

    I'm So Frustrated, Please Help Me Out!

    By lyoung2, Last action:
    • 12 replies
    • 2.6k views
    • lyoung2
    • lyoung2
  25. Bonnie
    KaitiUSA

    Help In South Africa

    By Bonnie, Last action:
    • 1 reply
    • 2.1k views
    • KaitiUSA
    • KaitiUSA
  26. marycubs

    Is A Nutritionist Needed ?

    By marycubs, Last action:
    • 2 replies
    • 1.5k views
    • marycubs
    • marycubs

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  • Recent Activity

    1. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease: fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches n...
    2. knitty kitty
      0

      Gastrointestinal Beriberi

    3. knitty kitty
      - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized...
    4. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
    5. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

      Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this.
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  • Posts

    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      Basic metabolic panel results - more flags

      By knitty kitty · Posted

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this. 
    • xxnonamexx
      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      By xxnonamexx · Posted

      I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet.
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