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Recent Activity
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- HelenH posted a topic in Coping with Celiac Disease0Malt vinegar
Having avoided gluten well for many years I think I may have had a salad with Malt Vinegar and it was one of the worst 'attacks' I have experienced. I just want to know if anyone else has been so badly affected by malt vinegar. -
- xxnonamexx replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease54Supplements for those Diagnosed with Celiac Disease
Hi Florence- This forum has been a wealth of knowledge on supplements. I am always weary of brand names as well. What I found through Consumerlabs which independently tests for metals, digestive breakdown of supplements and if what the packages states is indeed what is in the product I have found the number one for super B complex is Kirkland and for multivitamin... -
- Florence Lillian posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Gluten-Mimicking Proteins that can affect some Celiac individuals.
Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition. Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting... -
- Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease54Supplements for those Diagnosed with Celiac Disease
@Margaret Wheatley Thank you and welcome to the forum. -
- Margaret Wheatley replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease54Supplements for those Diagnosed with Celiac Disease
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the...
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Having avoided gluten well for many years I think I may have had a salad with Malt Vinegar and it was one of the worst 'attacks' I have experienced. I just want to know if anyone else has been so badly affected by malt vinegar.
-
By xxnonamexx · Posted
Hi Florence- This forum has been a wealth of knowledge on supplements. I am always weary of brand names as well. What I found through Consumerlabs which independently tests for metals, digestive breakdown of supplements and if what the packages states is indeed what is in the product I have found the number one for super B complex is Kirkland and for multivitamin for Men and woman 50+ Natures made multivitamin for her as it gives the right amount needed for both men and women as the mens has too much. For Probiotics ALign came out on top the 5x and the one for bloating. Knitty Kitty provided me good supplement brands as well. -
By Florence Lillian · Posted
Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition. Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting, and inflammation causing a feeling of being very warm to hot. The following are considered Gluten-Mimicking Proteins: Corn (Zein protein) (this causes inflammation with me). Millet Panicin protein) Sorghum (Kafirin protein). Potato (Patatin protein, is NOT considered a Gluten-Mimic, nor is Oats (Avenin) but they do cause reactions in some Celiac people... I eat potato and I vomit, and get diarrhea. gluten-free Oats causes me to have Nausea, and Corn causes me Inflammation. I hope this helps someone. Wishing the very best to all. Florence. -
By Wheatwacked · Posted
@Margaret Wheatley Thank you and welcome to the forum. -
By Margaret Wheatley · Posted
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful. Regards Margaret.
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