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Related Issues & Disorders

Discussions concerning the various associated health problems, including but not limited to pregnancy, sleep & weight issues.


7,414 topics in this forum

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  • Recent Activity

    1. - trents replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Pretty desperate for some guidance

    2. - Pua replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Pretty desperate for some guidance

    3. - trents replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Does 101gl mean. I have celiac desease

    4. - Wheatwacked replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Pretty desperate for some guidance

    5. - Wheatwacked replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Does 101gl mean. I have celiac desease


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  • Posts

    • trents
      Pua, do you understand that genetic testing cannot be used as proof of having celiac disease as it only establishes the potential to develop active celiac disease? About 40% of the population has the genetic potential to develop active celiac disease but only about 1% actually develop it. However, it can be used as a rule out measure.
    • Pua
      Mahalo for all of the answers this has been super helpful. He is doing so much better on a gluten free diet. I may consider genetic testing as I never thought of that as an option and I definitely don’t want to go the usual route and have to give him gluten again for the test. It’s nice to have an “official diagnosis” but as long as he’s healthy I don’t care.  mahalo again!
    • trents
      Welcome to the forum, @Marilyn1941! As Wheatwacked explained, we need more information. There are a number of blood antibody tests that can be run to detect celiac disease. Some are more meaningful than others in the sense of positive results being due to celiac disease or possibly due to something else. So, knowing exactly what test the score you gave is referring to would be helpful. In addition, the ranges and units of measure used by different labs differs from one lab to another. There is no industry standard for these. So, we would need to know the reference ranges for negative vs. positive for that test used by the lab who did the analysis. And was there only that one test ordered by the physician? 
    • Wheatwacked
      When my son was weaned in 1976 he was diagnosed with Celiac Disease.  My mom said at the time. "you got what you gave." His doctor insisted on Nutramigen as the only hyperallergenic baby formula with full nutrition.  After 6 months he was weaned to gluten free diet.  It seems it still has that status. He has grown strong and well.
    • Wheatwacked
      Hi @Marilyn1941, Welcome to the forum. There is not enough info to go on.  What test name? What are the results and the laboratory's normal range they used?  Why were you tested? What kind of symptoms?  Age, sex and country would be helpful but not necessary. 
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