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Recent Activity
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- VioletM replied to VioletM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Neurologist says deficiencies are caused by some malabsorption
Hi Cristiana He says he was tested when he was very young and was negative, but I heard that celiac can just "activate" at any age, is that true? He is consuming gluten, thanks for telling me that. Violet -
- cristiana replied to VioletM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Neurologist says deficiencies are caused by some malabsorption
Hello Violet The fact that you are posting from Italy is good - we coeliacs on this forum hear a lot of good stories about Italy being ahead of the game, testing all children at 6 years of age, I seem to recall? Also, Italian doctors should be aware of the work of Dr Alessio Fasano, and his work on gluten and coeliac disease, including neurological... -
- VioletM replied to VioletM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Neurologist says deficiencies are caused by some malabsorption
Hi @plumbago All of the symptoms existed before valproate prescription. He also checked blood values and valrpoate is in sub-therapeutic range, for which the psychiatrist is considering an higher dose. Thank you for your reply, Violet -
- VioletM replied to VioletM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Neurologist says deficiencies are caused by some malabsorption
Hi Cristiana, thank you for your reply. I'm posting from Italy. He has spoken about this tests to his neurologist who said that there's some malabsorbtion. Now he is speaking about this with a new psychiatrist who is considering a higher does of valproate. Before doing that he is seeing his endocrinologist in a few days. Violet -
- plumbago replied to VioletM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Neurologist says deficiencies are caused by some malabsorption
Hello @VioletM Has your boyfriend circled back to his doctor to work with him or her on managing the levels of valproic acid / Depakote (as we call it in the US)? This is a medication that has hand tremor as a side effect, in addition to other effects, including neurological, and it requires regular blood level monitoring to make sure he is in the therapeutic...
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Hi Cristiana He says he was tested when he was very young and was negative, but I heard that celiac can just "activate" at any age, is that true? He is consuming gluten, thanks for telling me that. Violet
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Hello Violet The fact that you are posting from Italy is good - we coeliacs on this forum hear a lot of good stories about Italy being ahead of the game, testing all children at 6 years of age, I seem to recall? Also, Italian doctors should be aware of the work of Dr Alessio Fasano, and his work on gluten and coeliac disease, including neurological issues. Is your boyfriend actually consuming gluten? He will need to be if he is to be tested. Cristiana
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Hi @plumbago All of the symptoms existed before valproate prescription. He also checked blood values and valrpoate is in sub-therapeutic range, for which the psychiatrist is considering an higher dose. Thank you for your reply, Violet
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Hi Cristiana, thank you for your reply. I'm posting from Italy. He has spoken about this tests to his neurologist who said that there's some malabsorbtion. Now he is speaking about this with a new psychiatrist who is considering a higher does of valproate. Before doing that he is seeing his endocrinologist in a few days. Violet
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Hello @VioletM Has your boyfriend circled back to his doctor to work with him or her on managing the levels of valproic acid / Depakote (as we call it in the US)? This is a medication that has hand tremor as a side effect, in addition to other effects, including neurological, and it requires regular blood level monitoring to make sure he is in the therapeutic range. Otherwise, if you are looking to test for celiac, there are numerous resources on this site regarding which tests to have ordered. It may be worth it to look into this. Please stay in touch. Plumbago
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