Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Have Another Autoimmune Disorder...

jenvan

By jenvan
in Related Issues & Disorders

Recommended Posts

jenvan Collaborator
jenvan
Posted

Hey there! I thought this would be an interesting question to ask. I also wonder because since going gluten-free my psoriasis has continually gotten worse. I am definitely gluten-free, and my last blood work came back normal. Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?! I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time. Gracias! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

Does dairy free help with that?

elisabet Contributor
elisabet
Posted
Does dairy free help with that?

<{POST_SNAPBACK}>

for my son It helped both diary free and soy free,but it is so difficult.

Guest Viola
Guest Viola
Posted

Hi, my psoriasis seemed to get worse for the first year or two ... I think because I was so stressed out over the new diet, plus changing houses and other family stuff. But after that it continued to get better until now I only get it when some crises pops up. Also It does tend to show up in small patches in the hot humid days during the summer.

My arthritis improved after diagnosis, but now as I get older it is starting to get worse again.

nikki-uk Enthusiast
nikki-uk
Posted

My husband was dx with Psoriatic Arthritis about 2 yrs before celiac disease.

Psoriatic Arthritis is very similar to rheumatoid arthritis.

Anyhow ,the arthritis was very painful,very aggresive flare ups and he had a general decline in health.

Since going gluten-free a year ago-his psoriasis has disappeared completely-and has only had niggles in his joints(touch wood!)

The arthritis is still there-but no where as debilitating pre gluten-free. :)

redheadheather Explorer
redheadheather
Posted
for my son It helped both diary free and soy free,but it is so difficult.

<{POST_SNAPBACK}>

You're dairy and soy free as well as gluten-free w/your son? MY son was diagnosed w/milk and soy allergies as an infant - but we were told he outgrew them because he has no skin reactions to them anymore. What are your typical meals for your son? How old is he? I'm going to bring up these issues w/my son's doctor when we see them next week (how we know he's *really* outgrown these allergies, etc).

Thanks!

julie5914 Contributor
julie5914
Posted

Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

I wonder if maybe some of your headaches are due to gluten withdrawl .. something like caffine withdrawl causes headaches as well. I can remember getting headaches years ago, but can't remember if it was before or after I started the diet. Now I only get them if I have to skip my morning coffee :rolleyes: Also I find a good many Celiacs have problems with bouts of depression, would that cause headaches? Certainly stress does if we are dealing with family or friends that won't help, or at the very least co-operate with food issues.

Just some thoughts <_<

Rachel--24 Collaborator
Rachel--24
Posted
Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

<{POST_SNAPBACK}>

Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

maxcarr Newbie
maxcarr
Posted
Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

<{POST_SNAPBACK}>

Hi Rachel, I have hypo too, and was diagnosed with celiac about 18 months ago - but I'm now having my hair fall out quite a bit (again) ...I guess time to get the thyroid levels checked!

judy05 Apprentice
judy05
Posted
Hey there!  I thought this would be an interesting question to ask.  I also wonder because since going gluten-free my psoriasis has continually gotten worse.  I am definitely gluten-free, and my last blood work came back normal.  Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?!  I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time.  Gracias!  :)

<{POST_SNAPBACK}>

My auto immune disease got worse, I developed type 2 Diabetes! Before that I had to have half of my thyroid removed because it was destroying itself. I also get bad headaches from allergies but my migraines have lessened. You name it, I've had it. The only thing that helps is the gluten-free diet and exercise. I thank God I am losing weight so maybe the diabetes will get better without having to take medication.They say when one organ goes, they all go. Remember the skin is condidered an organ too.

jenvan Collaborator
jenvan
Posted
  • Author

Judy- interesting thoughts on developing diabetes... makes me wonder--maybe my skin is also worse b/c now i am absorbing more carbs, sugar etc...which is related to one of the theories for psoriasis. hmm...

julie5914 Contributor
julie5914
Posted

No, I wasn't on meds - I should have said I had symptoms like hypo, but the numbers were always normal until lately - now they are going up, and I will likely be on meds soon. Hopefully that will correct itself though. My doc also thinks that a lot of my autoimmune symptoms are linked to adrenal problems (which then later cause thyroid trouble). We shall see when she calls back next week with the results. I suppose it could be some sort of withdrawal - the headaches usually wake me up at night though - I sense they are blood pressure related (I have low bp).

Eliza13 Contributor
Eliza13
Posted

I had pain in my knee and edema, which went away after 3 weeks on the diet. I also had what I believe was DH on my elbows, which went away spontaneously prior to going on the diet.

Skar.

jenvan Collaborator
jenvan
Posted
  • Author

thanks for the responses all...trying to play 'detective' ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748
    Nina J
    Newest Member
    Nina J
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.