Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Get Gluten Type Reactions From Coffee?


gluten-is-kryptonite

Recommended Posts

gluten-is-kryptonite Apprentice

I went off coffee for about 5 months. When I started back on it I got some GI issues- not as bad as gluten but similar. I thought it may be from the little bit of creamer so I switched to rice milk which I never react to. I still seemed to have GI issues from coffee. Not cool. Anyone else find this? I know there is some info out there about the cross reactivity of coffee and gluten (even though coffee is Gluten-Free the body may react to it like gluten - or something to that effect).

 

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I don't believe there is any good scientific evidence that coffee looks like gluten to our bodies.  Its amazing how someone with an agenda, a slick website and products to sell becomes  a "medical" authority.  And even more amazing how it spreads as if it were true.

 

Open Original Shared Link

 

 

Coffee can be harsh to your system.  Maybe it is not for you.  I find that, if I don't have food or some milk with it, it hurts my stomach.

hannahisabrooks Newbie

What about other sources of caffeine? Do they make you sick too?

alesusy Explorer

I had issues with coffee and with coca cola as well. Now I'm just trying to avoid them.. The odd coffee (even an Italian espresso) doesn't bother me but a couple of cups of American coffee a day play havoc with my bowels. Ditto for tea. I've been gluten-free three months and I think my gut is just very sensitive (for now, hopefully) to anything harsh.

GFinDC Veteran

I gave up coffee some years ago.  After a few years I tried tea and am able to drink that now.  I haven't tried coffee though and don't plan to.

NorthernElf Enthusiast

I love my coffee and could never stop it (well, I wouldn't want to). However - if I have coffee on an empty stomach sometimes it can result in some gastric issues. My hubby (non celiac) is the same....esp. first thing in the morning.

 

Also - if I have been glutened coffee is more effective on me in that way. Like a lot of things (eg. dairy) - if I am already 'down' it doesn't take much to bother me.

cavernio Enthusiast

I have always had more of an effect of coffee than a similar amount of caffeine from tea or cola. My mom gets a pretty upset stomach from coffee (and she's the only person who bothered to get fully tested for celiac disease, she doesn't have it), and I have a cousin who gets heart palpitations from it if she drinks a large cup.

 

Caffeine will speed up your bowel movements, just like it might make you a bit more jittery or alert, it's all part of the same thing. I bet you were constipated for a little bit when you stopped your coffee 5 months ago...that's normal too because caffeine is a drug and your body will habituate to it, so stopping it will have the opposite effects of the caffeine until your body adjusts to not having any.

 

I occasionally have it myself still, but I kick myself everytime I do. The 'down' afterwards, b%$@#iness, tiredness, isn't worth the high I get. I'm getting better, think I've only had it twice the past 30 days.

 

Decaf still makes my tongue dry.

 

As far as cross-reactivity in general, I'd call celiac's reactions to hordein in barley a cross-reaction since it's not gliadin. Clearly cross-reactions can occur.

 

I wouldn't worry about coffee damaging your intestines. But you may have all sorts of other adverse reactions to it, celiac or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Maybe this could be the problem.  I looked at the USP food fraud database: Open Original Shared Link

 

They found barley, rye, soybeans, grain, malt, and corn in coffee.

 

I drink coffee, and I am super sensitive.  I stick with one brand, and I buy it whole and check through it so that I'm sure I'm getting pure coffee.

Kamma Explorer

The findings in that database are fascinating.  Especially about coffee being adulterated with those grains you mentioned, dilletantsteph. 

  • 3 weeks later...
GFinDC Veteran

I gave up coffee some years ago.  After a few years I tried tea and am able to drink that now.  I haven't tried coffee though and don't plan to.

 

well, take backs are free right?  So, I gave up regular tea for a few days and feel much better.  Not tired, not sleeping as much, actually have some energy too.  So tea isn't for me it seems.  It didn't seem to bother me right away.  but after a while it caused more and more symptoms.  Kind of snuck up on me.

Chiana Apprentice

Coffee is very acidic and high in caffeine, which can be hard on your stomach -- especially an empty stomach.  Both me and the non-celiac gent get a little stomach upset with coffee.  (I am not a stomach celiac.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.