Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-Free Bread


VeggieGal

Recommended Posts

VeggieGal Contributor

I've been gluten free for just over 10 weeks and for the last 4 weeks or so have started to feel some benefits. Over the last 3 days I've had griping tummy pain, d and c, extreme tiredness , sickly and achy arms and realised the only thing I've done different is I've been eating a Glutafin loaf of bread...could that really be the culprit? I've just read the ingredients and it does say it contains 'wheat starch'..so abit confused??

Anyone else have problems with shop bought gluten-free bread? I've been eating approx 98% wholefoods so maybe its just a shock to my system? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



julissa Explorer

I got this off their website:

 

Contains gluten free wheat starch which complies with the internationally agreed criteria for gluten free foods so suitable for a gluten free diet (Codex Alimentarius).

 

I wouldn't eat it. just saying.

VeggieGal Contributor

thanks Julissa..don't think I'll be eating it again either but also wonder if there is any gluten-free bread out there suitable..

Guess I'll keep sticking to wholefoods for now..i just wanted a change ..ah well

VeggieGal Contributor

might try the Genius bread as ive just looked at the ingredients and it doesnt seem to contain codex wheat starch (i don't think)...its just expensive and I need to find a shop thats sells it!

DezMae Newbie

might try the Genius bread as ive just looked at the ingredients and it doesnt seem to contain codex wheat starch (i don't think)...its just expensive and I need to find a shop thats sells it!

Udies bread is great. Its the best kind of gluten free bread Ive tasted :)

VeggieGal Contributor

thanks DesMae, i will check it out :)

Gemini Experienced

might try the Genius bread as ive just looked at the ingredients and it doesnt seem to contain codex wheat starch (i don't think)...its just expensive and I need to find a shop thats sells it!

  The Genius bread, made in the UK, is awesome.  It has been licensed to Glutino in Canada and the US but it isn't the same Genius that I had in London.  I know they stock it at Whole Foods market in their London locations but I know they sell it elsewhere too.  Check their website and look for locations!  It does not contian wheat starch.  The brown bread is delicious.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VeggieGal Contributor

hi Gemini,

is this the same one?

Open Original Shared Link

only thing is, I don't have a sainsburys superstore close to me and doubt they'll sell them in their smaller shops. I think its available on prescription i'm having problems getting that.

I'll also try their website, maybe they'll deliver.

cheers

Gemini Experienced

hi Gemini,

is this the same one?

Open Original Shared Link

only thing is, I don't have a sainsburys superstore close to me and doubt they'll sell them in their smaller shops. I think its available on prescription i'm having problems getting that.

I'll also try their website, maybe they'll deliver.

cheers

 

 

That's the one!  I would check the smaller Sainsbury's anyway to see if they have it.  You could also ask them to stock it.  Maybe they take requests like that.  I know they deliver in the UK because I checked where they deliver to.  That would be a good option if it isn't available within a short distance from your home. 

 

I wasn't aware that the Rx stuff included mainstream grocery purchases.  Why are you having trouble getting that if you've been diagnosed?  They like to make our lives difficult, don't they?  :angry:   Give it a shot because it's very good bread and the ingredients have nothing that you need to worry about.  The woman who developed this bread has a dedicated facility.....all gluten-free stuff!

VeggieGal Contributor

That's the one! I would check the smaller Sainsbury's anyway to see if they have it. You could also ask them to stock it. Maybe they take requests like that. I know they deliver in the UK because I checked where they deliver to. That would be a good option if it isn't available within a short distance from your home.

I wasn't aware that the Rx stuff included mainstream grocery purchases. Why are you having trouble getting that if you've been diagnosed? They like to make our lives difficult, don't they? :angry: Give it a shot because it's very good bread and the ingredients have nothing that you need to worry about. The woman who developed this bread has a dedicated facility.....all gluten-free stuff!

oooh never thought about asking them to stock it..great idea :)

yes, they love to make it difficult for us...as though its not tough enough!.. although i got dx as 98% positive of having coeliac due to blood test, symptoms and gluten challenge...theyve tried twice in the last couple of yrs to give me a biopsy (last time the sedation didnt work) and I just couldnt tolerate it (very anxious after having a total thyroidectomy and vocal cord was cut); hence nhs won't give me prescription even tho consulant has put it in writing that im coeliac and need to follow a gluten-free diet. I told them to put me to sleep to do biopsy but they said its dangerous me not been aware of what they are doing or following their instructions.

Ah well...what will be, will be .....

I'll make a visit to Sainsburys tomos :)

edited to include:

Open Original Shared Link

look under 'related downloads' of food available on prescription

Gemini Experienced

I mean, really......they have to get rid of that biopsy as a Gold Standard.  It's ridiculous!  I can understand your frustration because I did not have the biopsy, either.  Refused it because I have other medical issues that would have made it difficult to do plus the thing with sedation.  I am one of those people who have a tendency to wake up half way through lighter sedation and then would have freaked out if I had a tube down my throat so I totally get what you are saying.  Fortunately, my blood work was so high and I failed all the tests that my doctor believes the results.  But we also do not have food on Rx so the need to prove is not so great. 

 

I am impressed that Genius is included on the list as most of what I saw in Britain for gluten-free bread was not impressive.  We have a lot of yucky stuff here also, I am not bashing Britian's gluten-free food.  I think they do a pretty good job in many ways and I have eaten the cookies and treats when I travel there and some are great. I love those digestive biscuits you guys have and finally found the gluten-free ones.....they taste the same as the gluten ones. Genius has other breads and Naan bead too.  I LOVE Naan bread and haven't had it since I was diagnosed 8 years ago.  I will be looking for that on my trip this Fall!  ;)

 

Keep pushing NHS.....make them give you what you need.  The squeaky wheel gets the most oil....... :D

 

 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748

    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.