Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unknown Leg Pain. Result Of Celiacs?

NatZag

By NatZag
in Related Issues & Disorders

Recommended Posts

NatZag Rookie
NatZag
Posted

I have a pain in my lower right leg that has been occurring randomly over the last few months. It almost feels like my bone is about to split or theres a ton of pressure on the bones. I'm concerned that it has something to do with osteoporosis but I think I am just psyching myself out. I know there is a heightened risk with celiac disease so that is why I am concerned. I guess I should mention that I am only 20 years old and have been gluten free for about a year and a half now. Should I get anything specific checked out by a doctor or should I just mention that my leg feels this way? Has anyone else had this pain?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I don't have any specific advice since I have not had any bone pain, but as a mom I'd recommend seeing a doctor.  Take care.

shadowicewolf Proficient
shadowicewolf
Posted

Shin splints perhaps? Open Original Shared Link

Gemini Experienced
Gemini
Posted

I had bone pain for awhile and it was my femur (thigh) bone.  That sucker hurt for 3 years after I went gluten-free.  I was limping some days, it was so bad.  Bone pain....not anything else.  I also have osteoporosis but that is a silent disease.  You usually never have pain with it or any discomfort....until you break a bone.  I am weight training to reverse that but have never broken a bone.

 

I doubt you have osteo because you are young and, even if your bones were a little compromised, at your age you should regenerate bone pretty easily because you still have your hormones. At 20, you have good levels of hormones too. 

 

I had an x-ray of my leg done and the doctor said the bone looked perfect....no arthritis or anything else.  So I went home and dealt with it.  At the 3 year mark of

being gluten-free, all of a sudden one day, I realized that my leg did not hurt anymore.  It has never returned.  I think it was either a vitamin deficiency that resolved once I healed or it was a neurological issue that healed and the leg stopped hurting.

 

You have been gluten-free for a year and half and that is good but not very long, in Celiac terms.  It can sometimes take 3-4 years for pain issues to resolve.  You could ask for an x-ray but if it comes back OK, then I wouldn't worry.  You may wake up one day and it will be gone.  That is the norm for many.

 

I wish you luck but it most likely is one of those quirky things that happen to us for many different reasons. If you are really worried, ask for an x-ray.  Those are pretty easy to do!

janpell Apprentice
janpell
Posted

It may be shin splits, especially if you have taken up any activities such as jogging, tennis, fast paced walking or if you started wearing new shoes. Spring weather brings out the flattest of flats so these actually work your lower legs. I just broke in a pair of new running shoes that were as flat as I could get and then got shin splits - was also forewarned from the salesperson I bought them from that this would happen. And this was from everyday movement, not running. Just a few things to think of while you work out where the pain is coming from.  Good luck.

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

You might want to ask your doctor if these blood tests are appropriate for your symptoms:

 

CBC

Protein Electrophoresis
Immunofixation Electrophoresis

Immunoelectrophoresis

 

Do see a doctor.

Good luck and keep us posted.

notme Experienced
notme
Posted

have you moved somewhere or gotten a new job, etc, that has alot of stairs?  that (just in one leg and similar to shin splints) happens to me sometimes - one time my friend's elevator went out in her building and we had to walk it - 12 flights!!  it took them a week to get the part and oh, boy, i thought it was broken.  maybe try heat or ice?  to see if it goes away.  i think you are too young to worry with osteoperosis <sp but that is my opinion :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Here is the story of a little girl with Osteoporosis that was posted on this forum.

 

https://www.celiac.com/forums/topic/101118-questions-re-blood-tests/

 

 

When it comes to Celiac, don't take anything for granted.

Gemini Experienced
Gemini
Posted

Here is the story of a little girl with Osteoporosis that was posted on this forum.

 

https://www.celiac.com/forums/topic/101118-questions-re-blood-tests/

 

 

When it comes to Celiac, don't take anything for granted.

Osteoporosis does not cause any pain.  It's a silent disease.  Even if someone that young, or anyone under the age of menopause, had it, once they go gluten-free and heal, it almost always reverses itself easily, due to youth and hormones.

Older people can reverse it too but it takes work and dedicated exercise. 

  • 2 weeks later...
kareng Grand Master
kareng
Posted

You might want to ask your doctor if these blood tests are appropriate for your symptoms:

 

CBC

Protein Electrophoresis

Immunofixation Electrophoresis

Immunoelectrophoresis

 

Do see a doctor.

Good luck and keep us posted.

I'm sorry but....recommending electrophoresis? Why? Seems a bit odd & extreme to recommend.

 

Natzag-

Do you run or do a sport a lot? You might want to see the doctor. It could definitely be shin split type thing. It sounds a little like someone I know who had a stress fracture. It sort of came and went. They figured it started to heal and then, when she felt better and used it more, it got worse.

IrishHeart Veteran
IrishHeart
Posted

I'm sorry but....recommending electrophoresis? Why? Seems a bit odd & extreme to recommend.

 

Agreed.

Serum protein electrophoresis is most often done to screen for a disease such as Open Original Shared Link, Open Original Shared Link, orOpen Original Shared Link.

Not sure why would someone with leg pain would request these tests .

eers03 Explorer
eers03
Posted

Are you a runner or doing workouts/athletics?

IrishHeart Veteran
IrishHeart
Posted

I have bouts with shin splints from time to time. Most recently, it occurred after I had been carrying heavy things up the flight of stairs from the basement. I did this repeatedly over the course of an hour (we were spring cleaning)

 

It hurt like hell. Really bad. The PT/MT that I see told me to ice the area-as in rub an  ice cube briskly over the area quickly... and make it numb.

 

Then, she told me to massage it. Then, apply heat for a few minutes. Ice takes care of inflammation and heat makes it "pliable" and relaxes the muscles.

 

She said:  do this a few times... in that order. I did.

 

The next day, it was all better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    2. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    4. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    5. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,258
    • Most Online (within 30 mins)
      7,748
    TracyMc
    Newest Member
    TracyMc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.