Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Pain


Renaye

Recommended Posts

Renaye Contributor

I have no official diagnosis but I am gluten-free, DF, EF and peanut free. Have been feeling better until Monday when my long term side pain reared its ugly head. Today I layed on the floor after breakfast and took a stomach muscle relaxer to prevent me from passing out. My digestive tract feels like I have lesions in it. I don't have these pains often anymore, but not sure what is triggering it lately. I am severely constipated and take Miralax several days in a row then there is no need to take it for a week or two later. I have several questions:

1. What do you eat when your stomach hates food? I need to prepare chicken noodle soup and freeze it.

2. Could it be the miralax, although it has been a week since I took a dose?

3. I have also been eating soy icecream with strawberries and bananas in it before bedtime, oops.

4. Could I have been glutened?

Feeling really sad and sickly-like

Renaye


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

What side is that pain on?

 

You sound like i did when my gallbladder was going on me.

Renaye Contributor

My pain is on the left side and I believe it is colon related. I have had this pain since I was 13. I had my gallbladder checked out 2 years ago before I knew that I had something like a diagnosis and it is operating at the minimum of normal, I think 30%?? I wonder if it ever functions at a higher % after a change of diet? I have ate some sausage and brats lately...hum....

Renaye

cyclinglady Grand Master

My pain is on the left side and I believe it is colon related. I have had this pain since I was 13. I had my gallbladder checked out 2 years ago before I knew that I had something like a diagnosis and it is operating at the minimum of normal, I think 30%?? I wonder if it ever functions at a higher % after a change of diet? I have ate some sausage and brats lately...hum....

Renaye

I agree with Shadow.  It sounds like your gallbaldder.  My pain always was much lower and nowhere near my GB.  Pains started on and off at age 16.  Serious enough for me to most always pass out.  Had it removed when I was 45 while on a business trip to Las Vegas.  First time I had a HIDA scan (ultrasounds showed no stones and a healthy GB).  HIDA results showed a non-functioning gallbaldder (0%).   It was also infected.   I believe my GB would work on and off all those years and I was lucky finally to catch it when it wasn't working!  

Brandiwine Contributor

I know the pain your talking about and can be intestinal. Have you tried cutting out soy? Something must still be in your diet that you can't tolerate...

pricklypear1971 Community Regular

Constipation can cause stomach/intestine/colon pain...especially the type you're talking about. My son gets c, and had an X-ray for it. I asked the doctor if c could cause what he's been feeling and he said most definitely. He described some pretty ugly cases.

You need to find out why you are so constipated!

I agree you should have your gallbladder checked - don't want to miss that if its the problem.

cyclinglady Grand Master

I agree with Shadow.  It sounds like your gallbaldder.  My pain always was much lower and nowhere near my GB.  Pains started on and off at age 16.  Serious enough for me to most always pass out.  Had it removed when I was 45 while on a business trip to Las Vegas.  First time I had a HIDA scan (ultrasounds showed no stones and a healthy GB).  HIDA results showed a non-functioning gallbaldder (0%).   It was also infected.   I believe my GB would work on and off all those years and I was lucky finally to catch it when it wasn't working!  

You mentioned that your last HIDA scan reported a 30% function rate.  It might now be below 20% which is the cut-off for surgery.  Other than lower abdominal pain and passing out, I did not have the typical gallbladder symptoms.  

 

Non-functioning gallbladders run in our family.  Dad's one of 7 and 6 have had theirs removed.  I'm one of 27 first cousins, the fifth oldest and the fifth to have my gallbladder removed.  No stones for anyone.  Just works on and off until it starts to rot/"get hot"/infected.  I would have died if the infection would have spread.

 

Since you already have a gallbladder that was only functioning at 30%, I'd ask for a re-check.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Renaye Contributor

I will have my gallbladder rechecked when I go see my PCP. I am feeling better and have been doing alot of thinking. I alter my milks due to my theory of having a leaky gut. I over-did it with almond milk and have not reintroduced that back after 2 years. I don't do rice milk because I can't find anything other than Rice Dreams. I was altering coconut, soy and flax. Since I was on soy milk, last week and also ate soy ice cream the night before my pain, I am wondering if it is soy. I just love my mayo. Wah!! I feel like I am running out of options these days and don't know how to fix it.

Renaye

dilettantesteph Collaborator

Definitely have your doc check for anything serious.  I know I get stomach pain from gluten contamination so you might want to check for that.  Some of us are more sensitive to that than others.  It would help you to keep a food/symptom journal to look for connections with cc or other food intolerances.  I hope that you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,436
    • Most Online (within 30 mins)
      7,748

    Blozo
    Newest Member
    Blozo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.