Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Pain

Renaye

Recommended Posts

Renaye Contributor
Renaye
Posted

I have no official diagnosis but I am gluten-free, DF, EF and peanut free. Have been feeling better until Monday when my long term side pain reared its ugly head. Today I layed on the floor after breakfast and took a stomach muscle relaxer to prevent me from passing out. My digestive tract feels like I have lesions in it. I don't have these pains often anymore, but not sure what is triggering it lately. I am severely constipated and take Miralax several days in a row then there is no need to take it for a week or two later. I have several questions:

1. What do you eat when your stomach hates food? I need to prepare chicken noodle soup and freeze it.

2. Could it be the miralax, although it has been a week since I took a dose?

3. I have also been eating soy icecream with strawberries and bananas in it before bedtime, oops.

4. Could I have been glutened?

Feeling really sad and sickly-like

Renaye

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

What side is that pain on?

 

You sound like i did when my gallbladder was going on me.

Renaye Contributor
Renaye
Posted
  • Author

My pain is on the left side and I believe it is colon related. I have had this pain since I was 13. I had my gallbladder checked out 2 years ago before I knew that I had something like a diagnosis and it is operating at the minimum of normal, I think 30%?? I wonder if it ever functions at a higher % after a change of diet? I have ate some sausage and brats lately...hum....

Renaye

cyclinglady Grand Master
cyclinglady
Posted

My pain is on the left side and I believe it is colon related. I have had this pain since I was 13. I had my gallbladder checked out 2 years ago before I knew that I had something like a diagnosis and it is operating at the minimum of normal, I think 30%?? I wonder if it ever functions at a higher % after a change of diet? I have ate some sausage and brats lately...hum....

Renaye

I agree with Shadow.  It sounds like your gallbaldder.  My pain always was much lower and nowhere near my GB.  Pains started on and off at age 16.  Serious enough for me to most always pass out.  Had it removed when I was 45 while on a business trip to Las Vegas.  First time I had a HIDA scan (ultrasounds showed no stones and a healthy GB).  HIDA results showed a non-functioning gallbaldder (0%).   It was also infected.   I believe my GB would work on and off all those years and I was lucky finally to catch it when it wasn't working!  

Brandiwine Contributor
Brandiwine
Posted

I know the pain your talking about and can be intestinal. Have you tried cutting out soy? Something must still be in your diet that you can't tolerate...

pricklypear1971 Community Regular
pricklypear1971
Posted

Constipation can cause stomach/intestine/colon pain...especially the type you're talking about. My son gets c, and had an X-ray for it. I asked the doctor if c could cause what he's been feeling and he said most definitely. He described some pretty ugly cases.

You need to find out why you are so constipated!

I agree you should have your gallbladder checked - don't want to miss that if its the problem.

cyclinglady Grand Master
cyclinglady
Posted

I agree with Shadow.  It sounds like your gallbaldder.  My pain always was much lower and nowhere near my GB.  Pains started on and off at age 16.  Serious enough for me to most always pass out.  Had it removed when I was 45 while on a business trip to Las Vegas.  First time I had a HIDA scan (ultrasounds showed no stones and a healthy GB).  HIDA results showed a non-functioning gallbaldder (0%).   It was also infected.   I believe my GB would work on and off all those years and I was lucky finally to catch it when it wasn't working!  

You mentioned that your last HIDA scan reported a 30% function rate.  It might now be below 20% which is the cut-off for surgery.  Other than lower abdominal pain and passing out, I did not have the typical gallbladder symptoms.  

 

Non-functioning gallbladders run in our family.  Dad's one of 7 and 6 have had theirs removed.  I'm one of 27 first cousins, the fifth oldest and the fifth to have my gallbladder removed.  No stones for anyone.  Just works on and off until it starts to rot/"get hot"/infected.  I would have died if the infection would have spread.

 

Since you already have a gallbladder that was only functioning at 30%, I'd ask for a re-check.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Renaye Contributor
Renaye
Posted
  • Author

I will have my gallbladder rechecked when I go see my PCP. I am feeling better and have been doing alot of thinking. I alter my milks due to my theory of having a leaky gut. I over-did it with almond milk and have not reintroduced that back after 2 years. I don't do rice milk because I can't find anything other than Rice Dreams. I was altering coconut, soy and flax. Since I was on soy milk, last week and also ate soy ice cream the night before my pain, I am wondering if it is soy. I just love my mayo. Wah!! I feel like I am running out of options these days and don't know how to fix it.

Renaye

dilettantesteph Collaborator
dilettantesteph
Posted

Definitely have your doc check for anything serious.  I know I get stomach pain from gluten contamination so you might want to check for that.  Some of us are more sensitive to that than others.  It would help you to keep a food/symptom journal to look for connections with cc or other food intolerances.  I hope that you feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,106
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.